Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 I am still trying to get doctors to put me on SOMETHING for the PH I was diagnosed with in October but actually have had since June. The doctor is hesitant because he doesn't want me passing out or something...Where is his head. So there is no treatment for me??? I am having a bad time with breathing for a few months now and I think I have heard from others it would help being on this type of medicine not only the breathing, but allow me to walk around better with less SOB. Talk about mismanaged care- I have been on 4LPM since June of 2007. The oxygen company told me today they only received a script for 2 LPM. Our power was out and I asked them to call the doctor since I was saving my cell phone for emergencies. But imagine that-all this time and the doc doesn't even KNOW what I am on??? I see him every 2 months! Guess I have to make some serious decisions here-soon. Getting pretty sucky breathing. Bad enough with the muscle disease and trying to fight everything all at once. Thanks for listening....wish doctors were better around here........... I HOPE EVERYONE HAS A HAPPY HEALTHIER NEW YEAR! Diane PF,Raynauds,Sjorgrens,PM 2006 PH 2008 Quote Link to comment Share on other sites More sharing options...
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