Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Leanne, The signs in the file are very very powerful. I suppose more powerful to all of us because we know these people. The picture of Joyce was like a punch in the solar plexus...it took my breath away and the one of Wally and Corbin and the other of Kerry and her children just made me cry. Thanks for sharing this with the board... Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Support <breathe-support >Sent: Friday, October 24, 2008 9:48:04 PMSubject: signs Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Leanne, The signs in the file are very very powerful. I suppose more powerful to all of us because we know these people. The picture of Joyce was like a punch in the solar plexus...it took my breath away and the one of Wally and Corbin and the other of Kerry and her children just made me cry. Thanks for sharing this with the board... Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Support <breathe-support >Sent: Friday, October 24, 2008 9:48:04 PMSubject: signs Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 I started cryin with Brett and Sunshine and went through to the end.. REALLY POWERFUL. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Leanne,The signs in the file are very very powerful. I suppose more powerful to all of us because we know these people. The picture of Joyce was like a punch in the solar plexus...it took my breath away and the one of Wally and Corbin and the other of Kerry and her children just made me cry.Thanks for sharing this with the board... Beth-ModeratorFibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss FrizzleFrom: Leanne Storch To: Support <breathe-support >Sent: Friday, October 24, 2008 9:48:04 PMSubject: signsDear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 I started cryin with Brett and Sunshine and went through to the end.. REALLY POWERFUL. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Leanne,The signs in the file are very very powerful. I suppose more powerful to all of us because we know these people. The picture of Joyce was like a punch in the solar plexus...it took my breath away and the one of Wally and Corbin and the other of Kerry and her children just made me cry.Thanks for sharing this with the board... Beth-ModeratorFibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss FrizzleFrom: Leanne Storch To: Support <breathe-support >Sent: Friday, October 24, 2008 9:48:04 PMSubject: signsDear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 THANK YOU, THANK YOU, THANK YOU, Leanne, for taking the initiative for getting word out. The beautiful faces of our fellow group members and families make such a potent statement about what this disease can potentially steal. Think of what one a month in a national magazine might do to educate the public. We need a cure and a treatment that doesn't leave us guessing. We need doctors that recognize the signs before lungs are damaged. Public awareness can do nothing but good. THANKS!!!! Elisa( sjogren's, raynaud's, nsip Apr.'08) Subject: signsTo: "Support" <breathe-support >Date: Friday, October 24, 2008, 8:48 PM Dear all, I uploaded a file with signs that we had made for our local T.O.S.S. (Treasures of the South Side) 20 mile bike ride fundraiser.. ....http: //www.active. com/donate/ tosspf - I thought they were powerful.... .we will probably make up more signs. We have to put a face to this disease. We NEED to find a cure or at the very least a treatment. Just as an FYI - we are planning a Medical conference in the Fall of 2009.....Breathe 2009. Initial planning is it will attract both doctors and patients and their families.... will keep you all posted as details develop. We are partnering with the University of Chicago.... Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Leanne, 'The signs ' are GOOD. the impact is powerful, You are doing a wondeful job, wishing you all sucess Geeta -- In Breathe-Support , " JOE & JOANIE LAMENSKIE " wrote: > > LEANNE, > > THANK YOU SO MUCH FOR UPLOADING THE SIGNS. POWERFUL IS NOT AN ADEQUATE WORD > FOR THE FEELING THAT HITS ONE RIGHT IN THE MIDDLE OF THE CHEST AND TAKES > ONES' BREATH AWAY AS WE LOOK AT THE FACES OF PEOPLE WE READ ABOUT AND SHARE > WITH EVERYDAY. > GOD BLESS YOU AND THANKS AGAIN... > JOE AND JOANIE > >     JOE/JOANIE > JOE 60 IPF1/2008 > GRIFFIN, GA. > -- signs > > Dear all, > > I uploaded a file with signs that we had made for our local T.O.S.S. > (Treasures of the South Side) 20 mile bike ride fundraiser......http://www > active.com/donate/tosspf - I thought they were powerful.....we will probably > make up more signs. We have to put a face to this disease. We NEED to find > a cure or at the very least a treatment. > > Just as an FYI - we are planning a Medical conference in the Fall of 2009... > .Breathe 2009. Initial planning is it will attract both doctors and patients > and their families....will keep you all posted as details develop. We are > partnering with the University of Chicago.... > > Leanne > Quote Link to comment Share on other sites More sharing options...
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