Re: My visit with Shands...Sandie

[Guest guest]

Bruce - you always have amazing info and you are funny. I just want

to add that in 1980 my sister needed a kidney. I gave it to her and

they made sure we both understood she would be lucky if she lived 5

years. This January 11th it was 29 years and she is absolutely fine.

The statistics change every year. I hope we are all there Bruce when

you are 80 and hitting on that 30 year old!!!

Eileen IPF/UIP May 07

> > >

> > > Today we met with Dr. Baz, who is the head of the Lung

> > Transplant

> > > Department at Shands Hospital at the University of Florida . He

> > > reviewed Kathy's medical records and testing to date, then did an

> > > exam.

> > >

> > > He believes a transplant is in order and is the right thing

> to

> > > do....and gave us the following information:

> > >

> > > After a transplant, 50% of recipients die within the

> first

> > 5

> > > years. In year 1, 20% die primarily from infection due to the

> > > operation. .In years 2 through 4, 30% more die from rejection

> > which

> > > is the body rejecting the new organ and the failure of rejection

> > > drugs to stop this process.

> > > He said that a lung transplant is unlike liver or kidney where

> you

> > > are likely to survive 10 - 12 years.

> > >

> > > Because of this high mortality rate , Dr. Baz believes in

> > > holding off putting people on transplant lists as long as

> possible,

> > > until a patient has a year or less to live.

> > >

> > > Thankfully, Dr. Baz believes that Kathy has longer than a

> > > year. Therefore he wants to see her in 6 months or earlier if her

> > > next testing in April does not come back well. . He will then

> put

> > > her through further tests, and if necessary, she will be placed

> on

> > > the list. The average wait time once you are on the list is 6

> > months

> > > to 1 year.

> > >

> > > At this point we plan to take this Doctor's advice and

> > > hopefully Kathy will not see him again before 6 months and he

> will

> > > test her further...and tell us to come back again in another 6

> > > months!!

> > >

> > > After seeing Dr. Baz, the good news is that Kathy is now

> > > accepted as a patient in the Lung Transplant department at Shands.

> > >

> >

>

[Guest guest]

Bruce - you always have amazing info and you are funny. I just want

to add that in 1980 my sister needed a kidney. I gave it to her and

they made sure we both understood she would be lucky if she lived 5

years. This January 11th it was 29 years and she is absolutely fine.

The statistics change every year. I hope we are all there Bruce when

you are 80 and hitting on that 30 year old!!!

Eileen IPF/UIP May 07

> > >

> > > Today we met with Dr. Baz, who is the head of the Lung

> > Transplant

> > > Department at Shands Hospital at the University of Florida . He

> > > reviewed Kathy's medical records and testing to date, then did an

> > > exam.

> > >

> > > He believes a transplant is in order and is the right thing

> to

> > > do....and gave us the following information:

> > >

> > > After a transplant, 50% of recipients die within the

> first

> > 5

> > > years. In year 1, 20% die primarily from infection due to the

> > > operation. .In years 2 through 4, 30% more die from rejection

> > which

> > > is the body rejecting the new organ and the failure of rejection

> > > drugs to stop this process.

> > > He said that a lung transplant is unlike liver or kidney where

> you

> > > are likely to survive 10 - 12 years.

> > >

> > > Because of this high mortality rate , Dr. Baz believes in

> > > holding off putting people on transplant lists as long as

> possible,

> > > until a patient has a year or less to live.

> > >

> > > Thankfully, Dr. Baz believes that Kathy has longer than a

> > > year. Therefore he wants to see her in 6 months or earlier if her

> > > next testing in April does not come back well. . He will then

> put

> > > her through further tests, and if necessary, she will be placed

> on

> > > the list. The average wait time once you are on the list is 6

> > months

> > > to 1 year.

> > >

> > > At this point we plan to take this Doctor's advice and

> > > hopefully Kathy will not see him again before 6 months and he

> will

> > > test her further...and tell us to come back again in another 6

> > > months!!

> > >

> > > After seeing Dr. Baz, the good news is that Kathy is now

> > > accepted as a patient in the Lung Transplant department at Shands.

> > >

> >

>

[Guest guest]

Sandie

Well, I'm not defined by what the medical records say nor by the future.

I am how I feel today. I had days many years ago I felt 100 and some

days today I feel 18. I plan for the future, but I plan for the near

future so I can enjoy or benefit soon. People always worrying about five

years or ten years from now. I want to ask anyone here, was your life at

40 like you imagined when 30 or at 50 like you imagined when 40? See we

never could predict and still can't. Now, right now I've been working my

brain overtime figuring out how I want this year and next to be, living

situation, etc.

> > > >

> > > > Today we met with Dr. Baz, who is the head of the Lung

> > > Transplant

> > > > Department at Shands Hospital at the University of Florida . He

> > > > reviewed Kathy's medical records and testing to date, then did

an

> > > > exam.

> > > >

> > > > He believes a transplant is in order and is the right thing

> > to

> > > > do....and gave us the following information:

> > > >

> > > > After a transplant, 50% of recipients die within the

> > first

> > > 5

> > > > years. In year 1, 20% die primarily from infection due to the

> > > > operation. .In years 2 through 4, 30% more die from rejection

> > > which

> > > > is the body rejecting the new organ and the failure of rejection

> > > > drugs to stop this process.

> > > > He said that a lung transplant is unlike liver or kidney where

> > you

> > > > are likely to survive 10 - 12 years.

> > > >

> > > > Because of this high mortality rate , Dr. Baz believes

in

> > > > holding off putting people on transplant lists as long as

> > possible,

> > > > until a patient has a year or less to live.

> > > >

> > > > Thankfully, Dr. Baz believes that Kathy has longer than

a

> > > > year. Therefore he wants to see her in 6 months or earlier if

her

> > > > next testing in April does not come back well. . He will then

> > put

> > > > her through further tests, and if necessary, she will be placed

> > on

> > > > the list. The average wait time once you are on the list is 6

> > > months

> > > > to 1 year.

> > > >

> > > > At this point we plan to take this Doctor's advice and

> > > > hopefully Kathy will not see him again before 6 months and he

> > will

> > > > test her further...and tell us to come back again in another 6

> > > > months!!

> > > >

> > > > After seeing Dr. Baz, the good news is that Kathy is now

> > > > accepted as a patient in the Lung Transplant department at

Shands.

> > > >

> > >

> >

>

[Guest guest]

Hi Peggy

Yes, my husband and I are both hoping to come especially since we live

only 3 hrs away. I am so looking forward to it,

Eileen IPF/UIP 05/07

> > > >

> > > > Today we met with Dr. Baz, who is the head of the Lung

> > > Transplant

> > > > Department at Shands Hospital at the University of Florida . He

> > > > reviewed Kathy's medical records and testing to date, then did an

> > > > exam.

> > > >

> > > > He believes a transplant is in order and is the right thing

> > to

> > > > do....and gave us the following information:

> > > >

> > > > After a transplant, 50% of recipients die within the

> > first

> > > 5

> > > > years. In year 1, 20% die primarily from infection due to the

> > > > operation. .In years 2 through 4, 30% more die from rejection

> > > which

> > > > is the body rejecting the new organ and the failure of rejection

> > > > drugs to stop this process.

> > > > He said that a lung transplant is unlike liver or kidney where

> > you

> > > > are likely to survive 10 - 12 years.

> > > >

> > > > Because of this high mortality rate , Dr. Baz believes in

> > > > holding off putting people on transplant lists as long as

> > possible,

> > > > until a patient has a year or less to live.

> > > >

> > > > Thankfully, Dr. Baz believes that Kathy has longer than a

> > > > year. Therefore he wants to see her in 6 months or earlier if her

> > > > next testing in April does not come back well. . He will then

> > put

> > > > her through further tests, and if necessary, she will be placed

> > on

> > > > the list. The average wait time once you are on the list is 6

> > > months

> > > > to 1 year.

> > > >

> > > > At this point we plan to take this Doctor's advice and

> > > > hopefully Kathy will not see him again before 6 months and he

> > will

> > > > test her further...and tell us to come back again in another 6

> > > > months!!

> > > >

> > > > After seeing Dr. Baz, the good news is that Kathy is now

> > > > accepted as a patient in the Lung Transplant department at

> Shands.

> > > >

> > >

> >

>