Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Now THIS is a new release we all like to see. Of course not about Odetta's death but the info given about PF! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Odetta PRESS RELEASEPulmonary Fibrosis Contributes to Beloved Civil Rights Writer and FolkSinger Odetta's DeathLast update: 9:30 a.m. EST Dec. 4, 2008SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ --Music and civil rights icon Odetta succumbed December 2 as a result ofmultiple illnesses. One of them was pulmonary fibrosis (PF), anillness that relentlessly fills the lungs with scar tissue andsuffocates its victims, and is one of the deadliest yet least wellknown diseases in the country. Despite being diagnosed with PF twoyears ago, a diagnosis that was essentially a death sentence, Odettawent on to perform extraordinary concerts all over the world. Herdoctors were amazed at her determination to sing while battling thedisease. Despite her markedly reduced lung capacity, she managed tocomplete entire concerts and only access her supplemental oxygen asshe left the stage.Pulmonary Fibrosis (PF) is a tissue debilitating lung disease thatcauses progressive scarring of the lungs, ultimately robbing a personof the ability to breathe. As many people die each year to PF as tobreast cancer, yet most have never heard of it until they receive thedevastating diagnosis. More than 128,000 suffer from the disease andincidence and prevalence has increased more than 150 percent in thelast several years."We are deeply saddened at the loss of such a beloved singer and civilrights legend," said Mishka Michon, chief executive officer for theCoalition for Pulmonary Fibrosis (CPF). "We lose 40,000 people a yearto this disease (as many as are lost to breast cancer), and each lossis painful. Odetta's death highlights for the nation, and for herfans, what those of us fighting pulmonary fibrosis already know - thatthere is a killer disease randomly striking thousands and we have notreatments. Marlon Brando, Gordon Jump and Goulet's lives wereamong those cut down by pulmonary fibrosis - we don't want to seethese losses continue at their current pace. We can only hope that,with increased awareness and funding for research, the future willchange for others."Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PFtwo years ago but refused to let the grim prognosis get her down. Mostpatients live less than three years and few are able to continue anormal life because of the extremely life limiting breathlessness andrelated exhaustion.Odetta used supplemental oxygen for the two years she suffered, butsomehow had the strength to perform more than 60 concerts after herdiagnosis around the world - all of her performances except for onewere completed without her having to use an oxygen tank, Yeager said."She wouldn't use her oxygen during her concerts. Somehow, she'd goout and sing for 90 minutes without it," Yeager said. The only concertshe performed with supplemental oxygen was one in Denver, Colorado, acity that sits at 5,280 feet of elevation, he said.There is no FDA approved treatment for PF, no known cause and no cure.Odetta is one of 40,000 people who will die this year from thedisease. The CPF has counseled thousands of patients and familymembers who've faced pulmonary fibrosis. To learn more, please visit:www.coalitionforpf.org.Odetta's last concert performance was October 26th of this year,according to Yeager. She also performed a concert October 6th, infront of 100,000 people at San Francisco's Golden Gate Park.About Pulmonary Fibrosis (PF)PF is a lung disorder characterized by a progressive scarring - knownas fibrosis - and deterioration of the lungs, which slowly robs itsvictims of their ability to breathe. Approximately 128,000 Americanssuffer from IPF, and there is currently no known cause or cure. Anestimated 48,000 new cases are diagnosed each year. IPF is difficultto diagnose and an estimated two-thirds of patients die within fiveyears of diagnosis. Sometimes pulmonary fibrosis can be linked to aparticular cause, such as certain environmental exposures,chemotherapy or radiation therapy, residual infection, or autoimmunediseases such as scleroderma or rheumatoid arthritis. However, in manyinstances, no known cause can be established. When this is the case,it is called idiopathic pulmonary fibrosis (IPF).About the CPFThe CPF is a 501©(3) nonprofit organization, founded in 2001 toaccelerate research efforts leading to a cure for pulmonary fibrosis(PF), while educating, supporting, and advocating for the community ofpatients, families, and medical professionals fighting this disease.The CPF funds promising research into new approaches to treat and curepulmonary fibrosis; provides patients and families with comprehensiveeducation materials, resources, and hope; serves as a voice fornational advocacy of PF issues; and works to improve awareness of PFin the medical community as well as the general public. The CPF'snonprofit partners include many of the most respected medical centersand healthcare organizations in the U.S. With more than 16,000 membersnationwide, the CPF is the largest nonprofit organization in the U.S.dedicated to advocating for those with pulmonary fibrosis. For moreinformation please visit www.coalitionforpf.org or call .SOURCE Coalition for Pulmonary Fibrosishttp://www.coalitionforpf.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Now THIS is a new release we all like to see. Of course not about Odetta's death but the info given about PF! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Odetta PRESS RELEASEPulmonary Fibrosis Contributes to Beloved Civil Rights Writer and FolkSinger Odetta's DeathLast update: 9:30 a.m. EST Dec. 4, 2008SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ --Music and civil rights icon Odetta succumbed December 2 as a result ofmultiple illnesses. One of them was pulmonary fibrosis (PF), anillness that relentlessly fills the lungs with scar tissue andsuffocates its victims, and is one of the deadliest yet least wellknown diseases in the country. Despite being diagnosed with PF twoyears ago, a diagnosis that was essentially a death sentence, Odettawent on to perform extraordinary concerts all over the world. Herdoctors were amazed at her determination to sing while battling thedisease. Despite her markedly reduced lung capacity, she managed tocomplete entire concerts and only access her supplemental oxygen asshe left the stage.Pulmonary Fibrosis (PF) is a tissue debilitating lung disease thatcauses progressive scarring of the lungs, ultimately robbing a personof the ability to breathe. As many people die each year to PF as tobreast cancer, yet most have never heard of it until they receive thedevastating diagnosis. More than 128,000 suffer from the disease andincidence and prevalence has increased more than 150 percent in thelast several years."We are deeply saddened at the loss of such a beloved singer and civilrights legend," said Mishka Michon, chief executive officer for theCoalition for Pulmonary Fibrosis (CPF). "We lose 40,000 people a yearto this disease (as many as are lost to breast cancer), and each lossis painful. Odetta's death highlights for the nation, and for herfans, what those of us fighting pulmonary fibrosis already know - thatthere is a killer disease randomly striking thousands and we have notreatments. Marlon Brando, Gordon Jump and Goulet's lives wereamong those cut down by pulmonary fibrosis - we don't want to seethese losses continue at their current pace. We can only hope that,with increased awareness and funding for research, the future willchange for others."Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PFtwo years ago but refused to let the grim prognosis get her down. Mostpatients live less than three years and few are able to continue anormal life because of the extremely life limiting breathlessness andrelated exhaustion.Odetta used supplemental oxygen for the two years she suffered, butsomehow had the strength to perform more than 60 concerts after herdiagnosis around the world - all of her performances except for onewere completed without her having to use an oxygen tank, Yeager said."She wouldn't use her oxygen during her concerts. Somehow, she'd goout and sing for 90 minutes without it," Yeager said. The only concertshe performed with supplemental oxygen was one in Denver, Colorado, acity that sits at 5,280 feet of elevation, he said.There is no FDA approved treatment for PF, no known cause and no cure.Odetta is one of 40,000 people who will die this year from thedisease. The CPF has counseled thousands of patients and familymembers who've faced pulmonary fibrosis. To learn more, please visit:www.coalitionforpf.org.Odetta's last concert performance was October 26th of this year,according to Yeager. She also performed a concert October 6th, infront of 100,000 people at San Francisco's Golden Gate Park.About Pulmonary Fibrosis (PF)PF is a lung disorder characterized by a progressive scarring - knownas fibrosis - and deterioration of the lungs, which slowly robs itsvictims of their ability to breathe. Approximately 128,000 Americanssuffer from IPF, and there is currently no known cause or cure. Anestimated 48,000 new cases are diagnosed each year. IPF is difficultto diagnose and an estimated two-thirds of patients die within fiveyears of diagnosis. Sometimes pulmonary fibrosis can be linked to aparticular cause, such as certain environmental exposures,chemotherapy or radiation therapy, residual infection, or autoimmunediseases such as scleroderma or rheumatoid arthritis. However, in manyinstances, no known cause can be established. When this is the case,it is called idiopathic pulmonary fibrosis (IPF).About the CPFThe CPF is a 501©(3) nonprofit organization, founded in 2001 toaccelerate research efforts leading to a cure for pulmonary fibrosis(PF), while educating, supporting, and advocating for the community ofpatients, families, and medical professionals fighting this disease.The CPF funds promising research into new approaches to treat and curepulmonary fibrosis; provides patients and families with comprehensiveeducation materials, resources, and hope; serves as a voice fornational advocacy of PF issues; and works to improve awareness of PFin the medical community as well as the general public. The CPF'snonprofit partners include many of the most respected medical centersand healthcare organizations in the U.S. With more than 16,000 membersnationwide, the CPF is the largest nonprofit organization in the U.S.dedicated to advocating for those with pulmonary fibrosis. For moreinformation please visit www.coalitionforpf.org or call .SOURCE Coalition for Pulmonary Fibrosishttp://www.coalitionforpf.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Now THIS is a new release we all like to see. Of course not about Odetta's death but the info given about PF! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Odetta PRESS RELEASEPulmonary Fibrosis Contributes to Beloved Civil Rights Writer and FolkSinger Odetta's DeathLast update: 9:30 a.m. EST Dec. 4, 2008SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ --Music and civil rights icon Odetta succumbed December 2 as a result ofmultiple illnesses. One of them was pulmonary fibrosis (PF), anillness that relentlessly fills the lungs with scar tissue andsuffocates its victims, and is one of the deadliest yet least wellknown diseases in the country. Despite being diagnosed with PF twoyears ago, a diagnosis that was essentially a death sentence, Odettawent on to perform extraordinary concerts all over the world. Herdoctors were amazed at her determination to sing while battling thedisease. Despite her markedly reduced lung capacity, she managed tocomplete entire concerts and only access her supplemental oxygen asshe left the stage.Pulmonary Fibrosis (PF) is a tissue debilitating lung disease thatcauses progressive scarring of the lungs, ultimately robbing a personof the ability to breathe. As many people die each year to PF as tobreast cancer, yet most have never heard of it until they receive thedevastating diagnosis. More than 128,000 suffer from the disease andincidence and prevalence has increased more than 150 percent in thelast several years."We are deeply saddened at the loss of such a beloved singer and civilrights legend," said Mishka Michon, chief executive officer for theCoalition for Pulmonary Fibrosis (CPF). "We lose 40,000 people a yearto this disease (as many as are lost to breast cancer), and each lossis painful. Odetta's death highlights for the nation, and for herfans, what those of us fighting pulmonary fibrosis already know - thatthere is a killer disease randomly striking thousands and we have notreatments. Marlon Brando, Gordon Jump and Goulet's lives wereamong those cut down by pulmonary fibrosis - we don't want to seethese losses continue at their current pace. We can only hope that,with increased awareness and funding for research, the future willchange for others."Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PFtwo years ago but refused to let the grim prognosis get her down. Mostpatients live less than three years and few are able to continue anormal life because of the extremely life limiting breathlessness andrelated exhaustion.Odetta used supplemental oxygen for the two years she suffered, butsomehow had the strength to perform more than 60 concerts after herdiagnosis around the world - all of her performances except for onewere completed without her having to use an oxygen tank, Yeager said."She wouldn't use her oxygen during her concerts. Somehow, she'd goout and sing for 90 minutes without it," Yeager said. The only concertshe performed with supplemental oxygen was one in Denver, Colorado, acity that sits at 5,280 feet of elevation, he said.There is no FDA approved treatment for PF, no known cause and no cure.Odetta is one of 40,000 people who will die this year from thedisease. The CPF has counseled thousands of patients and familymembers who've faced pulmonary fibrosis. To learn more, please visit:www.coalitionforpf.org.Odetta's last concert performance was October 26th of this year,according to Yeager. She also performed a concert October 6th, infront of 100,000 people at San Francisco's Golden Gate Park.About Pulmonary Fibrosis (PF)PF is a lung disorder characterized by a progressive scarring - knownas fibrosis - and deterioration of the lungs, which slowly robs itsvictims of their ability to breathe. Approximately 128,000 Americanssuffer from IPF, and there is currently no known cause or cure. Anestimated 48,000 new cases are diagnosed each year. IPF is difficultto diagnose and an estimated two-thirds of patients die within fiveyears of diagnosis. Sometimes pulmonary fibrosis can be linked to aparticular cause, such as certain environmental exposures,chemotherapy or radiation therapy, residual infection, or autoimmunediseases such as scleroderma or rheumatoid arthritis. However, in manyinstances, no known cause can be established. When this is the case,it is called idiopathic pulmonary fibrosis (IPF).About the CPFThe CPF is a 501©(3) nonprofit organization, founded in 2001 toaccelerate research efforts leading to a cure for pulmonary fibrosis(PF), while educating, supporting, and advocating for the community ofpatients, families, and medical professionals fighting this disease.The CPF funds promising research into new approaches to treat and curepulmonary fibrosis; provides patients and families with comprehensiveeducation materials, resources, and hope; serves as a voice fornational advocacy of PF issues; and works to improve awareness of PFin the medical community as well as the general public. The CPF'snonprofit partners include many of the most respected medical centersand healthcare organizations in the U.S. With more than 16,000 membersnationwide, the CPF is the largest nonprofit organization in the U.S.dedicated to advocating for those with pulmonary fibrosis. For moreinformation please visit www.coalitionforpf.org or call .SOURCE Coalition for Pulmonary Fibrosishttp://www.coalitionforpf.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Yes , absolutely . And its good that they put a website on there too so people can learn more and maybe donate some money . Too bad she didn't make it public , or not that I know of , while she still had time to talk about it . W. , East Texas , Silicosis 4/08 > > Now THIS is a new release we all like to see. Of course not about Odetta's death but the info given about PF! > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > Odetta > > > > PRESS RELEASE > Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk > Singer Odetta's Death > > Last update: 9:30 a.m. EST Dec. 4, 2008 > SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ -- > Music and civil rights icon Odetta succumbed December 2 as a result of > multiple illnesses. One of them was pulmonary fibrosis (PF), an > illness that relentlessly fills the lungs with scar tissue and > suffocates its victims, and is one of the deadliest yet least well > known diseases in the country. Despite being diagnosed with PF two > years ago, a diagnosis that was essentially a death sentence, Odetta > went on to perform extraordinary concerts all over the world. Her > doctors were amazed at her determination to sing while battling the > disease. Despite her markedly reduced lung capacity, she managed to > complete entire concerts and only access her supplemental oxygen as > she left the stage. > Pulmonary Fibrosis (PF) is a tissue debilitating lung disease that > causes progressive scarring of the lungs, ultimately robbing a person > of the ability to breathe. As many people die each year to PF as to > breast cancer, yet most have never heard of it until they receive the > devastating diagnosis. More than 128,000 suffer from the disease and > incidence and prevalence has increased more than 150 percent in the > last several years. > " We are deeply saddened at the loss of such a beloved singer and civil > rights legend, " said Mishka Michon, chief executive officer for the > Coalition for Pulmonary Fibrosis (CPF). " We lose 40,000 people a year > to this disease (as many as are lost to breast cancer), and each loss > is painful. Odetta's death highlights for the nation, and for her > fans, what those of us fighting pulmonary fibrosis already know - that > there is a killer disease randomly striking thousands and we have no > treatments. Marlon Brando, Gordon Jump and Goulet's lives were > among those cut down by pulmonary fibrosis - we don't want to see > these losses continue at their current pace. We can only hope that, > with increased awareness and funding for research, the future will > change for others. " > Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PF > two years ago but refused to let the grim prognosis get her down. Most > patients live less than three years and few are able to continue a > normal life because of the extremely life limiting breathlessness and > related exhaustion. > Odetta used supplemental oxygen for the two years she suffered, but > somehow had the strength to perform more than 60 concerts after her > diagnosis around the world - all of her performances except for one > were completed without her having to use an oxygen tank, Yeager said. > " She wouldn't use her oxygen during her concerts. Somehow, she'd go > out and sing for 90 minutes without it, " Yeager said. The only concert > she performed with supplemental oxygen was one in Denver, Colorado, a > city that sits at 5,280 feet of elevation, he said. > There is no FDA approved treatment for PF, no known cause and no cure. > Odetta is one of 40,000 people who will die this year from the > disease. The CPF has counseled thousands of patients and family > members who've faced pulmonary fibrosis. To learn more, please visit: > www.coalitionforpf.org. > Odetta's last concert performance was October 26th of this year, > according to Yeager. She also performed a concert October 6th, in > front of 100,000 people at San Francisco's Golden Gate Park. > About Pulmonary Fibrosis (PF) > PF is a lung disorder characterized by a progressive scarring - known > as fibrosis - and deterioration of the lungs, which slowly robs its > victims of their ability to breathe. Approximately 128,000 Americans > suffer from IPF, and there is currently no known cause or cure. An > estimated 48,000 new cases are diagnosed each year. IPF is difficult > to diagnose and an estimated two-thirds of patients die within five > years of diagnosis. Sometimes pulmonary fibrosis can be linked to a > particular cause, such as certain environmental exposures, > chemotherapy or radiation therapy, residual infection, or autoimmune > diseases such as scleroderma or rheumatoid arthritis. However, in many > instances, no known cause can be established. When this is the case, > it is called idiopathic pulmonary fibrosis (IPF). > About the CPF > The CPF is a 501©(3) nonprofit organization, founded in 2001 to > accelerate research efforts leading to a cure for pulmonary fibrosis > (PF), while educating, supporting, and advocating for the community of > patients, families, and medical professionals fighting this disease. > The CPF funds promising research into new approaches to treat and cure > pulmonary fibrosis; provides patients and families with comprehensive > education materials, resources, and hope; serves as a voice for > national advocacy of PF issues; and works to improve awareness of PF > in the medical community as well as the general public. The CPF's > nonprofit partners include many of the most respected medical centers > and healthcare organizations in the U.S. With more than 16,000 members > nationwide, the CPF is the largest nonprofit organization in the U.S. > dedicated to advocating for those with pulmonary fibrosis. For more > information please visit www.coalitionforpf.org or call (888) 222-8541. > SOURCE Coalition for Pulmonary Fibrosis > > http://www.coalitionforpf.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Yes , absolutely . And its good that they put a website on there too so people can learn more and maybe donate some money . Too bad she didn't make it public , or not that I know of , while she still had time to talk about it . W. , East Texas , Silicosis 4/08 > > Now THIS is a new release we all like to see. Of course not about Odetta's death but the info given about PF! > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > Odetta > > > > PRESS RELEASE > Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk > Singer Odetta's Death > > Last update: 9:30 a.m. EST Dec. 4, 2008 > SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ -- > Music and civil rights icon Odetta succumbed December 2 as a result of > multiple illnesses. One of them was pulmonary fibrosis (PF), an > illness that relentlessly fills the lungs with scar tissue and > suffocates its victims, and is one of the deadliest yet least well > known diseases in the country. Despite being diagnosed with PF two > years ago, a diagnosis that was essentially a death sentence, Odetta > went on to perform extraordinary concerts all over the world. Her > doctors were amazed at her determination to sing while battling the > disease. Despite her markedly reduced lung capacity, she managed to > complete entire concerts and only access her supplemental oxygen as > she left the stage. > Pulmonary Fibrosis (PF) is a tissue debilitating lung disease that > causes progressive scarring of the lungs, ultimately robbing a person > of the ability to breathe. As many people die each year to PF as to > breast cancer, yet most have never heard of it until they receive the > devastating diagnosis. More than 128,000 suffer from the disease and > incidence and prevalence has increased more than 150 percent in the > last several years. > " We are deeply saddened at the loss of such a beloved singer and civil > rights legend, " said Mishka Michon, chief executive officer for the > Coalition for Pulmonary Fibrosis (CPF). " We lose 40,000 people a year > to this disease (as many as are lost to breast cancer), and each loss > is painful. Odetta's death highlights for the nation, and for her > fans, what those of us fighting pulmonary fibrosis already know - that > there is a killer disease randomly striking thousands and we have no > treatments. Marlon Brando, Gordon Jump and Goulet's lives were > among those cut down by pulmonary fibrosis - we don't want to see > these losses continue at their current pace. We can only hope that, > with increased awareness and funding for research, the future will > change for others. " > Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PF > two years ago but refused to let the grim prognosis get her down. Most > patients live less than three years and few are able to continue a > normal life because of the extremely life limiting breathlessness and > related exhaustion. > Odetta used supplemental oxygen for the two years she suffered, but > somehow had the strength to perform more than 60 concerts after her > diagnosis around the world - all of her performances except for one > were completed without her having to use an oxygen tank, Yeager said. > " She wouldn't use her oxygen during her concerts. Somehow, she'd go > out and sing for 90 minutes without it, " Yeager said. The only concert > she performed with supplemental oxygen was one in Denver, Colorado, a > city that sits at 5,280 feet of elevation, he said. > There is no FDA approved treatment for PF, no known cause and no cure. > Odetta is one of 40,000 people who will die this year from the > disease. The CPF has counseled thousands of patients and family > members who've faced pulmonary fibrosis. To learn more, please visit: > www.coalitionforpf.org. > Odetta's last concert performance was October 26th of this year, > according to Yeager. She also performed a concert October 6th, in > front of 100,000 people at San Francisco's Golden Gate Park. > About Pulmonary Fibrosis (PF) > PF is a lung disorder characterized by a progressive scarring - known > as fibrosis - and deterioration of the lungs, which slowly robs its > victims of their ability to breathe. Approximately 128,000 Americans > suffer from IPF, and there is currently no known cause or cure. An > estimated 48,000 new cases are diagnosed each year. IPF is difficult > to diagnose and an estimated two-thirds of patients die within five > years of diagnosis. Sometimes pulmonary fibrosis can be linked to a > particular cause, such as certain environmental exposures, > chemotherapy or radiation therapy, residual infection, or autoimmune > diseases such as scleroderma or rheumatoid arthritis. However, in many > instances, no known cause can be established. When this is the case, > it is called idiopathic pulmonary fibrosis (IPF). > About the CPF > The CPF is a 501©(3) nonprofit organization, founded in 2001 to > accelerate research efforts leading to a cure for pulmonary fibrosis > (PF), while educating, supporting, and advocating for the community of > patients, families, and medical professionals fighting this disease. > The CPF funds promising research into new approaches to treat and cure > pulmonary fibrosis; provides patients and families with comprehensive > education materials, resources, and hope; serves as a voice for > national advocacy of PF issues; and works to improve awareness of PF > in the medical community as well as the general public. The CPF's > nonprofit partners include many of the most respected medical centers > and healthcare organizations in the U.S. With more than 16,000 members > nationwide, the CPF is the largest nonprofit organization in the U.S. > dedicated to advocating for those with pulmonary fibrosis. For more > information please visit www.coalitionforpf.org or call (888) 222-8541. > SOURCE Coalition for Pulmonary Fibrosis > > http://www.coalitionforpf.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 What a great article!!!I likes Odetta's music and am saddened by her death. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower toadwizard wrote: PRESS RELEASE Pulmonary Fibrosis Contributes to Beloved Civil Rights Writer and Folk Singer Odetta's Death Last update: 9:30 a.m. EST Dec. 4, 2008 SAN JOSE, Calif., Dec 04, 2008 /PRNewswire-USNewswire via COMTEX/ -- Music and civil rights icon Odetta succumbed December 2 as a result of multiple illnesses. One of them was pulmonary fibrosis (PF), an illness that relentlessly fills the lungs with scar tissue and suffocates its victims, and is one of the deadliest yet least well known diseases in the country. Despite being diagnosed with PF two years ago, a diagnosis that was essentially a death sentence, Odetta went on to perform extraordinary concerts all over the world. Her doctors were amazed at her determination to sing while battling the disease. Despite her markedly reduced lung capacity, she managed to complete entire concerts and only access her supplemental oxygen as she left the stage. Pulmonary Fibrosis (PF) is a tissue debilitating lung disease that causes progressive scarring of the lungs, ultimately robbing a person of the ability to breathe. As many people die each year to PF as to breast cancer, yet most have never heard of it until they receive the devastating diagnosis. More than 128,000 suffer from the disease and incidence and prevalence has increased more than 150 percent in the last several years. "We are deeply saddened at the loss of such a beloved singer and civil rights legend," said Mishka Michon, chief executive officer for the Coalition for Pulmonary Fibrosis (CPF). "We lose 40,000 people a year to this disease (as many as are lost to breast cancer), and each loss is painful. Odetta's death highlights for the nation, and for her fans, what those of us fighting pulmonary fibrosis already know - that there is a killer disease randomly striking thousands and we have no treatments. Marlon Brando, Gordon Jump and Goulet's lives were among those cut down by pulmonary fibrosis - we don't want to see these losses continue at their current pace. We can only hope that, with increased awareness and funding for research, the future will change for others." Odetta's manager, Doug Yeager, told the CPF she was diagnosed with PF two years ago but refused to let the grim prognosis get her down. Most patients live less than three years and few are able to continue a normal life because of the extremely life limiting breathlessness and related exhaustion. Odetta used supplemental oxygen for the two years she suffered, but somehow had the strength to perform more than 60 concerts after her diagnosis around the world - all of her performances except for one were completed without her having to use an oxygen tank, Yeager said. "She wouldn't use her oxygen during her concerts. Somehow, she'd go out and sing for 90 minutes without it," Yeager said. The only concert she performed with supplemental oxygen was one in Denver, Colorado, a city that sits at 5,280 feet of elevation, he said. There is no FDA approved treatment for PF, no known cause and no cure. Odetta is one of 40,000 people who will die this year from the disease. The CPF has counseled thousands of patients and family members who've faced pulmonary fibrosis. To learn more, please visit: www.coalitionforpf.org. Odetta's last concert performance was October 26th of this year, according to Yeager. She also performed a concert October 6th, in front of 100,000 people at San Francisco's Golden Gate Park. About Pulmonary Fibrosis (PF) PF is a lung disorder characterized by a progressive scarring - known as fibrosis - and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, and there is currently no known cause or cure. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose and an estimated two-thirds of patients die within five years of diagnosis. Sometimes pulmonary fibrosis can be linked to a particular cause, such as certain environmental exposures, chemotherapy or radiation therapy, residual infection, or autoimmune diseases such as scleroderma or rheumatoid arthritis. However, in many instances, no known cause can be established. When this is the case, it is called idiopathic pulmonary fibrosis (IPF). About the CPF The CPF is a 501©(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of PF issues; and works to improve awareness of PF in the medical community as well as the general public. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 16,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with pulmonary fibrosis. For more information please visit www.coalitionforpf.org or call (888) 222-8541. SOURCE Coalition for Pulmonary Fibrosis http://www.coalitionforpf.org No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1837 - Release Date: 12/8/2008 9:38 AM Quote Link to comment Share on other sites More sharing options...
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