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RE: - re: Re:small duct psc

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I was also put on URSO before I had a definitive diagnosis. PSC can be

difficult to diagnose, especially if it's small duct PSC, and the ERCP &

MRCP are normal.

>

>All that said, I think it bodes extremely well for your son that his MRCP

>indicated no abnormalities in his biliary tree!!! That's great!!! I found

>it very interesting the doctors opted for Rx Urso with no " definitive " PSC

>diagnosis, though (you did use the words " may have small duct PSC " ).

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>All the best,

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>

>Maureen

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> _____

>

>From: [mailto: ] On

>Behalf Of

>Sent: Friday, June 22, 2007 6:24 AM; To: ;

>Subject: Re:small duct psc

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>

>Did your Dr diagnose you with small duct PSC?

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>I would also be interested in any comments on small duct PSC. My 6 yr old

>had an MRCP last month and the dr is telling us he may have small duct PSC.

>His liver biopsy was abnormal, but the MRCP showed no abnormalities in his

>biliary tree. He still put him on Urso. I have read a few articles that

>indicate many people diagnosed with small duct PSC may not progress to PSC

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