Re: Private Practice/Medical Publicity

[Guest guest]

<<We need the doctors to start talking more about it!>> Do you all think doctors would pay any attention at all to information packets or pamphlets if they were made by patients? I've been wondering about how to spread the word to the medical community. When I was first diagnosed in 2001, my gyn had just been sent a packet of info titled Vulvar Vestibulitis Syndrome, and that was ALL the info she had about it. She had never heard of it before then. Now I live in St. Louis, but I had just talked with a lady who had been diagnosed with this out in CA. She gave me that exact same packet that MY doctor got that very next week! So I figured that packet must have originated in CA and somehow moved its way to the Midwest. What I don't know is who typed it up and how they introduced it to the doctor's offices. What if, with all the

knowledge here, we put together some sort of updated packet(s) and made combined efforts to get them out to the gyns/family doctors in mass??? Thoughts? Becky

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

<<We need the doctors to start talking more about it!>> Do you all think doctors would pay any attention at all to information packets or pamphlets if they were made by patients? I've been wondering about how to spread the word to the medical community. When I was first diagnosed in 2001, my gyn had just been sent a packet of info titled Vulvar Vestibulitis Syndrome, and that was ALL the info she had about it. She had never heard of it before then. Now I live in St. Louis, but I had just talked with a lady who had been diagnosed with this out in CA. She gave me that exact same packet that MY doctor got that very next week! So I figured that packet must have originated in CA and somehow moved its way to the Midwest. What I don't know is who typed it up and how they introduced it to the doctor's offices. What if, with all the

knowledge here, we put together some sort of updated packet(s) and made combined efforts to get them out to the gyns/family doctors in mass??? Thoughts? Becky

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

<<We need the doctors to start talking more about it!>> Do you all think doctors would pay any attention at all to information packets or pamphlets if they were made by patients? I've been wondering about how to spread the word to the medical community. When I was first diagnosed in 2001, my gyn had just been sent a packet of info titled Vulvar Vestibulitis Syndrome, and that was ALL the info she had about it. She had never heard of it before then. Now I live in St. Louis, but I had just talked with a lady who had been diagnosed with this out in CA. She gave me that exact same packet that MY doctor got that very next week! So I figured that packet must have originated in CA and somehow moved its way to the Midwest. What I don't know is who typed it up and how they introduced it to the doctor's offices. What if, with all the

knowledge here, we put together some sort of updated packet(s) and made combined efforts to get them out to the gyns/family doctors in mass??? Thoughts? Becky

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Thanks Lindsey

My pregnancy is going wonderful. We find out the gender on wednesday,

so I'm excited. The only thing I'm nervous about is delivery of

course, with the vvs. I'm just not sure if I should try to deliver

vaginally (with an epidural, obviously!) or just schedule a c-section.

I want to deliver vaginally, but am afraid the epidural isn't going to

numb the vvs pain enough, ya know, or it will make it worse. We'll see.

>

> I hope you're having a happy, healthy pregnancy! Occasionally I see

> the " vestibulodynia " diagnosis thrown around (in medical articles,

> online, etc), but not often. It doesn't seem to have " caught on. "

> The ICD-9 code book still lists both vestibulitis and

> vestibulodynia.

> Are you feeling well through your pregnancy? I hope you have a

> wonderful delivery and healthy baby and postpartum!

> Lindsey

>

>

[Guest guest]

Congrats! I would talk to your doctor about the birth. I was

undiagnosed with vv, but knew that I had a lot of pain...I didn't get

this through to my midwife clearly until after the delivery. I

delivered my daughter epidural/drug free. Not to scare you, but it

was the worse pain of my life. I'm partially scared to go through

that again...even though this time I would get lido shots before

pushing. B/c of the pain I was able to push my daughter out really

fast (a good thing since her heartrate was dropping b/c of the cord

around her neck). But definitely talk with your doctor/midwife about

what would be the best choice for you to have good memories about

your birth. Also, be ready for the pain of stitches if you go

vaginally. They couldn't give me enough lido for the pain after the

delivery.

I sure hope that your's goes better and I don't want to worry you, I

just want you to not go in blind like I did.

> >

> > I hope you're having a happy, healthy pregnancy! Occasionally I

see

> > the " vestibulodynia " diagnosis thrown around (in medical

articles,

> > online, etc), but not often. It doesn't seem to have " caught

on. "

> > The ICD-9 code book still lists both vestibulitis and

> > vestibulodynia.

> > Are you feeling well through your pregnancy? I hope you have a

> > wonderful delivery and healthy baby and postpartum!

> > Lindsey

> >

> >

>

[Guest guest]

,

A study was recently done (I think it was a meta-analysis) of the pros

and cons of vaginal birth vs. c-section for women with vulvodynia or

vestibulitis (sorry-I've only seen it in one or two places and until

vestibulodynia is more commonly used and the ICD-9 is updated, that's

the term I'm going to use). The study is available in the most recent

NVA newsletter. I highly recommend you read it so you can make an

informed decision. Also, not all vaginal births end up with stitches.

Most midwives and a few good docs can teach you perineal massage and

will massage your perineum during delivery so you don't need stiches.

I wish you well. You might as well be one of those women that sails

through and I hope that for you!

Take care,

Lindsey

[Guest guest]

Even docs that are fairly new and up-to-date, I don't hear them using

it. Or PTs that are REALLY up-to-date. I'm just thinking the name

didn't catch on.

Lindsey