Re: Geeta and All...........................................

October 31, 2008

>

> Thank you for your concern and love.

>

> My pulmo called just a few min. ago and said " DO NOT RAISE YOUR OXYGEN

> ANY HIGHER THAN #5 AT ANY TIME " . I said what about when I walk outside,

> he said ok, #6, but when you sit down, you must turn it right back to

> 5. He doesn't want me to be any higher than that as a steady thing.

>

> He said if I want to, I can start taking 12 1/2mg of Prednisone

> starting tomorrow instead of 15. See what happens with that.

>

> I mentioned the numbness in my feet, ankles and legs when I get into

> bed at night and my legs aching so badly during the day, he said when

> you see your GP on Wednesday, tell her about that stuff too. And the

> cramping in my legs too.

>

> I LOVE YOU THIS DAY

> MARY LOU - RICHMOND VA

> IPF - 02

>

Hi! I'm brand-new to the group, but your post caught my attention. I

am also having pain level 10 cramps in my joints that usually last

about 8 hours, if I'm lucky. My Pulmo-Doc said to see my Rheumo Doc,

who said it was probably just a fibromyalgia flare from the stress of

the lung biopsy and fatal diagnosis.

My lower limb pain is usually in one knee joint at a time, although it

attacked both of my ankles for two days last week.

Nobody has ever related it to IPF, yet it is brand new to my body,

starting at the same time as my coughing up rusty blood, which drove

my to the Doc for the diagnosis and and immediate 9 day stay with all

the tests.

I do NOT have rheumatoid arthritis, just osteo for a 57 year old

non-smoker.

Has someone started a thread about this incredibly painful oddity? I

was already suffering from co-morbidity, so I used the strongest pain

meds you can get (orally), and they couldn't touch the joint aches.

Perhaps this is a part of IPF, that has yet to be written up in the

literature.

Terri

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