Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Matt - I am glad that your headaches are better and you have gotten some relief. Thanks for the book recommendation! Take care, Kim MS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube > or the headaches? Must be some nasty headaches! I > am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. > Well, best to find out right away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator >Im not sure if it ever ends, but at least i am feeling better right now- my headaches have even diminshed a lot the past two days-That one shot of enbral must have at least accumplished that for me. For those of u who are mystery book fans, i just finished reading the new Marthas vineyard mystery " A Vineyard Prey " and really enjoyed it. It is written by Philip Craig, I think u will like it. . ____________________________________________________ Yahoo! Sports Rekindle the Rivalries. Sign up for Fantasy Football http://football.fantasysports.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube > or the headaches? Must be some nasty headaches! I > am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. > Well, best to find out right away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator >Im not sure if it ever ends, but at least i am feeling better right now- my headaches have even diminshed a lot the past two days-That one shot of enbral must have at least accumplished that for me. For those of u who are mystery book fans, i just finished reading the new Marthas vineyard mystery " A Vineyard Prey " and really enjoyed it. It is written by Philip Craig, I think u will like it. . ____________________________________________________ Yahoo! Sports Rekindle the Rivalries. Sign up for Fantasy Football http://football.fantasysports.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube > or the headaches? Must be some nasty headaches! I > am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. > Well, best to find out right away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator >Im not sure if it ever ends, but at least i am feeling better right now- my headaches have even diminshed a lot the past two days-That one shot of enbral must have at least accumplished that for me. For those of u who are mystery book fans, i just finished reading the new Marthas vineyard mystery " A Vineyard Prey " and really enjoyed it. It is written by Philip Craig, I think u will like it. . ____________________________________________________ Yahoo! Sports Rekindle the Rivalries. Sign up for Fantasy Football http://football.fantasysports.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Matt, I'm glad the mystery lump is improving. There is a saying in medicine, "When you hear hoofbeats in the night, think horses, not zebras." But when our lives are full of zebras, Tasmanian devils & snail darters. . .I mean, we are walking zebras! All the doctors tried to tell us we were just horses, but we are zebras. So when something weird pops up, like a mystery lump, it's natural to fear the worst. I recently had an abscess on my chest. Started like a small boil & within a day was red, hard, painful & enlarging rapidly. I started an antiobiotic after moist warm packs didn't help, but I wish I would have thought to try salt pork! I forget who wrote that message, but I used to know that. If there is a next time, I'm going to try that first thing; maybe I'll be able to avoid antibiotics. Rose Re: Matt in seattle Matt - LOL, what a distraction! Would you rather have a draining lump with a tube or the headaches? Must be some nasty headaches! I am sure many can relate, you are not alone. I am sorry the enbral isnt going to work out for you. That is a shame. Well, best to find out right away I guess. Does it ever end? Take care, Kim NS Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Matt, I'm glad the mystery lump is improving. There is a saying in medicine, "When you hear hoofbeats in the night, think horses, not zebras." But when our lives are full of zebras, Tasmanian devils & snail darters. . .I mean, we are walking zebras! All the doctors tried to tell us we were just horses, but we are zebras. So when something weird pops up, like a mystery lump, it's natural to fear the worst. I recently had an abscess on my chest. Started like a small boil & within a day was red, hard, painful & enlarging rapidly. I started an antiobiotic after moist warm packs didn't help, but I wish I would have thought to try salt pork! I forget who wrote that message, but I used to know that. If there is a next time, I'm going to try that first thing; maybe I'll be able to avoid antibiotics. Rose Re: Matt in seattle Matt - LOL, what a distraction! Would you rather have a draining lump with a tube or the headaches? Must be some nasty headaches! I am sure many can relate, you are not alone. I am sorry the enbral isnt going to work out for you. That is a shame. Well, best to find out right away I guess. Does it ever end? Take care, Kim NS Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Matt, I'm glad the mystery lump is improving. There is a saying in medicine, "When you hear hoofbeats in the night, think horses, not zebras." But when our lives are full of zebras, Tasmanian devils & snail darters. . .I mean, we are walking zebras! All the doctors tried to tell us we were just horses, but we are zebras. So when something weird pops up, like a mystery lump, it's natural to fear the worst. I recently had an abscess on my chest. Started like a small boil & within a day was red, hard, painful & enlarging rapidly. I started an antiobiotic after moist warm packs didn't help, but I wish I would have thought to try salt pork! I forget who wrote that message, but I used to know that. If there is a next time, I'm going to try that first thing; maybe I'll be able to avoid antibiotics. Rose Re: Matt in seattle Matt - LOL, what a distraction! Would you rather have a draining lump with a tube or the headaches? Must be some nasty headaches! I am sure many can relate, you are not alone. I am sorry the enbral isnt going to work out for you. That is a shame. Well, best to find out right away I guess. Does it ever end? Take care, Kim NS Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Matt Congrats on the Remicade! Everyone says it is a miracle drug for Sarc. among other things. I am anxious to know how you do with it. Keep us posted. Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Matt Congrats on the Remicade! Everyone says it is a miracle drug for Sarc. among other things. I am anxious to know how you do with it. Keep us posted. Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 --- Rose mamadog@...> wrote: > Matt, I'm glad the mystery lump is improving. There > is a saying in medicine, " When you hear hoofbeats in > the night, think horses, not zebras. " But when our > lives are full of zebras, Tasmanian devils & snail > darters. . .I mean, we are walking zebras! All the > doctors tried to tell us we were just horses, but we > are zebras. So when something weird pops up, like a > mystery lump, it's natural to fear the worst. I > recently had an abscess on my chest. Started like a > small boil & within a day was red, hard, painful & > enlarging rapidly. I started an antiobiotic after > moist warm packs didn't help, but I wish I would > have thought to try salt pork! I forget who wrote > that message, but I used to know that. If there is > a next time, I'm going to try that first thing; > maybe I'll be able to avoid antibiotics. Rose > Dear rose- I went back to the doc today and they drained it again. said it was looking much better-had to put on a new bndadge as i got a reaction to the medical tape that they were using. They will take another look at it on monday, > > > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube or the headaches? Must be > some nasty headaches! I am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. Well, best to find out right > away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant > messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 --- Rose mamadog@...> wrote: > Matt, I'm glad the mystery lump is improving. There > is a saying in medicine, " When you hear hoofbeats in > the night, think horses, not zebras. " But when our > lives are full of zebras, Tasmanian devils & snail > darters. . .I mean, we are walking zebras! All the > doctors tried to tell us we were just horses, but we > are zebras. So when something weird pops up, like a > mystery lump, it's natural to fear the worst. I > recently had an abscess on my chest. Started like a > small boil & within a day was red, hard, painful & > enlarging rapidly. I started an antiobiotic after > moist warm packs didn't help, but I wish I would > have thought to try salt pork! I forget who wrote > that message, but I used to know that. If there is > a next time, I'm going to try that first thing; > maybe I'll be able to avoid antibiotics. Rose > Dear rose- I went back to the doc today and they drained it again. said it was looking much better-had to put on a new bndadge as i got a reaction to the medical tape that they were using. They will take another look at it on monday, > > > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube or the headaches? Must be > some nasty headaches! I am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. Well, best to find out right > away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant > messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 --- Rose mamadog@...> wrote: > Matt, I'm glad the mystery lump is improving. There > is a saying in medicine, " When you hear hoofbeats in > the night, think horses, not zebras. " But when our > lives are full of zebras, Tasmanian devils & snail > darters. . .I mean, we are walking zebras! All the > doctors tried to tell us we were just horses, but we > are zebras. So when something weird pops up, like a > mystery lump, it's natural to fear the worst. I > recently had an abscess on my chest. Started like a > small boil & within a day was red, hard, painful & > enlarging rapidly. I started an antiobiotic after > moist warm packs didn't help, but I wish I would > have thought to try salt pork! I forget who wrote > that message, but I used to know that. If there is > a next time, I'm going to try that first thing; > maybe I'll be able to avoid antibiotics. Rose > Dear rose- I went back to the doc today and they drained it again. said it was looking much better-had to put on a new bndadge as i got a reaction to the medical tape that they were using. They will take another look at it on monday, > > > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube or the headaches? Must be > some nasty headaches! I am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. Well, best to find out right > away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant > messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 --- Rose mamadog@...> wrote: > Matt, I'm glad the mystery lump is improving. There > is a saying in medicine, " When you hear hoofbeats in > the night, think horses, not zebras. " But when our > lives are full of zebras, Tasmanian devils & snail > darters. . .I mean, we are walking zebras! All the > doctors tried to tell us we were just horses, but we > are zebras. So when something weird pops up, like a > mystery lump, it's natural to fear the worst. I > recently had an abscess on my chest. Started like a > small boil & within a day was red, hard, painful & > enlarging rapidly. I started an antiobiotic after > moist warm packs didn't help, but I wish I would > have thought to try salt pork! I forget who wrote > that message, but I used to know that. If there is > a next time, I'm going to try that first thing; > maybe I'll be able to avoid antibiotics. Rose > Dear rose- I went back to the doc today and they drained it again. said it was looking much better-had to put on a new bndadge as i got a reaction to the medical tape that they were using. They will take another look at it on monday, > > > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube or the headaches? Must be > some nasty headaches! I am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. Well, best to find out right > away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant > messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 --- Rose mamadog@...> wrote: > Matt, I'm glad the mystery lump is improving. There > is a saying in medicine, " When you hear hoofbeats in > the night, think horses, not zebras. " But when our > lives are full of zebras, Tasmanian devils & snail > darters. . .I mean, we are walking zebras! All the > doctors tried to tell us we were just horses, but we > are zebras. So when something weird pops up, like a > mystery lump, it's natural to fear the worst. I > recently had an abscess on my chest. Started like a > small boil & within a day was red, hard, painful & > enlarging rapidly. I started an antiobiotic after > moist warm packs didn't help, but I wish I would > have thought to try salt pork! I forget who wrote > that message, but I used to know that. If there is > a next time, I'm going to try that first thing; > maybe I'll be able to avoid antibiotics. Rose > Dear rose- I went back to the doc today and they drained it again. said it was looking much better-had to put on a new bndadge as i got a reaction to the medical tape that they were using. They will take another look at it on monday, > > > Matt - > > LOL, what a distraction! Would you rather have a > draining lump with a tube or the headaches? Must be > some nasty headaches! I am sure many can relate, > you are not alone. > > I am sorry the enbral isnt going to work out for > you. That is a shame. Well, best to find out right > away I guess. > > Does it ever end? > > Take care, > Kim > NS Moderator > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant > messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Matt - I will be anxious to hear how things go with your meeting and hoping that they work out. I bet it is interesting to be on the other side of things after your experiences, gives you a unique perspective I imagine. I am glad your headaches have calmed down, too bad they havent went away all together for you. Hopefully this will come soon, now that you are on the new meds. Take care, keep us posted, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Matt - I will be anxious to hear how things go with your meeting and hoping that they work out. I bet it is interesting to be on the other side of things after your experiences, gives you a unique perspective I imagine. I am glad your headaches have calmed down, too bad they havent went away all together for you. Hopefully this will come soon, now that you are on the new meds. Take care, keep us posted, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Dear Matt, This is wonderful news! I am glad things went so well, it is great to hear a bit of good news for a change! YIPPEE! Now to finish settling the headaches down! Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Dear Matt, This is wonderful news! I am glad things went so well, it is great to hear a bit of good news for a change! YIPPEE! Now to finish settling the headaches down! Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Dear Matt, This is wonderful news! I am glad things went so well, it is great to hear a bit of good news for a change! YIPPEE! Now to finish settling the headaches down! Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > I will be anxious to hear how things go with your > meeting and hoping that > they work out. I bet it is interesting to be on the > other side of things after > your experiences, gives you a unique perspective I > imagine. I am glad your > headaches have calmed down, too bad they havent > went away all together for > you. Hopefully this will come soon, now that you > are on the new meds. > > Take care, keep us posted, > Kim > NS Moderator > Kim- my meeting went real well-I was told that they need to verify my diagnosis with my doc and that it would take about three days after that for me to get on the program. The social worker I met with said trhat she would call my doctor tnstead of waiting for a report from him so that i could be accepted into the program by as early as friday or the begining of next week.The state will cover my medical bills untill i get on SSDI which is the best part of it. Matt __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > I will be anxious to hear how things go with your > meeting and hoping that > they work out. I bet it is interesting to be on the > other side of things after > your experiences, gives you a unique perspective I > imagine. I am glad your > headaches have calmed down, too bad they havent > went away all together for > you. Hopefully this will come soon, now that you > are on the new meds. > > Take care, keep us posted, > Kim > NS Moderator > Kim- my meeting went real well-I was told that they need to verify my diagnosis with my doc and that it would take about three days after that for me to get on the program. The social worker I met with said trhat she would call my doctor tnstead of waiting for a report from him so that i could be accepted into the program by as early as friday or the begining of next week.The state will cover my medical bills untill i get on SSDI which is the best part of it. Matt __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 --- NeuroSarcoid66@... wrote: > Matt - > > I will be anxious to hear how things go with your > meeting and hoping that > they work out. I bet it is interesting to be on the > other side of things after > your experiences, gives you a unique perspective I > imagine. I am glad your > headaches have calmed down, too bad they havent > went away all together for > you. Hopefully this will come soon, now that you > are on the new meds. > > Take care, keep us posted, > Kim > NS Moderator > Kim- my meeting went real well-I was told that they need to verify my diagnosis with my doc and that it would take about three days after that for me to get on the program. The social worker I met with said trhat she would call my doctor tnstead of waiting for a report from him so that i could be accepted into the program by as early as friday or the begining of next week.The state will cover my medical bills untill i get on SSDI which is the best part of it. Matt __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 My headaches have gone down and the lump under my arm is alot smaller. (Hip-Hip-Hooray!!!...Yahoo!...Yippee!!!) i have my meeting with the state welfare people next tuesday to find out if i get on the state version of SSDI. (How did you do?!?!? ... do all states have this? ... does this supplement the federal SSDI once awarded? ...or does it stop once you win your federal SSDI? ... I wonder if NJ has anything like this?...I guess my SS attorney would have told me so???)Joan, thanks for the nice compliment. (You are quite welcome!) "I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 --- pickstands@... wrote: > > > In a message dated 6/17/2005 5:44:22 P.M. Eastern > Standard Time, > NeuroSarcoid66@... writes: > > Matt > > Congrats on the Remicade! Everyone says it is a > miracle drug for Sarc. among > other things. I am anxious to know how you do with > it. Keep us posted. > > Take care, > Kim > NS Moderator > > Kim- I had a surprize when i went to the doc the other day and they told me the new meds were not Remicade as i had thought but were someting else . It turns out >that the health co-op that i belong to has this commitee that reviews all med requests from the docs and they turned me down for Remicade so the doc changed it to this new med which no one told me about untill i asked about it. the name on the bottle says Azathioprine but i cant remember its more common name. im glad i happened to ask about the new meds because otherwise i dont know if they would have ever told me that it had been changed. Take Care, Matt > > > Why can't you try Remicade? > > Miss you!!!, > Joan > > " I believe that friends are quiet angels who lift > us to our feet when our > wings have trouble remembering how to fly. " > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 --- pickstands@... wrote: > > > In a message dated 6/17/2005 5:44:22 P.M. Eastern > Standard Time, > NeuroSarcoid66@... writes: > > Matt > > Congrats on the Remicade! Everyone says it is a > miracle drug for Sarc. among > other things. I am anxious to know how you do with > it. Keep us posted. > > Take care, > Kim > NS Moderator > > Kim- I had a surprize when i went to the doc the other day and they told me the new meds were not Remicade as i had thought but were someting else . It turns out >that the health co-op that i belong to has this commitee that reviews all med requests from the docs and they turned me down for Remicade so the doc changed it to this new med which no one told me about untill i asked about it. the name on the bottle says Azathioprine but i cant remember its more common name. im glad i happened to ask about the new meds because otherwise i dont know if they would have ever told me that it had been changed. Take Care, Matt > > > Why can't you try Remicade? > > Miss you!!!, > Joan > > " I believe that friends are quiet angels who lift > us to our feet when our > wings have trouble remembering how to fly. " > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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