Re: LDN....Re: … Please refresh my memory

[Guest guest]

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits.  Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099.  When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS.  Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily. 

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it.  I know Dan gets LDN from the

neurologist at UCSF.  I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too.  My opinion:)

You can't be on narcotics when on LDN because they act against

each other.  Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects.  At least

that's what I think I remember;)

hugs

 

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

 

 

[Guest guest]

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits.  Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099.  When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS.  Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily. 

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it.  I know Dan gets LDN from the

neurologist at UCSF.  I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too.  My opinion:)

You can't be on narcotics when on LDN because they act against

each other.  Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects.  At least

that's what I think I remember;)

hugs

 

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

 

 

[Guest guest]

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits.  Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099.  When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS.  Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily. 

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it.  I know Dan gets LDN from the

neurologist at UCSF.  I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too.  My opinion:)

You can't be on narcotics when on LDN because they act against

each other.  Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects.  At least

that's what I think I remember;)

hugs

 

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

 

 

[Guest guest]

It could well be trigeminal neuralgia. It can effect the eye, the sinus area (maxillary) and mandibular area--teeth/gums, near the ear. You should see your neuro as soon as you can and have him prescribe something, like neurontin (gabapentin), trileptal, lamictal, or something else. My pain didn't go away with brain surgery (microvascular decompression), or 2 gamma knife procedures--although the 2nd one helped some, but I still need neurontin and lamictal.Best wishes on this, Donna. I know the pain that TN can cause, and it can be quite bad at times. Don't 'mess around' with it.love ya,KateTo: MSersLife Sent: Fri, April 22, 2011 3:48:34 PMSubject: Re: LDN....Re: … Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits. Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099. When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS. Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it. I know Dan gets LDN from the

neurologist at UCSF. I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against

each other. Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects. At least

that's what I think I remember;)

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

[Guest guest]

It could well be trigeminal neuralgia. It can effect the eye, the sinus area (maxillary) and mandibular area--teeth/gums, near the ear. You should see your neuro as soon as you can and have him prescribe something, like neurontin (gabapentin), trileptal, lamictal, or something else. My pain didn't go away with brain surgery (microvascular decompression), or 2 gamma knife procedures--although the 2nd one helped some, but I still need neurontin and lamictal.Best wishes on this, Donna. I know the pain that TN can cause, and it can be quite bad at times. Don't 'mess around' with it.love ya,KateTo: MSersLife Sent: Fri, April 22, 2011 3:48:34 PMSubject: Re: LDN....Re: … Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits. Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099. When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS. Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it. I know Dan gets LDN from the

neurologist at UCSF. I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against

each other. Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects. At least

that's what I think I remember;)

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

[Guest guest]

It could well be trigeminal neuralgia. It can effect the eye, the sinus area (maxillary) and mandibular area--teeth/gums, near the ear. You should see your neuro as soon as you can and have him prescribe something, like neurontin (gabapentin), trileptal, lamictal, or something else. My pain didn't go away with brain surgery (microvascular decompression), or 2 gamma knife procedures--although the 2nd one helped some, but I still need neurontin and lamictal.Best wishes on this, Donna. I know the pain that TN can cause, and it can be quite bad at times. Don't 'mess around' with it.love ya,KateTo: MSersLife Sent: Fri, April 22, 2011 3:48:34 PMSubject: Re: LDN....Re: … Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile (probably should have kept my fingers still on that

question).. but I am ta thinking that more and more doctors are

recognizing, as you said, LDN and it's benefits. Pretty much

like my primary insurance company doing an authorization for my

Provigil from no until 2099. When I mentioned my surprise on

that to my health care manager from Highmark, she said, it was

done that way because they (Highmark) recognize (now) the actual

benefit of that drug for people with MS. Whereas, before now,

it was an uphill struggle to have something prescribed

"off-label" and have it approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good

for pain either, and would cancel out the LDN... Then I guess

that I wouldn't be able to switch to LDN either, because of the

prescription for the ocular migraines (that I still don't

understand.. the ocular migraines, not the prescription..

LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining

someone's holiday weekend, and confusing a bunch of doctors in

the ER as well.. IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty sure that a toothache stays a toothache and doesn't go

away during the day, only to come back at night, but not every

night.. or might be here during the day, but not at night.. and

right now, I feel like I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN

for me and had no problem with it. I know Dan gets LDN from the

neurologist at UCSF. I think if the University of California at

San Francisco is prescribing LDN then other neuros should take

another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against

each other. Naltrexone was originally used in treatment of

alcoholism and drug abuse to mute their effects. At least

that's what I think I remember;)

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

[Guest guest]

Thanks Kate,

I've been wondering if it is TN.. but I do know there are teeth

in there that HAVE to come out.. I know that the top right "eye"

tooth supposedly has an abscess.. Dentist did show me the

x-ray.. I couldn't quite make out the abscess though...  My

neurologist did write a letter to my primary insurance company

explaining that it IS a medical necessity that these teeth come

out (and with the MS, any infection or abscess in a tooth.. well

could cause a flare, and I'm hoping that the insurance company

will agree with the neuro & me, that we don't want no

stinkin' flares)

I'll probably be heading for the Emergency Room tonight -- later

so they aren't so busy, if I can hold out that long -- Going to

set somebody up for a "House" experience... I'll be hitting the

ER of the hospital where not only my neurologist (and his group)

reside, but the dental school residents as well... Let them

figure out what's going on, so long as they get the pain to

stop..

I'm already taking 900mg of Gabapentin per day, and another

1,500mg of Keppra.. Gabapentin for the nerve pain (burning &

great toe playing "reach for the stars").. Keppra for another

type of spasm or nerve pain.. keeps the muscle from trying to

separate from the shin bone (which is what it felt like, and

actually looked like to some extent.. could run a finger down

the little gulley between shin & muscle when they started)..

Guess time will tell on what's going on.. but I'll keep ya'll

posted.. Just crossing my fingers that if I make this trip

tonight, they don't decide they have to keep me.. don't wanna

spend the holiday in the hospital.. nor 's "weekend" off..

(he usually doesn't get Saturdays off, unless by special

request, and definitely not when the boss isn't the one on

call.. but he is this weekend.. YAY ME!!! LOL)..

HUGS

|)onna

It could

well be trigeminal neuralgia. It can effect the eye, the

sinus area (maxillary) and mandibular area--teeth/gums,

near the ear. You should see your neuro as soon as you can

and have him prescribe something, like neurontin

(gabapentin), trileptal, lamictal, or something else. My

pain didn't go away with brain surgery (microvascular

decompression), or 2 gamma knife procedures--although the

2nd one helped some, but I still need neurontin and

lamictal.

Best wishes on this, Donna. I know the pain that TN can

cause, and it can be quite bad at times. Don't 'mess

around' with it.

love ya,

Kate

From:

|)onna

To:

MSersLife

Sent: Fri,

April 22, 2011 3:48:34 PM

Subject:

Re: LDN....Re: … Please refresh my memory

 

Sharon,

I'm ta betting... since I haven't checked into LDN

for quite awhile (probably should have kept my

fingers still on that question).. but I am ta

thinking that more and more doctors are recognizing,

as you said, LDN and it's benefits.  Pretty much

like my primary insurance company doing an

authorization for my Provigil from no until 2099. 

When I mentioned my surprise on that to my health

care manager from Highmark, she said, it was done

that way because they (Highmark) recognize (now) the

actual benefit of that drug for people with MS. 

Whereas, before now, it was an uphill struggle to

have something prescribed "off-label" and have it

approved easily. 

And on the second point, Butalbital (Esgic) wouldn't

be any good for pain either, and would cancel out

the LDN... Then I guess that I wouldn't be able to

switch to LDN either, because of the prescription

for the ocular migraines (that I still don't

understand.. the ocular migraines, not the

prescription.. LOL)...

Oh good grief.. wonder if I'm going to be told that

I'm having migraines in my teeth now?? Looks as if

I'm might be ruining someone's holiday weekend, and

confusing a bunch of doctors in the ER as well.. IF

the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a

toothache... but I'm pretty sure that a toothache

stays a toothache and doesn't go away during the

day, only to come back at night, but not every

night.. or might be here during the day, but not at

night.. and right now, I feel like I've got an

earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected

neurologist precribed LDN for me and had no problem

with it.  I know Dan gets LDN from the neurologist at

UCSF.  I think if the University of California at San

Francisco is prescribing LDN then other neuros should

take another look at it too.  My opinion:)

You can't be on narcotics when on LDN because they act

against each other.  Naltrexone was originally used in

treatment of alcoholism and drug abuse to mute their

effects.  At least that's what I think I remember;)

hugs

 

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

 

 

[Guest guest]

Donna you are in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> * Re: LDN....Re: … Please refresh my memory

>>

>> Sharon,

>>

>> I'm ta betting... since I haven't checked into LDN for quite awhile

>> (probably should have kept my fingers still on that question).. but I

>> am ta thinking that more and more doctors are recognizing, as you

>> said, LDN and it's benefits. Pretty much like my primary insurance

>> company doing an authorization for my Provigil from no until 2099.

>> When I mentioned my surprise on that to my health care manager from

>> Highmark, she said, it was done that way because they (Highmark)

>> recognize (now) the actual benefit of that drug for people with MS.

>> Whereas, before now, it was an uphill struggle to have something

>> prescribed " off-label " and have it approved easily.

>>

>> And on the second point, Butalbital (Esgic) wouldn't be any good for

>> pain either, and would cancel out the LDN... Then I guess that I

>> wouldn't be able to switch to LDN either, because of the prescription

>> for the ocular migraines (that I still don't understand.. the ocular

>> migraines, not the prescription.. LOL)...

>>

>> Oh good grief.. wonder if I'm going to be told that I'm having

>> migraines in my teeth now?? Looks as if I'm might be ruining someone's

>> holiday weekend, and confusing a bunch of doctors in the ER as well..

>> IF the pain starts up again tonight in my jaw..

>>

>> I hate having to head for the ER.. for a toothache... but I'm pretty

>> sure that a toothache stays a toothache and doesn't go away during the

>> day, only to come back at night, but not every night.. or might be

>> here during the day, but not at night.. and right now, I feel like

>> I've got an earache..

>>

>> That's Trigeminal Neuralgia, isn't it?

>>

>> HUGS

>> |)onna

>>

>>

>>

>>

>>> My well respected neurologist precribed LDN for me and had no problem

>>> with it. I know Dan gets LDN from the neurologist at UCSF. I think

>>> if the University of California at San Francisco is prescribing LDN

>>> then other neuros should take another look at it too. My opinion:)

>>>

>>> You can't be on narcotics when on LDN because they act against each

>>> other. Naltrexone was originally used in treatment of alcoholism and

>>> drug abuse to mute their effects. At least that's what I think I

>>> remember;)

>>>

>>> hugs

>>> Sharon

>>> This email is a natural hand made product. The slight variations in

>>> spelling and grammar enhance its individual character and beauty and

>>> in no way are to be considered flaws or defects.

>>>

>>

>>

>>

____________________________________________________________

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[Guest guest]

Thank You nne,

They are very much appreciated

HUGS

|)onna

Donna you are in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world"

"May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever"

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

* Re: LDN....Re: … Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite awhile

(probably should have kept my fingers still on that question).. but I

am ta thinking that more and more doctors are recognizing, as you

said, LDN and it's benefits. Pretty much like my primary insurance

company doing an authorization for my Provigil from no until 2099.

When I mentioned my surprise on that to my health care manager from

Highmark, she said, it was done that way because they (Highmark)

recognize (now) the actual benefit of that drug for people with MS.

Whereas, before now, it was an uphill struggle to have something

prescribed "off-label" and have it approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good for

pain either, and would cancel out the LDN... Then I guess that I

wouldn't be able to switch to LDN either, because of the prescription

for the ocular migraines (that I still don't understand.. the ocular

migraines, not the prescription.. LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines in my teeth now?? Looks as if I'm might be ruining someone's

holiday weekend, and confusing a bunch of doctors in the ER as well..

IF the pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm pretty

sure that a toothache stays a toothache and doesn't go away during the

day, only to come back at night, but not every night.. or might be

here during the day, but not at night.. and right now, I feel like

I've got an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN for me and had no problem

with it. I know Dan gets LDN from the neurologist at UCSF. I think

if the University of California at San Francisco is prescribing LDN

then other neuros should take another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against each

other. Naltrexone was originally used in treatment of alcoholism and

drug abuse to mute their effects. At least that's what I think I

remember;)

hugs

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and

in no way are to be considered flaws or defects.

____________________________________________________________

Publish your photos in seconds for FREE

TRY IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if4

------------------------------------