RE: jolts at night and having a really hard time

[Guest guest]

I know how frustrating not knowing what the heck is going on with your own body can be. , have you tried any meds? What did Dr Conway think this was??

CWho's never won? Biggest Grammy Award surprises of all time on AOL Music.

[Guest guest]

If

you do a search for electric shocks or jolts on the pudendal.info site you will

find a lot of information. It is called hyper-arousal syndrome. A very good

friend of mine has this very severely. It was caused by the birth of her child –

he should have been delivered by C-section, but the doctor let him sit with his

head pressing on the pudendal nerve (near the clitoris) for too long. That was

two years ago. Her shocks are so bad, that she can no longer drive as she jerks

so badly she swerves off the road. She can have 30 or more shocks during a 24 hour

period, also while sleeping. They are extremely painful and can literally

double her over. She has no other PN or vaginal symptoms. She is a patient of

Dr. Conway and had pudendal decompression surgery five months ago, and still is

not any better. Dr. Conway feels that she will improve with time, but (as with

all PN surgeries) it can take up to two years.

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109

Sent: Monday, February 04, 2008 2:35 AM

To: VulvarDisorders

Subject: jolts at night and having a really hard time

hi all,

i'm having a very difficult time going to sleep right now and am on the verge

of just losing

every single ounce of hope. i think i am getting worse because lately when i go

to bed

and my body relaxes, i get these jolts into the clitoris. they don't hurt and i

don't really

know how to describe them, but they wake me up and eventually my nerves just

end up

feeling aroused and very stimulated. i don't know why i only get this at night,

and it's not

when i'm laying in bed watching tv, it's as i'm falling asleep. i have no idea

what this

means and have a feeling it's not good. does anyone else ever experience this?

all in all i am just breaking down. i just keep thinking this is a horrible

dream and that i

just have to wake up, but it never happens. i'm only 23 and can't even fathom

living the

rest of my life like this. i feel like i've tried everything, and i don't even

know what my

problem is. at first i thought it was pudendal neuralgia but i'm questioning

that lately.

then i thought maybe it's lichen planus under the hood, but with these

jolts/arousal

feeling at night now, i'm not sure how that could be from lichen. i feel so

alone through

all of this. my friend and my mom knows about it, but i think they're tired of

dealing with

me and don't know what to say so i just don't talk to them about it anymore. i

don't have

a boyfriend to talk to about it, and don't see how i could ever start a

relationship with this

problem. i thought it was bad enough before, but now with these jolts/arousal

like feeling

at night it's getting hard for me to get any sleep, when sleep never used to

bother me

before, another reason that i think i'm getting worse. i know everyone on here

has gone

through times like this, but i just don't even know how to stay sane anymore.

imagine

trying to go to sleep and having jolts into your clitoris that end up making

you feel

extremely aroused that doesn't go away. sleep used to be my only time to escape

but now

i don't even have that anymore. i keep thinking that i don't understand how

something

that is used solely for pleasure is causing me so much pain and depression. i

just feel like

my life is over and for the next 50 years i'll be living in hell. i just keep

pondering over

why i get like this at night as i'm falling asleep and i've got nothing. i

really don't think i

can keep pushing along for much longer before i go into complete and utter

depression,

not to mention having a very difficult time sleeping.

today's going to be a wonderful day at work and school, since i'm pretty sure

i'll be in pain

and will be exhausted from only getting a couple of hours of sleep, if any at

all.

erin