Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Jill, I do dmsa and ala, sam-e , ala, dmsa, mtp . Thoses are 5 different protocols.With all of them I make sure I have filled him up enough B's, C,D.A,zinc, efa's,magnesium, calcium,dmae, dmg, omegazyme,coq10,. The dmsa/ala every 3-4 hours three days on 2 weeks off.Sam-e 2 200mgs a dayfor 3 days, ala every 3-4 hours three days on 2 weeks off,dmsa 3 days every 3-4 hours then 2 weeks off,mtp-fri, sat, sun once a day.I saw the most improvements with the dmsa/ala and the sam-E protocols. My son told me the sam-E made him feel the best of all of them.I think you have to do trial and error because of the children having different systems screwed up in their bodies. We always took 5 steps forward, 3 steps back.....but we always ended up ahead of the horror that was stealing my son .I always knew that when I first saw regression that he would soon make progress especially when he was a toddler.I was almost like a hurdle had to be jumped first. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 , Congratulations on your son's recovery! It gives a lot of hope for all of us. I see that you are doing Pfieffer's protocal. Is your son under or over methylator? Thanks Geeta > Hi Jill, > I do dmsa and ala, sam-e , ala, dmsa, mtp . Thoses are 5 different > protocols.With all of them I make sure I have filled him up enough B's, > C,D.A,zinc, efa's,magnesium, calcium,dmae, dmg, omegazyme,coq10,. The > dmsa/ala every 3-4 hours three days on 2 weeks off.Sam-e 2 200mgs a dayfor > 3 days, ala every 3-4 hours three days on 2 weeks off,dmsa 3 days every 3-4 > hours then 2 weeks off,mtp-fri, sat, sun once a day.I saw the most > improvements with the dmsa/ala and the sam-E protocols. My son told me the > sam-E made him feel the best of all of them.I think you have to do trial and > error because of the children having different systems screwed up in their > bodies. We always took 5 steps forward, 3 steps back.....but we always ended > up ahead of the horror that was stealing my son .I always knew that when I > first saw regression that he would soon make progress especially when he was > a toddler.I was almost like a hurdle had to be jumped first. > R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 How old was your son when you started and how long di you chelate? Barb Re: [ ] my son is recovered!!!!!!!!!!! > Hi Jill, > I do dmsa and ala, sam-e , ala, dmsa, mtp . Thoses are 5 different > protocols.With all of them I make sure I have filled him up enough B's, > C,D.A,zinc, efa's,magnesium, calcium,dmae, dmg, omegazyme,coq10,. The > dmsa/ala every 3-4 hours three days on 2 weeks off.Sam-e 2 200mgs a dayfor > 3 days, ala every 3-4 hours three days on 2 weeks off,dmsa 3 days every 3-4 > hours then 2 weeks off,mtp-fri, sat, sun once a day.I saw the most > improvements with the dmsa/ala and the sam-E protocols. My son told me the > sam-E made him feel the best of all of them.I think you have to do trial and > error because of the children having different systems screwed up in their > bodies. We always took 5 steps forward, 3 steps back.....but we always ended > up ahead of the horror that was stealing my son .I always knew that when I > first saw regression that he would soon make progress especially when he was > a toddler.I was almost like a hurdle had to be jumped first. > R > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi , MTP is an amino acid complex made by the Pfeiffer Treatment Center....wwww.hriptc.org. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Barb, If I remember correctly I started giving vitamins when he was 2-3 yrs old.I nursed him until I had no milk left(4 1/2) and took lots of supplements myself while breastfeeding. I was the librarian for my LaLeche chapter and knew about the 200 different chemical nutrients in breastmilk and felt that the " gold in dem der hills " would only benefit him. I was actually yelled at by my pediatrician because I was still nursing at 2 yrs old and he told me " this must stop " !I said " yeah right " and just went about my business of feeding him milk which we all know now was full of lauric acid.He's now 9 yrs old. I have to look back at the love letters file to tell you exactly when I started the dmsa/ala combo but I think its been about 3 yrs .He will probably have to take the supplements for the rest of his life to remain " recovered " .What do you think? R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Geeta, I don't give much credence to the " under or over " methylation theory. Just doing a round of detox can skew the results so that it looks like a kid is one or the other. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Sorry to intrude on this message. I can't work my computer properly yet so....It is fab news about your son. So inspirational. Can you tell me if you were toxic and also which supplements you took? (I am breastfeeding my 25month old son and I am toxic and trying not to poison him further. He is not ASD). Thanks so much. Re: [ ] my son is recovered!!!!!!!!!!! Hi Barb, If I remember correctly I started giving vitamins when he was 2-3 yrs old.I nursed him until I had no milk left(4 1/2) and took lots of supplements myself while breastfeeding. I was the librarian for my LaLeche chapter and knew about the 200 different chemical nutrients in breastmilk and felt that the " gold in dem der hills " would only benefit him. I was actually yelled at by my pediatrician because I was still nursing at 2 yrs old and he told me " this must stop " !I said " yeah right " and just went about my business of feeding him milk which we all know now was full of lauric acid.He's now 9 yrs old. I have to look back at the love letters file to tell you exactly when I started the dmsa/ala combo but I think its been about 3 yrs .He will probably have to take the supplements for the rest of his life to remain " recovered " .What do you think? R ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Jacinta, I had 5 amalgam fillings so I would have to say that yes I was toxic. I had my fillings removed and detoxed myself with dmsa/ala.I took my prenatal supps when I was breastfeeding.I was also coloring my hair and often wonder if that caused any problems. I would only do off scalp foiling if I had to do it again.The color I used was an olive oil based product but still I don't know the effects of it.It was verocolor by the Joico corporation.I also tried to stay away from alot of sugar and no alcohol while nursing.It's interesting to note that I felt alot of the " fog " lift after detoxing.My cognition improved and so did my memory.I used to have to write everything down.Logic seems easier to computate also. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Lora, What contributed most was detox with dmsa/ala and also sam-E.Add to that lots of patience,perserverence,prayer,and most of all LOVE! Lots and lots of unconditional love. He always knew I was talking about him and told me after that he understood what I was saying. I always treated him as if he was typical,not autistic.I always took every opportuinity to teach him about the world by explaining things that we take for granted most kids just know.An example is :he responded to me inappropriately in a supermarket one day and the lady behind us said her kids would have been punished for doing what he did.He said " what is punished? " All of a sudden I realized he had never been punished in his life and had no clue as to what it was.LOL PS>This week he was punished!ooooooo R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Thank you for all that useful information . Did you detox while breastfeeding though? I am checking my breastmilk each week for toxins and some weeks are better than others but no clear weeks so far...I am mega toxic though eg 98 % for mercury etc etc. I eat only what my son can tolerate and that is GF/DF/ grain free/ complex carbohydrate free etc etc. I hope that we will be able to chelate him soon and once he is better then I could look at doing myself. (he isn't autistic though so I am just hoping that it won't be as long for him). Thanks again Jacinta Re: [ ] my son is recovered!!!!!!!!!!! Hi Jacinta, I had 5 amalgam fillings so I would have to say that yes I was toxic. I had my fillings removed and detoxed myself with dmsa/ala.I took my prenatal supps when I was breastfeeding.I was also coloring my hair and often wonder if that caused any problems. I would only do off scalp foiling if I had to do it again.The color I used was an olive oil based product but still I don't know the effects of it.It was verocolor by the Joico corporation.I also tried to stay away from alot of sugar and no alcohol while nursing.It's interesting to note that I felt alot of the " fog " lift after detoxing.My cognition improved and so did my memory.I used to have to write everything down.Logic seems easier to computate also. R ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 No I did not detox until I stopped breastfeeding. It is very dangerous to the baby and you to detox while nursing.His body may be able to get rid of the metals ,do a hair test on him. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Thank you for your information. It all helps. Jacinta Re: [ ] my son is recovered!!!!!!!!!!! Hi Jacinta, I had 5 amalgam fillings so I would have to say that yes I was toxic. I had my fillings removed and detoxed myself with dmsa/ala.I took my prenatal supps when I was breastfeeding.I was also coloring my hair and often wonder if that caused any problems. I would only do off scalp foiling if I had to do it again.The color I used was an olive oil based product but still I don't know the effects of it.It was verocolor by the Joico corporation.I also tried to stay away from alot of sugar and no alcohol while nursing.It's interesting to note that I felt alot of the " fog " lift after detoxing.My cognition improved and so did my memory.I used to have to write everything down.Logic seems easier to computate also. R ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 , I have found your post and am very interested in your SAM-e protocol. You are saying 200mgs a dayfor > 3 days, and then what - a break? for how long? What areas did your son say it helped him in? My son is 10yo HFA, and has gut issues, hard time socializing, excitability - does SAM-e help with any of these? Will be very thankful for any info! Elena Re: [ ] my son is recovered!!!!!!!!!!! > Hi Jill, > I do dmsa and ala, sam-e , ala, dmsa, mtp . Thoses are 5 different > protocols.With all of them I make sure I have filled him up enough B's, > C,D.A,zinc, efa's,magnesium, calcium,dmae, dmg, omegazyme,coq10,. The > dmsa/ala every 3-4 hours three days on 2 weeks off.Sam-e 2 200mgs a dayfor > 3 days, ala every 3-4 hours three days on 2 weeks off,dmsa 3 days every 3-4 > hours then 2 weeks off,mtp-fri, sat, sun once a day.I saw the most > improvements with the dmsa/ala and the sam-E protocols. My son told me the > sam-E made him feel the best of all of them.I think you have to do trial and > error because of the children having different systems screwed up in their > bodies. We always took 5 steps forward, 3 steps back.....but we always ended > up ahead of the horror that was stealing my son .I always knew that when I > first saw regression that he would soon make progress especially when he was > a toddler.I was almost like a hurdle had to be jumped first. > R > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Hi Elena, I generally will do a round and then take a 2 week break before I do another. I figure that way his liver and kidneys have a chance to recoup.My rounds are 3 days on and 11 days off(equals 2 weeks).I do 1/2 the adult dose per day for my son.The Naturemade company is the brand I use. They are willing to answer any questions you have if you call the 800 number on the box.I think that when my son responded to the Sam-E so well that it indicated he had a sulphur pathway screwed up somehow.For me it has been trial and error the journey of detoxing. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Please tell us your story. I have tried posting but I'm running into trouble. Would like to hear about your son and gain any info possible in helping my son. Thanks, Z Quote Link to comment Share on other sites More sharing options...
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