Re: Fibro exttremes

[Guest guest]

Bethann

I would love purple crutch pads, or even a cane that

is a decent pretty color that I want and not what the

manufactures think. So I totally agree with you.

Diane

Ga.

--- Bethann wrote:

> I am posting now because I am frustrated with

> something in the real

> world... I need to get a new car because my

> wheelchair doesn't fit

> well enough in this one, and my car is only 3.5

> years old and its got

> every bell, buzzer and whstle I wanted, and although

> I can get teh

> chair out, its difficult and wears me out so I can't

> do that more

> than once or so a day so " they " decided I needed to

> get rid of my

> beloved, posh Vectra and get a wheelchair car. Its

> because I

> have " advanced " at work, meaning I need to go in and

> out during the

> day, and because we can't rely on parking I need

> reliable ways to go

> disatcnes my back and legs wont go on their own. (as

> an aside, the UK

> has excellent suport for disabled in employment, is

> it worth a post?)

>

> How come whoever makes cars thinks that all disabled

> people have

> compeltely lost their sense of taste and seem to

> think we WANT to

> drive the box-on-wheels things that they sell for

> wheelchairs? The

> only cars I have found that I can get the chair in

> other than the

> sqauare things (Kangoo (or rather KangootoHADES in

> my mind) and the

> Berlingo (or Berlingofaraway)) are the Vauxhall

> Zafira- which takes

> 12 weeks to get here, and the Kia Sedona which won't

> take a trade in.

> The car I wanted, the Nissan Qashqai, has a real

> sapre tire, but 3

> inches too little head room. The car lease scheme

> for the disabled is

> good- have teh car for 3 years and hand it back, and

> for the mobility

> benefit you get, you have a car, insurance, all

> maintenance, car tax,

> etc, all you pay is fuel. But, an automatic, air

> conditioning and of

> course the enourmous boot all mean a huge advance

> payment that you

> just give to the car dealer and have nothing for

> except a more than

> basic car.

>

> That and except for the blessing of the ricability

> site, none of the

> car dealers seem to measure their back-of-the-car

> room in anything

> but litres. If I could melt the car down, then pour

> it in, litres

> would be helpful, but I really need inches or

> centimetres.

>

> How come elbow crutches only come in black? Isn;t

> there any purple or

> pink or glittery stuff they could make the vinyl

> components? Why when

> you become disabled is the world suddenly about

> utlity instead of

> choice, beauty and posh, zippy cars that look good

> as they speed past?

>

> I wish people who think they understand disability,

> what it measn and

> what people need could all have the reqirement to be

> disabled; then

> there would be nice cars that fit wheelchairs,

> purple elbow crutches,

> and we would live in a world where the disbaled

> parking was

> everywhere and the able bodied had to beg for a

> space when one of US

> pulled out of it.

>

> Just thought I would share with people who

> understand! WOuld it be of

> interest to post for about Motability in the UK, and

> the kinds of

> benefits and processes there are here for the

> disabled?

>

> Bethannn

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>