Re: Sideeffects with PTU?-A CORRECTION...

[Guest guest]

Sorry,

I had the dosages all wrong. It is PTU, 50 mgs, 2 tablets, 3 x a day.

Deidre

> Hi Dedrie,

>

> I was on PTU for 3 1/2 years before remission, so I should be able

to help

> as you go along.

>

> In a nutshell, PTU is not like other drugs you may have taken in

the past,

> where in a day or two, you develop side effects. It takes much

longer. The

> side effects of PTU are pretty much hypo and hyper symptoms.

Meaning you are

> overdosed or underdosed.

>

> The tow very rare problems with any drug ( not just ATDs ) is liver

or white

> blood count problems. Since Graves' itself can also cause these

particular

> tests to read wrong, it is VERY important they are done before

starting the

> drugs. This way you have a baseline reading , and can compare at

your next

> lab. Which should be in 4 weeks.

>

> Any treatment for Graves' and hyper requires us to become educated

in every

> aspect of this disease, if we are to do well and feel good.

>

> The first thing you need to do , and do NOW, is call the doctors

office and

> request copies of your lab results so far, be mailed to you. Or you

could

> say you would like to stop by and pick them up, and when will be a

good time

> ?

>

> This is a normal request, and your legal right. You are asking for

LAB

> REPORTS, not medical records.

>

> Then start a file. Every time you go to get labs done, write down

your

> specific symptoms that day. When you get the lab copy, hook the two

> together. In time you will find the right 'set point' or 'normal'

for YOU.

> We are all different, so this file will be the key to feeling good

while you

> are being treated. It needs to be done by everyone with any kind of

thyroid

> disease. That is if they really care how they feel.

>

> Are you not very hyper? Do you not have many symptoms ? I ask

because the

> 100 mg of PTU per day is a very unusual LOW dose to be starting on.

And 50

> mg. a day is normally only able to be done the very last few months

before

> remission, and after an average of at least a year.

>

> This does not mean you are sick for the year or more, it means you

are

> taking pills.

>

> And PLEASE do NOT ever change any dose of any ATD ( anti thyroid

drug )

> before having lab work done. If you do this you will prolong

feeling bad.

>

> Do be sure to get those labs. You need to SEE that the proper tests

have

> been done. And if not...get them done this week.

>

> If you have some time, please do go to the home page for this

group...back

> at Yahoo...My Groups...where you joined.

>

> You will find good info in the files section, and then check

through the

> archives. You will find so many of the standard beginner questions,

asked

> and answered, over and over, you will get a big head start in this

whole

> business, and know what to watch for, and what to do to get better.

The when

> you have more specific questions, we will be more that happy to

help you.

>

> -Pam L -3 1/2 yr.Graves and TED, PTU, Remission due to education,

SLOW

> reduction of PTU, improved lifestyle, excellent nutrition,herbs,

and looking

> at the BIG picture !

> Pills alone only fix symptoms. We must help our bodies to heal.

[Guest guest]

Sorry,

I had the dosages all wrong. It is PTU, 50 mgs, 2 tablets, 3 x a day.

Deidre

> Hi Dedrie,

>

> I was on PTU for 3 1/2 years before remission, so I should be able

to help

> as you go along.

>

> In a nutshell, PTU is not like other drugs you may have taken in

the past,

> where in a day or two, you develop side effects. It takes much

longer. The

> side effects of PTU are pretty much hypo and hyper symptoms.

Meaning you are

> overdosed or underdosed.

>

> The tow very rare problems with any drug ( not just ATDs ) is liver

or white

> blood count problems. Since Graves' itself can also cause these

particular

> tests to read wrong, it is VERY important they are done before

starting the

> drugs. This way you have a baseline reading , and can compare at

your next

> lab. Which should be in 4 weeks.

>

> Any treatment for Graves' and hyper requires us to become educated

in every

> aspect of this disease, if we are to do well and feel good.

>

> The first thing you need to do , and do NOW, is call the doctors

office and

> request copies of your lab results so far, be mailed to you. Or you

could

> say you would like to stop by and pick them up, and when will be a

good time

> ?

>

> This is a normal request, and your legal right. You are asking for

LAB

> REPORTS, not medical records.

>

> Then start a file. Every time you go to get labs done, write down

your

> specific symptoms that day. When you get the lab copy, hook the two

> together. In time you will find the right 'set point' or 'normal'

for YOU.

> We are all different, so this file will be the key to feeling good

while you

> are being treated. It needs to be done by everyone with any kind of

thyroid

> disease. That is if they really care how they feel.

>

> Are you not very hyper? Do you not have many symptoms ? I ask

because the

> 100 mg of PTU per day is a very unusual LOW dose to be starting on.

And 50

> mg. a day is normally only able to be done the very last few months

before

> remission, and after an average of at least a year.

>

> This does not mean you are sick for the year or more, it means you

are

> taking pills.

>

> And PLEASE do NOT ever change any dose of any ATD ( anti thyroid

drug )

> before having lab work done. If you do this you will prolong

feeling bad.

>

> Do be sure to get those labs. You need to SEE that the proper tests

have

> been done. And if not...get them done this week.

>

> If you have some time, please do go to the home page for this

group...back

> at Yahoo...My Groups...where you joined.

>

> You will find good info in the files section, and then check

through the

> archives. You will find so many of the standard beginner questions,

asked

> and answered, over and over, you will get a big head start in this

whole

> business, and know what to watch for, and what to do to get better.

The when

> you have more specific questions, we will be more that happy to

help you.

>

> -Pam L -3 1/2 yr.Graves and TED, PTU, Remission due to education,

SLOW

> reduction of PTU, improved lifestyle, excellent nutrition,herbs,

and looking

> at the BIG picture !

> Pills alone only fix symptoms. We must help our bodies to heal.

[Guest guest]

Sorry,

I had the dosages all wrong. It is PTU, 50 mgs, 2 tablets, 3 x a day.

Deidre

> Hi Dedrie,

>

> I was on PTU for 3 1/2 years before remission, so I should be able

to help

> as you go along.

>

> In a nutshell, PTU is not like other drugs you may have taken in

the past,

> where in a day or two, you develop side effects. It takes much

longer. The

> side effects of PTU are pretty much hypo and hyper symptoms.

Meaning you are

> overdosed or underdosed.

>

> The tow very rare problems with any drug ( not just ATDs ) is liver

or white

> blood count problems. Since Graves' itself can also cause these

particular

> tests to read wrong, it is VERY important they are done before

starting the

> drugs. This way you have a baseline reading , and can compare at

your next

> lab. Which should be in 4 weeks.

>

> Any treatment for Graves' and hyper requires us to become educated

in every

> aspect of this disease, if we are to do well and feel good.

>

> The first thing you need to do , and do NOW, is call the doctors

office and

> request copies of your lab results so far, be mailed to you. Or you

could

> say you would like to stop by and pick them up, and when will be a

good time

> ?

>

> This is a normal request, and your legal right. You are asking for

LAB

> REPORTS, not medical records.

>

> Then start a file. Every time you go to get labs done, write down

your

> specific symptoms that day. When you get the lab copy, hook the two

> together. In time you will find the right 'set point' or 'normal'

for YOU.

> We are all different, so this file will be the key to feeling good

while you

> are being treated. It needs to be done by everyone with any kind of

thyroid

> disease. That is if they really care how they feel.

>

> Are you not very hyper? Do you not have many symptoms ? I ask

because the

> 100 mg of PTU per day is a very unusual LOW dose to be starting on.

And 50

> mg. a day is normally only able to be done the very last few months

before

> remission, and after an average of at least a year.

>

> This does not mean you are sick for the year or more, it means you

are

> taking pills.

>

> And PLEASE do NOT ever change any dose of any ATD ( anti thyroid

drug )

> before having lab work done. If you do this you will prolong

feeling bad.

>

> Do be sure to get those labs. You need to SEE that the proper tests

have

> been done. And if not...get them done this week.

>

> If you have some time, please do go to the home page for this

group...back

> at Yahoo...My Groups...where you joined.

>

> You will find good info in the files section, and then check

through the

> archives. You will find so many of the standard beginner questions,

asked

> and answered, over and over, you will get a big head start in this

whole

> business, and know what to watch for, and what to do to get better.

The when

> you have more specific questions, we will be more that happy to

help you.

>

> -Pam L -3 1/2 yr.Graves and TED, PTU, Remission due to education,

SLOW

> reduction of PTU, improved lifestyle, excellent nutrition,herbs,

and looking

> at the BIG picture !

> Pills alone only fix symptoms. We must help our bodies to heal.

[Guest guest]

Sorry,

I had the dosages all wrong. It is PTU, 50 mgs, 2 tablets, 3 x a day.

Deidre

> Hi Dedrie,

>

> I was on PTU for 3 1/2 years before remission, so I should be able

to help

> as you go along.

>

> In a nutshell, PTU is not like other drugs you may have taken in

the past,

> where in a day or two, you develop side effects. It takes much

longer. The

> side effects of PTU are pretty much hypo and hyper symptoms.

Meaning you are

> overdosed or underdosed.

>

> The tow very rare problems with any drug ( not just ATDs ) is liver

or white

> blood count problems. Since Graves' itself can also cause these

particular

> tests to read wrong, it is VERY important they are done before

starting the

> drugs. This way you have a baseline reading , and can compare at

your next

> lab. Which should be in 4 weeks.

>

> Any treatment for Graves' and hyper requires us to become educated

in every

> aspect of this disease, if we are to do well and feel good.

>

> The first thing you need to do , and do NOW, is call the doctors

office and

> request copies of your lab results so far, be mailed to you. Or you

could

> say you would like to stop by and pick them up, and when will be a

good time

> ?

>

> This is a normal request, and your legal right. You are asking for

LAB

> REPORTS, not medical records.

>

> Then start a file. Every time you go to get labs done, write down

your

> specific symptoms that day. When you get the lab copy, hook the two

> together. In time you will find the right 'set point' or 'normal'

for YOU.

> We are all different, so this file will be the key to feeling good

while you

> are being treated. It needs to be done by everyone with any kind of

thyroid

> disease. That is if they really care how they feel.

>

> Are you not very hyper? Do you not have many symptoms ? I ask

because the

> 100 mg of PTU per day is a very unusual LOW dose to be starting on.

And 50

> mg. a day is normally only able to be done the very last few months

before

> remission, and after an average of at least a year.

>

> This does not mean you are sick for the year or more, it means you

are

> taking pills.

>

> And PLEASE do NOT ever change any dose of any ATD ( anti thyroid

drug )

> before having lab work done. If you do this you will prolong

feeling bad.

>

> Do be sure to get those labs. You need to SEE that the proper tests

have

> been done. And if not...get them done this week.

>

> If you have some time, please do go to the home page for this

group...back

> at Yahoo...My Groups...where you joined.

>

> You will find good info in the files section, and then check

through the

> archives. You will find so many of the standard beginner questions,

asked

> and answered, over and over, you will get a big head start in this

whole

> business, and know what to watch for, and what to do to get better.

The when

> you have more specific questions, we will be more that happy to

help you.

>

> -Pam L -3 1/2 yr.Graves and TED, PTU, Remission due to education,

SLOW

> reduction of PTU, improved lifestyle, excellent nutrition,herbs,

and looking

> at the BIG picture !

> Pills alone only fix symptoms. We must help our bodies to heal.

[Guest guest]

Dedrie,

Good...I was worried about you.

But you still need to get those copies of your lab reports and make sure the

proper tests were done before much more time passes.

It has been know to happen, that some doctors that want to push RAI do not

do the proper tests before anti thyroid drugs. Then they do them later

without the proper baseline readings, and can then try to 'prove' to you

that the drugs are killing you.

As long as YOU know ahead of time what is going on, this trick can not be

played on you. There is BIG money in RAI, and quite honestly, you do not

have an on going relationship with this doctor, so you have no way of

knowing if he is really experienced in using ATDs properly.

It is just one of those 'better safe than sorry' things.

-Pam L-

[Guest guest]

Dedrie,

Good...I was worried about you.

But you still need to get those copies of your lab reports and make sure the

proper tests were done before much more time passes.

It has been know to happen, that some doctors that want to push RAI do not

do the proper tests before anti thyroid drugs. Then they do them later

without the proper baseline readings, and can then try to 'prove' to you

that the drugs are killing you.

As long as YOU know ahead of time what is going on, this trick can not be

played on you. There is BIG money in RAI, and quite honestly, you do not

have an on going relationship with this doctor, so you have no way of

knowing if he is really experienced in using ATDs properly.

It is just one of those 'better safe than sorry' things.

-Pam L-

[Guest guest]

Pam I thank you so much for your concern...

My question to you now is...what tests should I be looking for? I am

going tomorrow to pick up my results so far.

Thanks again.

Deidre.

> Dedrie,

>

> Good...I was worried about you.

> But you still need to get those copies of your lab reports and make

sure the

> proper tests were done before much more time passes.

>

> It has been know to happen, that some doctors that want to push RAI

do not

> do the proper tests before anti thyroid drugs. Then they do them

later

> without the proper baseline readings, and can then try to 'prove'

to you

> that the drugs are killing you.

>

> As long as YOU know ahead of time what is going on, this trick can

not be

> played on you. There is BIG money in RAI, and quite honestly, you

do not

> have an on going relationship with this doctor, so you have no way

of

> knowing if he is really experienced in using ATDs properly.

>

> It is just one of those 'better safe than sorry' things.

>

> -Pam L-