Help needed

May 29, 2007

Listmates,

We experienced something this weekend that has me puzzled and I would like to

run it by the adults. This is concerning our little one 6.4 years and should by

rights be on the A-M list but I can't bear to weed through the " everything

negative thing is yeast " posts. If anyone has an objection, please state.

A little background: She never met the counting rules, but her initial hair

test showed no mercury being excreted and she was surely affected. Before

chelation at just two weeks before her 4th birthday she had almost no reciprocal

conversation skills, tons of sensory integration problems, severe social skill

problems and huge deficits in gross and fine motor skills.

She is now after 90 rounds recovered cognitively. She is in a regular

kindergarten with no aide and per teacher report and our observations doing well

academically and socially.

This weekend we did a round, with 25 mgs Ala and 8.33 mgs of Dmsa. This was the

second round after increasing her Ala to 25 mgs. She has always been improved

while " on " a chelation round. It has been on round that all of her behaviors

have occurred and waned off and on before finally becoming permanent.

This round was terrible and quite surprising. No doses were missed and we used a

strict 3 hour dosing during the day and 4 at night. Friday night went well but

Saturday found her pretty spacey and sometimes having word retrieval problems.

By Sunday she was hyper and complained constantly of headaches. She has never

stimmed but I saw her shaking a couple of times and she was clearly

uncomfortable. We increased her vitamin C and her magnesium and the extra

magnesium appeared to help her calm down, a little, maybe. We went the 64 hour

minimum and then stopped the dmsa/ala combination and just continued with the

dmsa on Monday morning. She was fine on Monday morning, no complaints of a

headache and all spaciness, hyperness and word retrieval problems were gone and

she is great today; great mood and back to normal.

Again, this was the second round with 25 mgs of Ala and 8.33 dmsa. Any ideas

what happened here? Any suggestions? It was if she had never been on Ala before

and it was pretty frightening to us. Any idea why this would occur this late in

the process? Any and all suggestions welcome, save for yeast, lol.

Thanks in advance,

May 29, 2007

The recent ALA dose increase seems a likely culprit. What was the

previous dose of ALA, and how long had you been at that dose, before

increasing to 25 mg? Has the DMSA dose changed in the recent past,

or has it been constant for a period of time? How much does she

weigh? Anything else new or different recently?

--

>

> Listmates,

>

> We experienced something this weekend that has me puzzled and I

would like to run it by the adults. This is concerning our little one

6.4 years and should by rights be on the A-M list but I can't bear to

weed through the " everything negative thing is yeast " posts. If

anyone has an objection, please state.

>

> A little background: She never met the counting rules, but her

initial hair test showed no mercury being excreted and she was surely

affected. Before chelation at just two weeks before her 4th birthday

she had almost no reciprocal conversation skills, tons of sensory

integration problems, severe social skill problems and huge deficits

in gross and fine motor skills.

>

> She is now after 90 rounds recovered cognitively. She is in a

regular kindergarten with no aide and per teacher report and our

observations doing well academically and socially.

>

> This weekend we did a round, with 25 mgs Ala and 8.33 mgs of Dmsa.

This was the second round after increasing her Ala to 25 mgs. She has

always been improved while " on " a chelation round. It has been on

round that all of her behaviors have occurred and waned off and on

before finally becoming permanent.

>

> This round was terrible and quite surprising. No doses were missed

and we used a strict 3 hour dosing during the day and 4 at night.

Friday night went well but Saturday found her pretty spacey and

sometimes having word retrieval problems. By Sunday she was hyper and

complained constantly of headaches. She has never stimmed but I saw

her shaking a couple of times and she was clearly uncomfortable. We

increased her vitamin C and her magnesium and the extra magnesium

appeared to help her calm down, a little, maybe. We went the 64 hour

minimum and then stopped the dmsa/ala combination and just continued

with the dmsa on Monday morning. She was fine on Monday morning, no

complaints of a headache and all spaciness, hyperness and word

retrieval problems were gone and she is great today; great mood and

back to normal.

>

> Again, this was the second round with 25 mgs of Ala and 8.33 dmsa.

Any ideas what happened here? Any suggestions? It was if she had

never been on Ala before and it was pretty frightening to us. Any idea

why this would occur this late in the process? Any and all suggestions

welcome, save for yeast, lol.

>

> Thanks in advance,

>

May 30, 2007

>

> Hi ,

>

> She weighs 51 lbs. This was her second round of 25 mgs of Ala and

8.33 of dmsa. The first round went fine, actually no reaction at all

as there hasn't been any reaction for the last two months. Previously

she was on 20 mgs of Ala and 8.33 mg of Dmsa. We keep the dmsa low as

for some reason it pulls zinc like crazy and we have trouble keeping

it in. So only a 5 mg increase of Ala. The last round was 3 weeks ago.

Not a big increase, but you are up to the max dose, so not really

that surprising to see symptoms, even if you haven't for awhile.

Symptoms do vary round to round, so if you stay at this dose you

may have some rough patches and some not so rough, too.

> Her recent hair test which I will post shows pretty much the same

thing, doesn't meet any counting rules. Zinc and copper are within

range, great even. Her sodium was elevated, whatever that means.

> Nothing new that I can think of. She is only on a multivitamin and

cod liver oil. We did change cod liver oil to Green Pastures and I

checked it when we started, undetectable levels of heavy metals. I

called today and requested a copy of the independent third party

testing and it looks fine.

>

> She's back to normal, happy and relaxed today as we are pulling

ourselves off the ceiling. This has never happened before and I'm not

anxious to repeat the experience. I'd be interested in your take on

her hair test. We did get elevated mercury twice and the level has

been low to undetectable for quite some time now.

I'll watch for the hair test.

Sounds like she is none the worse, and hopefully this will just

be a blip in the process and soon forgotten.

> We'll go back to 20 mgs for the next few rounds.

I'm with you - the lower dose seems best for now.

--

>

May 30, 2007

Try cutting the ALA back to what you were using before.

To a certain extent, random stuff that can never be explained does happen, as it

does in

all aspects of life, but with chelation and health issues people generally have

a compulsive

need to ascribe meaning to it.

Worry about it if you see it again. Otherwise put it out of your mind.

Andy

>

> Listmates,

>

> We experienced something this weekend that has me puzzled and I would like to

run it

by the adults. This is concerning our little one 6.4 years and should by rights

be on the A-

M list but I can't bear to weed through the " everything negative thing is yeast "

posts. If

anyone has an objection, please state.

>

> A little background: She never met the counting rules, but her initial hair

test showed

no mercury being excreted and she was surely affected. Before chelation at just

two weeks

before her 4th birthday she had almost no reciprocal conversation skills, tons

of sensory

integration problems, severe social skill problems and huge deficits in gross

and fine

motor skills.

>

> She is now after 90 rounds recovered cognitively. She is in a regular

kindergarten with

no aide and per teacher report and our observations doing well academically and

socially.

>

> This weekend we did a round, with 25 mgs Ala and 8.33 mgs of Dmsa. This was

the

second round after increasing her Ala to 25 mgs. She has always been improved

while " on "

a chelation round. It has been on round that all of her behaviors have occurred

and waned

off and on before finally becoming permanent.

>

> This round was terrible and quite surprising. No doses were missed and we used

a strict

3 hour dosing during the day and 4 at night. Friday night went well but Saturday

found her

pretty spacey and sometimes having word retrieval problems. By Sunday she was

hyper

and complained constantly of headaches. She has never stimmed but I saw her

shaking a

couple of times and she was clearly uncomfortable. We increased her vitamin C

and her

magnesium and the extra magnesium appeared to help her calm down, a little,

maybe. We

went the 64 hour minimum and then stopped the dmsa/ala combination and just

continued with the dmsa on Monday morning. She was fine on Monday morning, no

complaints of a headache and all spaciness, hyperness and word retrieval

problems were

gone and she is great today; great mood and back to normal.

>

> Again, this was the second round with 25 mgs of Ala and 8.33 dmsa. Any ideas

what

happened here? Any suggestions? It was if she had never been on Ala before and

it was

pretty frightening to us. Any idea why this would occur this late in the

process? Any and all

suggestions welcome, save for yeast, lol.

>

> Thanks in advance,

>

May 30, 2007

Hi ,

I have little experience with ALA myself (still can't wake up

consistently at night), but do remember others saying that side

effects can change from round to round. I agree with and

Andy of course.

I'm wondering why not continue to supplement the basics like vitamin

C, zinc, magnesium, B complex, vitamin E (as well as the multi and CLO)?

I encourage you to keep chelating while she is in the routine and

willing to. I still don't know how I'm going to chelate my 19 year old.

All the best

J

> >

> > Listmates,

> >

> > We experienced something this weekend that has me puzzled and I

> would like to run it by the adults. This is concerning our little one

> 6.4 years and should by rights be on the A-M list but I can't bear to

> weed through the " everything negative thing is yeast " posts. If

> anyone has an objection, please state.

> >

> > A little background: She never met the counting rules, but her

> initial hair test showed no mercury being excreted and she was surely

> affected. Before chelation at just two weeks before her 4th birthday

> she had almost no reciprocal conversation skills, tons of sensory

> integration problems, severe social skill problems and huge deficits

> in gross and fine motor skills.

> >

> > She is now after 90 rounds recovered cognitively. She is in a

> regular kindergarten with no aide and per teacher report and our

> observations doing well academically and socially.

> >

> > This weekend we did a round, with 25 mgs Ala and 8.33 mgs of Dmsa.

> This was the second round after increasing her Ala to 25 mgs. She has

> always been improved while " on " a chelation round. It has been on

> round that all of her behaviors have occurred and waned off and on

> before finally becoming permanent.

> >

> > This round was terrible and quite surprising. No doses were missed

> and we used a strict 3 hour dosing during the day and 4 at night.

> Friday night went well but Saturday found her pretty spacey and

> sometimes having word retrieval problems. By Sunday she was hyper and

> complained constantly of headaches. She has never stimmed but I saw

> her shaking a couple of times and she was clearly uncomfortable. We

> increased her vitamin C and her magnesium and the extra magnesium

> appeared to help her calm down, a little, maybe. We went the 64 hour

> minimum and then stopped the dmsa/ala combination and just continued

> with the dmsa on Monday morning. She was fine on Monday morning, no

> complaints of a headache and all spaciness, hyperness and word

> retrieval problems were gone and she is great today; great mood and

> back to normal.

> >

> > Again, this was the second round with 25 mgs of Ala and 8.33 dmsa.

> Any ideas what happened here? Any suggestions? It was if she had

> never been on Ala before and it was pretty frightening to us. Any idea

> why this would occur this late in the process? Any and all suggestions

> welcome, save for yeast, lol.

> >

> > Thanks in advance,

> >

May 31, 2007

----- Original Message -----

From: lindajaytee