Re: Prednisone troubles/compounding

[Guest guest]

Alyssa, there are compounding pharmacies online that families with ASD kids use

all the time. I haven't because I have a great compounding apothecary here in

Indianapolis, but you might investigate that route. I think one is called Lee

Silsby.

Chrissy

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> Subject: Prednisone troubles/compounding

> To: BTVC-SCD

> Date: Sunday, July 26, 2009, 4:01 PM

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> Okay, well I just found out that my

> prednisone had lactose in it. So

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> between that and the iron pills, no wonder I still have

> D!!! I think

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> both my parents want to wean me off the pred altogether, so

> we'll talk

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> to my doctor and see how that goes. Meanwhile, chicken

> soup, here I

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> come! If anyone has a good place to compound meds near

> Apex/Cary NC

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> though, let me know just in case they won't let me wean

> off them.

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> Thanks!

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> Pour Dieu, pour terre,

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> Alyssa 15

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> UC April 2008, diagnosed Sept 2008

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> SCD June 2009 (restarted)

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> 20mg Prednisone 1x daily ugh

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[Guest guest]

my place here in NY ships for free i believe -Life Science Pharmacy harriman

ny-just google them - should be an 800 # for out of town people- they'll make

everything scd for you -just tell doc to say scd compliant on your scripts -

maybe you'll get relief w/o the enzyme,iron and lactose - you poor thing -

drink up that soup - I hate it too - but it helps :-)

eileen

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> Okay, well I just found out that my prednisone had lactose in it. So

> between that and the iron pills, no wonder I still have D!!! I think

> both my parents want to wean me off the pred altogether, so we'll talk

> to my doctor and see how that goes. Meanwhile, chicken soup, here I

> come! If anyone has a good place to compound meds near Apex/Cary NC

> though, let me know just in case they won't let me wean off them.

> Thanks!

>

> Pour Dieu, pour terre,

> Alyssa 15

> UC April 2008, diagnosed Sept 2008

> SCD June 2009 (restarted)

> 20mg Prednisone 1x daily ugh

>

[Guest guest]

Alyssa,

When prednisone is effective, its benefits will override the downside of

containing small amounts of lactose. To be clear, I'm not advocating that you

use prednisone. In fact, it's not meant to be used long term. However, I notice

that the dose you're on is very low (20 mg).

In order for prednisone to eradicate the symptoms you're experiencing or at

least help you recover from your flare, you'll likely have to increase your dose

to 40 or 50 mg for 2 weeks, and then taper by 5 mg each week. YMMV, but this is

the method that seems to be the most effective for those who have used steroids

to achieve " remission. "

Good luck,

Jill

>

> Okay, well I just found out that my prednisone had lactose in it. So

> between that and the iron pills, no wonder I still have D!!! I think

> both my parents want to wean me off the pred altogether, so we'll talk

> to my doctor and see how that goes. Meanwhile, chicken soup, here I

> come! If anyone has a good place to compound meds near Apex/Cary NC

> though, let me know just in case they won't let me wean off them.

> Thanks!

>

> Pour Dieu, pour terre,

> Alyssa 15

> UC April 2008, diagnosed Sept 2008

> SCD June 2009 (restarted)

> 20mg Prednisone 1x daily ugh

>