Re: New Member - General Questions

[Guest guest]

Mike,

I am sorry about your daughter being

diagnosed with PSC, but I am happy you found our group. There are some very

knowledgeable and kind people in this group that will be able to answer just

about any question you might have, not only the medical side, but all other

aspects as well.

About the symptoms you gave. Her case does

indeed not sound like a classic case of PSC.

Itching is a classic PSC symptom

Nausea and fever can be symptoms of

cholangitis (or any infection).

Tingling, shaking and back pain are

symptoms that some people in this group complain about.

Blurred vision, dizziness, trouble with

balance and food not going down are not things that I remember anyone

complaining about, maybe others in the group can relate to those.

Welcome to this group,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of soc310

Sent: Sunday, April 29, 2007 06:12

To:

Subject: New Member

- General Questions

4/28/07

Hi,

Our adult daughter has recently been diagnosed with PSC, although it

is described as " not a classic case. " She was hospitalized for

several days while tests were run, had a tube protracting from her

body, numerous procedures (e.g., ERCP), and currently has a stent.

We are told her liver is in pretty good shape and she is not

currently in need for a transplant.

PSC and its affects are new to us, and we are still trying to learn

more about the disease and its symptoms. I am listing below some of

the symptoms she is experiencing and would be interested in receiving

feedback from the group on whether, in your experiences, these are

common to, or associated with, PSC. Thank you in advance for any

feedback you can provide.

--itching - while we know this is a symptom, does anyone have any

suggestions on how to provide relief from this. She is currently

taking Benadryl?

--difficulty walking, especially lifting her feet. Has trouble

maintaining her balance.

--strong back pain.

--arms and fingers and fingertips tingle.

--blurred vision, hard to read (one of favorite things to do).

--dizziness.

--nauseous.

--bad headaches.

--body temperature- always seems to be hot.

--shaking of the body, especially arms, hands, and face.

--says her food feels like it is not going down - staying in throat

or on top of chest.

Mike

[Guest guest]

Chaim,

Thank you for your reply, and your response about the symptoms our

daughter is experiencing.

Mike

>

> Mike,

>

>

>

> I am sorry about your daughter being diagnosed with PSC, but I am

happy you

> found our group. There are some very knowledgeable and kind people

in this

> group that will be able to answer just about any question you might

have,

> not only the medical side, but all other aspects as well.

>

>

>

> About the symptoms you gave. Her case does indeed not sound like a

classic

> case of PSC.

>

>

>

> Itching is a classic PSC symptom

>

> Nausea and fever can be symptoms of cholangitis (or any infection).

>

> Tingling, shaking and back pain are symptoms that some people in

this group

> complain about.

>

> Blurred vision, dizziness, trouble with balance and food not going

down are

> not things that I remember anyone complaining about, maybe others

in the

> group can relate to those.

>

>

>

> Welcome to this group,

>

>

>

> Chaim Boermeester, Israel

>

>

>

>

>

> _____

>

> From: [mailto:psc-

support ] On

> Behalf Of soc310

> Sent: Sunday, April 29, 2007 06:12

> To:

> Subject: New Member - General Questions

>

>

>

> 4/28/07

>

> Hi,

>

> Our adult daughter has recently been diagnosed with PSC, although

it

> is described as " not a classic case. " She was hospitalized for

> several days while tests were run, had a tube protracting from her

> body, numerous procedures (e.g., ERCP), and currently has a stent.

> We are told her liver is in pretty good shape and she is not

> currently in need for a transplant.

>

> PSC and its affects are new to us, and we are still trying to learn

> more about the disease and its symptoms. I am listing below some of

> the symptoms she is experiencing and would be interested in

receiving

> feedback from the group on whether, in your experiences, these are

> common to, or associated with, PSC. Thank you in advance for any

> feedback you can provide.

>

> --itching - while we know this is a symptom, does anyone have any

> suggestions on how to provide relief from this. She is currently

> taking Benadryl?

>

> --difficulty walking, especially lifting her feet. Has trouble

> maintaining her balance.

>

> --strong back pain.

>

> --arms and fingers and fingertips tingle.

>

> --blurred vision, hard to read (one of favorite things to do).

>

> --dizziness.

>

> --nauseous.

>

> --bad headaches.

>

> --body temperature- always seems to be hot.

>

> --shaking of the body, especially arms, hands, and face.

>

> --says her food feels like it is not going down - staying in throat

> or on top of chest.

>

> Mike

>

[Guest guest]

MIke Many people in this group have other illnesses as PSC is autoimmune and these diseases like to stick together. Has her MD checked her out for anything else, ie MS? MS is considered autoimmune and many of her symptoms sound like that. I may be wrong (I pray I am) but get all of her checked out. Does she have a good internist who can do a thorough exam? Good Luck Martisoc310 wrote: 4/28/07Hi,Our adult daughter has recently been diagnosed with

PSC, although it is described as "not a classic case." She was hospitalized for several days while tests were run, had a tube protracting from her body, numerous procedures (e.g., ERCP), and currently has a stent. We are told her liver is in pretty good shape and she is not currently in need for a transplant.PSC and its affects are new to us, and we are still trying to learn more about the disease and its symptoms. I am listing below some of the symptoms she is experiencing and would be interested in receiving feedback from the group on whether, in your experiences, these are common to, or associated with, PSC. Thank you in advance for any feedback you can provide.--itching - while we know this is a symptom, does anyone have any suggestions on how to provide relief from this. She is currently taking Benadryl?--difficulty walking, especially lifting her feet. Has trouble maintaining her

balance.--strong back pain.--arms and fingers and fingertips tingle.--blurred vision, hard to read (one of favorite things to do).--dizziness.--nauseous.--bad headaches.--body temperature- always seems to be hot.--shaking of the body, especially arms, hands, and face.--says her food feels like it is not going down - staying in throat or on top of chest.Mike

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

>

> 4/29/07

Hi Marie,

She is and has been taking numerous medications - currently -

Ursodiol, singular, ambien, benadryl, as well as vitamins 1-A-Day,

Super K, D, E, and Super Cucumin.

Mike

>

> <Mike,

>

> Some of the symptoms sound like they may be drug interactions. Is

she taking

> any medicine?

>

> -Marie

>

> _________________________________________________________________

> Interest Rates NEAR 39yr LOWS! $430,000 Mortgage for $1,299/mo -

Calculate

> new payment

> http://www.lowermybills.com/lre/index.jsp?sourceid=lmb-9632-

19132 & moid=14888

>