Help, problem--long

[Guest guest]

Sorry for the bad timing but admidst the success stories, we need some help. I'm

back and...Houston we have a problem. Three rounds ago I reported a rough round

where my dgd (6.5years) complained of headaches and had some minor word

retrieval problems along with some trembling while on round.

Recap: 6.5 years, 51 lbs, we are on round 116, starting in February 2005. We did

30 rounds Dmsa/ala, then 5 rounds td-dmps, then 25 rounds td-dmps/ala, 10 round

of just Ala (saw her lose a little ground here) then 45 rounds dmsa/ala. All

low/frequent dosing, according to the chelator.

At 4 we took her twice for a dx and she got adhd both times but I have worked

with children for over 15 years in a professional capacity, and clearly

something else was going on. On any given day she could have been given an Adhd

or Pdd-nos or Asperger's dx. She never had any behavioral manifestations of

Autism, no flapping or stimming but there were clearly auditory processing

problems, sensory difficulties and social skills which were her biggest

problem.

She is taking Life Extension's multiple with 90 different things in it, but she

tolerates it well. Additionally she gets cod liver oil and Idbenone, Beta Glucan

and Neutrophil Plus. We recently added some Calcium as her hair test showed she

was yellow low and some additional magnesium to balance the calcium.She takes

3/4 grain Armour due to hypothyroidism. If the dosage is too low she will appear

Add, if the dosage is right there are no problems with her attention.

All blood work looks fine, great even, and yeast is gone, even on rounds and

this is miraculous. She has great cognitive skills, receptive and expressive

language are now many years ahead of her age. Good abstract thinking. No

learning disabilities and her planning, both motor and cognitive is exceptional.

Language articulation has always been clear.

Good social skills...makes friends easily and keeps them. She has good theory of

mind and is quite astute at reading even subtle social skills. She is friendly

to adults but prefers kids. I watched her at her parents July 4th party very at

ease greeting people at the door, thanking them for coming, asking if she could

take their coat or hat, etc. Honestly I've seen kids twice her age who have half

her social skills.

Teacher reports she is quite popular among all the children and this fits with

what we hear and observe. She has two friends she plays with mostly and they are

well behaved and bright and are not ADD, although the one is a little sensitive,

like her. We were thinking we would finish chelation this summer.

Our problem which appears to have started on that round, 3 rounds ago is

appearing both off and on round, although it is highly exacerbated while on

round and then starts to fade off round. It started as a tremor, her arms and

has progressed to a whole movement with her tensing her arms. It looks like what

I have been taught is a choreiform movement. It most always occurs while she is

in a particular emotional state of anticipating something she is looking forward

to. She has also gotten quite hyper on round and this movement is most

pronounced when she is in church, some place she has to sit still.

This movement does not seem to be involuntary as she can stop it but this time I

saw with the movement a squinting of her left eye..concerning as it seems to be

getting worse on round. There have been no further word retrieval problems. My

dd reported that while shopping today she announced that her head felt funny and

then had what my dd called a " spasm " . Wth?

Another additional incident occured on this round. Her mother had moved the

carbon monoxide detector and it beeped. My dgd got keyed up emotionally and had

a lot of fears the beeping meant her and her mother should leave the house. I

got a call from the dgd who was in tears telling me that the CO detector beeping

meant they were in danger. I was able to calm her down but this is atypical for

her; both not to believe her mother, and to need additional assurance from me.

No " episode " occurred during this time.

So my questions are wth is going on? She hasn't lost a thing cognitively, yet

but I'm afraid if we keep at it that is where it will go. I know kids/adults

have a " stall " period where things can get worse, and she had a normal stall,

but we should be loooooong past that, so what is causing this movement. Are we

doing more damage by continuing to chelate? Can you over chelate? Is it

possible she is just starting to absorb the Ala after all this time?

I'm at a loss here as what to think and feel like I'm flying blind. I have read

here about lots of people who had trouble starting Ala, but after 2+ years of

chelation why would we be seeing problems now?