Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 Lara, What kind of bad taste is it? Is it sour and do you have any film in your mouth, like thrush? I've had to take Diflucan for that a number of times, even before transplant when my immune system would go low. If it is a metallic taste, you could be anemic - also something that can result from having PSC for a while. I was anemic for years before and now after my transplant. I'm sure other tastes can mean other things, too. It might be worth a phone call to ask the doc... Also, I mention this because despite my good doctors and pharmacist, no one told me not to take the Urso and the Questran together. You do know to take them hours apart. It is probably best to take the Questran alone...I only mention it because everyone assumed I knew it and I took them together for two years! HTH, Deb in VA PSC 1998...LDLTX 5/19/2006...post-tx issues finally calming down, I think... > I take Urso (1200mg), > naltrexone and questran daily. Does anyone else have this too [bad taste in mouth] or know > if it would be related to the PSC or indicative of anything that I > should bug my hepatologist about? > Thanks for any thoughts. > Lara Andersen > 39 y.o. Mom to 2 great girls > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 are you taking high doses of zinc? that can make food taste metallic. -------------- Original message -------------- Hello all,I've been receiving treatment for PSC for about 2 years now, though it took a few years to figure out what was going on with me prior to diagnosis. I've developed a bad taste in my mouth for about the last 4 weeks, I'd been on a vacation in Mexico and thought it was the water/ice, but it's persisted since being home for 3 weeks. I take Urso (1200mg), naltrexone and questran daily. Does anyone else have this too or know if it would be related to the PSC or indicative of anything that I should bug my hepatologist about? Thanks for any thoughts.Lara Andersen39 y.o. Mom to 2 great girls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 When I was on Actigall I remember the sheet that came with the prescription mentioned a metallic taste as a possible side effect. The URSO info doesn't seem to mention it. Even though the active ingredient is the same, the formulation is different. Martha (MA) Does anyone else have this too [bad > taste in mouth] or know > > if it would be related to the PSC or indicative of anything that I > > should bug my hepatologist about? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 Thanks for the reply Deb, I actually have had a handful of times failry recently that I had an excess of filmy stuff in my mouth(not painful and no open sores) and just fished it out with a kleenex, gross- sorry, but hadn't connected it with the psc. I'll definitely bring this up as well as a look for anemia, as I've had several nose bleeding episodes that we're trying to account for too. I do take the questran at least 2 hrs after the actigal, which is a nuisance to have to drag around with me- but appreciate the info. again, thank you Lara > > > I take Urso (1200mg), > > naltrexone and questran daily. Does anyone else have this too [bad > taste in mouth] or know > > if it would be related to the PSC or indicative of anything that I > > should bug my hepatologist about? > > Thanks for any thoughts. > > Lara Andersen > > 39 y.o. Mom to 2 great girls > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Arne,I had the same problem with my breath...People would back away..I thought it was my gastritis..and still could be..I took Tagamet for years...and was told by a GI I would have to take it for life..I now take prolesc sp? and ordered TriOral from QVC..It seems to help and of course for extra measure ......gum..I do notice people getting close to me LOL. in Georgia from Ohio Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
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