Re: Help! Doc wants me off T3

[Guest guest]

Well, I'm no expert BUT everybody is different. What one feels like at .24 another person may feel like at .86, just examples. So it varies. It really comes down to how YOU feel. Just listen to what the mods say, they are more of an expert than I am. I just wanted to throw in my two cents worth! LOL

To: RT3_T3 Sent: Thu, June 17, 2010 12:43:13 PMSubject: Help! Doc wants me off T3

Hi, new here and could use some help.Labs October 2009Tsh 0.50 range 0.38-5.5Ft3 4.7 range 3.5-6.5Ft4 16 range 10-20Started 1 grain ERFA worked up to 2 by Feb 2010Feb 2010 labs:TSH 0.01 range 0.38-5.5Ft3 7 range 3.5-6.5Ft4 18 range 10-20TPO Antibodies < 10 range > 30Ferritin 80Feeling progressively more hypo, despite labs. In Canada, can't seem to find anywhere to get tested for RT3 but after reading this group for a while decided to try and see if T3 only would work.Labs June 2010, taken 12 hours after last dose, total taken 37.5 split in 4TSH 0.06 (0.38-5.5)FT3 3.9 (3.5-6.5)FT4 5.0 ( 10.5-20)Ferritin 128Folate >50Sodium 137 (135-145)Potassium 4.5 (3.5-5)B12 501 (150-650)D3 110 (21-135)This is under a new doc who wants me off T3 and says I should never have gone on ERFA at all because "TSH was low".

Question, am I on the right track?

[Guest guest]

Well, I'm no expert BUT everybody is different. What one feels like at .24 another person may feel like at .86, just examples. So it varies. It really comes down to how YOU feel. Just listen to what the mods say, they are more of an expert than I am. I just wanted to throw in my two cents worth! LOL

To: RT3_T3 Sent: Thu, June 17, 2010 12:43:13 PMSubject: Help! Doc wants me off T3

Hi, new here and could use some help.Labs October 2009Tsh 0.50 range 0.38-5.5Ft3 4.7 range 3.5-6.5Ft4 16 range 10-20Started 1 grain ERFA worked up to 2 by Feb 2010Feb 2010 labs:TSH 0.01 range 0.38-5.5Ft3 7 range 3.5-6.5Ft4 18 range 10-20TPO Antibodies < 10 range > 30Ferritin 80Feeling progressively more hypo, despite labs. In Canada, can't seem to find anywhere to get tested for RT3 but after reading this group for a while decided to try and see if T3 only would work.Labs June 2010, taken 12 hours after last dose, total taken 37.5 split in 4TSH 0.06 (0.38-5.5)FT3 3.9 (3.5-6.5)FT4 5.0 ( 10.5-20)Ferritin 128Folate >50Sodium 137 (135-145)Potassium 4.5 (3.5-5)B12 501 (150-650)D3 110 (21-135)This is under a new doc who wants me off T3 and says I should never have gone on ERFA at all because "TSH was low".

Question, am I on the right track?

[Guest guest]

Thanks for your reply, at this point I really appreciate a positve response!

I actually do feel better, that's just it. water retention is getting better,

heart rate feels calmer/lower whatever, it's not beating hard anymore...actually

not true, it does but when that starts is how I remember to take the next dose.

Hoping someone can tell me if it is normal for FT4 to drop by so much when

switching to T3 only???

>

> Well, I'm no expert BUT everybody is different. What one feels like at .24

another person may feel like at .86, just examples. So it varies. It really

comes down to how YOU feel. Just listen to what the mods say, they are more of

an expert than I am. I just wanted to throw in my two cents worth! LOL

>

>

>

>

> ________________________________

>

> To: RT3_T3

> Sent: Thu, June 17, 2010 12:43:13 PM

> Subject: Help! Doc wants me off T3

>

> Â

> Hi, new here and could use some help.

>

> Labs October 2009

>

> Tsh 0.50 range 0.38-5.5

> Ft3 4.7 range 3.5-6.5

> Ft4 16 range 10-20

>

> Started 1 grain ERFA worked up to 2 by Feb 2010

>

> Feb 2010 labs:

>

> TSH 0.01 range 0.38-5.5

> Ft3 7 range 3.5-6.5

> Ft4 18 range 10-20

> TPO Antibodies < 10 range > 30

> Ferritin 80

>

> Feeling progressively more hypo, despite labs. In Canada, can't seem to find

anywhere to get tested for RT3 but after reading this group for a while decided

to try and see if T3 only would work.

>

> Labs June 2010, taken 12 hours after last dose, total taken 37.5 split in 4

>

> TSH 0.06 (0.38-5.5)

> FT3 3.9 (3.5-6.5)

> FT4 5.0 ( 10.5-20)

>

> Ferritin 128

> Folate >50

> Sodium 137 (135-145)

> Potassium 4.5 (3.5-5)

> B12 501 (150-650)

> D3 110 (21-135)

>

> This is under a new doc who wants me off T3 and says I should never have gone

on ERFA at all because " TSH was low " .

>

> Question, am I on the right track?

>

[Guest guest]

Colleen,

Can you please tell me how long you've been on your current dose of T3 only

before you felt water retention? I've been having the EXACT same symptoms along

with hives.... and I'm SO BUMMED because I LOVED my T3.

> >

> > Well, I'm no expert BUT everybody is different. What one feels like at .24

another person may feel like at .86, just examples. So it varies. It really

comes down to how YOU feel. Just listen to what the mods say, they are more of

an expert than I am. I just wanted to throw in my two cents worth! LOL

> >

> >

> >

> >

> > ________________________________

> > From: colleen.ciccozzi <finnite@>

> > To: RT3_T3

> > Sent: Thu, June 17, 2010 12:43:13 PM

> > Subject: Help! Doc wants me off T3

> >

> > Â

> > Hi, new here and could use some help.

> >

> > Labs October 2009

> >

> > Tsh 0.50 range 0.38-5.5

> > Ft3 4.7 range 3.5-6.5

> > Ft4 16 range 10-20

> >

> > Started 1 grain ERFA worked up to 2 by Feb 2010

> >

> > Feb 2010 labs:

> >

> > TSH 0.01 range 0.38-5.5

> > Ft3 7 range 3.5-6.5

> > Ft4 18 range 10-20

> > TPO Antibodies < 10 range > 30

> > Ferritin 80

> >

> > Feeling progressively more hypo, despite labs. In Canada, can't seem to find

anywhere to get tested for RT3 but after reading this group for a while decided

to try and see if T3 only would work.

> >

> > Labs June 2010, taken 12 hours after last dose, total taken 37.5 split in 4

> >

> > TSH 0.06 (0.38-5.5)

> > FT3 3.9 (3.5-6.5)

> > FT4 5.0 ( 10.5-20)

> >

> > Ferritin 128

> > Folate >50

> > Sodium 137 (135-145)

> > Potassium 4.5 (3.5-5)

> > B12 501 (150-650)

> > D3 110 (21-135)

> >

> > This is under a new doc who wants me off T3 and says I should never have

gone on ERFA at all because " TSH was low " .

> >

> > Question, am I on the right track?

> >

>

[Guest guest]

Hi ,

I had the worst water retention on the NDT (ERFA) at 2 grains, my shoes didn't

fit etc

I still have some (the indents made by my socks take up to 4 hours to disappear)

but I'm wondering if that has more to do with low sodium levels? (mine is 137)

and/or if it will disappear as the RT3 clears?

Did you get water retention when you started the T3?

>

>

> Colleen,

>

> Can you please tell me how long you've been on your current dose of T3 only

before you felt water retention? I've been having the EXACT same symptoms along

with hives.... and I'm SO BUMMED because I LOVED my T3.

>

>

>

[Guest guest]

Hi ,

I had the worst water retention on the NDT (ERFA) at 2 grains, my shoes didn't

fit etc

I still have some (the indents made by my socks take up to 4 hours to disappear)

but I'm wondering if that has more to do with low sodium levels? (mine is 137)

and/or if it will disappear as the RT3 clears?

Did you get water retention when you started the T3?

>

>

> Colleen,

>

> Can you please tell me how long you've been on your current dose of T3 only

before you felt water retention? I've been having the EXACT same symptoms along

with hives.... and I'm SO BUMMED because I LOVED my T3.

>

>

>

[Guest guest]

Hi ,

I had the worst water retention on the NDT (ERFA) at 2 grains, my shoes didn't

fit etc

I still have some (the indents made by my socks take up to 4 hours to disappear)

but I'm wondering if that has more to do with low sodium levels? (mine is 137)

and/or if it will disappear as the RT3 clears?

Did you get water retention when you started the T3?

>

>

> Colleen,

>

> Can you please tell me how long you've been on your current dose of T3 only

before you felt water retention? I've been having the EXACT same symptoms along

with hives.... and I'm SO BUMMED because I LOVED my T3.

>

>

>

[Guest guest]

No, I definitely had it while on ERFA (natural dessicated thyroid), but it was

just like fluid was travelling through my body...in the morning my hands and

wrists would be swollen and sometimes my feet and ankles. By the end of the day

I was swollen from the mid thigh down, skin was taut etc.

Since starting the cynomel I've seen the fluid retention reduce quite a bit from

where it was.

> > >

> > >

> > > Colleen,

> > >

> > > Can you please tell me how long you've been on your current dose of T3

only before you felt water retention? I've been having the EXACT same symptoms

along with hives.... and I'm SO BUMMED because I LOVED my T3.

> > >

> > >

> > >

> >

>