Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 started ALA. I am taking 25 mg DMPS every 6 h and 12.5 mg ALA every 3 > h. - so glad to hear you're on ALA and wishing my very best to you as you progress on it. It sounds like you've spent plenty of time chelating before taking this step. 12.5 mg ALA did prove to be too much for me, as badly as I wanted to be able to do it. So I backed it way down to splitting a 25 mg cap over 8 doses for a day with my last round of DMSA, finally having a good round again, and feeling like myself. It's been a bit horrifying to realize just how much of this toxic metal has been jammed into my system; it's really painful to relive and realize just what mercury does to one's brain. I now describe it as having MS, Alzheimer's & fibromyalgia, while being a full-fledged participant in the Mad Hatter's perpetual (and sleepless) tea party. It's taken a week or so to put away the loose ends of the 40-50 things I started and thought I could do while on ALA for a few weeks this summer, for scrapes to heal from falls & replace the glasses I dropped, fall asleep by midnight, and to be able to hold a continuous, on topic, conversation! I remember reading the book early on & wondering what Andy meant by " an increase in symptoms " while taking ALA. Joanne PS - I never did finish a cup of tea, either! Then again, many days I forgot to make it in the first place. LOL! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 , Congratulations on starting ALA. That is exciting! I'm glad you are doing okay with it. I've been doing 16 mg ALA with 37.5 DMPS for a few rounds now. Next round I'm aiming to increase ALA to 20 mg. One week on (or as long as I can keep going) and one week off. I am feeling strangely calm on rounds lately. I hope that lasts. I've woken up with pills in my hands, or in the bedclothes, or pill box on my pillow, or even pills in my mouth! I think after a while, the habits get more established. I always put the chelation meds in one pill box in a specific location, sleep-related meds in another location, other meds in another box, alarm clocks in specific spots, etc. So my brain has gradually become able to do things " on automatic " to some extent. When I started chelating, I had a problems with being too wide awake with night dosing and, wakefulness afterwards. I have acquired sleepiness now, which is a kind of a mixed blessing, but overall it's a good thing. Maybe as you go forward, you'll also find a little better balance with the nighttime dosing, a little more coherence and awakeness, while retaining the drowsiness to get back to sleep. And of course I'm sure less pain and fatigue are in the picture too! -- > > > > Here is my brief update. > > Most of you know that I have been chelating with DMPS and hadn't added > ALA yet because of my inability to be coherent, or even sometimes to > wake up, in the middle of the night. There were other problems, like > not having a space to go to to set alarms without disturbing everyone > else around here. > > Well, I have my own chelation room now, and 3 alarm clocks, and I have > started ALA. I am taking 25 mg DMPS every 6 h and 12.5 mg ALA every 3 > h. I started the DMPS (after several months of 'holiday' because of > infections) about 6 weeks ago. The DMPS was helping me to feel > somewhat better in general. I started the ALA on Monday of this week. > So far, so good. I haven't missed any doses. The plan is that if I > go to 4.5 h (with ALA), or 9 h (with DMPS) from the last dose I will > have to stop. If that doesn't happen I will keep going as long as I > feel ok. > > The only thing that I am noticing so far is that I am very tired and > achy in the morning and evening. That's not so unusual, just a bit > more tired and achy than normal. I won't let myself drive in the > morning and evening because of it. > > With all of the medications and supplements that I'm taking just the > assortment of pill boxes with all of the various times written on them > is a perplexing maze for a toxic brain. For the night doses I have to > set them all out in sequence with big numbers on the compartments to > indicate times. There was one time I woke up in the am with pills in > my hands. > > Hope everyone is well and having a fun summer. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 , Congratulations on starting ALA. That is exciting! I'm glad you are doing okay with it. I've been doing 16 mg ALA with 37.5 DMPS for a few rounds now. Next round I'm aiming to increase ALA to 20 mg. One week on (or as long as I can keep going) and one week off. I am feeling strangely calm on rounds lately. I hope that lasts. I've woken up with pills in my hands, or in the bedclothes, or pill box on my pillow, or even pills in my mouth! I think after a while, the habits get more established. I always put the chelation meds in one pill box in a specific location, sleep-related meds in another location, other meds in another box, alarm clocks in specific spots, etc. So my brain has gradually become able to do things " on automatic " to some extent. When I started chelating, I had a problems with being too wide awake with night dosing and, wakefulness afterwards. I have acquired sleepiness now, which is a kind of a mixed blessing, but overall it's a good thing. Maybe as you go forward, you'll also find a little better balance with the nighttime dosing, a little more coherence and awakeness, while retaining the drowsiness to get back to sleep. And of course I'm sure less pain and fatigue are in the picture too! -- > > > > Here is my brief update. > > Most of you know that I have been chelating with DMPS and hadn't added > ALA yet because of my inability to be coherent, or even sometimes to > wake up, in the middle of the night. There were other problems, like > not having a space to go to to set alarms without disturbing everyone > else around here. > > Well, I have my own chelation room now, and 3 alarm clocks, and I have > started ALA. I am taking 25 mg DMPS every 6 h and 12.5 mg ALA every 3 > h. I started the DMPS (after several months of 'holiday' because of > infections) about 6 weeks ago. The DMPS was helping me to feel > somewhat better in general. I started the ALA on Monday of this week. > So far, so good. I haven't missed any doses. The plan is that if I > go to 4.5 h (with ALA), or 9 h (with DMPS) from the last dose I will > have to stop. If that doesn't happen I will keep going as long as I > feel ok. > > The only thing that I am noticing so far is that I am very tired and > achy in the morning and evening. That's not so unusual, just a bit > more tired and achy than normal. I won't let myself drive in the > morning and evening because of it. > > With all of the medications and supplements that I'm taking just the > assortment of pill boxes with all of the various times written on them > is a perplexing maze for a toxic brain. For the night doses I have to > set them all out in sequence with big numbers on the compartments to > indicate times. There was one time I woke up in the am with pills in > my hands. > > Hope everyone is well and having a fun summer. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 Terrific news ! I haven't been reading here regularly. How has your temperature regulation been, speaking of summer? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 > It's been a bit horrifying > to realize just how much of this toxic metal has been jammed into my > system; it's really painful to relive and realize just what mercury > does to one's brain. I now describe it as having MS, Alzheimer's & > fibromyalgia, while being a full-fledged participant in the Mad > Hatter's perpetual (and sleepless) tea party. > PS - I never did finish a cup of tea, either! Then again, many days I > forgot to make it in the first place. LOL! > Yep, that's it all right (except that I am blessed with lots and lots of sleep, the parties are in my dreams). Quote Link to comment Share on other sites More sharing options...
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