Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Has anyone had a nerve conduction test done? Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Has anyone had a nerve conduction test done? Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Has anyone had a nerve conduction test done? Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Boy, i really screwed that up! What i meant to say is: i could NEVER imagine having it done on my pudendal nerve. I went into violent spasms and could not do the second part of the test. In my case, Lyme has totally disrupted my nervous system and it reacts in greatly magnified and very hypersensitive ways. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Boy, i really screwed that up! What i meant to say is: i could NEVER imagine having it done on my pudendal nerve. I went into violent spasms and could not do the second part of the test. In my case, Lyme has totally disrupted my nervous system and it reacts in greatly magnified and very hypersensitive ways. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Boy, i really screwed that up! What i meant to say is: i could NEVER imagine having it done on my pudendal nerve. I went into violent spasms and could not do the second part of the test. In my case, Lyme has totally disrupted my nervous system and it reacts in greatly magnified and very hypersensitive ways. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 I guess I am wondering what one can find out if he does have one of these. What does it reveal?? Arline In my case, Arline, it was to see if my severe pain with walking was being caused by a specific problem with the nerves responsible for locomotion --- to see if there was an impediment in the message being sent from the brain to legs and vice versa. . . . They found some slight abnormalities, but nothing definitive enough to say anything definitive. . . .lol. Of course no one even considered the possibility of testing me for Lyme. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 I guess I am wondering what one can find out if he does have one of these. What does it reveal?? Arline In my case, Arline, it was to see if my severe pain with walking was being caused by a specific problem with the nerves responsible for locomotion --- to see if there was an impediment in the message being sent from the brain to legs and vice versa. . . . They found some slight abnormalities, but nothing definitive enough to say anything definitive. . . .lol. Of course no one even considered the possibility of testing me for Lyme. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Not yet but with a nerve conduction study they just apply the electrode to an area (not a needle like with EMG) such as the back and study the conductivity of the nerve itself. To test the pudenal nerve the tech places an electrode inside the vagina around the area of the clitoris base and then an electrode on your head. Then they measure to see if the nerve is working. I found this out from both nne and the EMG tech I saw earlier this year when I tried to get an EMG done down below. His answer was that we could do it from my back area instead. I may ask my gyn what she thinks about me having it done that way and if she agrees I will find someone else within my insurance network to try and get that done. Kristy ________________________________________________________________________________\ ____ Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Not yet but with a nerve conduction study they just apply the electrode to an area (not a needle like with EMG) such as the back and study the conductivity of the nerve itself. To test the pudenal nerve the tech places an electrode inside the vagina around the area of the clitoris base and then an electrode on your head. Then they measure to see if the nerve is working. I found this out from both nne and the EMG tech I saw earlier this year when I tried to get an EMG done down below. His answer was that we could do it from my back area instead. I may ask my gyn what she thinks about me having it done that way and if she agrees I will find someone else within my insurance network to try and get that done. Kristy ________________________________________________________________________________\ ____ Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Not yet but with a nerve conduction study they just apply the electrode to an area (not a needle like with EMG) such as the back and study the conductivity of the nerve itself. To test the pudenal nerve the tech places an electrode inside the vagina around the area of the clitoris base and then an electrode on your head. Then they measure to see if the nerve is working. I found this out from both nne and the EMG tech I saw earlier this year when I tried to get an EMG done down below. His answer was that we could do it from my back area instead. I may ask my gyn what she thinks about me having it done that way and if she agrees I will find someone else within my insurance network to try and get that done. Kristy ________________________________________________________________________________\ ____ Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I had one done on my arms and neck a couple of years ago and it wasn't too bad. Not exactly pleasant, but in my opinion not as bad as getting cleaned out for a colonoscopy. cj Re: Nerve Conduction Test/Pudendal Nerve In a message dated 8/31/2007 2:29:56 PM Eastern Daylight Time, Carolyn52192 (AT) aol (DOT) com writes: Has anyone had a nerve conduction test done?Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I had one done on my arms and neck a couple of years ago and it wasn't too bad. Not exactly pleasant, but in my opinion not as bad as getting cleaned out for a colonoscopy. cj Re: Nerve Conduction Test/Pudendal Nerve In a message dated 8/31/2007 2:29:56 PM Eastern Daylight Time, Carolyn52192 (AT) aol (DOT) com writes: Has anyone had a nerve conduction test done?Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I had one done on my arms and neck a couple of years ago and it wasn't too bad. Not exactly pleasant, but in my opinion not as bad as getting cleaned out for a colonoscopy. cj Re: Nerve Conduction Test/Pudendal Nerve In a message dated 8/31/2007 2:29:56 PM Eastern Daylight Time, Carolyn52192 (AT) aol (DOT) com writes: Has anyone had a nerve conduction test done?Yes, i had one done many years ago on my leg. It was a horrendous experience -- more like torture -- and i could even imagine having it done for the pudendal nerve. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I guess I am wondering what one can find out if he does have one of these. What does it reveal?? Arline > > > Has anyone had a nerve conduction test done? > > Yes, i had one done many years ago on my leg. It > was a horrendous > experience -- more like torture -- and i could even > imagine having it > done for the pudendal nerve. > > Hollis </HTML> > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I guess I am wondering what one can find out if he does have one of these. What does it reveal?? Arline > > > Has anyone had a nerve conduction test done? > > Yes, i had one done many years ago on my leg. It > was a horrendous > experience -- more like torture -- and i could even > imagine having it > done for the pudendal nerve. > > Hollis </HTML> > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 I guess I am wondering what one can find out if he does have one of these. What does it reveal?? Arline > > > Has anyone had a nerve conduction test done? > > Yes, i had one done many years ago on my leg. It > was a horrendous > experience -- more like torture -- and i could even > imagine having it > done for the pudendal nerve. > > Hollis </HTML> > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hollis, has anybody called your leg pain and genital pain problem an " ataxia " and if so does Lyme disease often cause the inability to walk because of pain. Arline > > > I guess I am wondering what one can find out if he > > does have one of these. What does it reveal?? > > > > Arline > > > > In my case, Arline, it was to see if my severe pain > with walking was > being caused by a specific problem with the nerves > responsible for > locomotion --- to see if there was an impediment in > the message > being sent from the brain to legs and vice versa. . > . . They found > some slight abnormalities, but nothing definitive > enough to say > anything definitive. . . .lol. Of course no one > even considered the > possibility of testing me for Lyme. > > Hollis > </HTML> > ________________________________________________________________________________\ ____Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hollis, has anybody called your leg pain and genital pain problem an " ataxia " and if so does Lyme disease often cause the inability to walk because of pain. Arline > > > I guess I am wondering what one can find out if he > > does have one of these. What does it reveal?? > > > > Arline > > > > In my case, Arline, it was to see if my severe pain > with walking was > being caused by a specific problem with the nerves > responsible for > locomotion --- to see if there was an impediment in > the message > being sent from the brain to legs and vice versa. . > . . They found > some slight abnormalities, but nothing definitive > enough to say > anything definitive. . . .lol. Of course no one > even considered the > possibility of testing me for Lyme. > > Hollis > </HTML> > ________________________________________________________________________________\ ____Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 yes I called doctor conway as well yesterday, hence the question about the nerve conduction test, which he would do there the day of my appointment as well as a nerve block. I too am scared that it would be alot of pain. I talked to him on the phone yesterday, he seems very nice. I am going to email him a few more things before I plan the visit there. CarolGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hollis, has anybody called your leg pain and genital pain problem an "ataxia" and if so does Lyme disease often cause the inability to walk because of pain. Arline No -- and after doing a quick check of what it involves, i'd have to say that i definitely am not dealing with this. I'm actually extremely well coordinated and always have been -- as a dancer, as a violinist, and as an artist. And i certainly don't have any problems with slurred speech. In the past, when i've had neurologists pushing me to walk for them, my goal was to speed walk (no foot drag, beautiful coordination) so i could get back to my chair as soon as possible. Nice there's at least one thing i can rule out! As for Lyme and mobility: i'm learning that i'm far from alone in having pain and/or inability to walk due to the lovely borreliosis spirochete and its co-infection friends. Lyme is known for its love of collagen and it can and does corkscrew its way into the muscles, nerves, and connective tissues (as well as the bladder) in order to hang out and avoid immune detection. There is even something known as Lyme Arthritis. It can really, really mess with the nervous system in so many ways. Many people have serious brain problems with sometimes very severe memory impairment. Others are misdiagnosed with MS, ALS, schitzophrenia, depression, etc. etc. Fortunately for me, brain involvement isn't really an issue. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hollis, Do you have any other lyme symptoms besides vulvadynia? I'm assuming you have vulvadynia. Who diagnosed you with lyme disease? I have IC, very severe muscle/nerve hypersensitivity/exercise intolerance (fibro), very bad hyperacusis (collapsed tolerance to sound), photophobia, and Hashimoto's thyroiditis (hypothyroidism). Boy, i sound like a total mess when i type that all out! Lyme is still ultimately a clinical diagnosis, based on history and symptoms, although having a positive blood test (which can be hard to get for a variety of reasons) can cinch the deal, definitely. After years of suspecting it, based on my long list of symptoms and my history of a distinct bull's-eye rash, i got the test confirmation through testing with IgeneX Lab, the premier Lyme lab in the country. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 yes I called doctor conway as well yesterday, hence the question about the nerve conduction test, which he would do there the day of my appointment as well as a nerve block. I too am scared that it would be alot of pain. I talked to him on the phone yesterday, he seems very nice. I am going to email him a few more things before I plan the visit there. Carol Carol, That's great that you've spoken to him and are proceeding with plans to go to NH. As far as the nerve conduction testing goes: remember that everyone is so different in their reactions to things. My nerve hypersensitivity magnifies everything for me, so for a more "normal" nerve person it's probably a very different and less unpleasant experience. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hollis,I was diagnosed with lyme as well with a positive IGM from Igenex. I've been to five infectious disease docs. Two think I have it, three don't. What's confusing to me is that I only have clitoradynia and some bladder issues. I do not have any of the other symptoms. I'm more confused by the day. This doctor wanted to put me on four months of IV antibiotics and that scares me to death. Whenever I've been on antis, my clitoradynia gets worse, which makes me think my problem is yeast related (no positive yeast cultures of course). Given my symptoms, do you think it's possible that I really do have lyme? Do you know anything about the CD 57? Mine was 64 when I first had it checked. Most doctors think that it doesn't mean anything.Zdamask@... wrote: In a message dated 8/31/2007 11:26:23 PM Eastern Daylight Time, jessiemaybeath (AT) yahoo (DOT) com writes: Hollis, Do you have any other lyme symptoms besides vulvadynia? I'm assuming you have vulvadynia. Who diagnosed you with lyme disease? I have IC, very severe muscle/nerve hypersensitivity/exercise intolerance (fibro), very bad hyperacusis (collapsed tolerance to sound), photophobia, and Hashimoto's thyroiditis (hypothyroidism). Boy, i sound like a total mess when i type that all out! Lyme is still ultimately a clinical diagnosis, based on history and symptoms, although having a positive blood test (which can be hard to get for a variety of reasons) can cinch the deal, definitely. After years of suspecting it, based on my long list of symptoms and my history of a distinct bull's-eye rash, i got the test confirmation through testing with IgeneX Lab, the premier Lyme lab in the country. Hollis Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 just a thought, but have they tested you for yeast under the clitoral hood? --- Halpin wrote: > Hollis, > > I was diagnosed with lyme as well with a positive > IGM from Igenex. I've been to five infectious > disease docs. Two think I have it, three don't. > What's confusing to me is that I only have > clitoradynia and some bladder issues. I do not have > any of the other symptoms. I'm more confused by the > day. This doctor wanted to put me on four months of > IV antibiotics and that scares me to death. Whenever > I've been on antis, my clitoradynia gets worse, > which makes me think my problem is yeast related (no > positive yeast cultures of course). Given my > symptoms, do you think it's possible that I really > do have lyme? Do you know anything about the CD 57? > Mine was 64 when I first had it checked. Most > doctors think that it doesn't mean anything. > > Zdamask@... wrote: > In a message dated 8/31/2007 11:26:23 PM > Eastern Daylight Time, jessiemaybeath@... > writes: > > > Hollis, > > Do you have any other lyme symptoms besides > vulvadynia? I'm assuming you have vulvadynia. Who > diagnosed you with lyme disease? > > > > I have IC, very severe muscle/nerve > hypersensitivity/exercise intolerance (fibro), > very bad hyperacusis (collapsed tolerance to sound), > photophobia, and > Hashimoto's thyroiditis (hypothyroidism). Boy, i > sound like a total mess when > i type that all out! > > Lyme is still ultimately a clinical diagnosis, based > on history and symptoms, > although having a positive blood test (which can be > hard to get for a variety > of reasons) can cinch the deal, definitely. After > years of suspecting it, > based on my long list of symptoms and my history of > a distinct bull's-eye rash, > i got the test confirmation through testing with > IgeneX Lab, the premier Lyme > lab in the country. > > Hollis > > > > > --------------------------------- > Shape Yahoo! in your own image. Join our Network > Research Panel today! ________________________________________________________________________________\ ____ Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545469 Quote Link to comment Share on other sites More sharing options...
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