Re: Re: My visit with Shands...Sandie

[Guest guest]

Eileen, If you only knew Bruce... lol he is something else. He seems so serious then all of a sudden that big ol' smile comes out.. and I got the pictures to prove he does know how to enjoy himself. Are you coming to Orlando? Hope so. It looks like we will have a pretty good crowd. Oh it will be so much fun. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Bruce - you always have amazing info and you are funny. I just wantto add that in 1980 my sister needed a kidney. I gave it to her andthey made sure we both understood she would be lucky if she lived 5years. This January 11th it was 29 years and she is absolutely fine.The statistics change every year. I hope we are all there Bruce whenyou are 80 and hitting on that 30 year old!!!Eileen IPF/UIP May 07> > >> > > Today we met with Dr. Baz, who is the head of the Lung > > Transplant > > > Department at Shands Hospital at the University of Florida . He > > > reviewed Kathy's medical records and testing to date, then did an > > > exam.> > > > > > He believes a transplant is in order and is the right thing > to > > > do....and gave us the following information:> > > > > > After a transplant, 50% of recipients die within the > first > > 5 > > > years. In year 1, 20% die primarily from infection due to the > > > operation. .In years 2 through 4, 30% more die from rejection > > which > > > is the body rejecting the new organ and the failure of rejection > > > drugs to stop this process.> > > He said that a lung transplant is unlike liver or kidney where > you > > > are likely to survive 10 - 12 years.> > > > > > Because of this high mortality rate , Dr. Baz believes in > > > holding off putting people on transplant lists as long as > possible, > > > until a patient has a year or less to live. > > > > > > Thankfully, Dr. Baz believes that Kathy has longer than a > > > year. Therefore he wants to see her in 6 months or earlier if her > > > next testing in April does not come back well. . He will then > put > > > her through further tests, and if necessary, she will be placed > on > > > the list. The average wait time once you are on the list is 6 > > months > > > to 1 year.> > > > > > At this point we plan to take this Doctor's advice and > > > hopefully Kathy will not see him again before 6 months and he > will > > > test her further...and tell us to come back again in another 6 > > > months!!> > > > > > After seeing Dr. Baz, the good news is that Kathy is now > > > accepted as a patient in the Lung Transplant department at Shands.> > >> >>

[Guest guest]



Peggy... did I miss those pictures of Bruce 'enjoying himself'?

I know he can smile though....

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: My visit with Shands...Sandie

Eileen, If you only knew Bruce... lol he is something else. He seems so serious then all of a sudden that big ol' smile comes out.. and I got the pictures to prove he does know how to enjoy himself.�

Are you coming to Orlando? Hope so. It looks like we will have a pretty good crowd. Oh it will be so much fun.

Love & Prayers, Peggy

Florida, �IPF/UIP 2004

"I believe that friends are quiet angels�who lift us to our feet,�

when our wings�have trouble remembering how to fly."�

Bruce - you always have amazing info and you are funny. I just wantto add that in 1980 my sister needed a kidney. I gave it to her andthey made sure we both understood she would be lucky if she lived 5years. This January 11th it was 29 years and she is absolutely fine.The statistics change every year. I hope we are all there Bruce whenyou are 80 and hitting on that 30 year old!!!Eileen IPF/UIP May 07> > >> > > Today we met with Dr. Baz, who is the head of the Lung�> > Transplant�> > > Department at Shands Hospital at the University of Florida . He�> > > reviewed Kathy's medical records and testing to date, then did an�> > > exam.> > >�> > > He believes a transplant is in order and is the right thing�> to�> > > do....and gave us the following information:> > >�> > > After a transplant, 50% of recipients die within the�> first�> > 5�> > > years. In year 1, 20% die primarily from infection due to the�> > > operation. .In years 2 through 4, 30% more die from rejection�> > which�> > > is the body rejecting the new organ and the failure of rejection�> > > drugs to stop this process.> > > He said that a lung transplant is unlike liver or kidney where�> you�> > > are likely to survive 10 - 12 years.> > >�> > > Because of this high mortality rate , Dr. Baz believes in�> > > holding off putting people on transplant lists as long as�> possible,�> > > until a patient has a year or less to live.�> > >�> > > Thankfully, Dr. Baz believes that Kathy has longer than a�> > > year. Therefore he wants to see her in 6 months or earlier if her�> > > next testing in April does not come back well. . He will then�> put�> > > her through further tests, and if necessary, she will be placed�> on�> > > the list. The average wait time once you are on the list is 6�> > months�> > > to 1 year.> > >�> > > At this point we plan to take this Doctor's advice and�> > > hopefully Kathy will not see him again before 6 months and he�> will�> > > test her further...and tell us to come back again in another 6�> > > months!!> > >�> > > After seeing Dr. Baz, the good news is that Kathy is now�> > > accepted as a patient in the Lung Transplant department at Shands.> > >> >>

[Guest guest]

Looks like a pretty happy guy to me..  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Peggy... did I miss those pictures of Bruce 'enjoying himself'? I know he can smile though....MamaSher, age 70. IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there! Re: Re: My visit with Shands...SandieEileen, If you only knew Bruce... lol he is something else. He seems so serious then all of a sudden that big ol' smile comes out.. and I got the pictures to prove he does know how to enjoy himself.�Are you coming to Orlando? Hope so. It looks like we will have a pretty good crowd. Oh it will be so much fun.Love & Prayers, PeggyFlorida, �IPF/UIP 2004"I believe that friends are quiet angels�who lift us to our feet,�when our wings�have trouble remembering how to fly."�<3DF4D323-E730-4BCB-80BA-A76CD055F8DA>Bruce - you always have amazing info and you are funny. I just wantto add that in 1980 my sister needed a kidney. I gave it to her andthey made sure we both understood she would be lucky if she lived 5years. This January 11th it was 29 years and she is absolutely fine.The statistics change every year. I hope we are all there Bruce whenyou are 80 and hitting on that 30 year old!!!Eileen IPF/UIP May 07> > >> > > Today we met with Dr. Baz, who is the head of the Lung�> > Transplant�> > > Department at Shands Hospital at the University of Florida . He�> > > reviewed Kathy's medical records and testing to date, then did an�> > > exam.> > >�> > > He believes a transplant is in order and is the right thing�> to�> > > do....and gave us the following information:> > >�> > > After a transplant, 50% of recipients die within the�> first�> > 5�> > > years. In year 1, 20% die primarily from infection due to the�> > > operation. .In years 2 through 4, 30% more die from rejection�> > which�> > > is the body rejecting the new organ and the failure of rejection�> > > drugs to stop this process.> > > He said that a lung transplant is unlike liver or kidney where�> you�> > > are likely to survive 10 - 12 years.> > >�> > > Because of this high mortality rate , Dr. Baz believes in�> > > holding off putting people on transplant lists as long as�> possible,�> > > until a patient has a year or less to live.�> > >�> > > Thankfully, Dr. Baz believes that Kathy has longer than a�> > > year. Therefore he wants to see her in 6 months or earlier if her�> > > next testing in April does not come back well. . He will then�> put�> > > her through further tests, and if necessary, she will be placed�> on�> > > the list. The average wait time once you are on the list is 6�> > months�> > > to 1 year.> > >�> > > At this point we plan to take this Doctor's advice and�> > > hopefully Kathy will not see him again before 6 months and he�> will�> > > test her further...and tell us to come back again in another 6�> > > months!!> > >�> > > After seeing Dr. Baz, the good news is that Kathy is now�> > > accepted as a patient in the Lung Transplant department at Shands.> > >> >>

[Guest guest]

Yeah, I know I should remember but where are you ?? I do suffer from OD (oxygen deprivation..) Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hi PeggyYes, my husband and I are both hoping to come especially since we liveonly 3 hrs away. I am so looking forward to it,Eileen IPF/UIP 05/07> > > >> > > > Today we met with Dr. Baz, who is the head of the Lung> > > Transplant> > > > Department at Shands Hospital at the University of Florida . He> > > > reviewed Kathy's medical records and testing to date, then did an> > > > exam.> > > >> > > > He believes a transplant is in order and is the right thing> > to> > > > do....and gave us the following information:> > > >> > > > After a transplant, 50% of recipients die within the> > first> > > 5> > > > years. In year 1, 20% die primarily from infection due to the> > > > operation. .In years 2 through 4, 30% more die from rejection> > > which> > > > is the body rejecting the new organ and the failure of rejection> > > > drugs to stop this process.> > > > He said that a lung transplant is unlike liver or kidney where> > you> > > > are likely to survive 10 - 12 years.> > > >> > > > Because of this high mortality rate , Dr. Baz believes in> > > > holding off putting people on transplant lists as long as> > possible,> > > > until a patient has a year or less to live.> > > >> > > > Thankfully, Dr. Baz believes that Kathy has longer than a> > > > year. Therefore he wants to see her in 6 months or earlier if her> > > > next testing in April does not come back well. . He will then> > put> > > > her through further tests, and if necessary, she will be placed> > on> > > > the list. The average wait time once you are on the list is 6> > > months> > > > to 1 year.> > > >> > > > At this point we plan to take this Doctor's advice and> > > > hopefully Kathy will not see him again before 6 months and he> > will> > > > test her further...and tell us to come back again in another 6> > > > months!!> > > >> > > > After seeing Dr. Baz, the good news is that Kathy is now> > > > accepted as a patient in the Lung Transplant department at > Shands.> > > >> > >> >>

[Guest guest]



These pics. are WONDERFUL... especially Bruce w/the big grin. Your secret is out now Bruce. BIG smiles are expected now.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Re: My visit with Shands...Sandie

Eileen, If you only knew Bruce... lol he is something else. He seems so serious then all of a sudden that big ol' smile comes out.. and I got the pictures to prove he does know how to enjoy himself.�

Are you coming to Orlando? Hope so. It looks like we will have a pretty good crowd. Oh it will be so much fun.

Love & Prayers, Peggy

Florida, �IPF/UIP 2004

"I believe that friends are quiet angels�who lift us to our feet,�

when our wings�have trouble remembering how to fly."�

<3DF4D323-E730-4BCB-80BA-A76CD055F8DA>

Bruce - you always have amazing info and you are funny. I just wantto add that in 1980 my sister needed a kidney. I gave it to her andthey made sure we both understood she would be lucky if she lived 5years. This January 11th it was 29 years and she is absolutely fine.The statistics change every year. I hope we are all there Bruce whenyou are 80 and hitting on that 30 year old!!!Eileen IPF/UIP May 07> > >> > > Today we met with Dr. Baz, who is the head of the Lung�> > Transplant�> > > Department at Shands Hospital at the University of Florida . He�> > > reviewed Kathy's medical records and testing to date, then did an�> > > exam.> > >�> > > He believes a transplant is in order and is the right thing�> to�> > > do....and gave us the following information:> > >�> > > After a transplant, 50% of recipients die within the�> first�> > 5�> > > years. In year 1, 20% die primarily from infection due to the�> > > operation. .In years 2 through 4, 30% more die from rejection�> > which�> > > is the body rejecting the new organ and the failure of rejection�> > > drugs to stop this process.> > > He said that a lung transplant is unlike liver or kidney where�> you�> > > are likely to survive 10 - 12 years.> > >�> > > Because of this high mortality rate , Dr. Baz believes in�> > > holding off putting people on transplant lists as long as�> possible,�> > > until a patient has a year or less to live.�> > >�> > > Thankfully, Dr. Baz believes that Kathy has longer than a�> > > year. Therefore he wants to see her in 6 months or earlier if her�> > > next testing in April does not come back well. . He will then�> put�> > > her through further tests, and if necessary, she will be placed�> on�> > > the list. The average wait time once you are on the list is 6�> > months�> > > to 1 year.> > >�> > > At this point we plan to take this Doctor's advice and�> > > hopefully Kathy will not see him again before 6 months and he�> will�> > > test her further...and tell us to come back again in another 6�> > > months!!> > >�> > > After seeing Dr. Baz, the good news is that Kathy is now�> > > accepted as a patient in the Lung Transplant department at Shands.> > >> >>