Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Sher: Even though I am on #5 24/7, I find these past 2 weeks I am not getting enough oxygen just sitting, and if I talk while sitting, forget it. So yesterday and today I have had it up to #7 all day. I find it is better. I HATE doing that but it is my body. The fatigue and confusion is worse than ever. I feel I am progressing right along, I WOULDN'T WANT TO DISAPPOINT THIS DISEASE OR ANYTHING. Another thing, Sher, even though I am older than you, we still have the problem of getting older and each day it seems is a little more strenuous to do the things I was doing last week. I just don't know what to do anymore. My pulmo can't do anything more for me. He already told me that. I LOVE YOU THIS DAY MARY LOU RICHMOND VA IPF - 02 > > As a lot of you know, I've continued to have problems with sob even tho' the sats are fairly normal...and its worse now then before. ( I see dr next month>>>after 6 months). > I'm using O2 more and it helps my breathing. Again, even tho' the sats are fairly normal. > I've been told, " You're sob because you have a lung disease! " . OK, but what is one supposed to do to be able to breathe better " with a lung disease " ? > Am I making sense for anyone to understand? > Also, confusion to the max, extreme fatigue. > > Thanks. > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Sher, You make complete sense. I think most of us understand what you are talking about but the answer you've gotten is probably the closest one to the truth. There is no escaping a certain amount of sob with pulmonary fibrosis. It comes with the territory. If you get relief from using your O2 then use it! The one question I have is what do you mean when you say, "fairly normal sats". If your sats are in the low 90's and you feel sob you're body is letting you know that you're getting close to a danger zone and the sob is a warning. If you're sats are in the mid to high 90's and you're sob, that's just part of having a restricitive lung disease. Our lungs are stiff and it's hard to move air in and out. Our brain interprets the extra effort it takes to move air as shortness of breath. If using the O2 relieves that feeling, then use it. Don't be afraid of the O2, it's not an addictive drug. Don't worry about being "dependent" on it. Everyone, lung disease or not is dependent on O2. We need it to live! Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Sunday, October 26, 2008 2:46:58 PMSubject: Can anybody relate? As a lot of you know, I've continued to have problems with sob even tho' the sats are fairly normal...and its worse now then before. ( I see dr next month>>>after 6 months). I'm using O2 more and it helps my breathing. Again, even tho' the sats are fairly normal. I've been told, "You're sob because you have a lung disease!". OK, but what is one supposed to do to be able to breathe better "with a lung disease"? Am I making sense for anyone to understand? Also, confusion to the max, extreme fatigue. Thanks. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Thanks MB. This is a very clear answer and I just needed to hear it again. "Fairly normal sats" would mean mid 90s. If your sats are in the low 90's and you feel sob you're body is letting you know that you're getting close to a danger zone and the sob is a warning. Our brain interprets the extra effort it takes to move air as shortness of breath. This I particularly liked! Gives me clarity. Thanks so much. I do think I've had a bit of a downhill dip. I just "feel" different. I'm not afraid of 02..I understand it's not addictive, especially on my 2.5>>>3L. Hell, I don't care if I am "dependent" on it. Like you say, we're all dependent on breathing! Thanks. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Can anybody relate? As a lot of you know, I've continued to have problems with sob even tho' the sats are fairly normal...and its worse now then before. ( I see dr next month>>>after 6 months). I'm using O2 more and it helps my breathing. Again, even tho' the sats are fairly normal. I've been told, "You're sob because you have a lung disease!". OK, but what is one supposed to do to be able to breathe better "with a lung disease"? Am I making sense for anyone to understand? Also, confusion to the max, extreme fatigue. Thanks. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Sher The one thing you are doing great is paying attention and understanding how you feel and how oxygen plays into that. In addition to just having a lung disease we also have other factors hitting us all. Many of us aren't as active so our endurance has lessened. This is true even for those of us on a treadmill. When you're not use to being out and about all day, for instance, and then are, its more tiring. It's not like exercise. Also, we have other issues health wise, including aging in general. Very few of us just have the lung disease. Then add on that the seasons, the pollens, using heat in our homes which dries them out, or humidity in the summer. So many factors. > > Thanks MB. This is a very clear answer and I just needed to hear it again. > " Fairly normal sats " would mean mid 90s. > If your sats are in the low 90's and you feel sob you're body is letting you know that you're getting close to a danger zone and the sob is a warning. Our brain interprets the extra effort it takes to move air as shortness of breath. > This I particularly liked! Gives me clarity. > Thanks so much. > I do think I've had a bit of a downhill dip. > I just " feel " different. > I'm not afraid of 02..I understand it's not addictive, especially on my 2.5>>>3L. Hell, I don't care if I am " dependent " on it. Like you say, we're all dependent on breathing! Thanks. > > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > Can anybody relate? > > > > As a lot of you know, I've continued to have problems with sob even tho' the sats are fairly normal...and its worse now then before. ( I see dr next month>>>after 6 months). > I'm using O2 more and it helps my breathing. Again, even tho' the sats are fairly normal. > I've been told, " You're sob because you have a lung disease! " . OK, but what is one supposed to do to be able to breathe better " with a lung disease " ? > Am I making sense for anyone to understand? > Also, confusion to the max, extreme fatigue. > > Thanks. > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
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