Re: Porphyrin Results and CFS - trying to figure this out...

[Guest guest]

> I realize that in Amalgam Illness, Cutler says that mercury is at the

> root of CFS many times. For the people on this list, did you guys get

> gradually poisoned by mercury over time? Or did you have a sudden

> onset with a reactivation of some infection? Did you go about treating

> the infection first and then chelating later? Or if you started

> chelating, did the infection go away on its own? What about adrenal

> fatigue...

>

> any help would be appreciated

>

> thanks

Mercury might not always be the sucker punch that knocks you down, but it is

often the repetitive jab that prevents your from getting up.

This is the same for other dental infections like root canals and

cavitations.

What other dentistry did you have doing about one year preceding onset of

symptoms? Wisdoms out, root canals? etc.

Rather than trying to prove if the amalgams are causing a problem, why not

take them out and chelate and see how you do?

It will at he very least be one less obstacle in your path towards health,

and is very likely to help a lot!

I'm cure cortisol would help you a lot too if you have never tried that.

Dean

[Guest guest]

> I realize that in Amalgam Illness, Cutler says that mercury is at the

> root of CFS many times. For the people on this list, did you guys get

> gradually poisoned by mercury over time? Or did you have a sudden

> onset with a reactivation of some infection? Did you go about treating

> the infection first and then chelating later? Or if you started

> chelating, did the infection go away on its own? What about adrenal

> fatigue...

>

> any help would be appreciated

>

> thanks

Mercury might not always be the sucker punch that knocks you down, but it is

often the repetitive jab that prevents your from getting up.

This is the same for other dental infections like root canals and

cavitations.

What other dentistry did you have doing about one year preceding onset of

symptoms? Wisdoms out, root canals? etc.

Rather than trying to prove if the amalgams are causing a problem, why not

take them out and chelate and see how you do?

It will at he very least be one less obstacle in your path towards health,

and is very likely to help a lot!

I'm cure cortisol would help you a lot too if you have never tried that.

Dean

[Guest guest]

> I realize that in Amalgam Illness, Cutler says that mercury is at the

> root of CFS many times. For the people on this list, did you guys get

> gradually poisoned by mercury over time? Or did you have a sudden

> onset with a reactivation of some infection? Did you go about treating

> the infection first and then chelating later? Or if you started

> chelating, did the infection go away on its own? What about adrenal

> fatigue...

>

> any help would be appreciated

>

> thanks

Mercury might not always be the sucker punch that knocks you down, but it is

often the repetitive jab that prevents your from getting up.

This is the same for other dental infections like root canals and

cavitations.

What other dentistry did you have doing about one year preceding onset of

symptoms? Wisdoms out, root canals? etc.

Rather than trying to prove if the amalgams are causing a problem, why not

take them out and chelate and see how you do?

It will at he very least be one less obstacle in your path towards health,

and is very likely to help a lot!

I'm cure cortisol would help you a lot too if you have never tried that.

Dean

[Guest guest]

>

> For the people on this list, did you guys get

> gradually poisoned by mercury over time?

For me it was gradual decline that I blamed on age and not taking

great care of myself (memory problems, some social withdrawal) but now

I realize were due to amalgams and fish consumption, and then a big

crash thanks to 5 RhoGams (shots with thimerosal) after which I got a

host of symptoms, some pretty extreme, and thyroid and adrenals crashed.

>Did you go about treating

> the infection first and then chelating later?

My formerly autistic son had subclinical viral problems along with

metal poisoning. After I'd chelated him for about 6 months and knew

the side effects etc, I started working on the infection and immunity.

The trouble with waiting to finish one thing first, IMO, is that both

antiviral program and chelation take a *long* time to accomplish.

Years. Each thing brought very tangible results and I'm glad I did

both at the same time.

In your situation I think I'd really consider getting your amalgams

out even if Hg was not the cause of your crash -- the constant

exposure is not going to help your adrenals any.

It's hard to give up sushi! I still miss it.

> Or if you started

> chelating, did the infection go away on its own?

At one point during my crash, I got a lot of infections, one right

after another. Slowly as I've chelated that has stopped. Taking HC for

adrenal fatigue has really helped too.

Nell

[Guest guest]

>

> For the people on this list, did you guys get

> gradually poisoned by mercury over time?

For me it was gradual decline that I blamed on age and not taking

great care of myself (memory problems, some social withdrawal) but now

I realize were due to amalgams and fish consumption, and then a big

crash thanks to 5 RhoGams (shots with thimerosal) after which I got a

host of symptoms, some pretty extreme, and thyroid and adrenals crashed.

>Did you go about treating

> the infection first and then chelating later?

My formerly autistic son had subclinical viral problems along with

metal poisoning. After I'd chelated him for about 6 months and knew

the side effects etc, I started working on the infection and immunity.

The trouble with waiting to finish one thing first, IMO, is that both

antiviral program and chelation take a *long* time to accomplish.

Years. Each thing brought very tangible results and I'm glad I did

both at the same time.

In your situation I think I'd really consider getting your amalgams

out even if Hg was not the cause of your crash -- the constant

exposure is not going to help your adrenals any.

It's hard to give up sushi! I still miss it.

> Or if you started

> chelating, did the infection go away on its own?

At one point during my crash, I got a lot of infections, one right

after another. Slowly as I've chelated that has stopped. Taking HC for

adrenal fatigue has really helped too.

Nell

[Guest guest]

Hey guys,

Thanks for all the replies. As far as dental work done before my

onset of CFS, I don't think i really had any. My filings were all put

in when I was between 10 and 15 (I'm now 26), and besides getting a

cleaning every 6 months or so, I didn't really need any crowns, root

canals, or other metal work done in my mouth. Just the 4 small

amalgams.

However, my mother is a dentist so I'm sure I was born with a higher

load of mercury than your avg kid. I wasn't born Autistic or with ADD

or anything, I did have pretty severe allergies when I was a kid and

asthma, although they seemed to subside when I hit puberty. I haven't

had to use an inhaler or take allergy medicine since then.

There seems to be some relation between chronic viral infection and

mercury retention. This is probably pretty off topic for this forum,

but I read an article by Dr. Yasko (who doesn't use this protocol) and

she claims that the part of the immune system that fights viral

infections and the part of your body that is responsible for detoxing

metals tax the same pathways so if you have both metals and a virus

you end up in a deadlock. Not sure what to think about that...

I honestly thought my problem was candida because when I was working

in my high stress job prior to my operation in 2005 my gut started to

go south. Then after the operation they had me on anti-biotics that

messed it up even more. The thing is, I don't seem to respond all

that well to the " candida " protocols. I took oil of oregano tablets

and didn't eat any carbs for a while and didn't really get a herx and

my CDSA didn't culture any yeast (although it didn't culture much in

the way of beneficial bacteria either - and I know yeast doesn't

usually culture unless its over the top bad).

I think I will probably have my Amalgams replaced at some point

soon... Anyone know a good mercury free dentist in Michigan? There

are a few listed on the IAOMT and DAMS sites, but a personal

recommendation is always better than just a list. My mother (the

dentist) could probably take them out, but although she doesn't place

amalgams anymore, she hasn't made a specialty of removing them, so I'd

probably want to go with someone with the whole setup and a good

reputation in this area.

thanks!

>

>

> > I realize that in Amalgam Illness, Cutler says that mercury is at the

> > root of CFS many times. For the people on this list, did you guys get

> > gradually poisoned by mercury over time? Or did you have a sudden

> > onset with a reactivation of some infection? Did you go about treating

> > the infection first and then chelating later? Or if you started

> > chelating, did the infection go away on its own? What about adrenal

> > fatigue...

> >

> > any help would be appreciated

> >

> > thanks

>

> Mercury might not always be the sucker punch that knocks you down,

but it is

> often the repetitive jab that prevents your from getting up.

> This is the same for other dental infections like root canals and

> cavitations.

> What other dentistry did you have doing about one year preceding

onset of

> symptoms? Wisdoms out, root canals? etc.

>

> Rather than trying to prove if the amalgams are causing a problem,

why not

> take them out and chelate and see how you do?

> It will at he very least be one less obstacle in your path towards

health,

> and is very likely to help a lot!

>

> I'm cure cortisol would help you a lot too if you have never tried that.

>

> Dean

>

[Guest guest]

>

> I just got back my second porphryin test from the lab in france. The

> first one I sent seemed to be a false negative since all values were

> below the range. The one I just got back showed all in range except

> Precoproporphyrin and Coproporphyrins I & III (cP). Pre was 10 on a

> range of 5-9 (elevated by 1 point) and Co was 206 on a range of 80-200

> (6 points elevated).

>

This enough is reason enough to get your fillings removed. Why

would'nt you? Think for a moment first one was all low, this is the

common way that it reflects when the sample is mishandled which is

REALLY easy with this test, second test could have had some degree of

mishandling, my understanding is it is difficult to get a false

positive high.

> My Dr. did a whole bunch of labs on me and it showed low normal

> adrenals in the AM, but by PM very low... marginally low thyroid with

> marginally elevated TSH (~3.6). They put me on a trial of synthroid,

> which didn't help that much. Then a program to treat " adrenal

> fatigue " which did help a bit, but they were mainly using adaptogens

> so I don't know if it was enough. After 6 months of barely much

> improvement, I had them retest me for a bunch of stuff.

>

> My thyroid is now " normal " according to the labs, although some of my

> T3 is getting shunted into ReverseT3, whatever that means. My

> adrenals are " normal " at 8am, but still crash down as the day goes on

> to be very low. I showed a moderately elevated titer to HHV6 which

> they said indicated reactivation, and similar to mycoplasma pn. They

> have recommended I try Valcyte, so I'm trying to decide on that.

How about trying 20 mg of cortisol a day split up 5x a day, its safe

and cheap used it low doses. Did your hair test show a adrenal or

thyroid sign?

> My hair mercury was elevated at about 6 months post onset (3.88)

> without evidence of mineral transport issues, and they found some

> methyl mercury floating around in my blood which they said was typical

> of people who eat fish. (Around the time this happened I ate sushi a

> couple times a week). The blood mercury level has since subsided to

> an undetectable level, and the unprovoked urine results (I wouldn't

> let them do a challenge) were 4ug/day. I only have 4 very tiny

> amalgams.

What was the range for the HG on the hair test, was it in the RED?

If so that was the buzzer for the alarm clock to wake up, remove and

chelate. The blood and urine tests I here are pretty much not

reliable. High HG with or without mineral transport in the RED is

your problem. Fish with high levels of mercury more than once per

week for a normal person is too much, more than that for someone that

has redisposition is a problem.

> The reason I am writing is I am trying to figure out where this all

> started and where it all ends. I don't think getting my amalgams out

> would be a huge deal, but its a commitment and costs money. I am not

> really sure what to make of the mercury in the hair and the porphryins

> results since my " CFS " seems to be sudden onset, making me thing

> something tipped me over the edge into an adrenal crash rather

> suddenly. Most likely I am thinking a re-activation of one of the

> infections.

First of all yea maybe infections are what " tipped you over the edge "

keep in mind though HG is a immune surpressor and having low cortisol

is also a immune surpressor. 4 small amalgams should be fairly

inexpensive in the scheme of things.

> I realize that in Amalgam Illness, Cutler says that mercury is at the

> root of CFS many times. For the people on this list, did you guys get

> gradually poisoned by mercury over time? Or did you have a sudden

> onset with a reactivation of some infection? Did you go about treating

> the infection first and then chelating later? Or if you started

> chelating, did the infection go away on its own? What about adrenal

> fatigue...

I had sudden onset when I was 24, I am 26 now. Mine started when I

purposely went from 250 to 205 in 2 1/2 months. HG is fat soluable.

I had a serious adrenal crash, which is mainly my main complaint

symptom. I don't get the crazy stuff that some on her eget like

infections, candida (to any noticable extent), thyroid or really any

neuro complaints like numbness and tingling.

Honestly the money you spent on that Porphyrin test you could have

probably removed 2 amalgams, I would probably stop trying to find

band aid interventions and go with what you know at this point by the

two tests (Porphyrin and if HG is in the RED on a hair test) remove

then immediately (after 4 days) start on DMSA. If you had adrenal

problems I would see if I could get a doc to give you 5 mg x4 day of

cortisol or order it yourself and carefully do it. The cortisol will

provide some decent relief and if your have infections and stuff and

you are infact low you will get some relief with the cortisol also.

I've found you can spend alot on tests and to prove to yourself what

your saying can't be so, but at the end of a year or two you ended up

just getting them removed anyways and chelating anyways.

>

> any help would be appreciated

>

> thanks

>

>

>