Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 Tina, EBV is nothing new. It is the virus that causes mononucleosis usually in adolescents or young adults. The CDC estimates that around 95% of all adults in the US have been exposed to EBV. It's one of the herpes viruses and in that sense is related to the virus that causes a cold sore and the virus that causes chicken pox. There are theories that exposure to EBV can be a trigger for things like fibromyalgia, chronic fatigue syndrome, assorted auto-immune dieases even MS. They are studying this now but it will be probably take a long time for them to figure this all out. For the average healthy individual EBV poses no greater risk than the common cold. Most people who get it have absolutely no symptoms and never know they've had it! Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 "Maybe Christmas," he thought, "doesn't come from a store. Maybe Christmas... perhaps... means a little bit more." Dr. Seuss To: Breathe-Support Sent: Monday, December 22, 2008 2:21:02 PMSubject: EBV Hi Peggy,The Epstein Barr Virus must be getting around. I never heard of it until a few weeks ago when my daughter's best friend, and sister-in-law, , was diagnosed with it. She had been hospitalized for about a week and they said she also had Mono. was so terribly sick. I don't know if she had a rash or not, but I know they were very worried about her. She lost about 20 pounds and that was a lot of weight for a girl of only about 130 anyway. She is only 21 years old and she is a college student. From what I've been told she has missed practically this whole semester. I saw her for teh first time last Monday while I was visiting (my daughter). I couldn't believe how fragile she still looked. I was very careful to keep my distance from her, but I did spend the night in the same house! I am still recovering from another bout with pneumonia and still on Prednisone, so I know how careful I have to be. I hope your granddaughter' s recovery is quick and that you get to see her soon. God Bless, Tina >> Hi Joe & Joanie, I have a grand-daughter in the hospital right now > with EBV. her complete body is covered in> a rash. palms of her hands bottoms of her feet. I have never seen > anything like it. They send me phone pictures.> She may get home today or tomorrow.> > Anyhow what is it about the virus being in the lungs??> > > Love & Prayers, Peggy> Florida, IPF/UIP 2004> > "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly."> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 wow, MB I wish burbur would have been that lucky.. She called and said she isn't itching today. I think it is because she wants to go home. they have her on steroids and bathing her in calamine lotion. rash is still RED and everywhere. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 Tina/Peggy Actually most of the time when you hear about the Epstein Barr Virus its just what we always called mononucleosis. Around 95% of us get EBV during our lives. When it occurs as a child we generally don't detect it versus any other illness. However, when it occurs during adolescence or young adulthood as the girls you have both mentioned, it causes infectious mononucleosis 35-50% of the time. The virus is normally transmitted only through saliva, not through the air. Therefore, avoiding it is not generally an issue. Furthermore, since most healthy people also carry the virus you can get it from most anyone. Healthy people can spread the virus intermittently for life. Therefore, transmission of the virus is generally impossible to prevent. There is no real treatment for infectious mononucleosis although a few days of steroids is sometimes used just to reduce swelling. It generally lasts no more than four months. So, what we thought is new is really quite old. I remember mono throughout my high school and college. It was known then as the " kissing disease " . The other way it was considered to be spread then was the sharing of drinks. Now, we have knowledge of the underlying virus, EBV. I'm sure the studies underway are to determine if EBV is the cause of other things including any relationship to PF. Here is the link for EBV information: http://www.cdc.gov/ncidod/diseases/ebv.htm > > > > Hi Joe & Joanie, I have a grand-daughter in the hospital right now > > with EBV. her complete body is covered in > > a rash. palms of her hands bottoms of her feet. I have never seen > > anything like it. They send me phone pictures. > > She may get home today or tomorrow. > > > > Anyhow what is it about the virus being in the lungs?? > > > > > > Love & Prayers, Peggy > > Florida, IPF/UIP 2004 > > > > " I believe that friends are quiet angels who lift us to our feet, > > when our wings have trouble remembering how to fly. " > > > > > >  > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 MB Darn, while I was typing, you beat me to it....lol. We always do that. > > > > Hi Joe & Joanie, I have a grand-daughter in the hospital right now > > with EBV. her complete body is covered in > > a rash. palms of her hands bottoms of her feet. I have never seen > > anything like it. They send me phone pictures. > > She may get home today or tomorrow. > > > > Anyhow what is it about the virus being in the lungs?? > > > > > > Love & Prayers, Peggy > > Florida, IPF/UIP 2004 > > > > " I believe that friends are quiet angels who lift us to our feet, > > when our wings have trouble remembering how to fly. " > > > > > >  > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2008 Report Share Posted December 22, 2008 Peggy, I wasn't lucky either. I had it when I was in high school and I missed about a month of school. I never had the rash that she's having. You said the doctor mentioned she had a particularly severe case. Poor Amber, she can't get a break! Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 "Maybe Christmas," he thought, "doesn't come from a store. Maybe Christmas... perhaps... means a little bit more." Dr. Seuss To: Breathe-Support Sent: Monday, December 22, 2008 2:35:40 PMSubject: Re: EBVwow, MB I wish burbur would have been that lucky.. She called and said she isn't itching today. I think it is because she wants to go home. they have her on steroids and bathing her in calamine lotion. rash is still RED and everywhere. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
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