Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Hi , I'm sorry to hear that your dgg is having problems. My thoughts are from the point of view of a former biologist, now toxic house wife and mother.... > > > > Recap: 6.5 years, 51 lbs, we are on round 116, starting in February >2005. We did 30 rounds Dmsa/ala, then 5 rounds td-dmps, then 25 >rounds td-dmps/ala, 10 round of just Ala (saw her lose a little >ground here) then 45 rounds dmsa/ala. All low/frequent dosing, >according to the chelator. > What doses are you doing now? >snip< > She is taking Life Extension's multiple with 90 different things in >it, but she tolerates it well. Additionally she gets cod liver oil >and Idbenone, Beta Glucan and Neutrophil Plus. We recently added some >Calcium as her hair test showed she was yellow low and some >additional magnesium to balance the calcium.She takes 3/4 grain >Armour due to hypothyroidism. If the dosage is too low she will >appear Add, if the dosage is right there are no problems with her >attention. > I remember at one time she was taking some form of adrenal support? Is she still? > > Our problem which appears to have started on that round, 3 rounds >ago is appearing both off and on round, although it is highly >exacerbated while on round and then starts to fade off round. >It started as a tremor, her arms and has progressed to a whole >movement with her tensing her arms. It looks like what I have been >taught is a choreiform movement. I looked up choreiform movement and the medical online dictionary said it could be associated with basal ganglia activity. I'm not trying to scare you - we all know that the mercury has been in the brain and most of us mercury poisoned folks will get some sort of score on the amen clinic tests. I scored quite high on the basal ganglia part of the amen test. >It most always occurs while she is in a particular emotional state of >anticipating something she is looking forward to. With my adrenal problems I find that happy stress needs just as much cortisol as unhappy stress and that emotional stress needs about twice as much as physical stress (like a sickness). > She has also gotten quite hyper on round and this movement is most >pronounced when she is in church, some place she has to sit still. > By the way, I have been noticing a slight tremor lately, never had one before. I notice it in bed (because I'm not too busy then). > This movement does not seem to be involuntary as she can stop it but >this time I saw with the movement a squinting of her left >eye..concerning as it seems to be getting worse on round. There have >been no further word retrieval problems. My dd reported that while >shopping today she announced that >her head felt funny and then had what my dd called a " spasm " . Wth? > What was the spasm like? > Another additional incident occured on this round. Her mother had >moved the carbon monoxide detector and it beeped. My dgd got keyed >up emotionally and had a lot of fears the beeping meant her and her >mother should leave the house. I got a call from the dgd who was in >tears telling me that the CO detector beeping meant they were in >danger. I was able to calm her down but this is atypical for her; >both not to believe her mother, and to need additional assurance >from me. No " episode " occurred during this time. > I have been known to panic at times beyond what is reasonable. Once the reaction starts I can't get it to stop even if I know my anxiety/ fear/ panic isn't making any sense. In my case a big part is because of the poor adrenal function, and I can control panic to a certain extent with more cortisol. The other components of anxiety are being controlled for me now that I am taking very small doses of valproic acid and Klonipin (I noticed both of those meds mentioned in something I was reading at the Amen web page about basal ganglia activity). In my case I seem to have some sort of seizure activity, although it hasn't been diagnosed as such and my EEG was normal. Before I had those two meds, above, it was like I was having absence seizures and those 'absences' seem to be controlled much more with the meds. My 'absences' were much more frequent and more alarming during times of stress. Because of all of this I have noticed that I 'cling' to calm reasonable people and try to stay away from people who would feed my fears. When I went for surgery, for example, I took my brother with me to wait because I knew he would make me laugh the whole time (and I can't laugh and get emotional and scared at the same time). > So my questions are wth is going on? She hasn't lost a thing >cognitively, yet but I'm afraid if we keep at it that is where it >will go. I know kids/adults have a " stall " period where things can >get worse, and she had a normal stall, but we should be loooooong >past that, so what is causing this movement. >Are we doing more damage by continuing to chelate? Can you over >chelate? Is it possible she is just starting to absorb the Ala after >all this time? > As you know I'm not an expert and can't say for sure what is going on. My thoughts are that the ALA removes mercury from the brain, the places where the mercury was have to heal, and the problems are from mercury damaged cells/ tissues/ nerves that haven't healed yet. I expect brain healing to take some time and I expect a child's brain to heal much more rapidly that an adult's. In my opinion it is best to chelate the mercury out because once it is out it can't do any more harm. If I was having the sort of problems that you are mentioning what I would likely do (after hitting the panic button) is possibly lower the dose of ALA, chelate less frequently giving more time for healing, and ask Andy to help me to determine (wth is going on and) what more I could do to promote brain healing. I'm sure you've looked at these web pages: http://amenclinics.com/ac/ When I was looking at those pages some time ago there were explanations of which supplements helped which areas of the brain (as I recall). By the way, with the adrenal problems I have to make a special point to replace Na and even though I do that I get in trouble if I slack off and forget, especially in the summer with the heat. I make the SCD electrolyte drink (1 lemon, 1 L water, 1/4 tsp salt, 1/4 tsp baking soda, 1 T honey) and drink it all the time. Lately I have tripled the salt in it and added epsom salts. One symptom of low Na, that I found in one of my google searches, is 'seizures'. There were a couple of times that I forgot to replace Na during sweaty days and I had 'episodes'. The reason that adrenally insufficient people need to replace Na is because the adrenals produce aldosterone, aldosterone is responsible to tell the kidneys to retain Na and excrete K, so if aldosterone production is less than normal we lose Na and retain K (someone correct me if I got it mixed up). > I'm at a loss here as what to think and feel like I'm flying blind. >I have read here about lots of people who had trouble starting Ala, >but after 2+ years of chelation why would we be seeing problems now? > I believe it's because mercury removal is slow and brain healing takes time. Best J > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 > Sorry for the bad timing but amidst the success stories, we need some > help. I'm back and...Houston we have a problem. Three rounds ago I > reported a rough round where my dgd (6.5years) complained of headaches and > had some minor word retrieval problems along with some trembling while on > round. Hi , Sounds like an ALA problem to me. Perhaps she is clearing mercury deeper from the organs and the increase in blood concentration moved it into the brain? Kids grow fast. Perhaps a new stage in growth has initiated a release of metals. You could consider dropping the ALA for several rounds and then starting at a lower dose after only DMSA for a while. After a year or so of chelation I had a set-back suddenly with ALA out the blue. I had trembling, word retrieval/mixing-up symptoms and Parkinson's like symptoms. I dropped the ALA for a while and when I re-introduced it at a lower dose I was better. Also, at this point some adrenal issues come out. Chelation is STRESSFUL for the body. This could be a little adrenal and thyroid fluctuation. Either way I would drop the ALA for a bit. Good luck, Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Hi , Sorry to hear about this bump in the road for your granddaughter. I don't have much to offer, but after reading your post the first thought that came to me was to rule out seizures. I hope Andy chimes in for you. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Hi , Sorry to hear about this bump in the road for your granddaughter. I don't have much to offer, but after reading your post the first thought that came to me was to rule out seizures. I hope Andy chimes in for you. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Hi , Sorry to hear about this bump in the road for your granddaughter. I don't have much to offer, but after reading your post the first thought that came to me was to rule out seizures. I hope Andy chimes in for you. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > Sorry for the bad timing but admidst the success stories, we need some help. I'm back and...Houston we have a problem. Three rounds ago I reported a rough round where my dgd (6.5years) complained of headaches and had some minor word retrieval problems along with some trembling while on round. TK--- common problems for me on round > > Recap: 6.5 years, 51 lbs, we are on round 116, starting in February 2005. We did 30 rounds Dmsa/ala, then 5 rounds td-dmps, then 25 rounds td-dmps/ala, 10 round of just Ala (saw her lose a little ground here) then 45 rounds dmsa/ala. All low/frequent dosing, according to the chelator. TK--- dosage now ? > > Teacher reports she is quite popular among all the children and this fits with what we hear and observe. She has two friends she plays with mostly and they are well behaved and bright and are not ADD, although the one is a little sensitive, like her. We were thinking we would finish chelation this summer. > > Our problem which appears to have started on that round, 3 rounds ago is appearing both off and on round, although it is highly exacerbated while on round and then starts to fade off round. TK--- sounds like Hg movement It started as a tremor, her arms and has progressed to a whole movement with her tensing her arms. It looks like what I have been taught is a choreiform movement. It most always occurs while she is in a particular emotional state of anticipating something she is looking forward to. She has also gotten quite hyper on round and this movement is most pronounced when she is in church, some place she has to sit still. > > This movement does not seem to be involuntary as she can stop it but this time I saw with the movement a squinting of her left eye..concerning as it seems to be getting worse on round. There have been no further word retrieval problems. My dd reported that while shopping today she announced that her head felt funny and then had what my dd called a " spasm " . Wth? TK--- you would need to be more specific > > Another additional incident occured on this round. Her mother had moved the carbon monoxide detector and it beeped. My dgd got keyed up emotionally and had a lot of fears the beeping meant her and her mother should leave the house. I got a call from the dgd who was in tears telling me that the CO detector beeping meant they were in danger. I was able to calm her down but this is atypical for her; both not to believe her mother, and to need additional assurance from me. No " episode " occurred during this time. TK--- Hg and chelation can cause more emotional problems - especially during certain periods of chelation - during or after a round. > > So my questions are wth is going on? TK--- how much of what are you using and on what schedule ? She hasn't lost a thing cognitively, yet but I'm afraid if we keep at it that is where it will go. I know kids/adults have a " stall " period where things can get worse, and she had a normal stall, but we should be loooooong past that, so what is causing this movement. Are we doing more damage by continuing to chelate? Can you over chelate? TK--- you can go too fast and or use too much too fast or do it incorrectly Is it possible she is just starting to absorb the Ala after all this time? > > I'm at a loss here as what to think and feel like I'm flying blind. I have read here about lots of people who had trouble starting Ala, but after 2+ years of chelation why would we be seeing problems now? TK--- She many have been re-exposed to something lately or you are going too fast or need more of a break, or are moving more Hg right now and need to reduce dosage etc.. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: DeanNetwork You could consider dropping the ALA for several rounds and then starting at a lower dose after only DMSA for a while. After a year or so of chelation I had a set-back suddenly with ALA out the blue. I had trembling, word retrieval/mixing-up symptoms and Parkinson's like symptoms. I dropped the ALA for a while and when I re-introduced it at a lower dose I was better. Also, at this point some adrenal issues come out. Chelation is STRESSFUL for the body. This could be a little adrenal and thyroid fluctuation. Either way I would drop the ALA for a bit. ==>Thank you Dean, really, part of my fear was thinking we had some new phenomenon here but the sharing of your personal experience lets me know that it does happen and can be overcome. Thanks, Good luck, Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: DeanNetwork You could consider dropping the ALA for several rounds and then starting at a lower dose after only DMSA for a while. After a year or so of chelation I had a set-back suddenly with ALA out the blue. I had trembling, word retrieval/mixing-up symptoms and Parkinson's like symptoms. I dropped the ALA for a while and when I re-introduced it at a lower dose I was better. Also, at this point some adrenal issues come out. Chelation is STRESSFUL for the body. This could be a little adrenal and thyroid fluctuation. Either way I would drop the ALA for a bit. ==>Thank you Dean, really, part of my fear was thinking we had some new phenomenon here but the sharing of your personal experience lets me know that it does happen and can be overcome. Thanks, Good luck, Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: DeanNetwork You could consider dropping the ALA for several rounds and then starting at a lower dose after only DMSA for a while. After a year or so of chelation I had a set-back suddenly with ALA out the blue. I had trembling, word retrieval/mixing-up symptoms and Parkinson's like symptoms. I dropped the ALA for a while and when I re-introduced it at a lower dose I was better. Also, at this point some adrenal issues come out. Chelation is STRESSFUL for the body. This could be a little adrenal and thyroid fluctuation. Either way I would drop the ALA for a bit. ==>Thank you Dean, really, part of my fear was thinking we had some new phenomenon here but the sharing of your personal experience lets me know that it does happen and can be overcome. Thanks, Good luck, Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > Sorry for the bad timing but admidst the success stories, we need some help. I'm back and...Houston we have a problem. Three rounds ago I reported a rough round where my dgd (6.5years) complained of headaches and had some minor word retrieval problems along with some trembling while on round. I'm glad you posted this. Success stories are nice, but I (for one) also want to hear about the journey. What I'm wondering is whether something is going on with the physical development of her brain right now that is allowing mercury to come out from some place it hasn't before, or at a greater rate than it has in the past, or is in some other way changing the symptoms you are seeing with chelation. If you lower the dose (I would say by 50%) for a few rounds, and if the symptoms then quiet down and diminish, this would confirm it is a dose-related exacerbation of chelation symptoms and you simply need to continue at a reduced dose for awhile before slowly increasing again. I've deleted the rest of your text, but another possibility that comes to mind is if any of the supplements is a recent change, say in the last few months, then it may be worth considering if a supplement is contributing. Current exposure is also possible - mercury is in the environment. It is unsettling, to say the least, to see this distressing change all of a sudden when everything had been fine. But I am thinking it could turn out to be a blip - a big blip that has hit you, not to mention her, between the eyes - but maybe a short-lived blip. Reduce the dose and see what happens. You could pursue other testing to see what is going on, but any signs observable to testing might not be present all the time. And if dose reduction eliminates or reduces the symptoms, it is clearly related to chelation and controllable by dose. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > Sorry for the bad timing but admidst the success stories, we need some help. I'm back and...Houston we have a problem. Three rounds ago I reported a rough round where my dgd (6.5years) complained of headaches and had some minor word retrieval problems along with some trembling while on round. I'm glad you posted this. Success stories are nice, but I (for one) also want to hear about the journey. What I'm wondering is whether something is going on with the physical development of her brain right now that is allowing mercury to come out from some place it hasn't before, or at a greater rate than it has in the past, or is in some other way changing the symptoms you are seeing with chelation. If you lower the dose (I would say by 50%) for a few rounds, and if the symptoms then quiet down and diminish, this would confirm it is a dose-related exacerbation of chelation symptoms and you simply need to continue at a reduced dose for awhile before slowly increasing again. I've deleted the rest of your text, but another possibility that comes to mind is if any of the supplements is a recent change, say in the last few months, then it may be worth considering if a supplement is contributing. Current exposure is also possible - mercury is in the environment. It is unsettling, to say the least, to see this distressing change all of a sudden when everything had been fine. But I am thinking it could turn out to be a blip - a big blip that has hit you, not to mention her, between the eyes - but maybe a short-lived blip. Reduce the dose and see what happens. You could pursue other testing to see what is going on, but any signs observable to testing might not be present all the time. And if dose reduction eliminates or reduces the symptoms, it is clearly related to chelation and controllable by dose. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: I'm sorry to hear that your dgg is having problems. My thoughts are from the point of view of a former biologist, now toxic house wife and mother.... ***==>Specifically or maybe regardless of your background I frequently find your point of view..valuable.*** > What doses are you doing now? ***==>She had been up to 20 mgs of Ala, 10 mgs of dmsa for about a year. When we increased to 25 mgs Ala we noticed problems on the second round. We dropped it back to 20 mgs and that's where we were on the last round.**==> > She is taking Life Extension's multiple with 90 different things in >it, but she tolerates it well. Additionally she gets cod liver oil >and Idbenone, Beta Glucan and Neutrophil Plus. We recently added some >Calcium as her hair test showed she was yellow low and some >additional magnesium to balance the calcium.She takes 3/4 grain >Armour due to hypothyroidism. If the dosage is too low she will >appear Add, if the dosage is right there are no problems with her >attention. > I remember at one time she was taking some form of adrenal support? Is she still? ***===>Yes, sorry omitted that, she takes one capsule of Adrenal Cortex per day and I'm glad you brought this up as I am more confused about adrenal issues than just about anything, and that's saying something. I don't notice her typical adrenal burnout, haven't noticed it for about 9 or so months. At that time we saw a less than optimal energy level, this has since abated and she is full of energy. Makes me think the Idbenone might be contraindicated now as we were using that for energy and increased oxygen and that appears to be solved. Now even a day of swimming and she is tired but can maintain. Back to the adrenal issues, we had, at the time of her most severe fatigue, worked up to 3 capsules a day. I have to say that I never saw that it helped her, doesn't mean that it didn't, but it was hard to tell the difference. Several things that did help was; lots of C, pantothenic acid (said to be good for stress) and B vitamins dosed about 6 times a day. Another helpful supplement was phosphatidylserine, initally added for word retrieval problems, but it also appeared to help her adrenals. In my reading it appears phosphatidylserine " balances " cortisol which made me think maybe it wasn't that she didn't have enough cortisol by maybe it was being released at the wrong time. Does this make sense or have any possible relevance?***===> > > Our problem which appears to have started on that round, 3 rounds >ago is appearing both off and on round, although it is highly >exacerbated while on round and then starts to fade off round. >It started as a tremor, her arms and has progressed to a whole >movement with her tensing her arms. It looks like what I have been >taught is a choreiform movement. I looked up choreiform movement and the medical online dictionary said it could be associated with basal ganglia activity. I'm not trying to scare you - we all know that the mercury has been in the brain and most of us mercury poisoned folks will get some sort of score on the amen clinic tests. I scored quite high on the basal ganglia part of the amen test. >It most always occurs while she is in a particular emotional state of >anticipating something she is looking forward to. With my adrenal problems I find that happy stress needs just as much cortisol as unhappy stress and that emotional stress needs about twice as much as physical stress (like a sickness). ***==>Yes, its called Eustress and I had forgotten that positive stress is still stress.***===> > She has also gotten quite hyper on round and this movement is most >pronounced when she is in church, some place she has to sit still. > By the way, I have been noticing a slight tremor lately, never had one before. I notice it in bed (because I'm not too busy then). > This movement does not seem to be involuntary as she can stop it but >this time I saw with the movement a squinting of her left >eye..concerning as it seems to be getting worse on round. There have >been no further word retrieval problems. My dd reported that while >shopping today she announced that >her head felt funny and then had what my dd called a " spasm " . Wth? > What was the spasm like? ===>I wasn't present but my dd described it kind of like she lost control of some of her muscles and they were moving, this time involuntarily. She also complained of some numbness in her right hand. It only lasted for a short time and then she was fine. Her hand is fine this morning. I saw her effortlessly writing a letter to her little playfriend.===> > Another additional incident occured on this round. Her mother had >moved the carbon monoxide detector and it beeped. My dgd got keyed >up emotionally and had a lot of fears the beeping meant her and her >mother should leave the house. I got a call from the dgd who was in >tears telling me that the CO detector beeping meant they were in >danger. I was able to calm her down but this is atypical for her; >both not to believe her mother, and to need additional assurance >from me. No " episode " occurred during this time. > I have been known to panic at times beyond what is reasonable. Once the reaction starts I can't get it to stop even if I know my anxiety/ fear/ panic isn't making any sense. In my case a big part is because of the poor adrenal function, and I can control panic to a certain extent with more cortisol. The other components of anxiety are being controlled for me now that I am taking very small doses of valproic acid and Klonipin (I noticed both of those meds mentioned in something I was reading at the Amen web page about basal ganglia activity). ==>Again pointing to adrenals and I have to say that chelating with hypothyroidism adds a bit of complication. We have, just recently, increased her Armour to 1 grain. We also started cooking with coconut oil and that may be a piece of the puzzle as it really seemed to increase her temperatures, perhaps adding to the stress on her adrenals. She has not mentioned the CO detector since. I took her home this morning and we set it off so she could hear what it sounds like when it's warning of danger, but she appeared disinterested :-)===> In my case I seem to have some sort of seizure activity, although it hasn't been diagnosed as such and my EEG was normal. Before I had those two meds, above, it was like I was having absence seizures and those 'absences' seem to be controlled much more with the meds. My 'absences' were much more frequent and more alarming during times of stress. Because of all of this I have noticed that I 'cling' to calm reasonable people and try to stay away from people who would feed my fears. When I went for surgery, for example, I took my brother with me to wait because I knew he would make me laugh the whole time (and I can't laugh and get emotional and scared at the same time). ===>Two more good points. She has vagus vasal reactions (faints in response to severe pain, happens a lot when you're a kid and running around). She also had one incident when she fainted after an hour in our steam shower and this is consistent with vagus vasal as anytime the change is too great, the fainting occurs. We did have an EEG done, nothing untoward was found but Andy has cautioned me to get the neurologist's report and I need to get on my dd to get the dr's notes. Because we have split up the duties since the beginning of her mercury toxicity problem, it appears as if I have a bigger part in her life than I actually do. We are close but she always prefers my dd, the way it should be. And my dd is wonderful with her, much more patient with her than I was with my dd. However, everyone has her limit and I notice that toward the end of the week, when this occurred, my dd has less patience with her so that may have been the reason for the call. She (dgd) is much easier to care for now, like any other 6 year old given enough sleep, the right food, enough attention and structure and she is normally pleasant and happy. But this has been terrifically hard for the whole family and we're probably still feeling the stress from two years ago when the problems were very serious.===> > So my questions are wth is going on? She hasn't lost a thing >cognitively, yet but I'm afraid if we keep at it that is where it >will go. I know kids/adults have a " stall " period where things can >get worse, and she had a normal stall, but we should be loooooong >past that, so what is causing this movement. >Are we doing more damage by continuing to chelate? Can you over >chelate? Is it possible she is just starting to absorb the Ala after >all this time? > As you know I'm not an expert and can't say for sure what is going on. My thoughts are that the ALA removes mercury from the brain, the places where the mercury was have to heal, and the problems are from mercury damaged cells/ tissues/ nerves that haven't healed yet. I expect brain healing to take some time and I expect a child's brain to heal much more rapidly that an adult's. In my opinion it is best to chelate the mercury out because once it is out it can't do any more harm. If I was having the sort of problems that you are mentioning what I would likely do (after hitting the panic button) ***==>There is only one thing that makes me panic, a sick kid. I had a serious kidney disease when I was 7 from an untreated strep infection and saw my normally calm parents panic, so it's imprinted, I'm afraid and I passed it on to my dd.*** is possibly lower the dose of ALA, chelate less frequently giving more time for healing, and ask Andy to help me to determine (wth is going on and) what more I could do to promote brain healing. ===>Again, good advice and I will follow it. The best news is that she awoke this morning after 11 hours of sleep perfectly fine, happy, ate a great breakfast and was talking up a storm, cracking jokes and making plans for her day, no further movements noticed, none the worse for wear.===> I'm sure you've looked at these web pages: http://amenclinics.com/ac/ When I was looking at those pages some time ago there were explanations of which supplements helped which areas of the brain (as I recall). By the way, with the adrenal problems I have to make a special point to replace Na and even though I do that I get in trouble if I slack off and forget, especially in the summer with the heat. I make the SCD electrolyte drink (1 lemon, 1 L water, 1/4 tsp salt, 1/4 tsp baking soda, 1 T honey) and drink it all the time. Lately I have tripled the salt in it and added epsom salts. One symptom of low Na, that I found in one of my google searches, is 'seizures'. There were a couple of times that I forgot to replace Na during sweaty days and I had 'episodes'. The reason that adrenally insufficient people need to replace Na is because the adrenals produce aldosterone, aldosterone is responsible to tell the kidneys to retain Na and excrete K, so if aldosterone production is less than normal we lose Na and retain K (someone correct me if I got it mixed up). ===>The website is worth another look/see, thanks. Your explanation of Na and K may be another clue here. Her hair potassium is low/normal and her hair sodium was high, just to the yellow so we have been pushing potassium in the form of potassium salt substitute, maybe doubling the problem. I need to read over your explanation several times and we'll try the drink. She likes to make lemonade.===> > I'm at a loss here as what to think and feel like I'm flying blind. >I have read here about lots of people who had trouble starting Ala, >but after 2+ years of chelation why would we be seeing problems now? > I believe it's because mercury removal is slow and brain healing takes time. ===>Thanks for the time and attention I know that it took to thoughtfully respond to my post, it is appreciated. I feel more balanced myself this morning and we all need a reminder of how lucky we have been. She's in a good place, seems happy, has a creative and nimble mind, loves and functions well in school and at home and has lots of friends, that's all we ever wanted for her, if it takes 10 years to get the mercury out..then that's the way it is. Best J > > > > ; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 TK, << > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 I'm glad you posted this. Success stories are nice, but I (for one) also want to hear about the journey. << >>> What I'm wondering is whether something is going on with the physical development of her brain right now that is allowing mercury to come out from some place it hasn't before, or at a greater rate than it has in the past, or is in some other way changing the symptoms you are seeing with chelation. << >> If you lower the dose (I would say by 50%) for a few rounds, and if the symptoms then quiet down and diminish, this would confirm it is a dose-related exacerbation of chelation symptoms and you simply need to continue at a reduced dose for awhile before slowly increasing again. << >>> I've deleted the rest of your text, but another possibility that comes to mind is if any of the supplements is a recent change, say in the last few months, then it may be worth considering if a supplement is contributing. Current exposure is also possible - mercury is in the environment. It is unsettling, to say the least, to see this distressing change all of a sudden when everything had been fine. But I am thinking it could turn out to be a blip - a big blip that has hit you, not to mention her, between the eyes - but maybe a short-lived blip. Reduce the dose and see what happens. You could pursue other testing to see what is going on, but any signs observable to testing might not be present all the time. And if dose reduction eliminates or reduces the symptoms, it is clearly related to chelation and controllable by dose. -- --- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 > > << dosage, she had been on 10 mgs Dmsa and 20 mgs of Ala for over a year before > we increased it on the first troublesome round to 25 mgs. Ala. She has > always been " better " on a round so your sharing the headaches are common is > enlightening. Wait..., are you saying the trouble coincided with the dose increase of ALA? in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 I don't have much to offer, but after reading your post the first thought that came to me was to rule out seizures. <<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Give her a lot of adrenal support. Try some GABA. 100 mg or so and it may need to be given every few hours while there is trouble. Twinlabs has a convenient product called " GABA plus " that is 100 mg GABA and 200 mg niacinamide per capsule. Any brand is fine, this is just easy to find in stores. In the very remotest theoretically possible sense you could be seeing the beginning of seizure problems. I say this not to torment or worry you but so you do watch for it. OCD + anxiety = adrenal problems. Abnormal brain electrical activity regulation is always a consequence of adrenal problems. You are also not going to do wrong by giving her a lot more omega 3 and vitamin E. Try to figure out what else is different that has suddenly started this. It may just be some further progress in child development, but if you can identify something you might make everyone's life better by putting it back however it was. Any reason to believe she is chemically sensitive? Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: mmc2315 Wait..., are you saying the trouble coincided with the dose increase of ALA? << Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 ----- Original Message ----- From: mmc2315 Wait..., are you saying the trouble coincided with the dose increase of ALA? << Quote Link to comment Share on other sites More sharing options...
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