Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Tammy, Well I've had the disease (PSC) for 22 years and have had one itching episode when I was first diagnosed, three or four blood in stool and immediate chills and then sweating episodes and that is it. No ERCPs no liver biopsies, just annual check ups with blood tests every 6 months or so. I started on ursidol a few years ago and my alk phos has lowered from the mid 200s to 160 ish. I was a little depressed after joining the group and hearing so many people needing liver transplants and having so many complications. I didn't hear much from those without complications. There must be more than just me out there. I've tried posting to see how many symptomless PSCers there are, but didn't get a response. I am living proof that a liver transplant is not a for sure thing after 10 years. Here's hoping Chad is as lucky as I have been (so far). Now ask me about UC and I'll tell you all about colectomies (I had mine in 99) and all the symptoms before the surgery and all the complications after the surgery. Quote Link to comment Share on other sites More sharing options...
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