Re: Terrified newbie - please help - long.

[Guest guest]

Hi Herb,

I haven't had my filings out yet, and so I haven't

started taking DMSA. But my doctor didn't know about

the Cutler protocol and so he had me taking ALA for 6

weeks. Before and after this period I had some

cognitive and neurological problems of my own, such as

tremors, forgetfulness, vertical nystagmus, and

others. But they got much, much worse while I was on

the ALA. My understanding is that the chelation is

expected to stir up some mercury (with the DMSA

removing it) and it sounds like this is happening in

your case. I also gather that side effects are

common, and finding a dose which keeps them tolerable

is the key. I agree they are terrifying - I woke up

one morning to find I could no longer computer

program, no matter how hard I tried, and it was six

weeks before I regained most of my abilities (i.e.,

once I quit the ALA). When I chelate I wouldn't be

surprised if my skills and symptoms come back for

awhile.

Good luck with your chelation - sounds like you are

moving some mercury!

Dave

--- " herb.maynard " herb.maynard@...> wrote:

> Hi. I'm new to the group, and need a little advice

> if you guys can

> give it to me. I'm not sure of your etiquette here

> so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of

> chelation, having had

> my fillings out in Nov of 2005. My hair test

> implied more or less

> normal mineral transport, but moderately high

> mercury and arsenic. A

> DPMS challenge (done by my GP back in early 2005

> before I knew any

> better) saw mercury fall out of me big time so at

> the very least we

> know I've got a problem with that for sure. A lot

> of my other

> symptoms do kind of fit with the arsenic description

> provided in the

> Hair Test Interpretation manual so I think it's a

> fair bet that there

> is some of this in me too. History is interesting

> in that my mum has

> fibromyalgia, my sister has a severe anxiety

> disorder, I've had tics

> and twitches since I was a kid, I had developmental

> delays, and I'm

> an optometrist so have been exposed to thimerasol at

> work since the

> mid 80's. So I'm reasonably sure that I'm both

> badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg

> DMSA and 120 mg LA,

> three hourly, three days a week, after spending

> several months doing

> DMSA chelation alone after the fillings were

> removed.

>

> Since about six months into the LA/DMSA phase, (so

> the past four

> months) I've had really terrifying cognitive and

> neurological

> symptoms – memory problems that come and go,

> difficulty finding words

> sometimes, depression on and off, and parasthesias

> in my legs. None

> of these things are getting a whole lot worse since

> they kicked in a

> few months back but they come and go almost at

> random, on pretty much

> a daily basis. It's terrifying me and I'm not sure

> whether it's the

> expected worsening of symptoms discussed in the

> text, or something

> else. For what it's worth, all of the above

> symptoms – the

> depression, funny feelings in my legs, dodgy memory,

> and getting

> words mixed up – I've had to a minor degree before

> chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and

> alone here and I'd

> be grateful to hear what anyone has to say, really.

> Thanks in

> advance, Herb Maynard.

>

>

>

[Guest guest]

Hi Herb,

I haven't had my filings out yet, and so I haven't

started taking DMSA. But my doctor didn't know about

the Cutler protocol and so he had me taking ALA for 6

weeks. Before and after this period I had some

cognitive and neurological problems of my own, such as

tremors, forgetfulness, vertical nystagmus, and

others. But they got much, much worse while I was on

the ALA. My understanding is that the chelation is

expected to stir up some mercury (with the DMSA

removing it) and it sounds like this is happening in

your case. I also gather that side effects are

common, and finding a dose which keeps them tolerable

is the key. I agree they are terrifying - I woke up

one morning to find I could no longer computer

program, no matter how hard I tried, and it was six

weeks before I regained most of my abilities (i.e.,

once I quit the ALA). When I chelate I wouldn't be

surprised if my skills and symptoms come back for

awhile.

Good luck with your chelation - sounds like you are

moving some mercury!

Dave

--- " herb.maynard " herb.maynard@...> wrote:

> Hi. I'm new to the group, and need a little advice

> if you guys can

> give it to me. I'm not sure of your etiquette here

> so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of

> chelation, having had

> my fillings out in Nov of 2005. My hair test

> implied more or less

> normal mineral transport, but moderately high

> mercury and arsenic. A

> DPMS challenge (done by my GP back in early 2005

> before I knew any

> better) saw mercury fall out of me big time so at

> the very least we

> know I've got a problem with that for sure. A lot

> of my other

> symptoms do kind of fit with the arsenic description

> provided in the

> Hair Test Interpretation manual so I think it's a

> fair bet that there

> is some of this in me too. History is interesting

> in that my mum has

> fibromyalgia, my sister has a severe anxiety

> disorder, I've had tics

> and twitches since I was a kid, I had developmental

> delays, and I'm

> an optometrist so have been exposed to thimerasol at

> work since the

> mid 80's. So I'm reasonably sure that I'm both

> badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg

> DMSA and 120 mg LA,

> three hourly, three days a week, after spending

> several months doing

> DMSA chelation alone after the fillings were

> removed.

>

> Since about six months into the LA/DMSA phase, (so

> the past four

> months) I've had really terrifying cognitive and

> neurological

> symptoms – memory problems that come and go,

> difficulty finding words

> sometimes, depression on and off, and parasthesias

> in my legs. None

> of these things are getting a whole lot worse since

> they kicked in a

> few months back but they come and go almost at

> random, on pretty much

> a daily basis. It's terrifying me and I'm not sure

> whether it's the

> expected worsening of symptoms discussed in the

> text, or something

> else. For what it's worth, all of the above

> symptoms – the

> depression, funny feelings in my legs, dodgy memory,

> and getting

> words mixed up – I've had to a minor degree before

> chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and

> alone here and I'd

> be grateful to hear what anyone has to say, really.

> Thanks in

> advance, Herb Maynard.

>

>

>

[Guest guest]

Hi Herb,

I haven't had my filings out yet, and so I haven't

started taking DMSA. But my doctor didn't know about

the Cutler protocol and so he had me taking ALA for 6

weeks. Before and after this period I had some

cognitive and neurological problems of my own, such as

tremors, forgetfulness, vertical nystagmus, and

others. But they got much, much worse while I was on

the ALA. My understanding is that the chelation is

expected to stir up some mercury (with the DMSA

removing it) and it sounds like this is happening in

your case. I also gather that side effects are

common, and finding a dose which keeps them tolerable

is the key. I agree they are terrifying - I woke up

one morning to find I could no longer computer

program, no matter how hard I tried, and it was six

weeks before I regained most of my abilities (i.e.,

once I quit the ALA). When I chelate I wouldn't be

surprised if my skills and symptoms come back for

awhile.

Good luck with your chelation - sounds like you are

moving some mercury!

Dave

--- " herb.maynard " herb.maynard@...> wrote:

> Hi. I'm new to the group, and need a little advice

> if you guys can

> give it to me. I'm not sure of your etiquette here

> so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of

> chelation, having had

> my fillings out in Nov of 2005. My hair test

> implied more or less

> normal mineral transport, but moderately high

> mercury and arsenic. A

> DPMS challenge (done by my GP back in early 2005

> before I knew any

> better) saw mercury fall out of me big time so at

> the very least we

> know I've got a problem with that for sure. A lot

> of my other

> symptoms do kind of fit with the arsenic description

> provided in the

> Hair Test Interpretation manual so I think it's a

> fair bet that there

> is some of this in me too. History is interesting

> in that my mum has

> fibromyalgia, my sister has a severe anxiety

> disorder, I've had tics

> and twitches since I was a kid, I had developmental

> delays, and I'm

> an optometrist so have been exposed to thimerasol at

> work since the

> mid 80's. So I'm reasonably sure that I'm both

> badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg

> DMSA and 120 mg LA,

> three hourly, three days a week, after spending

> several months doing

> DMSA chelation alone after the fillings were

> removed.

>

> Since about six months into the LA/DMSA phase, (so

> the past four

> months) I've had really terrifying cognitive and

> neurological

> symptoms – memory problems that come and go,

> difficulty finding words

> sometimes, depression on and off, and parasthesias

> in my legs. None

> of these things are getting a whole lot worse since

> they kicked in a

> few months back but they come and go almost at

> random, on pretty much

> a daily basis. It's terrifying me and I'm not sure

> whether it's the

> expected worsening of symptoms discussed in the

> text, or something

> else. For what it's worth, all of the above

> symptoms – the

> depression, funny feelings in my legs, dodgy memory,

> and getting

> words mixed up – I've had to a minor degree before

> chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and

> alone here and I'd

> be grateful to hear what anyone has to say, really.

> Thanks in

> advance, Herb Maynard.

>

>

>

[Guest guest]

>

> I've been doing my chelation by the book; 100 mg DMSA and 120 mg LA,

> three hourly, three days a week,

I know Andy suggests those kinds of dosages in " Amalgam Illness " , but

I think it's turned out that most people can't dose that high without

having really uncomfortable side effects -- and that means, more or

less, a worsening of the symptoms you had before starting chelation.

So it sounds like that's what's going on with you.

Given how scary your symptoms feel, I'd probably dial it back to 25

mgs of each and see if that helps, and then titrate either way depending.

What supps are you taking? I had most of your symptoms as well,

including some really scary cognitive stuff like driving along and

suddenly having no idea where I was or where I was going -- and that

resolved once I combed through AI and got on the right supps.

>It's terrifying me and I'm not sure whether it's the

> expected worsening of symptoms discussed in the text,

That's what it sounds like to me. Or you aren't taking enough supps or

the ones you need.

Nell

[Guest guest]

How much do you weigh? Have you done a saliva test for adrenals, and/or blood

spot test

for thyroids? What supplements are you taking?

in Illinois

[Guest guest]

Herb,

Nothing inappropriate about your post... but one problem I see with

your protocol.

Unless you weigh several hundrend pounds, I would say your dose of LA

is too high (and probably your DMSA, too). Even if you DO weigh 250+

lbs, it seems many of the 'sicker' people here (more toxic?) can't

handle doses close to that amount.

I forgot to add: welcome to the group. I don't post here often, but

I popped by today to catch up. I'm currently chelating with 20 mgs

LA every 3 hours (I weigh 120 lbs).

You have supplements in place?

I hope the more experienced members can help you. Must be

frightening to experience those symptoms (I'm just depressed and

irritated!).

Take care,

Pam

>

> Hi. I'm new to the group, and need a little advice if you guys can

> give it to me. I'm not sure of your etiquette here so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of chelation, having had

> my fillings out in Nov of 2005. My hair test implied more or less

> normal mineral transport, but moderately high mercury and arsenic.

A

> DPMS challenge (done by my GP back in early 2005 before I knew any

> better) saw mercury fall out of me big time so at the very least we

> know I've got a problem with that for sure. A lot of my other

> symptoms do kind of fit with the arsenic description provided in

the

> Hair Test Interpretation manual so I think it's a fair bet that

there

> is some of this in me too. History is interesting in that my mum

has

> fibromyalgia, my sister has a severe anxiety disorder, I've had

tics

> and twitches since I was a kid, I had developmental delays, and I'm

> an optometrist so have been exposed to thimerasol at work since the

> mid 80's. So I'm reasonably sure that I'm both badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg DMSA and 120 mg

LA,

> three hourly, three days a week, after spending several months

doing

> DMSA chelation alone after the fillings were removed.

>

> Since about six months into the LA/DMSA phase, (so the past four

> months) I've had really terrifying cognitive and neurological

> symptoms – memory problems that come and go, difficulty finding

words

> sometimes, depression on and off, and parasthesias in my legs.

None

> of these things are getting a whole lot worse since they kicked in

a

> few months back but they come and go almost at random, on pretty

much

> a daily basis. It's terrifying me and I'm not sure whether it's

the

> expected worsening of symptoms discussed in the text, or something

> else. For what it's worth, all of the above symptoms – the

> depression, funny feelings in my legs, dodgy memory, and getting

> words mixed up – I've had to a minor degree before chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and alone here and I'd

> be grateful to hear what anyone has to say, really. Thanks in

> advance, Herb Maynard.

>

[Guest guest]

Herb,

Nothing inappropriate about your post... but one problem I see with

your protocol.

Unless you weigh several hundrend pounds, I would say your dose of LA

is too high (and probably your DMSA, too). Even if you DO weigh 250+

lbs, it seems many of the 'sicker' people here (more toxic?) can't

handle doses close to that amount.

I forgot to add: welcome to the group. I don't post here often, but

I popped by today to catch up. I'm currently chelating with 20 mgs

LA every 3 hours (I weigh 120 lbs).

You have supplements in place?

I hope the more experienced members can help you. Must be

frightening to experience those symptoms (I'm just depressed and

irritated!).

Take care,

Pam

>

> Hi. I'm new to the group, and need a little advice if you guys can

> give it to me. I'm not sure of your etiquette here so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of chelation, having had

> my fillings out in Nov of 2005. My hair test implied more or less

> normal mineral transport, but moderately high mercury and arsenic.

A

> DPMS challenge (done by my GP back in early 2005 before I knew any

> better) saw mercury fall out of me big time so at the very least we

> know I've got a problem with that for sure. A lot of my other

> symptoms do kind of fit with the arsenic description provided in

the

> Hair Test Interpretation manual so I think it's a fair bet that

there

> is some of this in me too. History is interesting in that my mum

has

> fibromyalgia, my sister has a severe anxiety disorder, I've had

tics

> and twitches since I was a kid, I had developmental delays, and I'm

> an optometrist so have been exposed to thimerasol at work since the

> mid 80's. So I'm reasonably sure that I'm both badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg DMSA and 120 mg

LA,

> three hourly, three days a week, after spending several months

doing

> DMSA chelation alone after the fillings were removed.

>

> Since about six months into the LA/DMSA phase, (so the past four

> months) I've had really terrifying cognitive and neurological

> symptoms – memory problems that come and go, difficulty finding

words

> sometimes, depression on and off, and parasthesias in my legs.

None

> of these things are getting a whole lot worse since they kicked in

a

> few months back but they come and go almost at random, on pretty

much

> a daily basis. It's terrifying me and I'm not sure whether it's

the

> expected worsening of symptoms discussed in the text, or something

> else. For what it's worth, all of the above symptoms – the

> depression, funny feelings in my legs, dodgy memory, and getting

> words mixed up – I've had to a minor degree before chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and alone here and I'd

> be grateful to hear what anyone has to say, really. Thanks in

> advance, Herb Maynard.

>

[Guest guest]

Herb,

Nothing inappropriate about your post... but one problem I see with

your protocol.

Unless you weigh several hundrend pounds, I would say your dose of LA

is too high (and probably your DMSA, too). Even if you DO weigh 250+

lbs, it seems many of the 'sicker' people here (more toxic?) can't

handle doses close to that amount.

I forgot to add: welcome to the group. I don't post here often, but

I popped by today to catch up. I'm currently chelating with 20 mgs

LA every 3 hours (I weigh 120 lbs).

You have supplements in place?

I hope the more experienced members can help you. Must be

frightening to experience those symptoms (I'm just depressed and

irritated!).

Take care,

Pam

>

> Hi. I'm new to the group, and need a little advice if you guys can

> give it to me. I'm not sure of your etiquette here so if this post

> is inappropriate, please forgive me.

>

> I'm about 10 months into the LA/DMSA phase of chelation, having had

> my fillings out in Nov of 2005. My hair test implied more or less

> normal mineral transport, but moderately high mercury and arsenic.

A

> DPMS challenge (done by my GP back in early 2005 before I knew any

> better) saw mercury fall out of me big time so at the very least we

> know I've got a problem with that for sure. A lot of my other

> symptoms do kind of fit with the arsenic description provided in

the

> Hair Test Interpretation manual so I think it's a fair bet that

there

> is some of this in me too. History is interesting in that my mum

has

> fibromyalgia, my sister has a severe anxiety disorder, I've had

tics

> and twitches since I was a kid, I had developmental delays, and I'm

> an optometrist so have been exposed to thimerasol at work since the

> mid 80's. So I'm reasonably sure that I'm both badly poisoned AND

> ALSO genetically predisposed to this stuff.

>

> I've been doing my chelation by the book; 100 mg DMSA and 120 mg

LA,

> three hourly, three days a week, after spending several months

doing

> DMSA chelation alone after the fillings were removed.

>

> Since about six months into the LA/DMSA phase, (so the past four

> months) I've had really terrifying cognitive and neurological

> symptoms – memory problems that come and go, difficulty finding

words

> sometimes, depression on and off, and parasthesias in my legs.

None

> of these things are getting a whole lot worse since they kicked in

a

> few months back but they come and go almost at random, on pretty

much

> a daily basis. It's terrifying me and I'm not sure whether it's

the

> expected worsening of symptoms discussed in the text, or something

> else. For what it's worth, all of the above symptoms – the

> depression, funny feelings in my legs, dodgy memory, and getting

> words mixed up – I've had to a minor degree before chelation. But

> they seem worse and way more scary now.

>

> Anyone got any ideas? I feel kind of scared and alone here and I'd

> be grateful to hear what anyone has to say, really. Thanks in

> advance, Herb Maynard.

>