Re: Second Annual Virtual Walk

[Guest guest]

Is it at all possible for a person to begin the Virtual Walk early? I would like to be able to have the shirt and take donations at our Benefit Dinner, if possible. Also, who do I talk to about getting the PSC brochures? I'd like to have some for there, and some for 's clinic, though I have no idea how many would be appropriate, so I need some guidance. Thanks!! Amijmhatch39 wrote:

Good morning! You can now register for the Second Annual VirtualWalk! The First Virtual Walk completed in April 2006 was so successfulin raising funds for PSC Research. We are hoping to raise even moremoney for research this year.For those new to the Virtual Walk: 100% of the donations from thiswalk go towards PSC research! You can participate from your home byasking family and friends for their support and donations via email orsnail mail. You can also walk through your neighborhood or at work. For those who may be hesitant to ask others for donations, I foundthat participating in this fundraiser was SO MUCH easier for me thanany other charitable cause I had worked with, because I was alsoeducating people about PSC, a rare, orphan disease with no cure. As Italked with people, I was educating and informing them and giving theman opportunity to help find a cure for PSC through their donation ofany amount.

People were interested and their generosity wasoverwhelming. For those who hesitate to sign up as you might only have a few donors:please sign up! The more of us who participate, the better thisVirtual Walk will be! Last year about 51 people signed up. We arehopeful that many more of you will participate this year. Everysingle donor is valuable, every person who learns about PSC is valuable.Lee Bria coordinated the First Virtual Walk. This year, Lee and I areavailable to help you in any way we can. After you register, Lee willsend you your T Shirt for signatures (and pictures or messages fromyour donors), plus your packet will include sample letters/emails thatyou can personalize (often easier to modify than to start fromscratch). You will also receive the Thank You Letter to acknowledgeyour donors and give them the tax receipt information. Please feelfree to contact Lee or me. I'm sure other Virtual s

from lastyear will also offer thoughts and advice to help this year's VirtualWalk be successful.Following is the Virtual Walk Introduction, posted on the PSC Partnersweb site. Look under Fundraising and you will find the registrationform, which you can send to me. Please email any questions!Joanne (, Ca., mom of , 16, UC/PSC 2-06; JRA 2-98)Second Annual Virtual WalkSupporting PSC Partners Seeking a CureMarch through April 14, 2007The goal of the Virtual Walk is to raise money for research to find acure for PSC. The Virtual Walk also increases public knowledge andawareness about PSC. Last year the First Annual Virtual Walk raisedan astonishing $44,494.00. In January 2007, the formal announcementwas made that PSC Partners Seeking a Cure had donated $20,000 tocollaborate with the Foundation in a PSC research project,developing a patient registry.Everyone is welcome to

participate in the 2007 Second Annual VirtualWalk. You can choose how you would like to participate: from yourcomputer via email, by mailing letters to friends, co-workers, andbusinesses in your community, or by walking in your neighborhood. You could stretch and be creative, like Mike Zaloudek's 260 milebicycle ride to Pittsburgh last April!Virtual s are encouraged to be as involved as you can, becauseeveryone's participation is valued. Many individuals raising a smallnumber of donations carries a large cumulative benefit to build thesuccess of this year's Virtual Walk.Registration materials are available on-line at the PSC web sitewww.pscpartners.org; under Virtual Walk. You can also request aregistration form by contacting Joanne Hatchett atsjhatch (AT) sbcglobal (DOT) net or calling or . Your donation of $25 will cover mailing

all materials, including TShirt for signatures and decorations, permanent ink pen, and sampleletters which you can personalize. A thank you letter with receipt ofdonation for tax purposes will be included to give to your donors.Again, all donations are appreciated. Last year many T Shirts had anumber of $1 and $5 donations as part of their signatures. You willprobably be pleasantly surprised by some very generous donations too.An envelope will be enclosed with your registration packet to mailyour Donor Signature List and checks to Joanne Hatchett by April 3rd.If you are attending the PSC conference in Denver, you can also bringyour checks and Donor Signature List by Friday, April 13th to theregistration desk. T Shirts will be displayed at the PSC Conference. It was fun to seethe beautiful and creative shirts that were shared last year. If youcannot attend the conference, you can mail your shirt to Joanne

and wewill be sure it is on display!Sample letters and materials are also posted on the PSC website, underFundraising, Virtual Walk section. For questions, please contact either Lee Bria at leedeubert (AT) gmail (DOT) com or (727)577-5971 or Joanne Hatchett at sjhatch (AT) sbcglobal (DOT) net or or or , ext. 6559. We are available tohelp you be a part of our Second Successful Virtual Walk to raisefunds for PSC research. Ami mom to - 8 yrs - Double Lung Tx 2/26/2006, PSC - Pre-Liver Tx, Central DI, Steroid Induced Diabetes, HypoT, GERD, High BP, ADD, Anemia,

Osteopenia, Gastroperesis, Varices mom to Emma - 13 yrs - Migraines, otherwise healthy stepmom to - 14 yrs - ADHD, ODD ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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[Guest guest]

Hooray for you Amy ! Absolutely you can start as soon as you get your kit.As far as the brochures go, Barb Henshaw is distributing them for us. Just go to the Partners website and click on brochures.The contact information is there.Thanks so much Amy.LeeLove the poem you sent.  I know that you have true courage. You have been through so much with .That you can still find the energy to walk with us and to help others too is a wonderful thing. Is it at all possible for a person to begin the Virtual Walk early?  I would like to be able to have the shirt and take donations at our Benefit Dinner, if possible.  Also, who do I talk to about getting the PSC brochures?  I'd like to have some for there, and some for 's clinic, though I have no idea how many would be appropriate, so I need some guidance. Thanks!! Ami