Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this, . Warm thoughts coming your way.I wanted to send you this song, it's one of those songs I like to listen to when life isn't really playing nicely. It's an old Swedish psalm (there is a translation inthe description, not the best one perhaps, but at least a translation). Not meantas a way to discuss religion at all (and I think it's kind of neutral when it comesto that), just as a way to express my thoughts for you.Here's the link:http://www.youtube.com/watch?v=ZcvIbUBQ5tslove/Reb--- In MSersLife , Beaudin wrote:>> now that my dictation software is working properly on a laptop with Internet> action, I can finally let you guys know what's going on.> > Sometime in January, I noticed that transfers and rolling around in bed> getting difficult. I didn't pay any attention to it since it is normal for> things to get difficult, that easier, is difficult to get. It seems to mean> the end and flow of people with these kinds of diseases. When I went to see> my neurologist for a follow-up appointment I was able to tell that I have> been doing much better but for this particular day I felt kind of bad. I> chalked it up to just having an off day.> > Two days later, I found no longer able to mobilize in bed or transferred to> my chair using transfer board method. Needless to say, when home care came,> I was too difficult to assist so an ambulance was called and was transported> to the hospital on February 12. I've been here since under assessment and it> was decided last week (and also became my own conclusion) that I be placed> in long-term care.> > The girls will be going to stay with her dad, which I now think works well,> since my time with them will be a better quality. His apartment is> wheelchair accessible so visiting should not be an issue. My ex also intends> on bringing them to me at regular intervals.> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this, . Warm thoughts coming your way.I wanted to send you this song, it's one of those songs I like to listen to when life isn't really playing nicely. It's an old Swedish psalm (there is a translation inthe description, not the best one perhaps, but at least a translation). Not meantas a way to discuss religion at all (and I think it's kind of neutral when it comesto that), just as a way to express my thoughts for you.Here's the link:http://www.youtube.com/watch?v=ZcvIbUBQ5tslove/Reb--- In MSersLife , Beaudin wrote:>> now that my dictation software is working properly on a laptop with Internet> action, I can finally let you guys know what's going on.> > Sometime in January, I noticed that transfers and rolling around in bed> getting difficult. I didn't pay any attention to it since it is normal for> things to get difficult, that easier, is difficult to get. It seems to mean> the end and flow of people with these kinds of diseases. When I went to see> my neurologist for a follow-up appointment I was able to tell that I have> been doing much better but for this particular day I felt kind of bad. I> chalked it up to just having an off day.> > Two days later, I found no longer able to mobilize in bed or transferred to> my chair using transfer board method. Needless to say, when home care came,> I was too difficult to assist so an ambulance was called and was transported> to the hospital on February 12. I've been here since under assessment and it> was decided last week (and also became my own conclusion) that I be placed> in long-term care.> > The girls will be going to stay with her dad, which I now think works well,> since my time with them will be a better quality. His apartment is> wheelchair accessible so visiting should not be an issue. My ex also intends> on bringing them to me at regular intervals.> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this, . Warm thoughts coming your way.I wanted to send you this song, it's one of those songs I like to listen to when life isn't really playing nicely. It's an old Swedish psalm (there is a translation inthe description, not the best one perhaps, but at least a translation). Not meantas a way to discuss religion at all (and I think it's kind of neutral when it comesto that), just as a way to express my thoughts for you.Here's the link:http://www.youtube.com/watch?v=ZcvIbUBQ5tslove/Reb--- In MSersLife , Beaudin wrote:>> now that my dictation software is working properly on a laptop with Internet> action, I can finally let you guys know what's going on.> > Sometime in January, I noticed that transfers and rolling around in bed> getting difficult. I didn't pay any attention to it since it is normal for> things to get difficult, that easier, is difficult to get. It seems to mean> the end and flow of people with these kinds of diseases. When I went to see> my neurologist for a follow-up appointment I was able to tell that I have> been doing much better but for this particular day I felt kind of bad. I> chalked it up to just having an off day.> > Two days later, I found no longer able to mobilize in bed or transferred to> my chair using transfer board method. Needless to say, when home care came,> I was too difficult to assist so an ambulance was called and was transported> to the hospital on February 12. I've been here since under assessment and it> was decided last week (and also became my own conclusion) that I be placed> in long-term care.> > The girls will be going to stay with her dad, which I now think works well,> since my time with them will be a better quality. His apartment is> wheelchair accessible so visiting should not be an issue. My ex also intends> on bringing them to me at regular intervals.> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself.love,KateFrom: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself.love,KateFrom: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself.love,KateFrom: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this. You are in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > an update > > now that my dictation software is working properly on a laptop with > Internet > action, I can finally let you guys know what's going on. > > Sometime in January, I noticed that transfers and rolling around in bed > getting difficult. I didn't pay any attention to it since it is normal > for > things to get difficult, that easier, is difficult to get. It seems to > mean > the end and flow of people with these kinds of diseases. When I went to > see > my neurologist for a follow-up appointment I was able to tell that I have > been doing much better but for this particular day I felt kind of bad. I > chalked it up to just having an off day. > > Two days later, I found no longer able to mobilize in bed or transferred > to > my chair using transfer board method. Needless to say, when home care > came, > I was too difficult to assist so an ambulance was called and was > transported > to the hospital on February 12. I've been here since under assessment and > it > was decided last week (and also became my own conclusion) that I be > placed > in long-term care. > > The girls will be going to stay with her dad, which I now think works > well, > since my time with them will be a better quality. His apartment is > wheelchair accessible so visiting should not be an issue. My ex also > intends > on bringing them to me at regular intervals. > > Lifeportunities http://www.lifeportunities.com/>: transform your > home-based > life into freedom. > Visit the Practical Homeschooling > http://practical-homeschooling.org>blog! ____________________________________________________________ Share photos & screenshots in seconds... TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if1 Works in all emails, instant messengers, blogs, forums and social networks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this. You are in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > an update > > now that my dictation software is working properly on a laptop with > Internet > action, I can finally let you guys know what's going on. > > Sometime in January, I noticed that transfers and rolling around in bed > getting difficult. I didn't pay any attention to it since it is normal > for > things to get difficult, that easier, is difficult to get. It seems to > mean > the end and flow of people with these kinds of diseases. When I went to > see > my neurologist for a follow-up appointment I was able to tell that I have > been doing much better but for this particular day I felt kind of bad. I > chalked it up to just having an off day. > > Two days later, I found no longer able to mobilize in bed or transferred > to > my chair using transfer board method. Needless to say, when home care > came, > I was too difficult to assist so an ambulance was called and was > transported > to the hospital on February 12. I've been here since under assessment and > it > was decided last week (and also became my own conclusion) that I be > placed > in long-term care. > > The girls will be going to stay with her dad, which I now think works > well, > since my time with them will be a better quality. His apartment is > wheelchair accessible so visiting should not be an issue. My ex also > intends > on bringing them to me at regular intervals. > > Lifeportunities http://www.lifeportunities.com/>: transform your > home-based > life into freedom. > Visit the Practical Homeschooling > http://practical-homeschooling.org>blog! ____________________________________________________________ Share photos & screenshots in seconds... TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if1 Works in all emails, instant messengers, blogs, forums and social networks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I am sorry to hear this. You are in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > an update > > now that my dictation software is working properly on a laptop with > Internet > action, I can finally let you guys know what's going on. > > Sometime in January, I noticed that transfers and rolling around in bed > getting difficult. I didn't pay any attention to it since it is normal > for > things to get difficult, that easier, is difficult to get. It seems to > mean > the end and flow of people with these kinds of diseases. When I went to > see > my neurologist for a follow-up appointment I was able to tell that I have > been doing much better but for this particular day I felt kind of bad. I > chalked it up to just having an off day. > > Two days later, I found no longer able to mobilize in bed or transferred > to > my chair using transfer board method. Needless to say, when home care > came, > I was too difficult to assist so an ambulance was called and was > transported > to the hospital on February 12. I've been here since under assessment and > it > was decided last week (and also became my own conclusion) that I be > placed > in long-term care. > > The girls will be going to stay with her dad, which I now think works > well, > since my time with them will be a better quality. His apartment is > wheelchair accessible so visiting should not be an issue. My ex also > intends > on bringing them to me at regular intervals. > > Lifeportunities http://www.lifeportunities.com/>: transform your > home-based > life into freedom. > Visit the Practical Homeschooling > http://practical-homeschooling.org>blog! ____________________________________________________________ Share photos & screenshots in seconds... TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if1 Works in all emails, instant messengers, blogs, forums and social networks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out.Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update   now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out.Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update   now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 thanks for that lovely song, RebLifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! I am sorry to hear this, . Warm thoughts coming your way.I wanted to send you this song, it's one of those songs I like to listen to when life isn't really playing nicely. It's an old Swedish psalm (there is a translation inthe description, not the best one perhaps, but at least a translation). Not meant as a way to discuss religion at all (and I think it's kind of neutral when it comesto that), just as a way to express my thoughts for you. Here's the link: love/Reb >> now that my dictation software is working properly on a laptop with Internet> action, I can finally let you guys know what's going on.> > Sometime in January, I noticed that transfers and rolling around in bed > getting difficult. I didn't pay any attention to it since it is normal for> things to get difficult, that easier, is difficult to get. It seems to mean> the end and flow of people with these kinds of diseases. When I went to see > my neurologist for a follow-up appointment I was able to tell that I have> been doing much better but for this particular day I felt kind of bad. I> chalked it up to just having an off day.> > Two days later, I found no longer able to mobilize in bed or transferred to> my chair using transfer board method. Needless to say, when home care came,> I was too difficult to assist so an ambulance was called and was transported > to the hospital on February 12. I've been here since under assessment and it> was decided last week (and also became my own conclusion) that I be placed> in long-term care.> > The girls will be going to stay with her dad, which I now think works well, > since my time with them will be a better quality. His apartment is> wheelchair accessible so visiting should not be an issue. My ex also intends> on bringing them to me at regular intervals.> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 thanks for that lovely song, RebLifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! I am sorry to hear this, . Warm thoughts coming your way.I wanted to send you this song, it's one of those songs I like to listen to when life isn't really playing nicely. It's an old Swedish psalm (there is a translation inthe description, not the best one perhaps, but at least a translation). Not meant as a way to discuss religion at all (and I think it's kind of neutral when it comesto that), just as a way to express my thoughts for you. Here's the link: love/Reb >> now that my dictation software is working properly on a laptop with Internet> action, I can finally let you guys know what's going on.> > Sometime in January, I noticed that transfers and rolling around in bed > getting difficult. I didn't pay any attention to it since it is normal for> things to get difficult, that easier, is difficult to get. It seems to mean> the end and flow of people with these kinds of diseases. When I went to see > my neurologist for a follow-up appointment I was able to tell that I have> been doing much better but for this particular day I felt kind of bad. I> chalked it up to just having an off day.> > Two days later, I found no longer able to mobilize in bed or transferred to> my chair using transfer board method. Needless to say, when home care came,> I was too difficult to assist so an ambulance was called and was transported > to the hospital on February 12. I've been here since under assessment and it> was decided last week (and also became my own conclusion) that I be placed> in long-term care.> > The girls will be going to stay with her dad, which I now think works well, > since my time with them will be a better quality. His apartment is> wheelchair accessible so visiting should not be an issue. My ex also intends> on bringing them to me at regular intervals.> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 after Grace falling late Friday night - I didn't hear her with the CPAP machine until she got down the hall - I can't lift her - it took 30 minutes of talking before I could call fire/rescue - 20 minutes to get here and 5 minutes to put her in bed - 5 minutes later she was up going to the bathroom I didn't sleep the rest of the night - she can't be trusted - so in from 6 am Friday until 10 pm Saturday night I got 3 hours sleep they got her a quad cane from home health and she won't use it God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 4:58:32 PMSubject: Re: an update self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out.Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 after Grace falling late Friday night - I didn't hear her with the CPAP machine until she got down the hall - I can't lift her - it took 30 minutes of talking before I could call fire/rescue - 20 minutes to get here and 5 minutes to put her in bed - 5 minutes later she was up going to the bathroom I didn't sleep the rest of the night - she can't be trusted - so in from 6 am Friday until 10 pm Saturday night I got 3 hours sleep they got her a quad cane from home health and she won't use it God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 4:58:32 PMSubject: Re: an update self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out.Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 after Grace falling late Friday night - I didn't hear her with the CPAP machine until she got down the hall - I can't lift her - it took 30 minutes of talking before I could call fire/rescue - 20 minutes to get here and 5 minutes to put her in bed - 5 minutes later she was up going to the bathroom I didn't sleep the rest of the night - she can't be trusted - so in from 6 am Friday until 10 pm Saturday night I got 3 hours sleep they got her a quad cane from home health and she won't use it God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 4:58:32 PMSubject: Re: an update self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out.Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 ha ha!You can't get rid of me that easily! There are 40 some long-term facilities here in Edmonton. Of those tWo cater to younger adults.While officially you have to accept the first bed that you are offered (because I'm waiting in the hospital for an opening to move to such a facility) ,I just had a chat with the discharge coordinator and she told me that she would do everything in her power to get me into one of those two facilities. so thankfully people seem to be on my side. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself. love,Kate From: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 ha ha!You can't get rid of me that easily! There are 40 some long-term facilities here in Edmonton. Of those tWo cater to younger adults.While officially you have to accept the first bed that you are offered (because I'm waiting in the hospital for an opening to move to such a facility) ,I just had a chat with the discharge coordinator and she told me that she would do everything in her power to get me into one of those two facilities. so thankfully people seem to be on my side. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself. love,Kate From: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 ha ha!You can't get rid of me that easily! There are 40 some long-term facilities here in Edmonton. Of those tWo cater to younger adults.While officially you have to accept the first bed that you are offered (because I'm waiting in the hospital for an opening to move to such a facility) ,I just had a chat with the discharge coordinator and she told me that she would do everything in her power to get me into one of those two facilities. so thankfully people seem to be on my side. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Wow, , some big changes for you. I'm sorry that it has come to needing long-term care. It sounds though you are taking it in stride. I'm proud of you for that. When and where will you be going? I hope you'll still be able to be in touch with us so we know what's going on. How your new place is, etc. How are the girls managing? I forget their ages. Please take care of yourself. love,Kate From: Beaudin To: fwms ; MSersLife ; Transverse Mylitis Group ; transversemyelitissupport Sent: Wed, March 16, 2011 12:54:31 PMSubject: an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on.Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 sorry to hear that you have to deal with this. I remember reading this story a while back. Is there no way to make her understand the seriousness of the situation? She needs to take care for her safety and if she refuses a simple cane, then maybe explaining to her what the alternative solutions might be would be enough to make her think twice about a cane. For her to think that you are fine while in reality you are sick is unfair and outright disrespectful. Perhaps it's time to start offering her two or three options whenever the situation presents itself and if she can't choose one of them, then turn around and walk away. Eventually she will have to learn to compromise. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! after Grace falling late Friday night - I didn't hear her with the CPAP machine until she got down the hall - I can't lift her - it took 30 minutes of talking before I could call fire/rescue - 20 minutes to get here and 5 minutes to put her in bed - 5 minutes later she was up going to the bathroom  I didn't sleep the rest of the night - she can't be trusted - so in from 6 am Friday until 10 pm Saturday night I got 3 hours sleep  they got her a quad cane from home health and she won't use it God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 4:58:32 PMSubject: Re: an update  self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update  Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update   now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 sorry to hear that you have to deal with this. I remember reading this story a while back. Is there no way to make her understand the seriousness of the situation? She needs to take care for her safety and if she refuses a simple cane, then maybe explaining to her what the alternative solutions might be would be enough to make her think twice about a cane. For her to think that you are fine while in reality you are sick is unfair and outright disrespectful. Perhaps it's time to start offering her two or three options whenever the situation presents itself and if she can't choose one of them, then turn around and walk away. Eventually she will have to learn to compromise. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! after Grace falling late Friday night - I didn't hear her with the CPAP machine until she got down the hall - I can't lift her - it took 30 minutes of talking before I could call fire/rescue - 20 minutes to get here and 5 minutes to put her in bed - 5 minutes later she was up going to the bathroom  I didn't sleep the rest of the night - she can't be trusted - so in from 6 am Friday until 10 pm Saturday night I got 3 hours sleep  they got her a quad cane from home health and she won't use it God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 4:58:32 PMSubject: Re: an update  self – managed homecare was one of the options but it raised other issues we were unable to deal with. This is where I would have been able to hire my own care, whether it be live-in or live out. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog! I am sorry - I don't know if you have hospice care - they have changed the rules - no longer 6 month limit - well stateside - just an option God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Wed, March 16, 2011 12:37:28 PMSubject: Re: an update  Wow. Are you sure you're ok with this? How do the girls feel about it? Will you be ok?        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- an update   now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!  Quote Link to comment Share on other sites More sharing options...
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