Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 24yr old male diagnosed with stage 2-3 PSC about a year ago at the Mayo Clinic in MN. My only symptom was elevated liver enzymes. I have since started taking Urso250 and my enzymes are back to normal. Now my doc in Chicago wants me to go back to Mayo to get another biopsy to see where things are. I started dating a girl recently and have yet to tell her that I have PSC, especially since I still feel like I don't know much about it...but I wonder...I started thinking from a girl's point of view...would I want to date a guy who will most likely take a turn for the worse sometime in the next 10 or so years??...right when we might have kids running around? In looking out for her, shouldn't I just break things off before she/I get super attached? I just can't justify starting a new relationship when the statistics are not on my side...but then again I stilll don't know much about the disease. Where would you all go for the most up to date information on the disease? I know I must sound very pessimistic about the girl but..I already know she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 years after dianosis I just can't see how it would work...with her or any girl......but I need to learn much more about the disease...I could use some uplifting stories/examples because thus far I've only found depressing info/stories...isnt there anyone out there that lived a long/healthy life post diagnosis?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Welcome - from one to another Minnesotan (ya sure you betcha)! 1 - I'd start with the FAQs on http://www.psc-literature.org/FAQ.htm, and this brochure: http://www.pscpartners.org/PSCBrochure.pdf. I don't believe periodic liver biopsy is the norm for asymptomatic patients. Ask about MRCP before you do it (I've never had a liver biopsy). 2 - I'll let others speak to this one, but (founded the group in 1998) is expecting her 3rd child since diagnosis. athan is one of the original members, has had two children and a successful transplant. The 9-12 years is NOT for life expectancy, but median age to transplant. 3 - We have members that have had PSC for 30+ years and are still doing well. Since you have no symptoms, you may be in the slow progressing group. It is thought that far more people actually have PSC than we think, since so many are asymptomatic (elevated LFTs found during insurance exam, for example), and are never diagnosed. Personally, I've been asymptomatic since balloon dilatation and stenting in 2001 - no elevated LFTs, pruritis, jaundice, cholangits, fatigue (at least that wasn't earned). I still run, bicycle (across Iowa!), go on week-long canoe trips, etc. I may not be the norm, but there are lots of stories like mine. This support group is probably the best place you could find to ask questions. Whatever you're going through, someone has most likely been there first and can help. Hang in there, and ask away. Arne UC 1977, PSC 2000 Alive and well in Minnesota ---- sdggn76 wrote: ============= 24yr old male diagnosed with stage 2-3 PSC about a year ago at the Mayo Clinic in MN... ....Where would you all go for the most up to date information on the disease? ....I know I must sound very pessimistic about the girl but..I already know she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 years after dianosis ... .... I could use some uplifting stories/examples because thus far I've only found depressing info/stories...isnt there anyone out there that lived a long/healthy life post diagnosis?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Welcome - from one to another Minnesotan (ya sure you betcha)! 1 - I'd start with the FAQs on http://www.psc-literature.org/FAQ.htm, and this brochure: http://www.pscpartners.org/PSCBrochure.pdf. I don't believe periodic liver biopsy is the norm for asymptomatic patients. Ask about MRCP before you do it (I've never had a liver biopsy). 2 - I'll let others speak to this one, but (founded the group in 1998) is expecting her 3rd child since diagnosis. athan is one of the original members, has had two children and a successful transplant. The 9-12 years is NOT for life expectancy, but median age to transplant. 3 - We have members that have had PSC for 30+ years and are still doing well. Since you have no symptoms, you may be in the slow progressing group. It is thought that far more people actually have PSC than we think, since so many are asymptomatic (elevated LFTs found during insurance exam, for example), and are never diagnosed. Personally, I've been asymptomatic since balloon dilatation and stenting in 2001 - no elevated LFTs, pruritis, jaundice, cholangits, fatigue (at least that wasn't earned). I still run, bicycle (across Iowa!), go on week-long canoe trips, etc. I may not be the norm, but there are lots of stories like mine. This support group is probably the best place you could find to ask questions. Whatever you're going through, someone has most likely been there first and can help. Hang in there, and ask away. Arne UC 1977, PSC 2000 Alive and well in Minnesota ---- sdggn76 wrote: ============= 24yr old male diagnosed with stage 2-3 PSC about a year ago at the Mayo Clinic in MN... ....Where would you all go for the most up to date information on the disease? ....I know I must sound very pessimistic about the girl but..I already know she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 years after dianosis ... .... I could use some uplifting stories/examples because thus far I've only found depressing info/stories...isnt there anyone out there that lived a long/healthy life post diagnosis?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Where would you all go for the most up to date information on the disease? Places like this, people are reading all the latest PSC related news and posting copies. That 9 - 12 years life expectancy is outdated. When I was first diagnosed back in 1989 I was given a copy of an old text that gave an life expectancy of 6 years. The PSC support UK http://www..demon.co.uk is a good site. I read " It's very important to understand that PSC is not a terminal illness. You're most likely to die with it rather than from it. " Good luck Ian Cribb from British Columbia, Canada PSC 89 24yr old male diagnosed with stage 2-3 PSC about a year ago at theMayo Clinic in MN. My only symptom was elevated liver enzymes. Ihave since started taking Urso250 and my enzymes are back to normal. Now my doc in Chicago wants me to go back to Mayo to get another biopsy to see where things are. I started dating a girl recently and have yet to tell her that I havePSC, especially since I still feel like I don't know much aboutit...but I wonder...I started thinking from a girl's point of view...would I want to date a guy who will most likely take a turn forthe worse sometime in the next 10 or so years??...right when we mighthave kids running around? In looking out for her, shouldn't I just break things off before she/I get super attached? I just can'tjustify starting a new relationship when the statistics are not on myside...but then again I stilll don't know much about the disease. Where would you all go for the most up to date information on thedisease? I know I must sound very pessimistic about the girl but..I alreadyknow she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 yearsafter dianosis I just can't see how it would work...with her or anygirl......but I need to learn much more about the disease...I could use some uplifting stories/examples because thus far I've only founddepressing info/stories...isnt there anyone out there that lived along/healthy life post diagnosis?? -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Where would you all go for the most up to date information on the disease? Places like this, people are reading all the latest PSC related news and posting copies. That 9 - 12 years life expectancy is outdated. When I was first diagnosed back in 1989 I was given a copy of an old text that gave an life expectancy of 6 years. The PSC support UK http://www..demon.co.uk is a good site. I read " It's very important to understand that PSC is not a terminal illness. You're most likely to die with it rather than from it. " Good luck Ian Cribb from British Columbia, Canada PSC 89 24yr old male diagnosed with stage 2-3 PSC about a year ago at theMayo Clinic in MN. My only symptom was elevated liver enzymes. Ihave since started taking Urso250 and my enzymes are back to normal. Now my doc in Chicago wants me to go back to Mayo to get another biopsy to see where things are. I started dating a girl recently and have yet to tell her that I havePSC, especially since I still feel like I don't know much aboutit...but I wonder...I started thinking from a girl's point of view...would I want to date a guy who will most likely take a turn forthe worse sometime in the next 10 or so years??...right when we mighthave kids running around? In looking out for her, shouldn't I just break things off before she/I get super attached? I just can'tjustify starting a new relationship when the statistics are not on myside...but then again I stilll don't know much about the disease. Where would you all go for the most up to date information on thedisease? I know I must sound very pessimistic about the girl but..I alreadyknow she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 yearsafter dianosis I just can't see how it would work...with her or anygirl......but I need to learn much more about the disease...I could use some uplifting stories/examples because thus far I've only founddepressing info/stories...isnt there anyone out there that lived along/healthy life post diagnosis?? -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Where would you all go for the most up to date information on the disease? Places like this, people are reading all the latest PSC related news and posting copies. That 9 - 12 years life expectancy is outdated. When I was first diagnosed back in 1989 I was given a copy of an old text that gave an life expectancy of 6 years. The PSC support UK http://www..demon.co.uk is a good site. I read " It's very important to understand that PSC is not a terminal illness. You're most likely to die with it rather than from it. " Good luck Ian Cribb from British Columbia, Canada PSC 89 24yr old male diagnosed with stage 2-3 PSC about a year ago at theMayo Clinic in MN. My only symptom was elevated liver enzymes. Ihave since started taking Urso250 and my enzymes are back to normal. Now my doc in Chicago wants me to go back to Mayo to get another biopsy to see where things are. I started dating a girl recently and have yet to tell her that I havePSC, especially since I still feel like I don't know much aboutit...but I wonder...I started thinking from a girl's point of view...would I want to date a guy who will most likely take a turn forthe worse sometime in the next 10 or so years??...right when we mighthave kids running around? In looking out for her, shouldn't I just break things off before she/I get super attached? I just can'tjustify starting a new relationship when the statistics are not on myside...but then again I stilll don't know much about the disease. Where would you all go for the most up to date information on thedisease? I know I must sound very pessimistic about the girl but..I alreadyknow she wants to have lots of kids and all this...as a guy who has a disease which carries with it a median life expectancy of 9-12 yearsafter dianosis I just can't see how it would work...with her or anygirl......but I need to learn much more about the disease...I could use some uplifting stories/examples because thus far I've only founddepressing info/stories...isnt there anyone out there that lived along/healthy life post diagnosis?? -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 > > > > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the > > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal. > > Now my doc in Chicago wants me to go back to Mayo to get another > > biopsy to see where things are. > > > > I started dating a girl recently and have yet to tell her that I have > > PSC, especially since I still feel like I don't know much about > > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for > > the worse sometime in the next 10 or so years??...right when we might > > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't > > justify starting a new relationship when the statistics are not on my > > side...but then again I stilll don't know much about the disease. > > > > Where would you all go for the most up to date information on the > > disease? > > > > I know I must sound very pessimistic about the girl but..I already > > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years > > after dianosis I just can't see how it would work...with her or any > > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found > > depressing info/stories...isnt there anyone out there that lived a > > long/healthy life post diagnosis?? > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 > > > > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the > > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal. > > Now my doc in Chicago wants me to go back to Mayo to get another > > biopsy to see where things are. > > > > I started dating a girl recently and have yet to tell her that I have > > PSC, especially since I still feel like I don't know much about > > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for > > the worse sometime in the next 10 or so years??...right when we might > > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't > > justify starting a new relationship when the statistics are not on my > > side...but then again I stilll don't know much about the disease. > > > > Where would you all go for the most up to date information on the > > disease? > > > > I know I must sound very pessimistic about the girl but..I already > > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years > > after dianosis I just can't see how it would work...with her or any > > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found > > depressing info/stories...isnt there anyone out there that lived a > > long/healthy life post diagnosis?? > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 > > > > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the > > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal. > > Now my doc in Chicago wants me to go back to Mayo to get another > > biopsy to see where things are. > > > > I started dating a girl recently and have yet to tell her that I have > > PSC, especially since I still feel like I don't know much about > > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for > > the worse sometime in the next 10 or so years??...right when we might > > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't > > justify starting a new relationship when the statistics are not on my > > side...but then again I stilll don't know much about the disease. > > > > Where would you all go for the most up to date information on the > > disease? > > > > I know I must sound very pessimistic about the girl but..I already > > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years > > after dianosis I just can't see how it would work...with her or any > > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found > > depressing info/stories...isnt there anyone out there that lived a > > long/healthy life post diagnosis?? > > > > > > > > > > -- > Ian Cribb P.Eng. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 I guess I could rent that new blockbuster Keanu Reeves movie called PSC and Me....then bring it up, "Hey , funny how this movie is about PSC...cuz I have it!...weird coincidence huh?" Im just kidding. The movie is actually a good idea...I will have to walk the isles of Blockbuster to find a proper movie.I just spoke with my mom who is a cancer survivor and whose sole wish in life is to see all of her 4 boys in happy, committed relationships. She had a good point; anyone could go for any reason any time...so if you find someone you care about grab on and hold tight for as long as you can...cuz at the end of the day there really are no guarantees......this isn't groundbreaking stuff here, but helpful to hear at a time like this..for me at least. I've thought about PSC enough for one day...time to go be productive.Thanks again for all the thoughts and support.SteveIan Cribb wrote: Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 I guess I could rent that new blockbuster Keanu Reeves movie called PSC and Me....then bring it up, "Hey , funny how this movie is about PSC...cuz I have it!...weird coincidence huh?" Im just kidding. The movie is actually a good idea...I will have to walk the isles of Blockbuster to find a proper movie.I just spoke with my mom who is a cancer survivor and whose sole wish in life is to see all of her 4 boys in happy, committed relationships. She had a good point; anyone could go for any reason any time...so if you find someone you care about grab on and hold tight for as long as you can...cuz at the end of the day there really are no guarantees......this isn't groundbreaking stuff here, but helpful to hear at a time like this..for me at least. I've thought about PSC enough for one day...time to go be productive.Thanks again for all the thoughts and support.SteveIan Cribb wrote: Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 I guess I could rent that new blockbuster Keanu Reeves movie called PSC and Me....then bring it up, "Hey , funny how this movie is about PSC...cuz I have it!...weird coincidence huh?" Im just kidding. The movie is actually a good idea...I will have to walk the isles of Blockbuster to find a proper movie.I just spoke with my mom who is a cancer survivor and whose sole wish in life is to see all of her 4 boys in happy, committed relationships. She had a good point; anyone could go for any reason any time...so if you find someone you care about grab on and hold tight for as long as you can...cuz at the end of the day there really are no guarantees......this isn't groundbreaking stuff here, but helpful to hear at a time like this..for me at least. I've thought about PSC enough for one day...time to go be productive.Thanks again for all the thoughts and support.SteveIan Cribb wrote: Steve, Maybe watching a movie together about someone with a progressive disease would open up conversation. Is there a good movie a group member can suggest?? (question too other support group members). There is certainly still lots of good life still available diagnoses. Two of my four sons were conceived after I was diagnosed. The youngest of them is now twelve. Ian > >> > 24yr old male diagnosed with stage 2-3 PSC about a year ago at the> > Mayo Clinic in MN. My only symptom was elevated liver enzymes. I > > have since started taking Urso250 and my enzymes are back to normal.> > Now my doc in Chicago wants me to go back to Mayo to get another> > biopsy to see where things are.> > > > I started dating a girl recently and have yet to tell her that I have> > PSC, especially since I still feel like I don't know much about> > it...but I wonder...I started thinking from a girl's point of > > view...would I want to date a guy who will most likely take a turn for> > the worse sometime in the next 10 or so years??...right when we might> > have kids running around? In looking out for her, shouldn't I just > > break things off before she/I get super attached? I just can't> > justify starting a new relationship when the statistics are not on my> > side...but then again I stilll don't know much about the disease. > >> > Where would you all go for the most up to date information on the> > disease?> >> > I know I must sound very pessimistic about the girl but..I already> > know she wants to have lots of kids and all this...as a guy who has a > > disease which carries with it a median life expectancy of 9-12 years> > after dianosis I just can't see how it would work...with her or any> > girl......but I need to learn much more about the disease...I could > > use some uplifting stories/examples because thus far I've only found> > depressing info/stories...isnt there anyone out there that lived a> > long/healthy life post diagnosis??> > > > > >> > > > -- > Ian Cribb P.Eng.> > -- Ian Cribb P.Eng. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
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