Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 I do not often post to this site but I wonder if some could provide feedback on the time it usually takes to recover from a liver transplant and get back to work on a full time basis. I have had PSC diagnosed for 11 years and most recently my Meld score has been bouncing between 18 and 25 with billirubin between 19 and 24. I am on constant antibiotic therapy (Cipro and Augmentin) at high doses to fight infection and fever. I have ERCPs every three weeks and constantly have three stents in my ducts (there are only three ducts that are still open since the balance have scarred up due to having ERCPs for the last5 years. Since I am on the transplant list at UCSF where the average wait time is 2 to 3 years if not longer, and one must have a Meld in excess of about 27 to obtain a liver, I am going to have my transplant at the Mayo Clinic in ville since it is a private hospital and I am fortunate to have wonderful health insurance. The wait time there is about 1 month for someone at my Meld ranges. My transplant should take place sometime in April. I often read about the complications that members suffer after liver transplants, since this group is biased by nature to those who are more ill and have more complications. Of you who are relatively healthy, in their fifties or forties, what have been your experiences regarding time it has taken you to recover after transplant? I am wondering when my long term private disability insurance will be taken from me after recovery from surgery. I have heard as short as six months after transplant. However other sources say that disability usually extends at least for one year after transplant. Have any of you had physicians who have refused to sign extensions of disability even though you did not feel well enough to get back to full time employment? Thank you in advance for reading this post and I wish you all the fortitude and strength to fight this frustrating disease. Listed for transplant in August 2006. Diagnosed PSC since 1996, elevated liver enzymes since 1975 Quote Link to comment Share on other sites More sharing options...
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