Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Congratulations on your pregnancy. I hope things get better for you. Can you see your surgeon and ask if they can go down your throat with the scope to open you up a bit more so you are not sick??? I bet you would feel ssooo much better. Good Luck and God Bless, HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Congratulations on your pregnancy. I hope things get better for you. Can you see your surgeon and ask if they can go down your throat with the scope to open you up a bit more so you are not sick??? I bet you would feel ssooo much better. Good Luck and God Bless, HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Congratulations on your pregnancy. I hope things get better for you. Can you see your surgeon and ask if they can go down your throat with the scope to open you up a bit more so you are not sick??? I bet you would feel ssooo much better. Good Luck and God Bless, HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must deal with it then you are in the best place you can be. This is an extremely supportive board and there is always someone to respond to a question or talk to. Beth is our moderator and she is very good to reply. I sure understand you being scared and tired. We all have had to deal w/fear, for different reasons and tired goes w/the territory I think. Tell us your age, where you live and is the "we" you mention husband and kids? I know the market is awful for housing now. You may be able to apply for disability...I have no idea your circumstances but we will get acquainted as you post more. Go to the web page and click on Files where you will find lots of information as well. Take things one at a time, one day at a time... Welcome MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! new and scared Hi My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have actually been doing very well till this Thanksgiving. I got the flu and my oxygen dropped. The doctor put me on 02 temporarily saying he thought I would go back up but I have not. Monday he told me I have to face the possibility my fibrosis has worsened and I will need to stay on 02. I happen to be off from work this week so I am trying to take it easy but I am scared. I am so tired. How am I going to keep working? If I don't work we will lose our house. Not a good market to have to sell now. I am just scared and need someone who knows what it is like to talk to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Eileen, Welcome to our group. I am 52, and was a middle school teacher when I was diagnosed March 2006. I was so tired and quit work after my biopsy ( May 2006) and unfortunately I did lose my house. If I had to do it over, I would have asked to be moved to a desk job, and kept working part time while I could. What do you do? Is it possible to work part time or at a different position in your company? Is there a stay at home job you can do? There are many things to consider before you decide to quit. Will you be able to get insurance, does your life insurance end with your employment? My best advice is to take your time and make any decisions slowly. Getting a diagnosis of Pulmonary Fibrosis is scary, but you have years ahead of you and don't have to make decsisions immediately. Good luck to you and God bless- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: new and scaredTo: Breathe-Support Date: Wednesday, December 31, 2008, 8:27 AM Hi My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have actually been doing very well till this Thanksgiving. I got the flu and my oxygen dropped. The doctor put me on 02 temporarily saying he thought I would go back up but I have not. Monday he told me I have to face the possibility my fibrosis has worsened and I will need to stay on 02. I happen to be off from work this week so I am trying to take it easy but I am scared. I am so tired. How am I going to keep working? If I don't work we will lose our house. Not a good market to have to sell now. I am just scared and need someone who knows what it is like to talk to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Eileen, Welcome to Breathe Support. I'm so sorry you have reason to be here but since you did I'm glad you found us. I'm am 49 and was diagnosed two and a half years ago. I've been on SSDI for about two years and just qualified for Medicare. Pretty much all of us here understand what you are going through. It's scary but you are not alone! I'd love to hear more about your situation and what the doctors are doing for you. What kind of tests have you had? Have you been evaluated at a university medical center? I look forward to hearing more from you! Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 HAPPY NEW YEAR!! To: Breathe-Support Sent: Wednesday, December 31, 2008 11:27:31 AMSubject: new and scared Hi My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have actually been doing very well till this Thanksgiving. I got the flu and my oxygen dropped. The doctor put me on 02 temporarily saying he thought I would go back up but I have not. Monday he told me I have to face the possibility my fibrosis has worsened and I will need to stay on 02. I happen to be off from work this week so I am trying to take it easy but I am scared. I am so tired. How am I going to keep working? If I don't work we will lose our house. Not a good market to have to sell now. I am just scared and need someone who knows what it is like to talk to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Beth Yes, it is so good to find people who do understand. About 2 yrs ago I had a bad cold and then a cough that just would not go away. I went to my GP and he kept saying it was allegies. I finally went to a Pulmonary dr. He did breathing tests and put me on prednisone. He was able to calm down the cough but it would not go away. He sent me for an open lung biopsy in May 07. He sent my biopsy to a specialist in NY as well as to the dr here - it came back IPF/UIP. He then referred me to National Jewish out in Denver. My husband and I spent a week out there having every test imaginable. They kept trying to find some other disease that was causing the IPF as those cases usually live longer but they could find nothing and confirmed the original diagnosis of IPF/UIP. I was doing quite well - an occassional case of bad cough and maybe the need to go on prednisone but other that I have been fine. No meds or anything. My doctor also contacted the Univ of FL in Gainesville to see about eval for translant but they said I am too overweight. So, he contacted the Mayo Clinic in ville. They had me come up there for a day and they explained the process but said I would have to lose about 47 lbs before they would test me, then another 20 at least to be accepted for transplant. I was able to lose 24 lbs but stopped and have not been able to lose anymore. The episodes w prednisone have not helped. But as I said I flet good and was doing fine. Then just after Thanksgiving I got the flu. I have not been able to breathe very well since. The doc put me on O2 for a couple of weeks to see if he could bring me back up. This Monday he told me he thinks the fibrosis has increased and I have to stay on the O2. Like I said this week alone being off from work has given so much time to think and that is scaring me. My doctor says he does not want to do anything w meds right now so other than O2 that is all we are doing. > > Hi Eileen, > Welcome to Breathe Support. I'm so sorry you have reason to be here but since you did I'm glad you found us. > I'm am 49 and was diagnosed two and a half years ago. I've been on SSDI for about two years and just qualified for Medicare. > Pretty much all of us here understand what you are going through. It's scary but you are not alone! > I'd love to hear more about your situation and what the doctors are doing for you. What kind of tests have you had? Have you been evaluated at a university medical center? > > I look forward to hearing more from you! >  > Beth in North Carolina > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  > HAPPY NEW YEAR!!   > > > > > ________________________________ > From: nivlag1 > To: Breathe-Support > Sent: Wednesday, December 31, 2008 11:27:31 AM > Subject: new and scared > > > Hi > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > actually been doing very well till this Thanksgiving. I got the flu > and my oxygen dropped. The doctor put me on 02 temporarily saying he > thought I would go back up but I have not. Monday he told me I have to > face the possibility my fibrosis has worsened and I will need to stay > on 02. I happen to be off from work this week so I am trying to take > it easy but I am scared. I am so tired. How am I going to keep > working? If I don't work we will lose our house. Not a good market to > have to sell now. I am just scared and need someone who knows what it > is like to talk to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Thank you so much. I was diagnosed w IPF/UIP in May 2007 and I have been working full time and feeling good right up until this Thanksgiving when I got the flu. The doc put me on O2 he said for a little while to bring it back up to where it was pre-flu but now this Monday he said he thinks the fibrosis has worsened and so he believes I will be on it permanently. I don't mind terribly but I am so worried. We need my salary to keep the house. I am a secretary so I can still work but now I am worried this will progress quicker and what will I do. Some people have suggested I try to go on disability but I am sure I would qualify since I can still go to work, I am just tired. I hope you are right and that I do have years to go yet. I so appreciate your kind words and advise. God Bless you also Eileen > > From: nivlag1 > Subject: new and scared > To: Breathe-Support > Date: Wednesday, December 31, 2008, 8:27 AM > > > > > > > Hi > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > actually been doing very well till this Thanksgiving. I got the flu > and my oxygen dropped. The doctor put me on 02 temporarily saying he > thought I would go back up but I have not. Monday he told me I have to > face the possibility my fibrosis has worsened and I will need to stay > on 02. I happen to be off from work this week so I am trying to take > it easy but I am scared. I am so tired. How am I going to keep > working? If I don't work we will lose our house. Not a good market to > have to sell now. I am just scared and need someone who knows what it > is like to talk to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Shar You are very kind and yes I am very happy to have found this group. I feel better already just knowing there are people who understand. " We " is my husband and my two kitties. We never had children although I always wanted to. I have 7 beautiful nieces and nephews who I am very close to. I am 57 and live in Boca Raton FL. I work as a secretary and we really need my salary so as long as I can work, I will. My dr sent me to National Jewish out in Denver last Aug and they confirmed my diagnosis. He also sent me to the Mayo Clinic in ville to see about transplant but I need to lose at least 23 lbs before they will even evaluate me and then another 20 before they would put me on a list. I have heard and read that most IPF patients die before ever getting approved for disability. God Bless. Eileen- -- In Breathe-Support , " Sher Bauman " wrote: > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must deal with it then you are in the best place you can be. This is an extremely supportive board and there is always someone to respond to a question or talk to. Beth is our moderator and she is very good to reply. > I sure understand you being scared and tired. We all have had to deal w/fear, for different reasons and tired goes w/the territory I think. > Tell us your age, where you live and is the " we " you mention husband and kids? > I know the market is awful for housing now. > You may be able to apply for disability...I have no idea your circumstances but we will get acquainted as you post more. > Go to the web page and click on Files where you will find lots of information as well. > Take things one at a time, one day at a time... > Welcome > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > new and scared > > > Hi > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > actually been doing very well till this Thanksgiving. I got the flu > and my oxygen dropped. The doctor put me on 02 temporarily saying he > thought I would go back up but I have not. Monday he told me I have to > face the possibility my fibrosis has worsened and I will need to stay > on 02. I happen to be off from work this week so I am trying to take > it easy but I am scared. I am so tired. How am I going to keep > working? If I don't work we will lose our house. Not a good market to > have to sell now. I am just scared and need someone who knows what it > is like to talk to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi Shar You are very kind and yes I am very happy to have found this group. I feel better already just knowing there are people who understand. " We " is my husband and my two kitties. We never had children although I always wanted to. I have 7 beautiful nieces and nephews who I am very close to. I am 57 and live in Boca Raton FL. I work as a secretary and we really need my salary so as long as I can work, I will. My dr sent me to National Jewish out in Denver last Aug and they confirmed my diagnosis. He also sent me to the Mayo Clinic in ville to see about transplant but I need to lose at least 23 lbs before they will even evaluate me and then another 20 before they would put me on a list. I have heard and read that most IPF patients die before ever getting approved for disability. God Bless. Eileen- -- In Breathe-Support , " Sher Bauman " wrote: > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must deal with it then you are in the best place you can be. This is an extremely supportive board and there is always someone to respond to a question or talk to. Beth is our moderator and she is very good to reply. > I sure understand you being scared and tired. We all have had to deal w/fear, for different reasons and tired goes w/the territory I think. > Tell us your age, where you live and is the " we " you mention husband and kids? > I know the market is awful for housing now. > You may be able to apply for disability...I have no idea your circumstances but we will get acquainted as you post more. > Go to the web page and click on Files where you will find lots of information as well. > Take things one at a time, one day at a time... > Welcome > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > new and scared > > > Hi > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > actually been doing very well till this Thanksgiving. I got the flu > and my oxygen dropped. The doctor put me on 02 temporarily saying he > thought I would go back up but I have not. Monday he told me I have to > face the possibility my fibrosis has worsened and I will need to stay > on 02. I happen to be off from work this week so I am trying to take > it easy but I am scared. I am so tired. How am I going to keep > working? If I don't work we will lose our house. Not a good market to > have to sell now. I am just scared and need someone who knows what it > is like to talk to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Eileen I'm going to sound like an echo, but be very careful out there with people saying things that are just plain wrong. There are quite a few of us here on disability and the last time I checked I was very much alive. And please don't fear oxygen. It is your friend. I wish I'd had it before. The year before probably would have been much more enjoyable. I've been on it since the day I was diagnosed and had a great year in 2008. I have no idea how long I have to live but I do intend to live every bit of the time I'm alive. As to work and capabilities, each of us is different. Some are able to work, at least for a while. Others aren't. As to disability your PFT's can give you a good idea of where you stand. Social Security has tables of PFT's as standards. However, other factors can figure in as well. There are lots of things going on in your head-information, misinformation, perceptions, misconceptions. Just try to sort through it, ask here all you want, and take control of your care and your life. There are choices and life can still be good. > > > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must > deal with it then you are in the best place you can be. This is an > extremely supportive board and there is always someone to respond to > a question or talk to. Beth is our moderator and she is very > good to reply. > > I sure understand you being scared and tired. We all have had to > deal w/fear, for different reasons and tired goes w/the territory I > think. > > Tell us your age, where you live and is the " we " you mention > husband and kids? > > I know the market is awful for housing now. > > You may be able to apply for disability.. .I have no idea your > circumstances but we will get acquainted as you post more. > > Go to the web page and click on Files where you will find lots of > information as well. > > Take things one at a time, one day at a time... > > Welcome > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > new and scared > > > > > > Hi > > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > > actually been doing very well till this Thanksgiving. I got the > flu > > and my oxygen dropped. The doctor put me on 02 temporarily saying > he > > thought I would go back up but I have not. Monday he told me I > have to > > face the possibility my fibrosis has worsened and I will need to > stay > > on 02. I happen to be off from work this week so I am trying to > take > > it easy but I am scared. I am so tired. How am I going to keep > > working? If I don't work we will lose our house. Not a good > market to > > have to sell now. I am just scared and need someone who knows > what it > > is like to talk to. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2009 Report Share Posted January 1, 2009 Hi Eileen...and Happy New Year to you... I know you have already heard from a bunch of the other wonderful people on here, but let me add my 2 cents worth... Like you, I am 57. I was first diagnosed with IPF in September of 07. I had a lung biopsy (VATS) on December 26, 2007 which confirmed the diagnosis. I am now celebrating my one year anniversary of being on oxygen 24 x 7. It is amazing how quickly I became " used " to dragging the tube around with me - I call it my " nose hose " ! Although I find myself getting SOB (short of breath) much more easily, I am still able to do most of what I had previously enjoyed doing. I don't work anymore, but I had no problems getting approved for SS disability. My current battle consists of trying to prove that my IPF stems from poor air quality in my former workplace in order to qualify for workers compensation and thus, accidental disability retirement from the State of New Hampshire. My wife, daughter and I spent a fantastic week at Disney World the first week in December and I had no problems with traveling with oxygen - either flying, or once we got to the parks. For the most part, everyone is very understanding and accomodating. I am currently in the final stages of evaluation for transplant - like you, I need to lose weight. When I first started the evaluation process I needed to lose about 40 pounds. My first " assignment " was to lose weight before my second visit, in order to show them that I was serious and could do it. And, I did! Despite being on prednisone, I managed to lose almost 10 pounds in a little over 5 weeks. Since that time, I have been able to continue losing. I have also been weaning off of the prednisone - as of today, January 1, I am officially off! (at least until after the transplant!) Don't despair...on any count! You aren't going to die tomorrow! You can get disability! You can lose the weight! With the support of the great people here...and a supportive network of family and friends, you will be ok. Keep your head up...keep smiling...don't ever give up! We are all here to support each other, so don't hesitate to ask any and all questions that you might have. Steve aka...Knip IPF Dx 9/07 Confirmed via VATS 12/07 57 New Hampshire > > > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must > deal with it then you are in the best place you can be. This is an > extremely supportive board and there is always someone to respond to > a question or talk to. Beth is our moderator and she is very > good to reply. > > I sure understand you being scared and tired. We all have had to > deal w/fear, for different reasons and tired goes w/the territory I > think. > > Tell us your age, where you live and is the " we " you mention > husband and kids? > > I know the market is awful for housing now. > > You may be able to apply for disability...I have no idea your > circumstances but we will get acquainted as you post more. > > Go to the web page and click on Files where you will find lots of > information as well. > > Take things one at a time, one day at a time... > > Welcome > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > new and scared > > > > > > Hi > > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > > actually been doing very well till this Thanksgiving. I got the > flu > > and my oxygen dropped. The doctor put me on 02 temporarily saying > he > > thought I would go back up but I have not. Monday he told me I > have to > > face the possibility my fibrosis has worsened and I will need to > stay > > on 02. I happen to be off from work this week so I am trying to > take > > it easy but I am scared. I am so tired. How am I going to keep > > working? If I don't work we will lose our house. Not a good > market to > > have to sell now. I am just scared and need someone who knows > what it > > is like to talk to. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2009 Report Share Posted January 1, 2009 Hi Eileen...and Happy New Year to you... I know you have already heard from a bunch of the other wonderful people on here, but let me add my 2 cents worth... Like you, I am 57. I was first diagnosed with IPF in September of 07. I had a lung biopsy (VATS) on December 26, 2007 which confirmed the diagnosis. I am now celebrating my one year anniversary of being on oxygen 24 x 7. It is amazing how quickly I became " used " to dragging the tube around with me - I call it my " nose hose " ! Although I find myself getting SOB (short of breath) much more easily, I am still able to do most of what I had previously enjoyed doing. I don't work anymore, but I had no problems getting approved for SS disability. My current battle consists of trying to prove that my IPF stems from poor air quality in my former workplace in order to qualify for workers compensation and thus, accidental disability retirement from the State of New Hampshire. My wife, daughter and I spent a fantastic week at Disney World the first week in December and I had no problems with traveling with oxygen - either flying, or once we got to the parks. For the most part, everyone is very understanding and accomodating. I am currently in the final stages of evaluation for transplant - like you, I need to lose weight. When I first started the evaluation process I needed to lose about 40 pounds. My first " assignment " was to lose weight before my second visit, in order to show them that I was serious and could do it. And, I did! Despite being on prednisone, I managed to lose almost 10 pounds in a little over 5 weeks. Since that time, I have been able to continue losing. I have also been weaning off of the prednisone - as of today, January 1, I am officially off! (at least until after the transplant!) Don't despair...on any count! You aren't going to die tomorrow! You can get disability! You can lose the weight! With the support of the great people here...and a supportive network of family and friends, you will be ok. Keep your head up...keep smiling...don't ever give up! We are all here to support each other, so don't hesitate to ask any and all questions that you might have. Steve aka...Knip IPF Dx 9/07 Confirmed via VATS 12/07 57 New Hampshire > > > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you must > deal with it then you are in the best place you can be. This is an > extremely supportive board and there is always someone to respond to > a question or talk to. Beth is our moderator and she is very > good to reply. > > I sure understand you being scared and tired. We all have had to > deal w/fear, for different reasons and tired goes w/the territory I > think. > > Tell us your age, where you live and is the " we " you mention > husband and kids? > > I know the market is awful for housing now. > > You may be able to apply for disability...I have no idea your > circumstances but we will get acquainted as you post more. > > Go to the web page and click on Files where you will find lots of > information as well. > > Take things one at a time, one day at a time... > > Welcome > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > new and scared > > > > > > Hi > > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > > actually been doing very well till this Thanksgiving. I got the > flu > > and my oxygen dropped. The doctor put me on 02 temporarily saying > he > > thought I would go back up but I have not. Monday he told me I > have to > > face the possibility my fibrosis has worsened and I will need to > stay > > on 02. I happen to be off from work this week so I am trying to > take > > it easy but I am scared. I am so tired. How am I going to keep > > working? If I don't work we will lose our house. Not a good > market to > > have to sell now. I am just scared and need someone who knows > what it > > is like to talk to. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi Steve - Happy New Year to you too! Thank you for your 2 cents. I am feeling so much better since I found this website. The internet is a wonderful thing but sometimes the information you find can be scary. Speaking w people who are actually going thru the things makes a big difference. I also had a VATS in May 07 which is how they confirmed by IPF. I too just went off prednisone so I am hoping that will help in my quest to lose weight. Eileen 57 IPF/UIP May 07 > > > > > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you > must > > deal with it then you are in the best place you can be. This is an > > extremely supportive board and there is always someone to respond > to > > a question or talk to. Beth is our moderator and she is very > > good to reply. > > > I sure understand you being scared and tired. We all have had to > > deal w/fear, for different reasons and tired goes w/the territory I > > think. > > > Tell us your age, where you live and is the " we " you mention > > husband and kids? > > > I know the market is awful for housing now. > > > You may be able to apply for disability...I have no idea your > > circumstances but we will get acquainted as you post more. > > > Go to the web page and click on Files where you will find lots of > > information as well. > > > Take things one at a time, one day at a time... > > > Welcome > > > MamaSher, age 70. IPF 3-06, OR. > > > Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > new and scared > > > > > > > > > Hi > > > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I > have > > > actually been doing very well till this Thanksgiving. I got the > > flu > > > and my oxygen dropped. The doctor put me on 02 temporarily > saying > > he > > > thought I would go back up but I have not. Monday he told me I > > have to > > > face the possibility my fibrosis has worsened and I will need > to > > stay > > > on 02. I happen to be off from work this week so I am trying to > > take > > > it easy but I am scared. I am so tired. How am I going to keep > > > working? If I don't work we will lose our house. Not a good > > market to > > > have to sell now. I am just scared and need someone who knows > > what it > > > is like to talk to. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi Steve - Happy New Year to you too! Thank you for your 2 cents. I am feeling so much better since I found this website. The internet is a wonderful thing but sometimes the information you find can be scary. Speaking w people who are actually going thru the things makes a big difference. I also had a VATS in May 07 which is how they confirmed by IPF. I too just went off prednisone so I am hoping that will help in my quest to lose weight. Eileen 57 IPF/UIP May 07 > > > > > > Hi Eileen... I'm sad to hear of your dx (diagnosis) but if you > must > > deal with it then you are in the best place you can be. This is an > > extremely supportive board and there is always someone to respond > to > > a question or talk to. Beth is our moderator and she is very > > good to reply. > > > I sure understand you being scared and tired. We all have had to > > deal w/fear, for different reasons and tired goes w/the territory I > > think. > > > Tell us your age, where you live and is the " we " you mention > > husband and kids? > > > I know the market is awful for housing now. > > > You may be able to apply for disability...I have no idea your > > circumstances but we will get acquainted as you post more. > > > Go to the web page and click on Files where you will find lots of > > information as well. > > > Take things one at a time, one day at a time... > > > Welcome > > > MamaSher, age 70. IPF 3-06, OR. > > > Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > new and scared > > > > > > > > > Hi > > > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I > have > > > actually been doing very well till this Thanksgiving. I got the > > flu > > > and my oxygen dropped. The doctor put me on 02 temporarily > saying > > he > > > thought I would go back up but I have not. Monday he told me I > > have to > > > face the possibility my fibrosis has worsened and I will need > to > > stay > > > on 02. I happen to be off from work this week so I am trying to > > take > > > it easy but I am scared. I am so tired. How am I going to keep > > > working? If I don't work we will lose our house. Not a good > > market to > > > have to sell now. I am just scared and need someone who knows > > what it > > > is like to talk to. > > > > > > Quote Link to comment Share on other sites More sharing options...
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