Hello all- I am new to the group

[Guest guest]

My name is Jean and my husband Owen was diagnosed with PSC last October. I have been reading your posts on and off for months. I feel like I know many of you now so I decided I better get on here and introduce myself. With what has been happening recently in the group with Ken, and others, I didn't know if I should write when you guys have more important things to read about than a new member. But today I am back to thinking I want to say hello, and to tell you all that you seem like a wonderful, helpful, loving, living, caring group, and that I am praying for you all! The things you guys go through either yourselves or with your loved ones are amazing. Your will and drive and fighting spirits are inspiring. The information that you have given me is so incredibly helpful! I cannot thank you all enough for being here and informing me about this disease.

Owen had extremely elevated liver enzymes 7 years ago on a life insurance blood test, but after much testing and finally ERCP, it was decided he did not have it. But in October 2006, he came home from work jaundiced and in a lot of right upper quadrant pain, and again after many tests and then ERCP, it was found he does have it. He is on Urso (only 900 mg/day... think we have to talk to his doctor about that) and Cholestyramine. He has had no symptoms since that one bout of cholangitis, until lately. Something is going on with his eyes. They keep getting infected. The eye doctor thinks that the PSC may be causing dryness, making him more prone to infection since he wears contacts so much. Now he is back on glasses only, & more antibiotic eye drops, and we will see if this stops this. My question is, does anyone else experience eye problems with PSC? We see Dr. Flamm at Northwestern in Chicago on July 23rd, but I decided to see what you guys think.

I promise that my future posts will not be so lengthy.

Again, thank you all for your insight and experience and willingness to share your stories.

Jean See what's free at AOL.com.