Re: RE: Cheryl/INTRO

[Guest guest]

I am so far behind on my email but I wanted to thank you for the welcome! Gosh,

you were teeny tiny when you lost weight. My daughter has always been small.

She was 21 1/2 inches at birth and now at 5' she hasn't grown since 6th grade.

Thank you again!

zanna

Hi Zanna,

Welcome to the club.  I just joined as well.  Your daughter sounds a lot like

me.  (I didn't have any broken bones, but the first time I fell on my arm, it

was fractured.  I was a laid back kid.)  My cycles are also very irregular...

never know when it's going to come... if at all.  I was just diagnosed with CD

in Feb. of this year.  (I'm 30.)  But, because of all the symptoms I'd had since

before my high school years, it's suspected that I've had it all along.  It

wasn't until I was extremely sick that the drs started running lots of tests on

me.  I'm 5' 1 " and dropped down to 78 lb... amongst other things.  We have a

tall family.  My dad's family is all over 6'.  My sister is 5' 8 " .  I'm a

shorty.  Anyway, good luck with all the testing.  I hope they nip it in the bud

real soon.  Take care.<br><br><b><i><br> </i></b><blockquote class= " replbq "

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style= " font-size: 12pt; " >Hi!  My name is Zanna.  I live in So. Cal.  My

daughter, Kylie, age

16 is undergoing testing for celiacs. 

A little of her medical history:

She has had problems digesting food/dairy products all her life.  As

an infant they put her on isomil and said that she just may have a

problem digesting dairy.  As she grew-very slowly, I might add, there

were numerous trips the the ER for severe stomach pains.  Mostly they

just said it was gas/bloating and sent her home with pills.  She has

taken Gas-X since she was small.  Around the age of 6 she starting

breaking bones all over the place!  Finally at age 8 after 6 broken

bones in 2 years, I demanded a bone scan.  She had the bone density

of a 90 year old.  This is what the bone specialist told us. 

They couldn't figure out what was causing her osteoporosis.  They <br> finally

said it was from osteogenisis imperfected, of which she had <br> no outward

symptoms besides the the brittle bones.  She was put on <br> fosomax and by the

time she hit puberty her bone scan was in the low <br> normal.<br> <br> She has

always been very tiny.  I am 5'7 " , my husband is 5'10 and our <br> 7 year old

son is already 4'8 " .  Kylie hit the 5' mark four years ago <br> and hasn't grown

since.

She got to the point where she wanted to figure out what was making

her sick as bad as we did so she cut out shell fish, that wasn't it,

then dairy and for a few months was doing really good, then she

started on a new diet, or eating plan of whole grains, natural

foods.  She lost her baby fat and we thought was doing very well. 

She complained to me a few weeks ago that she could hardly last

through her ballet classes anymore-this never had been a problem

before.  She said her muscles all hurt, she was week, had tingling in

her hands, just all over not doing well.  And after her recent weight

loss, her periods are very irregular, this time, it has not come at

all.  No, she is not pregnant.  We talked about that too. 

I have been dx with three autoimmune diseases myself.  I know that if

AI diseases run in your family, your children have a higher chance of

getting them.

When we were researching we came accross the possible infertility and

she freaked out.  She was crying 'I want to have babies'.  We did

some more research and found that with the right diet, this will not

be a problem. 

She is scared and I know thats normal but she is very much a stickler

for rules and I know she can adhere to this diet.  We all just have

to try hard to do the same thing.

Any of this sound familiar to anyone?  I look forward to some

advice/answers!

Thank you so much,

Zanna

mom to Kylie age 16

http://groups.yahoo.com/group/Art_on_A_Budget/

My daily rantings!

www.zannasstory.blogspot.com

My picture trail:

www.picturetrail.com/xanadoodles