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To everyone - I just spoke with on the phone and am working

to get her to New York. On a side note as an update on baby ,

I am working with , their insurance company and their peds to

get to New York. Phoenix was pitiful. Dr. H wants to admit

him there - which is what wants as well.If that doesn't work,

we'll try Las Vegas.

> Dear ,

>

> I was very distressed to learn you're being charged with neglect.

I may have missed previous posts, but I gather Lee has been

diagnosed with RSS.

>

> I recall being viewed with suspicion when my son (age 17)

was an infant, prior to his diagnosis, and it was very distressing.

I'd imagine this occurring while you're struggling to help your child

can be terribly frustrating and painful.

>

> I believe Dr. Harbison had run into this situation before, and may

be of some assistance to you in providing expert information as to

how RSS can effect a child. That being said, maybe she could help

your physicians with the evaluation and a protocol of treatment for

.

>

> Stay in touch.

>

> Regards,

>

> (Mom to , 17)

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  • 7 years later...

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