Re: Doesn't anyone care that we never received funding????

February 19, 2012

,You are correct. The system is unfair and flawed and needs to be changed. I am not sure if you are aware, but many of the current recipients of funding from APD only have it because they were part of a lawsuit filed in the early 1990's. My daughter was on the original waiting list of 12,000 for 10 years. While I agree that all people in need of the funding should be receiving it, I don't agree that after waiting 10 years, that my daughter's funding should be cut to provide services to people currently on the waiting list. The state should fully fund all individuals in need including my daughter and your child. Additionally, my daughter's funding has been cut upwards of 40% over the last 3 years and this without providing funding to anyone on the waiting list.

I think it is unfair for anyone that meets the qualifications under the Med Waiver to have to wait for services. Unfortunately, the state of Florida and many other states don't see it that way. The legislators see my daughter and your child as a drain on society. Many of them are more concerned with their redistricting, the insurance and business lobby and what will get them further in their careers. The ones that do want to do the right thing slowly become like the rest, because if they don't they won't get re-elected. Their party will put someone else in that follows the party line. Sorry, but this is the truth.

You can go on not supporting the current system and I understand why you would feel that way. That being said, my daughter will be the one that is slighted and that is just as unacceptable to me as it is for your child to not be receiving services. Why isn't mandatory that Florida serve all in need? Why do we have to fight to keep every dollar? The system is set up that way. Until it is mandatory that they serve everyone (like public schools have to) it will always be the same. Unfortunately, society thinks children are cute and we provide funding for them because it looks good politically. The reality is those cute little kids grow up and society lets them fall off the cliff when they do.

There are ways to get their attention. This is a civil rights issue as much as it is a basic human right. I never thought that in 2012 in the United States of America that we would have to fear that our children and adults with disabilities would be treated like Hitler treated the disabled during World War II. This may seem paranoid, but with the attitudes like " people with developmental disabilities are taking away from productive members of society " and " they a drain on society " , sounds frighteningly similar to me. When you pit one group against another you get more and more animosity. While we may be a long way from it, the road can lead there if we allow it. We are cutting services to nursing homes, hospitals for medicaid patients, etc., etc, What is the one common denominator in all of this? They are the poor, the elderly and disabled and they either no longer contribute financially to society or they never have.

Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were " chosen " to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

To: ven@...

Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

February 19, 2012

I thank you for your thoughtful reply. I firmly believe that there are two groups of people who should always be taken care of: The disabled and veterans. I understand completely why you are so passionate about this issue, it is an important issue for us all. I write my legislators on a weekly basis begging for their assistance and I will continue to do so. I think the med-waiver system as it is is far too flawed to continue and should be revamped so that the meager assistance that is provided is evenly divided upon ALL who need it. You are right that this is a civil rights issue, the med-waiver system is discriminatory and I cannot support such a system.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

To: ven@...

Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

February 19, 2012

Mr. Sequenzia:

There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

All proposed money is consumed by the 60% already funded. Zero for everyone else.

The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

negron.joe.web@... and matt.hudson@...

Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

Every family should get some funded respite services. We don't.

The average cost plan of individuals on the waiver is over $44,000 per year.

The average cost plan of those just as eligible but stuck on the waitlist is $0.

This is fundamentally unfair and discriminatory on its face.

While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of "advocates" for individuals with developmental disabilities who are actually advocates only for those already funded.

No dollars for the waitlisted? Same old, same old.

Respectfully,

Binh Quang Chau

To: sList Sent: Sunday, February 19, 2012 7:49 AMSubject: Doesn't anyone care that we never received funding????

Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were "chosen" to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I

see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLYTo: ven@...Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data. APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

February 19, 2012

Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight.

Mr. Sequenzia:

There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

All proposed money is consumed by the 60% already funded. Zero for everyone else.

The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

negron.joe.web@... and matt.hudson@...

Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

Every family should get some funded respite services. We don't.

The average cost plan of individuals on the waiver is over $44,000 per year.

The average cost plan of those just as eligible but stuck on the waitlist is $0.

This is fundamentally unfair and discriminatory on its face.

While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of "advocates" for individuals with developmental disabilities who are actually advocates only for those already funded.

No dollars for the waitlisted? Same old, same old.

Respectfully,

Binh Quang Chau

To: sList Sent: Sunday, February 19, 2012 7:49 AMSubject: Doesn't anyone care that we never received funding????

Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were "chosen" to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLYTo: ven@...Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data. APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

February 19, 2012

I agree.Sent from my MOTOROLA ATRIX™ 2 on AT & T IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLYTo: ven@...Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you. If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data. APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones. If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email. -- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter-- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter

February 20, 2012

Thank you!!! I feel the same way! Although my son is only 9 and on the wait list for 6 years, I don't see it getting any better for him in the future...its like the iron curtain has come down never to open again:(It would be so wonderful to just get help with his ST... CarrollSent from my iPhone Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight. Mr. Sequenzia:There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.All proposed money is consumed by the 60% already funded. Zero for everyone else. The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson. negron.joe.web@... and matt.hudson@...Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety. Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.Every family should get some funded respite services. We don't. The average cost plan of individuals on the waiver is over $44,000 per year. The average cost plan of those just as eligible but stuck on the waitlist is $0.This is fundamentally unfair and discriminatory on its face.While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of "advocates" for individuals with developmental disabilities who are actually advocates only for those already funded. No dollars for the waitlisted? Same old, same old.Respectfully,Binh Quang Chau To: sList Sent: Sunday, February 19, 2012 7:49 AMSubject: Doesn't anyone care that we never received funding???? Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were "chosen" to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan. IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLYTo: ven@...Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you. If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data. APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones. If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email. -- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter-- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter

February 20, 2012

I agree w/ Binh Quang Chow. If it would mean that more people could get

services, I am all for cutting the services of those who are receiving them.

At the risk of being offensive, and I apologize to those of you who I do offend,

but I will state that if services are cut for those already funded, perhaps they

could take care of some of their child's needs themselves. My husband and I,

because our child is on a very long waiting list, take care of ALL of our son's

needs ourselves. I think if the money available were spread amongst more people

that people would come to understand that some funding is better than none.

Those of us that get 'none' already understand this concept.

Glenda

>

> > Thanks so much for that response. My son, who is 27 is also on that waiting

list for eight years. No hope and no help in sight.

> >

> > In a message dated 2/19/2012 8:46:09 P.M. Eastern Standard Time,

binhquangchau@... writes:

> >

> > Mr. Sequenzia:

> > There is not one single dollar in the proposed budget for people stuck on

the waitlist ...... people who receive zero dollars and zero supports.

> > Moreover, a full 40% of individuals deemed eligible for the waiver are

waitlisted with no plan to fund them.

> > While you are understandably upset by proposed changes to your daughter's

cost plan, my 28 year old daugher with autism and ID has no cost plan to cut!

She is just as eligible as your daughter and yet mine has been waiting 8 years

with no hope in sight.

> > All proposed money is consumed by the 60% already funded. Zero for everyone

else.

> > The entire APD budget must be increased and whatever it is, insufficient as

it is, it must be reallocated so that everyone deemed eligible should get

something ....... not nothing. It is because my daugher and 20,000 others like

her get zero that your daughter and 30,000 others like her get your cost plans

funded. You may use as harsh a tone as you wish, but these are the facts.

> > People who are waitlisted should be writing to Senator Negron and

Representative Matt Hudson.

> > negron.joe.web@... and matt.hudson@...

> > Every eligible individuals should get some level of funding to cover core

services before any individual gets services that are not core to their health

and safety.

> > Every individual should get some funding for a meaningful day activity after

they exit the school system. They don't. Unless they are on the waiver.

> > Every family should get some funded respite services. We don't.

> > The average cost plan of individuals on the waiver is over $44,000 per year.

> > The average cost plan of those just as eligible but stuck on the waitlist is

$0.

> > This is fundamentally unfair and discriminatory on its face.

> > While you are tired of begging poeple to write to protect what they already

have, the wait listed and their families are tired of " advocates " for

individuals with developmental disabilities who are actually advocates only for

those already funded.

> > No dollars for the waitlisted? Same old, same old.

> > Respectfully,

> > Binh Quang Chau

> >

> > From:

> > To: sList

> > Sent: Sunday, February 19, 2012 7:49 AM

> > Subject: Doesn't anyone care that we never received

funding????

> >

> > Doesn't anyone care that we never received funding? As a mother of a child

with autism I definitely want to see the med-waiver program continue but not as

currently designed. I wonder what is being done for those of us who have been

wait listed for years and have watched from the side while the rest of you

receive services from the APD? I have yet to receive any email notice from the

Autism Society of America outlining when the rest of us will receive funding.

When will our children matter? Where is the urgency in this? The med-waiver

program as currently designed doesn't not work and is borderline discriminatory.

I think the med-waiver program should be EQUALLY divided among those in need,

not given to the select few who were " chosen " to be worthy while the rest of us

struggle to provide services for our kids WITHOUT any assistance from the APD.

Until I see a more fair and even distribution of med-waiver funds I will not be

supporting this proposed plan.

> >

> > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a

developmental disability needs to respond to this email, if you have been

notified that your funding will be cut or you sent in a public records request

to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks

ago or you picked it up at the Autism Society of Florida table at the CARD

Conference, I need you to let me know what the reply was from APD. A couple of

you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is

my understanding that everyone is receiving a cut in funding, which will result

in a cut in services. This is happening even though APD stated that they would

not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill

1516 will do to our services. Please don't sit back and do nothing. If you don't

want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

February 21, 2012

You hit the nail on the coffin! The APD budget as it stands should not be supported!

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

To: ven@...

Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

--

Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

--

Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

February 21, 2012

You are correct in your statements and it is criminal that there are 20,000 on the waiting list. My point was, that you should not be trying to take services away from individuals that were on the original waiting list for 10 years (my daughter included). If you feel that it is unfair to be on a waiting list then you need to get your families together and file a class action lawsuit as they did in the 1990's and force the state to fund them. I will stand with you side-by-side to support that effort. What I will not support is the pitting of families against each other because some have and some don't. Again, my daughter was on a waiting list for 10 years and that was just as criminal as the current situation. It is not her fault that your child is not getting services, so let's take hers away (after waiting years) and give some to your child. I doubt if the shoe was on the other foot, you would be running to APD and asking them to take away your child's services to fund my daughter.

Again, I understand all too well what you are going through, having gone through it. In addition, I have had to spend thousands of dollars (that I couldn't afford) to fight APD with an attorney to maintain a little more than half of what she was originally approved for and they continue to cut her services. If we allow the legislature and APD to continue down the road they are on, they will either stop funding everyone or cut services to the point that everyone will have something that is so insignificant it won't matter.

What is the solution? Get the 20,000 people on the waiting list and start to raise holly heck. Start having rallies, start showing up at legislators offices en mass. Start sitting in the Governor's office. Start writing to newspapers, start contacting tv stations, radio stations, etc. I will be happy to stand with you and do that. I will be happy to support fighting for the State of Florida to appropriately fund ALL individuals with disabilities. I will not, however support fighting to remove what services we have managed to get for my daughter and others that waited yeas, to give everyone a pittance, which is what the state wants to do. They need to appropriately fund everyone who is eligible and stop pitting families against each other. They are masters of deception. They are master manipulators. They want to keep us as sheep that follow everyone around and do what everyone else does and not have minds of our own. I may upset some people in Tallahassee with these comments and honestly, I really don't care anymore. I am mad as hell and you are too. So let's direct the energy at who is causing it, instead of each other.

I wish everyone of them would wake up in our shoes tomorrow and then and only then, will they understand what you and I go through every day of our lives.

I agree w/ Binh Quang Chow. If it would mean that more people could get services, I am all for cutting the services of those who are receiving them.

At the risk of being offensive, and I apologize to those of you who I do offend, but I will state that if services are cut for those already funded, perhaps they could take care of some of their child's needs themselves. My husband and I, because our child is on a very long waiting list, take care of ALL of our son's needs ourselves. I think if the money available were spread amongst more people that people would come to understand that some funding is better than none. Those of us that get 'none' already understand this concept.

Glenda

>

> > Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight.

> >

> > Mr. Sequenzia:

> > There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

> > Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

> > While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

> > All proposed money is consumed by the 60% already funded. Zero for everyone else.

> > The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

> > People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

> > negron.joe.web@... and matt.hudson@...

> > Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

> > Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

> > Every family should get some funded respite services. We don't.

> > The average cost plan of individuals on the waiver is over $44,000 per year.

> > The average cost plan of those just as eligible but stuck on the waitlist is $0.

> > This is fundamentally unfair and discriminatory on its face.

> > While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of " advocates " for individuals with developmental disabilities who are actually advocates only for those already funded.

> > No dollars for the waitlisted? Same old, same old.

> > Respectfully,

> > Binh Quang Chau

> >

> > To: sList

> > Sent: Sunday, February 19, 2012 7:49 AM

> > Subject: Doesn't anyone care that we never received funding????

> >

> > Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were " chosen " to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

> >

> > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

February 21, 2012

My son was on the wait list for over 8 years when he was finally moved into the program.To: sList Sent: Tue, February 21, 2012 6:17:36 AMSubject: Re: Doesn't anyone care that we never received funding????

You hit the nail on the coffin! The APD budget as it stands should not be supported!

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

To: ven@...

Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

--

Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

--

Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

February 21, 2012

Just for information purposes â€“ If you need Respite â€“ you can get it from ARC as long as you are NOT on the Waiver. Itâ€™s a small amount, but itâ€™s something and there are Saturday camps.Â Tonya QuarequioLicensed Loan Originator/Owner, NMLS: 88836Celebrity Mortgage NMLS:Â 206978320 SE 11th StreetFort Lauderdale, Florida 33316Telephone: Facsimile: Cellular: Email: tonya.celebrity@...Website: www.celebritymtg.net The highest compliment I can be paid is the trust and confidence you demonstrate when introducing me to family, friends and associates who might also benefit from the services I provide. Your referrals are greatly appreciated. From: sList [mailto:sList ] On Behalf Of james winchSent: Tuesday, February 21, 2012 12:18 PMTo: sList Subject: Re: Doesn't anyone care that we never received funding???? My son was on the wait list for over 8 years when he was finally moved into the program. To: sList Sent: Tue, February 21, 2012 6:17:36 AMSubject: Re: Doesn't anyone care that we never received funding???? You hit the nail on the coffin! The APD budget as it stands should not be supported! IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLYTo: ven@...Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you. If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data. APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones. If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email. -- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter -- Regards, Ven Sequenzia, Jr. PresidentAutism Society of AmericaState of Florida Chapter

February 21, 2012

Glenda,How old is your child?

I agree w/ Binh Quang Chow. If it would mean that more people could get services, I am all for cutting the services of those who are receiving them.

At the risk of being offensive, and I apologize to those of you who I do offend, but I will state that if services are cut for those already funded, perhaps they could take care of some of their child's needs themselves. My husband and I, because our child is on a very long waiting list, take care of ALL of our son's needs ourselves. I think if the money available were spread amongst more people that people would come to understand that some funding is better than none. Those of us that get 'none' already understand this concept.

Glenda

>

> > Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight.

> >

> > Mr. Sequenzia:

> > There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

> > Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

> > While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

> > All proposed money is consumed by the 60% already funded. Zero for everyone else.

> > The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

> > People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

> > negron.joe.web@... and matt.hudson@...

> > Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

> > Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

> > Every family should get some funded respite services. We don't.

> > The average cost plan of individuals on the waiver is over $44,000 per year.

> > The average cost plan of those just as eligible but stuck on the waitlist is $0.

> > This is fundamentally unfair and discriminatory on its face.

> > While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of " advocates " for individuals with developmental disabilities who are actually advocates only for those already funded.

> > No dollars for the waitlisted? Same old, same old.

> > Respectfully,

> > Binh Quang Chau

> >

> > To: sList

> > Sent: Sunday, February 19, 2012 7:49 AM

> > Subject: Doesn't anyone care that we never received funding????

> >

> > Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were " chosen " to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

> >

> > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

February 21, 2012

Hello everyone,Let me start by saying that I'm totally out of the loop in this funding cuts deal, so I have to ask: they are being proposed because APD simply doesn't have enough money to fund the ones already on the waiver, or are they going to use the money "saved" to moved some kids up from the waiting list?I ask because, if the money is going to be used to pay admin costs or will go up in the proverbial smoke, doesn't make much sense to me to refuse to help those who are on the waiver.Respectfully,Sent from a's iPhone

Glenda,How old is your child?

I agree w/ Binh Quang Chow. If it would mean that more people could get services, I am all for cutting the services of those who are receiving them.

At the risk of being offensive, and I apologize to those of you who I do offend, but I will state that if services are cut for those already funded, perhaps they could take care of some of their child's needs themselves. My husband and I, because our child is on a very long waiting list, take care of ALL of our son's needs ourselves. I think if the money available were spread amongst more people that people would come to understand that some funding is better than none. Those of us that get 'none' already understand this concept.

Glenda

>

> > Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight.

> >

> > Mr. Sequenzia:

> > There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

> > Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

> > While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

> > All proposed money is consumed by the 60% already funded. Zero for everyone else.

> > The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

> > People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

> > negron.joe.web@... and matt.hudson@...

> > Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

> > Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

> > Every family should get some funded respite services. We don't.

> > The average cost plan of individuals on the waiver is over $44,000 per year.

> > The average cost plan of those just as eligible but stuck on the waitlist is $0.

> > This is fundamentally unfair and discriminatory on its face.

> > While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of "advocates" for individuals with developmental disabilities who are actually advocates only for those already funded.

> > No dollars for the waitlisted? Same old, same old.

> > Respectfully,

> > Binh Quang Chau

> >

> > To: sList

> > Sent: Sunday, February 19, 2012 7:49 AM

> > Subject: Doesn't anyone care that we never received funding????

> >

> > Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were "chosen" to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

> >

> > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

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February 21, 2012

Every single person on the waitlist should be against the bill. Why? Because of this line right here being addedFinal determination of tier eligibility may not be made until a waiver slot and funding become available and only then may the client be enrolled in the appropriate tier.

This means that even if you prove you need the waiver through crisis tool, your family member will not be on the waiver until a slot opens. Right now, the law does not stop you from getting on the waiver once you prove need and crisis.

With the proposed cuts, none goes to fund the waitlist! The cut funds just goes back into the state budget with no plan to ever increase the budget. Every time the budget decreases, it means there can be fewer slots ever added to the waiver. So you cut the budget and someone moves out of state or passes on, that slot that opens would not go to someone on the waitlist as there would not be enough funding.

Hello everyone,Let me start by saying that I'm totally out of the loop in this funding cuts deal, so I have to ask: they are being proposed because APD simply doesn't have enough money to fund the ones already on the waiver, or are they going to use the money " saved " to moved some kids up from the waiting list?

I ask because, if the money is going to be used to pay admin costs or will go up in the proverbial smoke, doesn't make much sense to me to refuse to help those who are on the waiver.Respectfully,

Sent from a's iPhone

Glenda,How old is your child?

I agree w/ Binh Quang Chow. If it would mean that more people could get services, I am all for cutting the services of those who are receiving them.

At the risk of being offensive, and I apologize to those of you who I do offend, but I will state that if services are cut for those already funded, perhaps they could take care of some of their child's needs themselves. My husband and I, because our child is on a very long waiting list, take care of ALL of our son's needs ourselves. I think if the money available were spread amongst more people that people would come to understand that some funding is better than none. Those of us that get 'none' already understand this concept.

Glenda

>

> > Thanks so much for that response. My son, who is 27 is also on that waiting list for eight years. No hope and no help in sight.

> >

> > Mr. Sequenzia:

> > There is not one single dollar in the proposed budget for people stuck on the waitlist ...... people who receive zero dollars and zero supports.

> > Moreover, a full 40% of individuals deemed eligible for the waiver are waitlisted with no plan to fund them.

> > While you are understandably upset by proposed changes to your daughter's cost plan, my 28 year old daugher with autism and ID has no cost plan to cut! She is just as eligible as your daughter and yet mine has been waiting 8 years with no hope in sight.

> > All proposed money is consumed by the 60% already funded. Zero for everyone else.

> > The entire APD budget must be increased and whatever it is, insufficient as it is, it must be reallocated so that everyone deemed eligible should get something ....... not nothing. It is because my daugher and 20,000 others like her get zero that your daughter and 30,000 others like her get your cost plans funded. You may use as harsh a tone as you wish, but these are the facts.

> > People who are waitlisted should be writing to Senator Negron and Representative Matt Hudson.

> > negron.joe.web@... and matt.hudson@...

> > Every eligible individuals should get some level of funding to cover core services before any individual gets services that are not core to their health and safety.

> > Every individual should get some funding for a meaningful day activity after they exit the school system. They don't. Unless they are on the waiver.

> > Every family should get some funded respite services. We don't.

> > The average cost plan of individuals on the waiver is over $44,000 per year.

> > The average cost plan of those just as eligible but stuck on the waitlist is $0.

> > This is fundamentally unfair and discriminatory on its face.

> > While you are tired of begging poeple to write to protect what they already have, the wait listed and their families are tired of " advocates " for individuals with developmental disabilities who are actually advocates only for those already funded.

> > No dollars for the waitlisted? Same old, same old.

> > Respectfully,

> > Binh Quang Chau

> >

> > To: sList

> > Sent: Sunday, February 19, 2012 7:49 AM

> > Subject: Doesn't anyone care that we never received funding????

> >

> > Doesn't anyone care that we never received funding? As a mother of a child with autism I definitely want to see the med-waiver program continue but not as currently designed. I wonder what is being done for those of us who have been wait listed for years and have watched from the side while the rest of you receive services from the APD? I have yet to receive any email notice from the Autism Society of America outlining when the rest of us will receive funding. When will our children matter? Where is the urgency in this? The med-waiver program as currently designed doesn't not work and is borderline discriminatory. I think the med-waiver program should be EQUALLY divided among those in need, not given to the select few who were " chosen " to be worthy while the rest of us struggle to provide services for our kids WITHOUT any assistance from the APD. Until I see a more fair and even distribution of med-waiver funds I will not be supporting this proposed plan.

> >

> > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

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-- Hawk - CRPS

February 22, 2012

While I hate the thought of any person currently getting the med-waiver loosing their services, I cannot support this bill as it stands. Not only do I not support this bill, I write my legislators and tell them so and explain why. I sure hope they listen.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

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--

Hawk - CRPS

February 22, 2012

I am not putting blame on anyone I simply stated that I will not support the medwaiver system as it stands. All of our children are deserving and so the money should be divided up evenly.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

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--

Hawk - CRPS

February 22, 2012

I am not putting blame on anyone I simply stated that I will not support the medwaiver system as it stands. All of our children are deserving and so the money should be divided up evenly.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

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Hawk - CRPS

February 22, 2012

I am not putting blame on anyone I simply stated that I will not support the medwaiver system as it stands. All of our children are deserving and so the money should be divided up evenly.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

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Hawk - CRPS

February 22, 2012

Personally, this med waiver does not meet the needs of those who are autistic. We can't lump them with other disabilities. Our kids are disabled but different. And this is not to put down those who are not autistic but disabled. The autistic children and adults should have a waiver all their own that meets the autism criteria. Our kids are not MR, they are not mentally ill, they are autistic.e

Look to the state of PA... 6 parents created, and pushed for the first ever adult autism waiver. I find Florida is so unconcerned about autism . It is a shame. Dont be fighting for services that do not benefit our kids. You must have agencies skilled at working with those on the spectrum. Too bad NO ONE WILL FIND MY THOUGHTS interesting.. but look at PA.. they took those parents seriously.

Re: Re: Doesn't anyone care that we never received funding????

My child was cut to 0 funding last spring, after I had to go to court, we were allocated a few hours per week. I had hoped that because so many of us were cut last year here in south florida then more would be added and I'm sorry that it didn't work out that way. So many of us asked for help then and the discrimination against us for even having it in the first place was extremely hard as a parent to take. I know that I am doing the best I can with the little I am given and feel blessed that I receive any help but it is so harsh to criticize us for having the same needs as so many of you also have and deserve. Why is there fighting among the Autism community about this? It should be directed at the APD and the funding system and to the governor who refuses to accept federal aid, there should be no tax breaks for big corporations and sky boxes and luxury yachts. You don't think we care but we do and it is heartbreaking to hear the infighting. There is plenty of disappointment surrounding this issue,but to blame parents for being at the forefront to even getting the waiver in place so many years ago and their child being eligible for services is unkind. It wasn't supposed to be this way when the program was started. All of our children no matter what age need services, some perhaps are even more involved than others, lets hope the economy gets better so services to all work shops, respite, home care etc is refunded. But please stop the blame game

February 22, 2012

Personally, this med waiver does not meet the needs of those who are autistic. We can't lump them with other disabilities. Our kids are disabled but different. And this is not to put down those who are not autistic but disabled. The autistic children and adults should have a waiver all their own that meets the autism criteria. Our kids are not MR, they are not mentally ill, they are autistic.e

Look to the state of PA... 6 parents created, and pushed for the first ever adult autism waiver. I find Florida is so unconcerned about autism . It is a shame. Dont be fighting for services that do not benefit our kids. You must have agencies skilled at working with those on the spectrum. Too bad NO ONE WILL FIND MY THOUGHTS interesting.. but look at PA.. they took those parents seriously.

Re: Re: Doesn't anyone care that we never received funding????

My child was cut to 0 funding last spring, after I had to go to court, we were allocated a few hours per week. I had hoped that because so many of us were cut last year here in south florida then more would be added and I'm sorry that it didn't work out that way. So many of us asked for help then and the discrimination against us for even having it in the first place was extremely hard as a parent to take. I know that I am doing the best I can with the little I am given and feel blessed that I receive any help but it is so harsh to criticize us for having the same needs as so many of you also have and deserve. Why is there fighting among the Autism community about this? It should be directed at the APD and the funding system and to the governor who refuses to accept federal aid, there should be no tax breaks for big corporations and sky boxes and luxury yachts. You don't think we care but we do and it is heartbreaking to hear the infighting. There is plenty of disappointment surrounding this issue,but to blame parents for being at the forefront to even getting the waiver in place so many years ago and their child being eligible for services is unkind. It wasn't supposed to be this way when the program was started. All of our children no matter what age need services, some perhaps are even more involved than others, lets hope the economy gets better so services to all work shops, respite, home care etc is refunded. But please stop the blame game

February 22, 2012

Personally, this med waiver does not meet the needs of those who are autistic. We can't lump them with other disabilities. Our kids are disabled but different. And this is not to put down those who are not autistic but disabled. The autistic children and adults should have a waiver all their own that meets the autism criteria. Our kids are not MR, they are not mentally ill, they are autistic.e

Look to the state of PA... 6 parents created, and pushed for the first ever adult autism waiver. I find Florida is so unconcerned about autism . It is a shame. Dont be fighting for services that do not benefit our kids. You must have agencies skilled at working with those on the spectrum. Too bad NO ONE WILL FIND MY THOUGHTS interesting.. but look at PA.. they took those parents seriously.

Re: Re: Doesn't anyone care that we never received funding????

My child was cut to 0 funding last spring, after I had to go to court, we were allocated a few hours per week. I had hoped that because so many of us were cut last year here in south florida then more would be added and I'm sorry that it didn't work out that way. So many of us asked for help then and the discrimination against us for even having it in the first place was extremely hard as a parent to take. I know that I am doing the best I can with the little I am given and feel blessed that I receive any help but it is so harsh to criticize us for having the same needs as so many of you also have and deserve. Why is there fighting among the Autism community about this? It should be directed at the APD and the funding system and to the governor who refuses to accept federal aid, there should be no tax breaks for big corporations and sky boxes and luxury yachts. You don't think we care but we do and it is heartbreaking to hear the infighting. There is plenty of disappointment surrounding this issue,but to blame parents for being at the forefront to even getting the waiver in place so many years ago and their child being eligible for services is unkind. It wasn't supposed to be this way when the program was started. All of our children no matter what age need services, some perhaps are even more involved than others, lets hope the economy gets better so services to all work shops, respite, home care etc is refunded. But please stop the blame game

February 22, 2012

I find your comments interesting, but I must say that I disagree on some of them. While I am well aware that autism is different than other disabilities, it doesn't make it more important. I know that may sound strange coming from the president of the Autism Society of Florida, but it is true. All people with disabilities should get the appropriate services and funding. You can have a specific autism waiver and still not get appropriate services. The state of Florida is not unconcerned about autism. It is unconcerned about all disabilities. When the legislature and Governor thinks it is okay to put over $1 billion dollars into education when there are 20,000 people languishing on the waiting list and continuing to cut existing Med Waiver recipients, that should tell you who is more important. Why not put $500 million to fund the waiting list and put $500 million into education? Why not? We need to have people who are going to work and contribute to society, not someone who drains it. Unfortunately, they have never considered people with disabilities important enough to fund appropriately without going to court. They consider people with disabilities like the saying goes for owning a boat, " a hole in the water that you keep throwing money into " . It is really sad to say, but true. Florida tolerates us. They put up with us, because they have to. We roll out the wheelchairs and talk about our need for diapers for our 25 year old with incontinence and the multiple other medical issues and they just see our children and adults with disabilities as a burden on the system. They don't see any value in them.

We need to stand together and fight together to get appropriate funding for every person with a disability. If we continue to take positions of supporting only what is for this one or that one, the legislature and state agencies will continue to capitalize on it and divide and conquer. They are counting on us continually not agreeing with each other and until we can come together and agree on some principles and services that we all need and move forward together, we will never and I mean never, be in a position to change the problem.

If I have offended anyone, then you didn't hear the message.

Personally, this med waiver does not meet the needs of those who are autistic. We can't lump them with other disabilities. Our kids are disabled but different. And this is not to put down those who are not autistic but disabled. The autistic children and adults should have a waiver all their own that meets the autism criteria. Our kids are not MR, they are not mentally ill, they are autistic.e

Look to the state of PA... 6 parents created, and pushed for the first ever adult autism waiver. I find Florida is so unconcerned about autism . It is a shame. Dont be fighting for services that do not benefit our kids. You must have agencies skilled at working with those on the spectrum. Too bad NO ONE WILL FIND MY THOUGHTS interesting.. but look at PA.. they took those parents seriously.

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

Reply to sender | Reply to group | Reply via web post | Start a New Topic

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Hawk - CRPS

-- Regards,Ven Sequenzia, Jr.

PresidentAutism Society of AmericaState of Florida Chapter

February 25, 2012

Well said Binh...same old, same old.

Darla Haskell

IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > To: ven@...

> >

> > Anyone who is receiving the Medwaiver for their child or adult with a developmental disability needs to respond to this email, if you have been notified that your funding will be cut or you sent in a public records request to APD asking how the iBudget will affect you.

> >

> > If you have sent in the public records request that I sent out a few weeks ago or you picked it up at the Autism Society of Florida table at the CARD Conference, I need you to let me know what the reply was from APD. A couple of you have sent me what you received back, but I need more data.

> >

> > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and it is my understanding that everyone is receiving a cut in funding, which will result in a cut in services. This is happening even though APD stated that they would not be cutting services to our loved ones.

> >

> > If we don't act now, we will all have to live with what APD and Senate bill 1516 will do to our services. Please don't sit back and do nothing. If you don't want to lose services, then you need to respond to this email.

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

> > --

> > Regards,

> > Ven Sequenzia, Jr.

> > President

> > Autism Society of America

> > State of Florida Chapter

> >

>

--

Regards,

Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

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Re: Doesn't anyone care that we never received funding????

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