Re: Need encouragement, and any ideas -

[Guest guest]

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> I don't have any words of wisdom for you but just wanted to say I'm

sorry you are having such a hard time. Also wondering if this

Thanks, . I am feeling a little more familiar with the

territory at this point, but it was an unpleasant surprise to have

this new set of symptoms.

paresthesias wasn't what our little one was talking about when she

stated her hand felt funny on round. She alternated this complaint of

paresthesias with saying her hand was numb so I'm thinking it is the

same thing.

Yep, that sounds similar. It was really intense on these two past

bad rounds. In my legs, there was also a feeling of heat involved

and it felt like I was walking through fire. My arms were not as

bad. The facial paresthesia was strange because it made my face

feel like it was twisted into odd expressions.

> We are still trying to figure out what to do here. We tried a round

of low dose dmps and got the same symptoms we had on the dmsa/ala, a

little tic or whatever it is. Our family decided to ask Andy to

consult as we are at a loss here. Other than that she is doing well,

the tic/twitchy thing is gone, she completed her first week at school

and is doing great, we just can't chelate w/o getting this side effect.

It is especially unnerving for you since things seemed to be going

so well. I have had ups and downs all along the way. Some progress,

but I keep getting tripped up with the hormone balance business, etc.

You have had that, too. Did you get the thyroid issue worked out?

I hope having Andy's input will help.

> I did do a cursory search of paresthesias and found a good article

that I will try to post and among other things they mention a B12

deficiency. Have you had your B12 checked lately?

Thanks, I'd like to see it if it's easy to post the link. My B12 was

way high several months ago, looking like maybe an issue of not using

it, so maybe this is a problem. I haven't had it checked since then.

So many things to track and keep up with.

> Hope things get better for you.

Thanks for the good wishes. This round would almost have to be

better than the last two. Law of averages - hah!

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[Guest guest]

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> Have you changed brands of anything? Added any new supplements, drugs

> or foods? Or switched pharmacies for any prescriptions? Or has a

> name-brand med gone generic? (I've had trouble with that changing the

> whole picture, especially when they change generics, which only have

> to be within 20% of the brand name anyway.)

It is hard to think back to when all this started a couple of weeks

ago, but I'm sure I thought about it at the time. I don't think

it is a supplement issue.

It could simply be that I had some redistribution at the end of the

prior round and I didn't " feel it " until I started the next round.

I did have some very slight paresthesia feelings in the prior

weeks and months, but nothing like these last few rounds.

> Also, are you certain you haven't had any accidental exposure? The

> first thing that comes to mind for me, for accidental exposure, is

> broken flourescents... especially in stores and other buildings where

> I don't have control.

I am not aware of anything, but I agree this can happen without

knowing about it. So possible.

> If you did OK on the DMPS alone, I would suggest going back to basics

> and doing a few rounds of just DMPS to stabilize.

I continued DMPS alone after last round, so when I started ALA

yesterday I was just adding it back to the DMPS round. The thing

is I never feel anything from DMPS - well, maybe some pulse/thump

feelings, but no significant symptoms (except sometimes at the

very beginning of the round, but that is just redistribution from

prior round and goes away pretty quickly).

In particular, I was not having any of these paresthesias or

anxiety on the DMPS alone. So I think in order to get rid of

the symptoms, I'm going to have to use ALA to get rid of the

metals causing them. I sure am much more comfortable on 8 mg

again instead of 16 mg.

> You know far more about this than I do, but I would think that even

> without any outside/artificial changes, the detoxification process

> itself causes changes to the body system. So it's an ongoing process

> of tuning and refinement. And you are one of the best at that, so

> don't lose hope!

Well, what you are seeing is just that I have been doing this for

2+ years and I have looked things up over and over and over and

over while trying to figure out what is going on. All I am good

at is repeating basic truths that I have learned Andy is so right

about.

Thanks for the encouragement!

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[Guest guest]

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I've followed what you've been doing over on HHN, and I'm glad

to hear the GI treatments are helping you. I do think I have

some type of pathogens, but I have put money into testing over

the years and I get some pretty perfect looking test results,

so it's not clear what to do next. I continue to " manage " my

dysbiosis problem with candidase, biotin, coconut oil, diet,

etc, but it's clearly getting worse. I never show yeast at all

on testing, my good bacteria is usually good (I take tons of

probiotics). Bad bacteria was a problem once, but usually not.

Enzymes help, but certainly don't do the whole job. I probably

need more extensive testing for either parasites or stealth

infections at some point. I've seen the information on these

on HHN, too. There is one case study posted there about " high

progesterone/low progesterone " or something like that - sounds

*exactly* like me.

Anyway, so glad to hear you are starting to feel better! And

good luck with testing the kids and dh. I'm betting you'll learn

some useful information.

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