Venting...mother-in-law doesn't get it

August 30, 2002

Ever since we found out that has RSS my mother-in-law just

doesn't seem to get it. Every single time we talk to her about

she always asks " is he gaining weight? are his cheeks filling out

yet? " And when we try to explain to her that yes he is gaining

weight, but he will not gain as quickly as if he did not have RSS. It

seems that the more we explain to her about RSS the less she gets

that RSS is not a disease that can be cured and she almost always

says that she's praying for a miracle.

We try to emphasize to her that he is on track developmentally and is

normal, but he has some issues that we need to monitor. Really in my

opinion I feel that if your child is going to have a genetic syndrome

this is probably one of the better ones to have. There are some

pretty scary things that can happen genetically. I have a younger

sister who was born with trisome 13 and she only lived 13 hours. Had

she survived she probably wouldn't have lived more than 5 years and

would have been severely mentally retarded, had severe hydrocephaly,

the list goes on. So really RSS doesn't seem too scary at all.

Anyhow it has gotten to the point that I don't enjoy talking to her

about because it keeps going the same way.

Oh well, had to get that off my chest.

Has anyone else had similar difficulty with family members or others?

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