Guest guest Posted February 21, 2009 Report Share Posted February 21, 2009 ----- Forwarded Message ---- To: pickels001@... Sent: Saturday, February 21, 2009 8:41:44 PM Subject: IPF & CHF Hello All! My name is Sally. I live in Phila.,Pa. & I'm 73+ years old. I've had the CHF for about 6 yr, and the IPF for about 3 yrs. I have read some of the messages,and know that I have come to the right group. I am not able to talk with many People about these problems, because they all tell me " I LOOK HEALTHY " , but they don't seem to get it that I literally have to fight for breath at times. I'd like to know if there is a chat group,so that I can learn more about this condition. I've never met another person with it until I started reading the posts, and now I want to get to know you! At least we will understand what each other is talking about. Thanks for listening & I look forward to hearing from some of you soon.... " HAPPY BREATHING!!!!! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2009 Report Share Posted February 21, 2009 Hi Sally, Welcome to the group! You will find everyone here to be helpful. Remember, " knowledge is power. " We all support one another. I've only been a member for a few moths and I already feel like part of the family. Feel free to ask any question. 33 FL IPF dx 1/06 > > > > > > > ----- Forwarded Message ---- > From: pickels001 > To: pickels001@... > Sent: Saturday, February 21, 2009 8:41:44 PM > Subject: IPF & CHF > > Hello All! My name is Sally. I live in Phila.,Pa. & I'm 73+ years old. > I've had the CHF for about 6 yr, and the IPF for about 3 yrs. > I have read some of the messages,and know that I have come to the right > group. I am not able to talk with many People about these problems, > because they all tell me " I LOOK HEALTHY " , but they don't seem to get > it that I literally have to fight for breath at times. I'd like to know > if there is a chat group,so that I can learn more about this condition. > I've never met another person with it until I started reading the > posts, and now I want to get to know you! At least we will understand > what each other is talking about. > Thanks for listening & I look forward to hearing from some of you > soon.... " HAPPY BREATHING!!!!! " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2009 Report Share Posted February 21, 2009 Sally, A Philadelphia girl...Yea!!!! Me too, I grew up in West Oak Lane and now live in the suburbs. There are a few of us locals. The " Hey you look healthy" makes me angry too! You don't have to worry about any of us...we all "get it" If I looked like I felt most of the time I wouldn't leave my bed...let alone my house! Keep reading and you'll get to know us...and keep posting and we'll be here. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Pickels wrote: ----- Forwarded Message ---- From: pickels001 <pickels001 (AT) yahoo (DOT) com> To: pickels001 (AT) yahoo (DOT) com Sent: Saturday, February 21, 2009 8:41:44 PM Subject: IPF & CHF Hello All! My name is Sally. I live in Phila.,Pa. & I'm 73+ years old. I've had the CHF for about 6 yr, and the IPF for about 3 yrs. I have read some of the messages,and know that I have come to the right group. I am not able to talk with many People about these problems, because they all tell me "I LOOK HEALTHY", but they don't seem to get it that I literally have to fight for breath at times. I'd like to know if there is a chat group,so that I can learn more about this condition. I've never met another person with it until I started reading the posts, and now I want to get to know you! At least we will understand what each other is talking about. Thanks for listening & I look forward to hearing from some of you soon...."HAPPY BREATHING!!!!!" No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.2/1964 - Release Date: 02/21/09 11:05:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 Hi Sally Welcome to our group, sorry you need us, but glad you found us. The Philadelphia area group is growing. I am from Northeast Philly but live in Langhorne. Z is from Philly and lives in Blue Bell. Patti F is from Philly and lives in Cherry Hill. and I go to Penn, Patti goes to Temple. Both teaching hospitals have pulmonary departments that specialize in interstitial lung diseases. The 3 of us have met for lunch. We hope to meet again when the weather improves. There are support groups for lung diseases in the area. But my sense is that most of the participants have COPD. I go to St. 's for rehab and have met very few people with IPF. My number one recommendation to you is that you go to one of the teaching hospitals for a consult, unless you have already done so. Many of us have gone to pulmonary rehab where we learn about the lungs, diseases, exercise, etc. Other people in this group will recommend that you get an oximeter and they will give you contact information for it. My dad had CHF, but i don't know anything about the 2 diseases combined. Let us know if you want to meet for lunch. Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Fw: IPF & CHFTo: "Breathe-Support " <Breathe-Support >Date: Saturday, February 21, 2009, 9:35 PM ----- Forwarded Message ----From: pickels001 <pickels001 (AT) yahoo (DOT) com>To: pickels001 (AT) yahoo (DOT) comSent: Saturday, February 21, 2009 8:41:44 PMSubject: IPF & CHFHello All! My name is Sally. I live in Phila.,Pa. & I'm 73+ years old.I've had the CHF for about 6 yr, and the IPF for about 3 yrs.I have read some of the messages,and know that I have come to the rightgroup. I am not able to talk with many People about these problems,because they all tell me "I LOOK HEALTHY", but they don't seem to getit that I literally have to fight for breath at times. I'd like to knowif there is a chat group,so that I can learn more about this condition.I've never met another person with it until I started reading theposts, and now I want to get to know you! At least we will understandwhat each other is talking about.Thanks for listening & I look forward to hearing from some of yousoon...."HAPPY BREATHING!!! !!" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 Hi Sally... Welcome to our board. You're in the best place you can be for info and support. I'm certainly not glad to hear you share PF but I'm glad you found us. I'm 70 and dx (diagnosed) about 3 yrs. ago. (Mar '06). I live in Oregon. We ARE a chat board but just not live chat as in instant messenger. Be sure and sign your posts with your name and it's good info for the board to add your State, disease and when dx. Many of us add our age as well. It helps us remember individual members. Do you have family support, are you married? I'll watch for your posts. Lots of info. in the Files section too. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! IPF & CHFHello All! My name is Sally. I live in Phila.,Pa. & I'm 73+ years old.I've had the CHF for about 6 yr, and the IPF for about 3 yrs.I have read some of the messages,and know that I have come to the rightgroup. I am not able to talk with many People about these problems,because they all tell me "I LOOK HEALTHY", but they don't seem to getit that I literally have to fight for breath at times. I'd like to knowif there is a chat group,so that I can learn more about this condition.I've never met another person with it until I started reading theposts, and now I want to get to know you! At least we will understandwhat each other is talking about.Thanks for listening & I look forward to hearing from some of yousoon...."HAPPY BREATHING!!!!!" Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.