Re: Donna and Ampyra.....Re: Re: klonopin or baclofen

[Guest guest]

Sharon,

I am thrilled with the Ampyra, even though I do seem to get the

headache and the back pain and I thought I saw the nausea

once... but that could have been residual from the tooth removal

and the creeping crud type hoof-n-mouth disease that we've all

been afflicted with the past week or so.. kind of hoping that

the headache might be part of that as well.

On Sunday, once I decided that it was time to actually get my

bath & get ready to go to Mall Mart... I road my trusty

wheels to the area outside the bathroom. I parked the chair and

wall-walked, without leaning, into the bathroom. Somewhere

between 6 & 8 feet. From there, I got down on the floor and

actually scrubbed out my bathtub with Soft Scrub rather than

scrubbing bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the tub..

all without the use of the tub transfer gizmo that I have!!..

After I finished my bath, I considered stepping out of the tub

the same way I stepped into the tub... but then common sense

took over and I decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet and vinyl flooring

might not be the best combination, especially after being "off

my feed" for as long as I have been. I used the transfer to sit

down and dry my legs and feet (and the rest of me too).. then I

stood up outside the tub and wall walked back to my trusty road

runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning. I

needed to get with them about getting the pre-auths on two

medications for my secondary insurance. We talked about my

success so far maybe being the placebo effect. She told me that

she didn't believe that it was.. not with me noticing more and

more improvement.. Oh.. and the journal Doctor wants me

to keep, is because these guys are still "studying" some of the

other benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more and more

things as the study progresses.. I mentioned that I don't seem

to be having bladder spasms anymore.. though hesitancy is still

a factor, and sometimes I think I'm done, and then find out that

I'm not.. and I play musical toilets! But I'm not having to

rush to get there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find some type

of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great that you already see a

difference with the Ampyra!! Let us know each day what

improvements you are experiencing. How exciting!!

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Sharon,

I am thrilled with the Ampyra, even though I do seem to get the

headache and the back pain and I thought I saw the nausea

once... but that could have been residual from the tooth removal

and the creeping crud type hoof-n-mouth disease that we've all

been afflicted with the past week or so.. kind of hoping that

the headache might be part of that as well.

On Sunday, once I decided that it was time to actually get my

bath & get ready to go to Mall Mart... I road my trusty

wheels to the area outside the bathroom. I parked the chair and

wall-walked, without leaning, into the bathroom. Somewhere

between 6 & 8 feet. From there, I got down on the floor and

actually scrubbed out my bathtub with Soft Scrub rather than

scrubbing bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the tub..

all without the use of the tub transfer gizmo that I have!!..

After I finished my bath, I considered stepping out of the tub

the same way I stepped into the tub... but then common sense

took over and I decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet and vinyl flooring

might not be the best combination, especially after being "off

my feed" for as long as I have been. I used the transfer to sit

down and dry my legs and feet (and the rest of me too).. then I

stood up outside the tub and wall walked back to my trusty road

runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning. I

needed to get with them about getting the pre-auths on two

medications for my secondary insurance. We talked about my

success so far maybe being the placebo effect. She told me that

she didn't believe that it was.. not with me noticing more and

more improvement.. Oh.. and the journal Doctor wants me

to keep, is because these guys are still "studying" some of the

other benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more and more

things as the study progresses.. I mentioned that I don't seem

to be having bladder spasms anymore.. though hesitancy is still

a factor, and sometimes I think I'm done, and then find out that

I'm not.. and I play musical toilets! But I'm not having to

rush to get there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find some type

of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great that you already see a

difference with the Ampyra!! Let us know each day what

improvements you are experiencing. How exciting!!

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Donna.... wonderful news on the Amprya for you. I'm so excited for you! Perhaps I will try it if I can get prescription drug insurance coverage next year. Right now I have no drug coverage and haven't for two years.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, May 10, 2011 7:14:10 AMSubject: Re: Donna and Ampyra.....Re: Re: klonopin or baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to get the

headache and the back pain and I thought I saw the nausea

once... but that could have been residual from the tooth removal

and the creeping crud type hoof-n-mouth disease that we've all

been afflicted with the past week or so.. kind of hoping that

the headache might be part of that as well.

On Sunday, once I decided that it was time to actually get my

bath & get ready to go to Mall Mart... I road my trusty

wheels to the area outside the bathroom. I parked the chair and

wall-walked, without leaning, into the bathroom. Somewhere

between 6 & 8 feet. From there, I got down on the floor and

actually scrubbed out my bathtub with Soft Scrub rather than

scrubbing bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the tub..

all without the use of the tub transfer gizmo that I have!!..

After I finished my bath, I considered stepping out of the tub

the same way I stepped into the tub... but then common sense

took over and I decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet and vinyl flooring

might not be the best combination, especially after being "off

my feed" for as long as I have been. I used the transfer to sit

down and dry my legs and feet (and the rest of me too).. then I

stood up outside the tub and wall walked back to my trusty road

runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning. I

needed to get with them about getting the pre-auths on two

medications for my secondary insurance. We talked about my

success so far maybe being the placebo effect. She told me that

she didn't believe that it was.. not with me noticing more and

more improvement.. Oh.. and the journal Doctor wants me

to keep, is because these guys are still "studying" some of the

other benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more and more

things as the study progresses.. I mentioned that I don't seem

to be having bladder spasms anymore.. though hesitancy is still

a factor, and sometimes I think I'm done, and then find out that

I'm not.. and I play musical toilets! But I'm not having to

rush to get there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find some type

of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great that you already see a

difference with the Ampyra!! Let us know each day what

improvements you are experiencing. How exciting!!

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Donna.... wonderful news on the Amprya for you. I'm so excited for you! Perhaps I will try it if I can get prescription drug insurance coverage next year. Right now I have no drug coverage and haven't for two years.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, May 10, 2011 7:14:10 AMSubject: Re: Donna and Ampyra.....Re: Re: klonopin or baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to get the

headache and the back pain and I thought I saw the nausea

once... but that could have been residual from the tooth removal

and the creeping crud type hoof-n-mouth disease that we've all

been afflicted with the past week or so.. kind of hoping that

the headache might be part of that as well.

On Sunday, once I decided that it was time to actually get my

bath & get ready to go to Mall Mart... I road my trusty

wheels to the area outside the bathroom. I parked the chair and

wall-walked, without leaning, into the bathroom. Somewhere

between 6 & 8 feet. From there, I got down on the floor and

actually scrubbed out my bathtub with Soft Scrub rather than

scrubbing bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the tub..

all without the use of the tub transfer gizmo that I have!!..

After I finished my bath, I considered stepping out of the tub

the same way I stepped into the tub... but then common sense

took over and I decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet and vinyl flooring

might not be the best combination, especially after being "off

my feed" for as long as I have been. I used the transfer to sit

down and dry my legs and feet (and the rest of me too).. then I

stood up outside the tub and wall walked back to my trusty road

runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning. I

needed to get with them about getting the pre-auths on two

medications for my secondary insurance. We talked about my

success so far maybe being the placebo effect. She told me that

she didn't believe that it was.. not with me noticing more and

more improvement.. Oh.. and the journal Doctor wants me

to keep, is because these guys are still "studying" some of the

other benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more and more

things as the study progresses.. I mentioned that I don't seem

to be having bladder spasms anymore.. though hesitancy is still

a factor, and sometimes I think I'm done, and then find out that

I'm not.. and I play musical toilets! But I'm not having to

rush to get there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find some type

of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great that you already see a

difference with the Ampyra!! Let us know each day what

improvements you are experiencing. How exciting!!

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Donna.... wonderful news on the Amprya for you. I'm so excited for you! Perhaps I will try it if I can get prescription drug insurance coverage next year. Right now I have no drug coverage and haven't for two years.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, May 10, 2011 7:14:10 AMSubject: Re: Donna and Ampyra.....Re: Re: klonopin or baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to get the

headache and the back pain and I thought I saw the nausea

once... but that could have been residual from the tooth removal

and the creeping crud type hoof-n-mouth disease that we've all

been afflicted with the past week or so.. kind of hoping that

the headache might be part of that as well.

On Sunday, once I decided that it was time to actually get my

bath & get ready to go to Mall Mart... I road my trusty

wheels to the area outside the bathroom. I parked the chair and

wall-walked, without leaning, into the bathroom. Somewhere

between 6 & 8 feet. From there, I got down on the floor and

actually scrubbed out my bathtub with Soft Scrub rather than

scrubbing bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the tub..

all without the use of the tub transfer gizmo that I have!!..

After I finished my bath, I considered stepping out of the tub

the same way I stepped into the tub... but then common sense

took over and I decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet and vinyl flooring

might not be the best combination, especially after being "off

my feed" for as long as I have been. I used the transfer to sit

down and dry my legs and feet (and the rest of me too).. then I

stood up outside the tub and wall walked back to my trusty road

runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning. I

needed to get with them about getting the pre-auths on two

medications for my secondary insurance. We talked about my

success so far maybe being the placebo effect. She told me that

she didn't believe that it was.. not with me noticing more and

more improvement.. Oh.. and the journal Doctor wants me

to keep, is because these guys are still "studying" some of the

other benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more and more

things as the study progresses.. I mentioned that I don't seem

to be having bladder spasms anymore.. though hesitancy is still

a factor, and sometimes I think I'm done, and then find out that

I'm not.. and I play musical toilets! But I'm not having to

rush to get there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find some type

of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great that you already see a

difference with the Ampyra!! Let us know each day what

improvements you are experiencing. How exciting!!

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

So Donna, how did you end up on Amprya? that is an oral one right? Dee

[Guest guest]

Sure hope you can obtain some

drug coverage next year..

Have you checked into the pharmaceutical company's assistance

programs? I know that the brochure that came before the Ampyra

states in there somewhere that the most the stuff will cost is

$40 out of pocket.. yup.. here it is:

AMPYRA Patient Support Services

If you are prescribed AMPYRA, AMPYRA Patient Support Services

will confirm your insurance and your eligibility for the co-pay

mitigation program. What this means is, if eligible, people with

private insurance may not pay more than $40 per month for their

AMPYRA prescription (where allowed by law).

What if I Don't Have Insurance?

There is a program that may also help people who don't have

insurance and whose income falls within a specific guidelines.

They will work with you on the application process to see if you

are eligible to receive AMPYRA at no cost. Contact AMPYRA

Patient Assistance Program to learn more.

Patient Support Services # 1- M-F 8am - 8pm ET.

Not totally sure that you would also have to be on one of the

modifying drugs or not.. Do know that my neurologist insisted

that I be sticking to my Copaxone before he'd prescribe the

Ampyra for me.. I do know that all the CRAB-T manufacturers have

assistance programs too.. just need to find the numbers for

them..

You could always call Patient Support for the Ampyra, and find

out what the guidelines are for the no-cost program... and I

would bet they have a wealth of information about different

insurance programs and who covers what and to what extent..

which might also help when you start searching for a drug

coverage insurance...

HUGS

|)onna

Donna.... wonderful news on the Amprya for

you. I'm so excited for you! Perhaps I will try it if I can

get prescription drug insurance coverage next

year. Right now I have no drug coverage and haven't for two

years.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue,

May 10, 2011 7:14:10 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin or

baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to

get the headache and the back pain and I thought I saw

the nausea once... but that could have been residual

from the tooth removal and the creeping crud type

hoof-n-mouth disease that we've all been afflicted with

the past week or so.. kind of hoping that the headache

might be part of that as well.

On Sunday, once I decided that it was time to actually

get my bath & get ready to go to Mall Mart... I road

my trusty wheels to the area outside the bathroom. I

parked the chair and wall-walked, without leaning, into

the bathroom. Somewhere between 6 & 8 feet. From

there, I got down on the floor and actually scrubbed out

my bathtub with Soft Scrub rather than scrubbing

bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the

tub.. all without the use of the tub transfer gizmo that

I have!!..

After I finished my bath, I considered stepping out of

the tub the same way I stepped into the tub... but then

common sense took over and I decided that using the tub

transfer to get out of the tub might be the wiser move.

Wet feet and vinyl flooring might not be the best

combination, especially after being "off my feed" for as

long as I have been. I used the transfer to sit down

and dry my legs and feet (and the rest of me too).. then

I stood up outside the tub and wall walked back to my

trusty road runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning.

I needed to get with them about getting the pre-auths on

two medications for my secondary insurance. We talked

about my success so far maybe being the placebo effect.

She told me that she didn't believe that it was.. not

with me noticing more and more improvement.. Oh.. and

the journal Doctor wants me to keep, is because

these guys are still "studying" some of the other

benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more

and more things as the study progresses.. I mentioned

that I don't seem to be having bladder spasms anymore..

though hesitancy is still a factor, and sometimes I

think I'm done, and then find out that I'm not.. and I

play musical toilets! But I'm not having to rush to get

there anymore.. and can even ignore it somewhat while

I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find

some type of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great

that you already see a difference with the Ampyra!! Let

us know each day what improvements you are

experiencing. How exciting!!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Sure hope you can obtain some

drug coverage next year..

Have you checked into the pharmaceutical company's assistance

programs? I know that the brochure that came before the Ampyra

states in there somewhere that the most the stuff will cost is

$40 out of pocket.. yup.. here it is:

AMPYRA Patient Support Services

If you are prescribed AMPYRA, AMPYRA Patient Support Services

will confirm your insurance and your eligibility for the co-pay

mitigation program. What this means is, if eligible, people with

private insurance may not pay more than $40 per month for their

AMPYRA prescription (where allowed by law).

What if I Don't Have Insurance?

There is a program that may also help people who don't have

insurance and whose income falls within a specific guidelines.

They will work with you on the application process to see if you

are eligible to receive AMPYRA at no cost. Contact AMPYRA

Patient Assistance Program to learn more.

Patient Support Services # 1- M-F 8am - 8pm ET.

Not totally sure that you would also have to be on one of the

modifying drugs or not.. Do know that my neurologist insisted

that I be sticking to my Copaxone before he'd prescribe the

Ampyra for me.. I do know that all the CRAB-T manufacturers have

assistance programs too.. just need to find the numbers for

them..

You could always call Patient Support for the Ampyra, and find

out what the guidelines are for the no-cost program... and I

would bet they have a wealth of information about different

insurance programs and who covers what and to what extent..

which might also help when you start searching for a drug

coverage insurance...

HUGS

|)onna

Donna.... wonderful news on the Amprya for

you. I'm so excited for you! Perhaps I will try it if I can

get prescription drug insurance coverage next

year. Right now I have no drug coverage and haven't for two

years.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue,

May 10, 2011 7:14:10 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin or

baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to

get the headache and the back pain and I thought I saw

the nausea once... but that could have been residual

from the tooth removal and the creeping crud type

hoof-n-mouth disease that we've all been afflicted with

the past week or so.. kind of hoping that the headache

might be part of that as well.

On Sunday, once I decided that it was time to actually

get my bath & get ready to go to Mall Mart... I road

my trusty wheels to the area outside the bathroom. I

parked the chair and wall-walked, without leaning, into

the bathroom. Somewhere between 6 & 8 feet. From

there, I got down on the floor and actually scrubbed out

my bathtub with Soft Scrub rather than scrubbing

bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the

tub.. all without the use of the tub transfer gizmo that

I have!!..

After I finished my bath, I considered stepping out of

the tub the same way I stepped into the tub... but then

common sense took over and I decided that using the tub

transfer to get out of the tub might be the wiser move.

Wet feet and vinyl flooring might not be the best

combination, especially after being "off my feed" for as

long as I have been. I used the transfer to sit down

and dry my legs and feet (and the rest of me too).. then

I stood up outside the tub and wall walked back to my

trusty road runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning.

I needed to get with them about getting the pre-auths on

two medications for my secondary insurance. We talked

about my success so far maybe being the placebo effect.

She told me that she didn't believe that it was.. not

with me noticing more and more improvement.. Oh.. and

the journal Doctor wants me to keep, is because

these guys are still "studying" some of the other

benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more

and more things as the study progresses.. I mentioned

that I don't seem to be having bladder spasms anymore..

though hesitancy is still a factor, and sometimes I

think I'm done, and then find out that I'm not.. and I

play musical toilets! But I'm not having to rush to get

there anymore.. and can even ignore it somewhat while

I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find

some type of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great

that you already see a difference with the Ampyra!! Let

us know each day what improvements you are

experiencing. How exciting!!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Sure hope you can obtain some

drug coverage next year..

Have you checked into the pharmaceutical company's assistance

programs? I know that the brochure that came before the Ampyra

states in there somewhere that the most the stuff will cost is

$40 out of pocket.. yup.. here it is:

AMPYRA Patient Support Services

If you are prescribed AMPYRA, AMPYRA Patient Support Services

will confirm your insurance and your eligibility for the co-pay

mitigation program. What this means is, if eligible, people with

private insurance may not pay more than $40 per month for their

AMPYRA prescription (where allowed by law).

What if I Don't Have Insurance?

There is a program that may also help people who don't have

insurance and whose income falls within a specific guidelines.

They will work with you on the application process to see if you

are eligible to receive AMPYRA at no cost. Contact AMPYRA

Patient Assistance Program to learn more.

Patient Support Services # 1- M-F 8am - 8pm ET.

Not totally sure that you would also have to be on one of the

modifying drugs or not.. Do know that my neurologist insisted

that I be sticking to my Copaxone before he'd prescribe the

Ampyra for me.. I do know that all the CRAB-T manufacturers have

assistance programs too.. just need to find the numbers for

them..

You could always call Patient Support for the Ampyra, and find

out what the guidelines are for the no-cost program... and I

would bet they have a wealth of information about different

insurance programs and who covers what and to what extent..

which might also help when you start searching for a drug

coverage insurance...

HUGS

|)onna

Donna.... wonderful news on the Amprya for

you. I'm so excited for you! Perhaps I will try it if I can

get prescription drug insurance coverage next

year. Right now I have no drug coverage and haven't for two

years.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue,

May 10, 2011 7:14:10 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin or

baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to

get the headache and the back pain and I thought I saw

the nausea once... but that could have been residual

from the tooth removal and the creeping crud type

hoof-n-mouth disease that we've all been afflicted with

the past week or so.. kind of hoping that the headache

might be part of that as well.

On Sunday, once I decided that it was time to actually

get my bath & get ready to go to Mall Mart... I road

my trusty wheels to the area outside the bathroom. I

parked the chair and wall-walked, without leaning, into

the bathroom. Somewhere between 6 & 8 feet. From

there, I got down on the floor and actually scrubbed out

my bathtub with Soft Scrub rather than scrubbing

bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the

tub.. all without the use of the tub transfer gizmo that

I have!!..

After I finished my bath, I considered stepping out of

the tub the same way I stepped into the tub... but then

common sense took over and I decided that using the tub

transfer to get out of the tub might be the wiser move.

Wet feet and vinyl flooring might not be the best

combination, especially after being "off my feed" for as

long as I have been. I used the transfer to sit down

and dry my legs and feet (and the rest of me too).. then

I stood up outside the tub and wall walked back to my

trusty road runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning.

I needed to get with them about getting the pre-auths on

two medications for my secondary insurance. We talked

about my success so far maybe being the placebo effect.

She told me that she didn't believe that it was.. not

with me noticing more and more improvement.. Oh.. and

the journal Doctor wants me to keep, is because

these guys are still "studying" some of the other

benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more

and more things as the study progresses.. I mentioned

that I don't seem to be having bladder spasms anymore..

though hesitancy is still a factor, and sometimes I

think I'm done, and then find out that I'm not.. and I

play musical toilets! But I'm not having to rush to get

there anymore.. and can even ignore it somewhat while

I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find

some type of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great

that you already see a difference with the Ampyra!! Let

us know each day what improvements you are

experiencing. How exciting!!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

Yup, it is oral.. must be spaced

12 hours apart (10mg x 2).. any higher dose or closer than 12

hours, raises the likelihood of a seizure.

How did I get on the stuff.. Reading and researching on

'breakthroughs'.. oh.. way back in the day they were talking

Antegren (which is now Tysabri) as an oral disease modifying

drug.. the powers that be were also talking about Fampridine and

the benefits of that drug. At that time one needed a

"compounding" pharmacy to make up the drug for you.. and it

hadn't been into "testing" phases then either. Off and on, I'd

read about the progress of the studies for fampridine, and I'm

pretty sure I remember reading that they were getting ready to

conduct human trials... and then, of course, I was still dealing

with the "meuron" so there was no likelihood that I'd even get

in on those trials staying with him... So I let the thoughts of

it go... Then my dad ran into some guy who was chair-bound at a

Bingo game one night, who mentioned to him.. the Fampridine and

that he was waiting for it to be on the market.. which sparked

my interest once again... But still I was with the 'meuron'.. It

wasn't until I started with my current neurologist that I

started thinking about it again.. Then after the exacerbation in

May 2009, and the screwing up of the knees leading to being

unemployed and not walking so much anymore.. that I asked about

the Ampyra (Dalfampridine - new manufactured renamed brand) and

of course we went through the.. "You want me to prescribe a drug

that costs in excess of 13k per year and you aren't even taking

your Copaxone like you're supposed to?".. sooooo.. I went home

without a script for it then.. but made absolutely sure that by

the time my appointment arrived in April of this year (was

scheduled for January, but doc was sick and had to reschedule) I

was back to doing Copaxone, regularly (can't say that I

remembered every single day, because not having a standard

schedule.. trying to remember to do the injection wasn't always

easy.. got it down now.. Ampyra, needle stick in the morning!..)

so that he couldn't tell me "No" this time..

I do remember reading though, all those years ago when it was

first brought to light.. that Fampridine was actually a poison

used to deplete flocks of pigeons in cities!... and I wondered

then just what made somebody wake up one morning and say..

"Hey.. I wonder??"..

But I think we'd all pretty much be hard pressed to say "NO, I'm

NOT going to do it!" if someone somewhere, proved that eating a

cup of poop everyday would cure us of MS.. I'd pretty much bet

that we'd all be lining up to grab a spoon! <grin>

HUGS

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Yup, it is oral.. must be spaced

12 hours apart (10mg x 2).. any higher dose or closer than 12

hours, raises the likelihood of a seizure.

How did I get on the stuff.. Reading and researching on

'breakthroughs'.. oh.. way back in the day they were talking

Antegren (which is now Tysabri) as an oral disease modifying

drug.. the powers that be were also talking about Fampridine and

the benefits of that drug. At that time one needed a

"compounding" pharmacy to make up the drug for you.. and it

hadn't been into "testing" phases then either. Off and on, I'd

read about the progress of the studies for fampridine, and I'm

pretty sure I remember reading that they were getting ready to

conduct human trials... and then, of course, I was still dealing

with the "meuron" so there was no likelihood that I'd even get

in on those trials staying with him... So I let the thoughts of

it go... Then my dad ran into some guy who was chair-bound at a

Bingo game one night, who mentioned to him.. the Fampridine and

that he was waiting for it to be on the market.. which sparked

my interest once again... But still I was with the 'meuron'.. It

wasn't until I started with my current neurologist that I

started thinking about it again.. Then after the exacerbation in

May 2009, and the screwing up of the knees leading to being

unemployed and not walking so much anymore.. that I asked about

the Ampyra (Dalfampridine - new manufactured renamed brand) and

of course we went through the.. "You want me to prescribe a drug

that costs in excess of 13k per year and you aren't even taking

your Copaxone like you're supposed to?".. sooooo.. I went home

without a script for it then.. but made absolutely sure that by

the time my appointment arrived in April of this year (was

scheduled for January, but doc was sick and had to reschedule) I

was back to doing Copaxone, regularly (can't say that I

remembered every single day, because not having a standard

schedule.. trying to remember to do the injection wasn't always

easy.. got it down now.. Ampyra, needle stick in the morning!..)

so that he couldn't tell me "No" this time..

I do remember reading though, all those years ago when it was

first brought to light.. that Fampridine was actually a poison

used to deplete flocks of pigeons in cities!... and I wondered

then just what made somebody wake up one morning and say..

"Hey.. I wonder??"..

But I think we'd all pretty much be hard pressed to say "NO, I'm

NOT going to do it!" if someone somewhere, proved that eating a

cup of poop everyday would cure us of MS.. I'd pretty much bet

that we'd all be lining up to grab a spoon! <grin>

HUGS

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Yup, it is oral.. must be spaced

12 hours apart (10mg x 2).. any higher dose or closer than 12

hours, raises the likelihood of a seizure.

How did I get on the stuff.. Reading and researching on

'breakthroughs'.. oh.. way back in the day they were talking

Antegren (which is now Tysabri) as an oral disease modifying

drug.. the powers that be were also talking about Fampridine and

the benefits of that drug. At that time one needed a

"compounding" pharmacy to make up the drug for you.. and it

hadn't been into "testing" phases then either. Off and on, I'd

read about the progress of the studies for fampridine, and I'm

pretty sure I remember reading that they were getting ready to

conduct human trials... and then, of course, I was still dealing

with the "meuron" so there was no likelihood that I'd even get

in on those trials staying with him... So I let the thoughts of

it go... Then my dad ran into some guy who was chair-bound at a

Bingo game one night, who mentioned to him.. the Fampridine and

that he was waiting for it to be on the market.. which sparked

my interest once again... But still I was with the 'meuron'.. It

wasn't until I started with my current neurologist that I

started thinking about it again.. Then after the exacerbation in

May 2009, and the screwing up of the knees leading to being

unemployed and not walking so much anymore.. that I asked about

the Ampyra (Dalfampridine - new manufactured renamed brand) and

of course we went through the.. "You want me to prescribe a drug

that costs in excess of 13k per year and you aren't even taking

your Copaxone like you're supposed to?".. sooooo.. I went home

without a script for it then.. but made absolutely sure that by

the time my appointment arrived in April of this year (was

scheduled for January, but doc was sick and had to reschedule) I

was back to doing Copaxone, regularly (can't say that I

remembered every single day, because not having a standard

schedule.. trying to remember to do the injection wasn't always

easy.. got it down now.. Ampyra, needle stick in the morning!..)

so that he couldn't tell me "No" this time..

I do remember reading though, all those years ago when it was

first brought to light.. that Fampridine was actually a poison

used to deplete flocks of pigeons in cities!... and I wondered

then just what made somebody wake up one morning and say..

"Hey.. I wonder??"..

But I think we'd all pretty much be hard pressed to say "NO, I'm

NOT going to do it!" if someone somewhere, proved that eating a

cup of poop everyday would cure us of MS.. I'd pretty much bet

that we'd all be lining up to grab a spoon! <grin>

HUGS

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Oh... a spoon.. and several

glasses of something very strong!!! to drink!!

LOL

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Oh... a spoon.. and several

glasses of something very strong!!! to drink!!

LOL

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Oh... a spoon.. and several

glasses of something very strong!!! to drink!!

LOL

|)onna

So Donna, how did you end up on Amprya? that is an oral one

right?

Dee

[Guest guest]

Donna, I have to just say...I am very impressed you know how to spell "meuron" because it even took me a bit to realize what you were saying lol. I honestly didn't know how it was spell~DeeI think I'd pass on the poop though~

[Guest guest]

Thanks for all the info Donna! I do appreciate it.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, May 10, 2011 10:48:59 AMSubject: Re: Donna and Ampyra.....Re: Re: klonopin or baclofen

Sure hope you can obtain some

drug coverage next year..

Have you checked into the pharmaceutical company's assistance

programs? I know that the brochure that came before the Ampyra

states in there somewhere that the most the stuff will cost is

$40 out of pocket.. yup.. here it is:

AMPYRA Patient Support Services

If you are prescribed AMPYRA, AMPYRA Patient Support Services

will confirm your insurance and your eligibility for the co-pay

mitigation program. What this means is, if eligible, people with

private insurance may not pay more than $40 per month for their

AMPYRA prescription (where allowed by law).

What if I Don't Have Insurance?

There is a program that may also help people who don't have

insurance and whose income falls within a specific guidelines.

They will work with you on the application process to see if you

are eligible to receive AMPYRA at no cost. Contact AMPYRA

Patient Assistance Program to learn more.

Patient Support Services # 1- M-F 8am - 8pm ET.

Not totally sure that you would also have to be on one of the

modifying drugs or not.. Do know that my neurologist insisted

that I be sticking to my Copaxone before he'd prescribe the

Ampyra for me.. I do know that all the CRAB-T manufacturers have

assistance programs too.. just need to find the numbers for

them..

You could always call Patient Support for the Ampyra, and find

out what the guidelines are for the no-cost program... and I

would bet they have a wealth of information about different

insurance programs and who covers what and to what extent..

which might also help when you start searching for a drug

coverage insurance...

HUGS

|)onna

Donna.... wonderful news on the Amprya for

you. I'm so excited for you! Perhaps I will try it if I can

get prescription drug insurance coverage next

year. Right now I have no drug coverage and haven't for two

years.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue,

May 10, 2011 7:14:10 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin or

baclofen

Sharon,

I am thrilled with the Ampyra, even though I do seem to

get the headache and the back pain and I thought I saw

the nausea once... but that could have been residual

from the tooth removal and the creeping crud type

hoof-n-mouth disease that we've all been afflicted with

the past week or so.. kind of hoping that the headache

might be part of that as well.

On Sunday, once I decided that it was time to actually

get my bath & get ready to go to Mall Mart... I road

my trusty wheels to the area outside the bathroom. I

parked the chair and wall-walked, without leaning, into

the bathroom. Somewhere between 6 & 8 feet. From

there, I got down on the floor and actually scrubbed out

my bathtub with Soft Scrub rather than scrubbing

bubbles.. THEN.. I stood up and actually stepped over

the tub side and into the tub, lowering myself into the

tub.. all without the use of the tub transfer gizmo that

I have!!..

After I finished my bath, I considered stepping out of

the tub the same way I stepped into the tub... but then

common sense took over and I decided that using the tub

transfer to get out of the tub might be the wiser move.

Wet feet and vinyl flooring might not be the best

combination, especially after being "off my feed" for as

long as I have been. I used the transfer to sit down

and dry my legs and feet (and the rest of me too).. then

I stood up outside the tub and wall walked back to my

trusty road runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this morning.

I needed to get with them about getting the pre-auths on

two medications for my secondary insurance. We talked

about my success so far maybe being the placebo effect.

She told me that she didn't believe that it was.. not

with me noticing more and more improvement.. Oh.. and

the journal Doctor wants me to keep, is because

these guys are still "studying" some of the other

benefits of Ampyra... because right now it's only been

approved for "walking".. but could be approved for more

and more things as the study progresses.. I mentioned

that I don't seem to be having bladder spasms anymore..

though hesitancy is still a factor, and sometimes I

think I'm done, and then find out that I'm not.. and I

play musical toilets! But I'm not having to rush to get

there anymore.. and can even ignore it somewhat while

I'm sleeping now too depending on how much and what I've

had to drink during the evening...

I am totally excited!!! Now all I've got to do is find

some type of journal to keep track of this stuff!

HUGS

|)onna

Donna! That's great

that you already see a difference with the Ampyra!! Let

us know each day what improvements you are

experiencing. How exciting!!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

.._,___

[Guest guest]

You're welcome Sharon..

I just hope it helps

HUGS

|)onna

Thanks for all the info Donna! I do

appreciate it.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue,

May 10, 2011 10:48:59 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin or

baclofen

Sure hope you can obtain

some drug coverage next year..

Have you checked into the pharmaceutical company's

assistance programs? I know that the brochure that came

before the Ampyra states in there somewhere that the

most the stuff will cost is $40 out of pocket.. yup..

here it is:

AMPYRA Patient Support Services

If you are prescribed AMPYRA, AMPYRA Patient Support

Services will confirm your insurance and your

eligibility for the co-pay mitigation program. What this

means is, if eligible, people with private insurance may

not pay more than $40 per month for their AMPYRA

prescription (where allowed by law).

What if I Don't Have Insurance?

There is a program that may also help people who don't

have insurance and whose income falls within a specific

guidelines. They will work with you on the application

process to see if you are eligible to receive AMPYRA at

no cost. Contact AMPYRA Patient Assistance Program to

learn more.

Patient Support Services # 1- M-F 8am - 8pm

ET.

Not totally sure that you would also have to be on one

of the modifying drugs or not.. Do know that my

neurologist insisted that I be sticking to my Copaxone

before he'd prescribe the Ampyra for me.. I do know that

all the CRAB-T manufacturers have assistance programs

too.. just need to find the numbers for them..

You could always call Patient Support for the Ampyra,

and find out what the guidelines are for the no-cost

program... and I would bet they have a wealth of

information about different insurance programs and who

covers what and to what extent.. which might also help

when you start searching for a drug coverage

insurance...

HUGS

|)onna

Donna.... wonderful

news on the Amprya for you. I'm so excited for you!

Perhaps I will try it if I can get prescription drug

insurance coverage next year. Right now

I have no drug coverage and haven't for two years.

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Tue, May 10, 2011 7:14:10 AM

Subject:

Re: Donna and Ampyra.....Re: Re: klonopin

or baclofen

Sharon,

I am thrilled with the Ampyra, even though I do

seem to get the headache and the back pain and I

thought I saw the nausea once... but that could

have been residual from the tooth removal and

the creeping crud type hoof-n-mouth disease that

we've all been afflicted with the past week or

so.. kind of hoping that the headache might be

part of that as well.

On Sunday, once I decided that it was time to

actually get my bath & get ready to go to

Mall Mart... I road my trusty wheels to the area

outside the bathroom. I parked the chair and

wall-walked, without leaning, into the

bathroom. Somewhere between 6 & 8 feet.

From there, I got down on the floor and actually

scrubbed out my bathtub with Soft Scrub rather

than scrubbing bubbles.. THEN.. I stood up and

actually stepped over the tub side and into the

tub, lowering myself into the tub.. all without

the use of the tub transfer gizmo that I

have!!..

After I finished my bath, I considered stepping

out of the tub the same way I stepped into the

tub... but then common sense took over and I

decided that using the tub transfer to get out

of the tub might be the wiser move. Wet feet

and vinyl flooring might not be the best

combination, especially after being "off my

feed" for as long as I have been. I used the

transfer to sit down and dry my legs and feet

(and the rest of me too).. then I stood up

outside the tub and wall walked back to my

trusty road runner.. another 6 to 8 feet!!!

I spoke with , my neurology nurse, this

morning. I needed to get with them about

getting the pre-auths on two medications for my

secondary insurance. We talked about my success

so far maybe being the placebo effect. She told

me that she didn't believe that it was.. not

with me noticing more and more improvement..

Oh.. and the journal Doctor wants me to

keep, is because these guys are still "studying"

some of the other benefits of Ampyra... because

right now it's only been approved for

"walking".. but could be approved for more and

more things as the study progresses.. I

mentioned that I don't seem to be having bladder

spasms anymore.. though hesitancy is still a

factor, and sometimes I think I'm done, and then

find out that I'm not.. and I play musical

toilets! But I'm not having to rush to get

there anymore.. and can even ignore it somewhat

while I'm sleeping now too depending on how much

and what I've had to drink during the evening...

I am totally excited!!! Now all I've got to do

is find some type of journal to keep track of

this stuff!

HUGS

|)onna

Donna!

That's great that you already see a difference

with the Ampyra!! Let us know each day what

improvements you are experiencing. How

exciting!!

hugs

Sharon

This

email is a natural hand made product. The

slight variations in spelling and grammar

enhance its individual character and

beauty and in no way are to be considered

flaws or defects.

.._,___