Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Ditto from me to. I hope you are having sweet peaceful dreams. Rest and know you are thought of and prayed for everyday. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Just want you to know I'm thinking of you and am sending you great big hugs.Love you this day and every day! Beth in North CarolinaModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Hi Sweetie, How are you doing? You are on my mind and in my heart. I hope this finds you being yourfeisty self. Know you are Loved this day. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Dear : Many loving condolences to you and your family of yor Dads passing. We will keeep you in our prayers.I love you this day. LouIPF - 02> >> > I'm still playing telephone tag with The Jewish Hospital and wonder> how long ahead that they make an appoointment. Does anyone know if it> will be weeks or months?> >> > I have decided to not take my oxygen with me on the plane. I am> only on 3 liters and the terminal is at sea level in Pheonix and I am> at 5200 feet at home so I should be all right walking thru the> terminal and on the plane, I am not moving so my need for oxygen will> be little. I don't know about Denver's terminal..how long it is, etc.> but I think I can make it. That will make things considerably easier> for me traveling. The Jewish Hospital said to contact them if you> need oxygen and I will. I have to cut expenses and if Medicare won't> pay for it I won't take it. It will all ready cost me about $200 aday> with dog boarding, plane fair and hotel and food expenses. I hope to> be able to get into a motel or hotel that has a shuttle and that> should cut expenses a bit. Also, I would like one that has Wifi and> breakfast. I think I can make it on 2 meals a day. I hope they have> dining facilities too but would love it if there were a Burger King> within easy distance..LOL The patient representative said that I> could be there 7 days. The key word is COULD so if I plan on the> original 4 that they first said what will happen to my return ticket?> And if I get a return ticket for 7 days what if they are thru with me> in 4? This all seems so complicated. And this telephone tag is> aggravating. She leaves me a message that says "Call me as soon as> possible" and I do and all I get is an answering machine that says> she will get back to me in 24-48 hours...well, she never gets back to> me in 24 and then there is the whole weekend and then when Monday> comes I have things I have to do! I have to run around and get the> tests results sent and they are in more then one facility! I also> have my exercise class and Usually need to go shopping...I can't just> sit at home and wait not knowing when they will call. They asked me> for my cell phone number which I called and gave her (leaving it on> her voice mail which she said would be fine) but she has never used> it. I am so frustrated with The Jewish I have to just forget about> them and go about my business.> >> > Today is a bad day breathing wise for me and I don't know why....I> feel like I am not getting enough air and my chest feels "heavy". I> feel like one of my dogs is sitting on my chest....does that make> sense? BlueFlyer JOyce AZ IPF 11-08> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Hi Sweetie, How are you doing? You are on my mind and in my heart. I hope this finds you being yourfeisty self. Know you are Loved this day. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Dear : Many loving condolences to you and your family of yor Dads passing. We will keeep you in our prayers.I love you this day. LouIPF - 02> >> > I'm still playing telephone tag with The Jewish Hospital and wonder> how long ahead that they make an appoointment. Does anyone know if it> will be weeks or months?> >> > I have decided to not take my oxygen with me on the plane. I am> only on 3 liters and the terminal is at sea level in Pheonix and I am> at 5200 feet at home so I should be all right walking thru the> terminal and on the plane, I am not moving so my need for oxygen will> be little. I don't know about Denver's terminal..how long it is, etc.> but I think I can make it. That will make things considerably easier> for me traveling. The Jewish Hospital said to contact them if you> need oxygen and I will. I have to cut expenses and if Medicare won't> pay for it I won't take it. It will all ready cost me about $200 aday> with dog boarding, plane fair and hotel and food expenses. I hope to> be able to get into a motel or hotel that has a shuttle and that> should cut expenses a bit. Also, I would like one that has Wifi and> breakfast. I think I can make it on 2 meals a day. I hope they have> dining facilities too but would love it if there were a Burger King> within easy distance..LOL The patient representative said that I> could be there 7 days. The key word is COULD so if I plan on the> original 4 that they first said what will happen to my return ticket?> And if I get a return ticket for 7 days what if they are thru with me> in 4? This all seems so complicated. And this telephone tag is> aggravating. She leaves me a message that says "Call me as soon as> possible" and I do and all I get is an answering machine that says> she will get back to me in 24-48 hours...well, she never gets back to> me in 24 and then there is the whole weekend and then when Monday> comes I have things I have to do! I have to run around and get the> tests results sent and they are in more then one facility! I also> have my exercise class and Usually need to go shopping...I can't just> sit at home and wait not knowing when they will call. They asked me> for my cell phone number which I called and gave her (leaving it on> her voice mail which she said would be fine) but she has never used> it. I am so frustrated with The Jewish I have to just forget about> them and go about my business.> >> > Today is a bad day breathing wise for me and I don't know why....I> feel like I am not getting enough air and my chest feels "heavy". I> feel like one of my dogs is sitting on my chest....does that make> sense? BlueFlyer JOyce AZ IPF 11-08> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Lou, What a beautiful daughter you have, she does look like her Mama.. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.