Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 > > > > > > Bruce, > > > How are you? > > > What does your CT say?Does a CT scan reveal more than > > > a PFT and X-ray combine?hope you have a good report. > > > > > > Regarding the above message from Bruce, Nice to meet you! Sounds like we have a lot in common. I'm new to this board, and just out of the hospital with my surprising IPF diagnosis (after 9 days of CTs, Xrays, Pulmonoscopy and lung biopsies). I've been on a combination of Company disability and Social Security for 18 years with several co-morbidities, each with its own cluster of specialists trying differential diagnoses. Over time, most of my " idiopathic " , untreatable and incurable " Syndromes " now are accepted as everyday GP knowledge. Funny how sometimes YOU are the only one who REALLY believes in your complex symptoms. I suppose now, I can cross Chronic Fatigue Syndrome off my list! In some strange way, it is comforting to actually have a disease that is so obviously not " in my head " , or worse...Munchhausen's, of all things (an intern actually put that musing in my Vanderbilt chart in 1992...but I always request a self-copy of my records, so I was able to get his supervisor to delete that blot. Now, they call that disease, Interstitial Cystitis, and Urologists are making a bundle off attempting to treat it!) Terri Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 > > > > > > Bruce, > > > How are you? > > > What does your CT say?Does a CT scan reveal more than > > > a PFT and X-ray combine?hope you have a good report. > > > > > > Regarding the above message from Bruce, Nice to meet you! Sounds like we have a lot in common. I'm new to this board, and just out of the hospital with my surprising IPF diagnosis (after 9 days of CTs, Xrays, Pulmonoscopy and lung biopsies). I've been on a combination of Company disability and Social Security for 18 years with several co-morbidities, each with its own cluster of specialists trying differential diagnoses. Over time, most of my " idiopathic " , untreatable and incurable " Syndromes " now are accepted as everyday GP knowledge. Funny how sometimes YOU are the only one who REALLY believes in your complex symptoms. I suppose now, I can cross Chronic Fatigue Syndrome off my list! In some strange way, it is comforting to actually have a disease that is so obviously not " in my head " , or worse...Munchhausen's, of all things (an intern actually put that musing in my Vanderbilt chart in 1992...but I always request a self-copy of my records, so I was able to get his supervisor to delete that blot. Now, they call that disease, Interstitial Cystitis, and Urologists are making a bundle off attempting to treat it!) Terri Lynn Quote Link to comment Share on other sites More sharing options...
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