Re: IMURAN.... anyone taken it? on it? previously on it?

[Guest guest]

this E-mail address failed...

www.angelindisguiseldn@...-UC - 1 yearSCD - 1 month 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!10mg prednisone (tapering down to 0 because it's doing nothing)Hydrocortisone when I need it.

To: BTVC-SCD From: cpompilo@...Date: Mon, 6 Jul 2009 17:58:09 -0500Subject: RE: IMURAN.... anyone taken it? on it? previously on it?

Hello,

Crystal keeps a list of doctors across the country who prescribe LDN. Her email is www.angelindisguiseldn (AT) yahoo (DOT) com Let her know what city.

I would try LDN (www.LowDoseNaltrexone.org) first.

Carol

CD 21 yrs

SCD 4.5 yrs

B12 shots & LDN

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of scdguy26

My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to that level of drug yet (his response to me was find another doctor then) So, i'm thinking about taking it but I want to hear stories from people that have taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the rest of my life.

Windows Live™: Keep your life in sync. Check it out.

[Guest guest]

He has been in the practice for a long time, and thus it's his way or the highway type of thinking. He wouldn't compromise, so i'm not giving him any more insurance money. His way of thought is start with the big drugs then work your way off of them. Mine is different. Start with a basis of something I am willing to stick with for life such as diet/exercise/ect... and take the drugs until I can get off them if ever.-UC - 1 yearSCD - 1 month 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!10mg prednisone (tapering down to 0 because it's doing nothing)Hydrocortisone when I need it.

To: BTVC-SCD From: smdsmom2008@...Date: Tue, 7 Jul 2009 00:40:59 +0000Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

,I don't know on what basis your doc made that decision, and I certainly don't know more than he does, but I do have some questions.Is there a reason he won't give you more enemas, and a little more time to think things over? Is this an emergency?You have told him you were not comfortable with the "big line" drugs. My GI told me there are two schools of thought with this. One advocates starting with the lesser drugs and moving into the bigger ones if things don't work. Another is to go with the big drugs to try to get as much control as possible. I don't know how he stands with his approach. I think deciding on a drug that you will take for the rest of your life, especially when you are young, is a very emotional step. For some people, it is the right choice, and even if his decision is the right choice, the idea that you listen to him or find another doctor, is no doubt upsetting because it closes off the conversation, and makes it hard for you to communicate with him. I don't have advice, but just hope to validate your feelings and hope you can feel well enough to take the time to explore all your options without risking your health, as it seems there are many approaches.PJ>> > Just Asacol. I wanted to get more entocort enema's but the doc said no. They are a steroid so they are immunosuppressant but they work overnight. Great for me to control my pain/bleeding while I stick with SCD to get things squared away. Also on asacol. I stopped the Prednisone on my own.> > -> UC - 1 year> SCD - 1 month 100% strict and 4 months restricted diet.> Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!> 10mg prednisone (tapering down to 0 because it's doing nothing)> Hydrocortisone when I need it.> > > > > > > To: BTVC-SCD > Date: Mon, 6 Jul 2009 22:17:29 +0000> Subject: Re: IMURAN.... anyone taken it? on it? previously on it?> > > > > > > > GI's have told me the same thing. They are a miserable breed.. wondering what they would do if they were in that position themselves.> > Why don't you look at LDN- Low Dose Naltrexone before you give something like Imuran a shot? You can always go on it if it doesn't help you. Are you on any immunosuppressants noww? > > Jodi> > > > > > > > > > __________________________________________________________> Insert movie times and more without leaving Hotmail®. > http://windowslive.com/Tutorial/Hotmail/QuickAdd?ocid=TXT_TAGLM_WL_HM_Tutorial_QuickAdd_062009>

Windows Live™ SkyDrive™: Get 25 GB of free online storage. Get it on your BlackBerry or iPhone.

[Guest guest]

I was on it but only for a few months.  Lost my insurance and couldn't do the blood tests, afford the medicines (was also on Pentasa and pred).  I didn't have a *choice* either at the time.  I started SCD a little while later.

 

I lost a ton of hair, had a weird skin rash that had to be biopsied, bloated up to where I just toppled over when I bent down...but I can't say what did all that.  I was also put on levaquin in the hospital right before that so nobody ever could say what the reaction was from.

 

It's up to you to decide and it's not a lifelong decision.  It's not like remicade (I don't think?) where you build up antibodies if you start/stop.  I think I caught every kindergarten type of garden variety rash/problem, etc. during that time but it could have been the prednisone which took forever to taper off without flaring back to step one.

 

At that time there wasn't a 'right' decision, everything was going wrong so all I can say is good luck and consider all the options.  The doctor may terminate you but maybe you can find one who will talk to you instead of at you.

 

Debbie 40 cd

not totally compliant with SCD right now either~

[Guest guest]

I am very interested in finding a doctor that will let me try LDN. The link below only took me to the yahoo main page. Please instruct me on how to contact this lady so she can tell me the nearest doctor the me that might prescribe this for me.

Thanks!

Pamela

To: BTVC-SCD From: cpompilo@...Date: Mon, 6 Jul 2009 17:58:09 -0500Subject: RE: IMURAN.... anyone taken it? on it? previously on it?

Hello,

Crystal keeps a list of doctors across the country who prescribe LDN. Her email is www.angelindisguiseldn (AT) yahoo (DOT) com Let her know what city.

I would try LDN (www.LowDoseNaltrexone.org) first.

Carol

CD 21 yrs

SCD 4.5 yrs

B12 shots & LDN

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of scdguy26

My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to that level of drug yet (his response to me was find another doctor then) So, i'm thinking about taking it but I want to hear stories from people that have taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the rest of my life.

found her dream laptop. Find the PC that’s right for you.

[Guest guest]

E-mail addresses don't usually have the prefix www.Vivien

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

My dd was on Imuran for over 2 years with absolutely no side effects (at least

in the short term). We could have taken her off meds earlier than we did, but,

b/c the imuran seemed so innocuous, we waited.....

Good luck finding out what works for you.

Ellen

11 y/o dd scd for three years for Crohn's

med-free for 10 months and doing great

[Guest guest]

My dd was on Imuran for over 2 years with absolutely no side effects (at least

in the short term). We could have taken her off meds earlier than we did, but,

b/c the imuran seemed so innocuous, we waited.....

Good luck finding out what works for you.

Ellen

11 y/o dd scd for three years for Crohn's

med-free for 10 months and doing great

[Guest guest]

My dd was on Imuran for over 2 years with absolutely no side effects (at least

in the short term). We could have taken her off meds earlier than we did, but,

b/c the imuran seemed so innocuous, we waited.....

Good luck finding out what works for you.

Ellen

11 y/o dd scd for three years for Crohn's

med-free for 10 months and doing great

[Guest guest]

This attitude along with his refusal to let you have any more enemas seems a

bit harsh. It may be understandable if you had been using them for years with no

results, but it seems you have been on them for a short while and they were

helping. I hope you can get a more understanding second opinion.

PJ

yahoogroups.com, T wrote:

>

>

> He has been in the practice for a long time, and thus it's his way or the

highway type of thinking. He wouldn't compromise, so i'm not giving him any more

insurance money. His way of thought is start with the big drugs then work your

way off of them. Mine is different. Start with a basis of something I am willing

to stick with for life such as diet/exercise/ect... and take the drugs until I

can get off them if ever.

>

> -

> UC - 1 year

> SCD - 1 month 100% strict and 4 months restricted diet.

> Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!

> 10mg prednisone (tapering down to 0 because it's doing nothing)

> Hydrocortisone when I need it.

>

>

>

>

>

>

> To: BTVC-SCD

> From: smdsmom2008@...

> Date: Tue, 7 Jul 2009 00:40:59 +0000

> Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

>

>

>

>

>

>

>

> ,

> I don't know on what basis your doc made that decision, and I certainly don't

know more than he does, but I do have some questions.

>

> Is there a reason he won't give you more enemas, and a little more time to

think things over? Is this an emergency?

>

> You have told him you were not comfortable with the " big line " drugs. My GI

told me there are two schools of thought with this. One advocates starting with

the lesser drugs and moving into the bigger ones if things don't work. Another

is to go with the big drugs to try to get as much control as possible. I don't

know how he stands with his approach.

>

> I think deciding on a drug that you will take for the rest of your life,

especially when you are young, is a very emotional step. For some people, it is

the right choice, and even if his decision is the right choice, the idea that

you listen to him or find another doctor, is no doubt upsetting because it

closes off the conversation, and makes it hard for you to communicate with him.

>

> I don't have advice, but just hope to validate your feelings and hope you can

feel well enough to take the time to explore all your options without risking

your health, as it seems there are many approaches.

>

> PJ

>

>

> >

> >

> > Just Asacol. I wanted to get more entocort enema's but the doc said no. They

are a steroid so they are immunosuppressant but they work overnight. Great for

me to control my pain/bleeding while I stick with SCD to get things squared

away. Also on asacol. I stopped the Prednisone on my own.

> >

> > -

> > UC - 1 year

> > SCD - 1 month 100% strict and 4 months restricted diet.

> > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!

> > 10mg prednisone (tapering down to 0 because it's doing nothing)

> > Hydrocortisone when I need it.

> >

> >

> >

> >

> >

> >

> > To: BTVC-SCD

> > From: jodah235@

> > Date: Mon, 6 Jul 2009 22:17:29 +0000

> > Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

> >

> >

> >

> >

> >

> >

> >

> > GI's have told me the same thing. They are a miserable breed.. wondering

what they would do if they were in that position themselves.

> >

> > Why don't you look at LDN- Low Dose Naltrexone before you give something

like Imuran a shot? You can always go on it if it doesn't help you. Are you on

any immunosuppressants noww?

> >

> > Jodi

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Insert movie times and more without leaving Hotmail®.

> >

http://windowslive.com/Tutorial/Hotmail/QuickAdd?ocid=TXT_TAGLM_WL_HM_Tutorial_Q\

uickAdd_062009

> >

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Windows Live™ SkyDrive™: Get 25 GB of free online storage.

> http://windowslive.com/online/skydrive?ocid=TXT_TAGLM_WL_SD_25GB_062009

>

[Guest guest]

My mistake. Try angelindisguiseldn@...

If that still does not work, then go to http://health.groups.yahoo.com/group/lowdosenaltrexone/

Join the group and post your question(s) to find a doctor who prescribes

LDN.

Carol

CD 21 yrs

SCD 4.5 yrs

B12 shots & LDN

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of T

this E-mail address failed...

www.angelindisguiseldn@...

-

UC - 1 year

SCD - 1 month 100% strict and 4 months restricted diet.

Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!

10mg prednisone (tapering down to 0 because it's doing nothing)

Hydrocortisone when I need it.

[Guest guest]

In my opinion, there is no crohn's drug that you will be on for the rest of your

life. They will either quit working for you, some better drug will replace it,

or you'll get well enough that you don't need it anymore. Don't let your doc

scare you into thinking you'll have no choice but to take Imuran forever.

I've taken both Imuran and 6MP. They healed my fistulas, but that was the only

good thing they did. I felt terrible (nauseous, exhausted all of the time) while

taking it at therapeutic levels, and when I dropped it down to a tolerable

level, the fistulas came back. Imuran works great for some people, but I wasn't

fond of it. Right now I'm taking Humira, and have done well with it. Hopefully

I'll feel comfortable stopping it within the year.

I'd shop around for a new GI. I don't see anything wrong with giving you time to

research the drug and to decide if it's something you want to try. Not to

mention that I'm not down with ultimatums (they usually just make me want to dig

my heals in and do the opposite of what they want me to do). I recently ditched

a GI that I couldn't communicate with. My new GI is really easy to talk to and

was open to my doing SCD. It was a pain to switch doctors, but I think it will

be worth it.

Holly

Crohn's

SCD 12/01/08

>

> My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to

that level of drug yet (his response to me was find another doctor then) So,

i'm thinking about taking it but I want to hear stories from people that have

taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the

rest of my life.

>

[Guest guest]

I was on Imuran and Pentasa when I went in the hospital 10/07. When I came out I

was on Prednisone, Imuran and Pentasa. After I got off Prednisone, my symptoms

came back just bad if not worse than before my hospital stay. My doctor actually

had me stop Pentasa. After 2 weeks, I had no relief so she told me that

conventional meds would not work for me because I had very aggressive Crohn's

and wanted to put me on Humira or Remicaid. That wasn't an options for 2

reasons: 1. I couldn't afford the meds and 2. I didn't want to take that serious

of a med. That's when I found SCD. I stopped taking all meds and haven't looked

back. I still have symptoms but I control them when what I eat instead of

masking them with immunosuppressors (sp?). I had no side effects the 4 months I

took Imuran but it didn't help either.

Misty Kimble

CD - no meds

SCD - 18 months WOO FREAKING HOO

>

> My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to

that level of drug yet (his response to me was find another doctor then) So,

i'm thinking about taking it but I want to hear stories from people that have

taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the

rest of my life.

>

[Guest guest]

I was on Imuran and Pentasa when I went in the hospital 10/07. When I came out I

was on Prednisone, Imuran and Pentasa. After I got off Prednisone, my symptoms

came back just bad if not worse than before my hospital stay. My doctor actually

had me stop Pentasa. After 2 weeks, I had no relief so she told me that

conventional meds would not work for me because I had very aggressive Crohn's

and wanted to put me on Humira or Remicaid. That wasn't an options for 2

reasons: 1. I couldn't afford the meds and 2. I didn't want to take that serious

of a med. That's when I found SCD. I stopped taking all meds and haven't looked

back. I still have symptoms but I control them when what I eat instead of

masking them with immunosuppressors (sp?). I had no side effects the 4 months I

took Imuran but it didn't help either.

Misty Kimble

CD - no meds

SCD - 18 months WOO FREAKING HOO

>

> My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to

that level of drug yet (his response to me was find another doctor then) So,

i'm thinking about taking it but I want to hear stories from people that have

taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the

rest of my life.

>

[Guest guest]

I was on Imuran and Pentasa when I went in the hospital 10/07. When I came out I

was on Prednisone, Imuran and Pentasa. After I got off Prednisone, my symptoms

came back just bad if not worse than before my hospital stay. My doctor actually

had me stop Pentasa. After 2 weeks, I had no relief so she told me that

conventional meds would not work for me because I had very aggressive Crohn's

and wanted to put me on Humira or Remicaid. That wasn't an options for 2

reasons: 1. I couldn't afford the meds and 2. I didn't want to take that serious

of a med. That's when I found SCD. I stopped taking all meds and haven't looked

back. I still have symptoms but I control them when what I eat instead of

masking them with immunosuppressors (sp?). I had no side effects the 4 months I

took Imuran but it didn't help either.

Misty Kimble

CD - no meds

SCD - 18 months WOO FREAKING HOO

>

> My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to

that level of drug yet (his response to me was find another doctor then) So,

i'm thinking about taking it but I want to hear stories from people that have

taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the

rest of my life.

>

[Guest guest]

I was on Imuran for several months, my doc used it to get me off prednisone but it made me deathly ill, swelling, nausea, vomiting, headaches and finally my ankles swelled so bad I couldn't walk, I had to take percocet and so I just stopped taking the stuff, I found an acupunturist who got rid of the swelling in one week (after 6 months of seeing the doc who gave me the Imuran that started it all). I felt like I was taking chemotherapy or something, it was awful on top of the Crohn's symptoms which didn't get any better either. SCD is the only thing that has worked for me. My doc wanted me to start Humira promising me there were no side effects (although the manufac insert mentions the first side effect is DEATH) I avoid docs as much as possible now (not advising you to however) and mind my diet and things are fine, better than I've ever been. If your doc's knowledge is so limited that

all he knows is what the pharmco sales rep tells him, perhaps it is time to find another one, one who will work with you to try and find a therapy that you are comfortable with.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Tuesday, July 7, 2009 12:14:37 AMSubject: IMURAN.... anyone taken it? on it? previously on it?

My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to that level of drug yet (his response to me was find another doctor then) So, i'm thinking about taking it but I want to hear stories from people that have taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the rest of my life.

[Guest guest]

I was on Imuran for several months, my doc used it to get me off prednisone but it made me deathly ill, swelling, nausea, vomiting, headaches and finally my ankles swelled so bad I couldn't walk, I had to take percocet and so I just stopped taking the stuff, I found an acupunturist who got rid of the swelling in one week (after 6 months of seeing the doc who gave me the Imuran that started it all). I felt like I was taking chemotherapy or something, it was awful on top of the Crohn's symptoms which didn't get any better either. SCD is the only thing that has worked for me. My doc wanted me to start Humira promising me there were no side effects (although the manufac insert mentions the first side effect is DEATH) I avoid docs as much as possible now (not advising you to however) and mind my diet and things are fine, better than I've ever been. If your doc's knowledge is so limited that

all he knows is what the pharmco sales rep tells him, perhaps it is time to find another one, one who will work with you to try and find a therapy that you are comfortable with.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Tuesday, July 7, 2009 12:14:37 AMSubject: IMURAN.... anyone taken it? on it? previously on it?

My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to that level of drug yet (his response to me was find another doctor then) So, i'm thinking about taking it but I want to hear stories from people that have taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the rest of my life.

[Guest guest]

I was on Imuran for several months, my doc used it to get me off prednisone but it made me deathly ill, swelling, nausea, vomiting, headaches and finally my ankles swelled so bad I couldn't walk, I had to take percocet and so I just stopped taking the stuff, I found an acupunturist who got rid of the swelling in one week (after 6 months of seeing the doc who gave me the Imuran that started it all). I felt like I was taking chemotherapy or something, it was awful on top of the Crohn's symptoms which didn't get any better either. SCD is the only thing that has worked for me. My doc wanted me to start Humira promising me there were no side effects (although the manufac insert mentions the first side effect is DEATH) I avoid docs as much as possible now (not advising you to however) and mind my diet and things are fine, better than I've ever been. If your doc's knowledge is so limited that

all he knows is what the pharmco sales rep tells him, perhaps it is time to find another one, one who will work with you to try and find a therapy that you are comfortable with.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Tuesday, July 7, 2009 12:14:37 AMSubject: IMURAN.... anyone taken it? on it? previously on it?

My doctor wants me to start Imuran, but I told him I wasn't rdy to step up to that level of drug yet (his response to me was find another doctor then) So, i'm thinking about taking it but I want to hear stories from people that have taken it. Has SCD enabled you to go off of it? The doc said i'd be on it for the rest of my life.

[Guest guest]

It’s not unlikely that you got the histoplasmosis because

you were on Remicade because of its effect on the immune system. I would

strongly urge you to try LDN before agreeing to go on Humira. Humira works

similarly to Remicade. If you’re not familiar with LDN, look at www.lowdosenaltrexone.org There

are a number of people here who use it along with the SCD, and for most people

it works wonders: taken at night it blocks your opioid receptors for three or

four hours, which in turn causes your body to produce many more endorphins

(people with auto-immune disease have low endorphin levels), which in turn

begins to regulate your immune system. (The first thing you’ll likely notice

will be a big boost in energy level.) But don’t expect even doctors at Mayo

clinic to necessarily know much about LDN and thus recommend it.

Do be careful also with drinking stuff like Ensure. It contains

a lot of sugar. Personally, I’m convinced the SCD approach which allows only the

specific carbs in fruit and honey is a far better approach than a diet that allows

more sugars/starches and cuts out fats (a body, especially a sick body, absolutely

need fats, including saturated fats) – and there’s a lot of evidence to back

that up.

n

Crohn’s 30 years, SCD/LDN six months.

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

Wolf

Sent: Friday, July 10, 2009 2:27 PM

To: BTVC-SCD

Subject: Re: IMURAN.... anyone taken it? on it? previously on

it?

As a senior in college I started having intestinal problems, but I

wasn't formally diagnosed I was diagnosed with Crohn's until about a

year later in 1996, and I was on Imuran for a couple years in the

late 1990s to the early 2000s. I am fortunate to only live 2 1/2

hours from Rochester, Minnesota, and was able to start going to Mayo

Clinic at that time. Every summer since 1996 I have my annual review

at Mayo Clinic.

During that time was was having some flares, would run a fever for a

couple days, and get prescribed a short dose of prednisone to help

get it back under control. In August if 2004 I had a bowel

obstruction, and fortunately it was resolved with no surgery, but did

have a hospital stay for a couple days and was on a liquid then soft

diet for about 6 weeks.

After the obstruction, two variables were changed in my life. First,

my GI doctor started me on Remicade (more on Remidace after diet).

Second, I started to research how diet could affect Crohn's (and

other digestive conditions such as ulcerative colitis). I did get

better, but I think it was a combination of both the Remicade and

changing my diet. At that time, my reference was, and still is, The

New Eating Right For a Bad Gut by Scala. Since then, what I've

discovered both from reading the book and trial and error that I have

to manage my diet, much like a diabetic has to manage his or her

diet. When I stick to my safe foods, I'm good. If I eat some foods

that I shouldn't then the next day, it's a bad day with a lot of time

in the bathroom. Scala's diet isn't as strict as the SCD for carbs.

Basically it's staying away from spicy, fatty and other foods that

are difficult for the body to digest. Fish. fish oil and flaxseed

oil are good because of their anti-inflammatory properties. My wife

has arthritis, and is starting to go gluten-free as she thinks she's

gluten sensitive, and I'm starting to read more about SCD so I can

further modify my diet. The other diet strategy I've used is to drink

Ensure (and the cheaper Wal-mart brand Equate) daily as a diet

supplement- this allows me to eat less food and lower the digestive

load on my colon.

On to Remicade, it was working well until I contracted a lung

infection in November of 2007- histoplasmosis (it used to be called

the bird flu) Because of my compromised immune system, it ended up

spreading and going systemic, a " normal " person would have had flu-

like sys-toms for a couple days and been finished . My local

hospital shipped me up to Rochester to Mayo Clinic/St. 's

Hospital, and I was up there for almost three weeks. Ran fevers of

102+ and to make a long story short, was miserable. Lost 30 pounds,

and during a check-up later a Mayo Doctor told me that if I hadn't

been a healthy 35 year old, I would have died. The silver lining was

that as sick as I was, my Crohn's didn't flare up. I was taken off

the Remicade, but to kill the infection ended up on an antibiotic for

a year-- it was a fungal infection and it's a lot harder to kill a

fungus than a bacteria. It turned out that I was inly the 4th person

that Mayo Clinic knew about to experience this specific infection

after being on Remicade. That's the short version...

Had my annual Mayo visit and my doctor wants to start me on Humera,

but I'm not very excited, as it also lowers the immune system as a

side-effect of lowering the inflammation in my small intestine. But

in the end I may not have a choice since my CT scan showed a

progression of inflammation but it's less invasive than the other

option of a surgical colon resection. There are other people that

have discontinued Remicade and started Humera, so that's encouraging.

My understanding from living with Crohn's for over a decade is that

Imuran (and Flagyl, etc.) are first line drugs, the if they don't

work to manage the inflammation of a Crohn's or UC then Remicade and

humera are the " big gun " drugs. My case is very unique, if I hadn't

contracted histoplasmosis, I would probably still be on the Remicade.

I've had a pretty good experience at Mayo Clinic, about my only

complaint is that my doctor minimizes when I want to talk about

diet. He thinks it is great that i manage what I eat and that I

research it, but that's about it.

If anyone has to start Remicade or Humera, make sure you talk with

your doctor about what situations you have to avoid that are high

risk for picking up an infection.

My hope, my goal, is that by adding the SCD component to what I'm

already doing, I can at least delay starting the humera. It should

also help that some huge stressors in my life, from the past year

are finally gone, all i will say is that this past year was horrible.

The details would take a couple more paragraphs, too much for now,

but what I can say that my wife and other people that saw my

situation are amazed that I kept going and didn't quit. I personally

think the stress was a big part of my colon inflammation getting worse.

I've taken enough time, hopefully this helps a little.

Be thankful for every day that we have, be thankful for our family

and friends.

Jim Wolf

Checked by

AVG - www.avg.com

Version: 8.5.387 / Virus Database: 270.13.10/2231 - Release Date: 07/11/09

05:57:00

[Guest guest]

It’s not unlikely that you got the histoplasmosis because

you were on Remicade because of its effect on the immune system. I would

strongly urge you to try LDN before agreeing to go on Humira. Humira works

similarly to Remicade. If you’re not familiar with LDN, look at www.lowdosenaltrexone.org There

are a number of people here who use it along with the SCD, and for most people

it works wonders: taken at night it blocks your opioid receptors for three or

four hours, which in turn causes your body to produce many more endorphins

(people with auto-immune disease have low endorphin levels), which in turn

begins to regulate your immune system. (The first thing you’ll likely notice

will be a big boost in energy level.) But don’t expect even doctors at Mayo

clinic to necessarily know much about LDN and thus recommend it.

Do be careful also with drinking stuff like Ensure. It contains

a lot of sugar. Personally, I’m convinced the SCD approach which allows only the

specific carbs in fruit and honey is a far better approach than a diet that allows

more sugars/starches and cuts out fats (a body, especially a sick body, absolutely

need fats, including saturated fats) – and there’s a lot of evidence to back

that up.

n

Crohn’s 30 years, SCD/LDN six months.

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

Wolf

Sent: Friday, July 10, 2009 2:27 PM

To: BTVC-SCD

Subject: Re: IMURAN.... anyone taken it? on it? previously on

it?

As a senior in college I started having intestinal problems, but I

wasn't formally diagnosed I was diagnosed with Crohn's until about a

year later in 1996, and I was on Imuran for a couple years in the

late 1990s to the early 2000s. I am fortunate to only live 2 1/2

hours from Rochester, Minnesota, and was able to start going to Mayo

Clinic at that time. Every summer since 1996 I have my annual review

at Mayo Clinic.

During that time was was having some flares, would run a fever for a

couple days, and get prescribed a short dose of prednisone to help

get it back under control. In August if 2004 I had a bowel

obstruction, and fortunately it was resolved with no surgery, but did

have a hospital stay for a couple days and was on a liquid then soft

diet for about 6 weeks.

After the obstruction, two variables were changed in my life. First,

my GI doctor started me on Remicade (more on Remidace after diet).

Second, I started to research how diet could affect Crohn's (and

other digestive conditions such as ulcerative colitis). I did get

better, but I think it was a combination of both the Remicade and

changing my diet. At that time, my reference was, and still is, The

New Eating Right For a Bad Gut by Scala. Since then, what I've

discovered both from reading the book and trial and error that I have

to manage my diet, much like a diabetic has to manage his or her

diet. When I stick to my safe foods, I'm good. If I eat some foods

that I shouldn't then the next day, it's a bad day with a lot of time

in the bathroom. Scala's diet isn't as strict as the SCD for carbs.

Basically it's staying away from spicy, fatty and other foods that

are difficult for the body to digest. Fish. fish oil and flaxseed

oil are good because of their anti-inflammatory properties. My wife

has arthritis, and is starting to go gluten-free as she thinks she's

gluten sensitive, and I'm starting to read more about SCD so I can

further modify my diet. The other diet strategy I've used is to drink

Ensure (and the cheaper Wal-mart brand Equate) daily as a diet

supplement- this allows me to eat less food and lower the digestive

load on my colon.

On to Remicade, it was working well until I contracted a lung

infection in November of 2007- histoplasmosis (it used to be called

the bird flu) Because of my compromised immune system, it ended up

spreading and going systemic, a " normal " person would have had flu-

like sys-toms for a couple days and been finished . My local

hospital shipped me up to Rochester to Mayo Clinic/St. 's

Hospital, and I was up there for almost three weeks. Ran fevers of

102+ and to make a long story short, was miserable. Lost 30 pounds,

and during a check-up later a Mayo Doctor told me that if I hadn't

been a healthy 35 year old, I would have died. The silver lining was

that as sick as I was, my Crohn's didn't flare up. I was taken off

the Remicade, but to kill the infection ended up on an antibiotic for

a year-- it was a fungal infection and it's a lot harder to kill a

fungus than a bacteria. It turned out that I was inly the 4th person

that Mayo Clinic knew about to experience this specific infection

after being on Remicade. That's the short version...

Had my annual Mayo visit and my doctor wants to start me on Humera,

but I'm not very excited, as it also lowers the immune system as a

side-effect of lowering the inflammation in my small intestine. But

in the end I may not have a choice since my CT scan showed a

progression of inflammation but it's less invasive than the other

option of a surgical colon resection. There are other people that

have discontinued Remicade and started Humera, so that's encouraging.

My understanding from living with Crohn's for over a decade is that

Imuran (and Flagyl, etc.) are first line drugs, the if they don't

work to manage the inflammation of a Crohn's or UC then Remicade and

humera are the " big gun " drugs. My case is very unique, if I hadn't

contracted histoplasmosis, I would probably still be on the Remicade.

I've had a pretty good experience at Mayo Clinic, about my only

complaint is that my doctor minimizes when I want to talk about

diet. He thinks it is great that i manage what I eat and that I

research it, but that's about it.

If anyone has to start Remicade or Humera, make sure you talk with

your doctor about what situations you have to avoid that are high

risk for picking up an infection.

My hope, my goal, is that by adding the SCD component to what I'm

already doing, I can at least delay starting the humera. It should

also help that some huge stressors in my life, from the past year

are finally gone, all i will say is that this past year was horrible.

The details would take a couple more paragraphs, too much for now,

but what I can say that my wife and other people that saw my

situation are amazed that I kept going and didn't quit. I personally

think the stress was a big part of my colon inflammation getting worse.

I've taken enough time, hopefully this helps a little.

Be thankful for every day that we have, be thankful for our family

and friends.

Jim Wolf

Checked by

AVG - www.avg.com

Version: 8.5.387 / Virus Database: 270.13.10/2231 - Release Date: 07/11/09

05:57:00

[Guest guest]

Does anyone know about the long-term affect of LDN on endorphins?  I recently read about crack addicts who experience high levels of endorphins but eventually feel nothing...

 

Thanks, I'm still reading the group emails for LDN.  Still afraid to try it after the VSL incident.

 

Debbie 40 cd

It’s not unlikely that you got the histoplasmosis because you were on Remicade because of its effect on the immune system. I would strongly urge you to try LDN before agreeing to go on Humira. Humira works similarly to Remicade. If you’re not familiar with LDN, look at www.lowdosenaltrexone.org   There are a number of people here who use it along with the SCD, and for most people it works wonders: taken at night it blocks your opioid receptors for three or four hours, which in turn causes your body to produce many more endorphins (people with auto-immune disease have low endorphin levels), which in turn begins to regulate your immune system. (The first thing you’ll likely notice will be a big boost in energy level.) But don’t expect even doctors at Mayo clinic to necessarily know much about LDN and thus recommend it.

 

Do be careful also with drinking stuff like Ensure. It contains a lot of sugar. Personally, I’m convinced the SCD approach which allows only the specific carbs in fruit and honey is a far better approach than a diet that allows more sugars/starches and cuts out fats (a body, especially a sick body, absolutely need fats, including saturated fats) – and there’s a lot of evidence to back that up.

 

n

Crohn’s 30 years, SCD/LDN six months.

 

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Wolf

Sent: Friday, July 10, 2009 2:27 PMTo: BTVC-SCD Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

As a senior in college I started having intestinal problems, but I wasn't formally diagnosed I was diagnosed with Crohn's until about a year later in 1996, and I was on Imuran for a couple years in the

late 1990s to the early 2000s. I am fortunate to only live 2 1/2 hours from Rochester, Minnesota, and was able to start going to Mayo Clinic at that time. Every summer since 1996 I have my annual review at Mayo Clinic.

During that time was was having some flares, would run a fever for a couple days, and get prescribed a short dose of prednisone to help get it back under control. In August if 2004 I had a bowel obstruction, and fortunately it was resolved with no surgery, but did

have a hospital stay for a couple days and was on a liquid then soft diet for about 6 weeks.After the obstruction, two variables were changed in my life. First, my GI doctor started me on Remicade (more on Remidace after diet).

Second, I started to research how diet could affect Crohn's (and other digestive conditions such as ulcerative colitis). I did get better, but I think it was a combination of both the Remicade and changing my diet. At that time, my reference was, and still is, The

New Eating Right For a Bad Gut by Scala. Since then, what I've discovered both from reading the book and trial and error that I have to manage my diet, much like a diabetic has to manage his or her diet. When I stick to my safe foods, I'm good. If I eat some foods

that I shouldn't then the next day, it's a bad day with a lot of time in the bathroom. Scala's diet isn't as strict as the SCD for carbs. Basically it's staying away from spicy, fatty and other foods that

are difficult for the body to digest. Fish. fish oil and flaxseed oil are good because of their anti-inflammatory properties. My wife has arthritis, and is starting to go gluten-free as she thinks she's gluten sensitive, and I'm starting to read more about SCD so I can

further modify my diet. The other diet strategy I've used is to drink Ensure (and the cheaper Wal-mart brand Equate) daily as a diet supplement- this allows me to eat less food and lower the digestive load on my colon.

On to Remicade, it was working well until I contracted a lung infection in November of 2007- histoplasmosis (it used to be called the bird flu) Because of my compromised immune system, it ended up spreading and going systemic, a " normal " person would have had flu-

like sys-toms for a couple days and been finished . My local hospital shipped me up to Rochester to Mayo Clinic/St. 's Hospital, and I was up there for almost three weeks. Ran fevers of 102+ and to make a long story short, was miserable. Lost 30 pounds,

and during a check-up later a Mayo Doctor told me that if I hadn't been a healthy 35 year old, I would have died. The silver lining was that as sick as I was, my Crohn's didn't flare up. I was taken off

the Remicade, but to kill the infection ended up on an antibiotic for a year-- it was a fungal infection and it's a lot harder to kill a fungus than a bacteria. It turned out that I was inly the 4th person

that Mayo Clinic knew about to experience this specific infection after being on Remicade. That's the short version...:)Had my annual Mayo visit and my doctor wants to start me on Humera, but I'm not very excited, as it also lowers the immune system as a

side-effect of lowering the inflammation in my small intestine. But in the end I may not have a choice since my CT scan showed a progression of inflammation but it's less invasive than the other option of a surgical colon resection. There are other people that

have discontinued Remicade and started Humera, so that's encouraging.My understanding from living with Crohn's for over a decade is that Imuran (and Flagyl, etc.) are first line drugs, the if they don't

work to manage the inflammation of a Crohn's or UC then Remicade and humera are the " big gun " drugs. My case is very unique, if I hadn't contracted histoplasmosis, I would probably still be on the Remicade.

I've had a pretty good experience at Mayo Clinic, about my only complaint is that my doctor minimizes when I want to talk about diet. He thinks it is great that i manage what I eat and that I research it, but that's about it.

If anyone has to start Remicade or Humera, make sure you talk with your doctor about what situations you have to avoid that are high risk for picking up an infection.My hope, my goal, is that by adding the SCD component to what I'm

already doing, I can at least delay starting the humera. It should also help that some huge stressors in my life, from the past year are finally gone, all i will say is that this past year was horrible. The details would take a couple more paragraphs, too much for now,

but what I can say that my wife and other people that saw my situation are amazed that I kept going and didn't quit. I personally think the stress was a big part of my colon inflammation getting worse.

I've taken enough time, hopefully this helps a little.Be thankful for every day that we have, be thankful for our family and friends.Jim Wolf

Checked by AVG - www.avg.comVersion: 8.5.387 / Virus Database: 270.13.10/2231 - Release Date: 07/11/09 05:57:00

[Guest guest]

Does anyone know about the long-term affect of LDN on endorphins?  I recently read about crack addicts who experience high levels of endorphins but eventually feel nothing...

 

Thanks, I'm still reading the group emails for LDN.  Still afraid to try it after the VSL incident.

 

Debbie 40 cd

It’s not unlikely that you got the histoplasmosis because you were on Remicade because of its effect on the immune system. I would strongly urge you to try LDN before agreeing to go on Humira. Humira works similarly to Remicade. If you’re not familiar with LDN, look at www.lowdosenaltrexone.org   There are a number of people here who use it along with the SCD, and for most people it works wonders: taken at night it blocks your opioid receptors for three or four hours, which in turn causes your body to produce many more endorphins (people with auto-immune disease have low endorphin levels), which in turn begins to regulate your immune system. (The first thing you’ll likely notice will be a big boost in energy level.) But don’t expect even doctors at Mayo clinic to necessarily know much about LDN and thus recommend it.

 

Do be careful also with drinking stuff like Ensure. It contains a lot of sugar. Personally, I’m convinced the SCD approach which allows only the specific carbs in fruit and honey is a far better approach than a diet that allows more sugars/starches and cuts out fats (a body, especially a sick body, absolutely need fats, including saturated fats) – and there’s a lot of evidence to back that up.

 

n

Crohn’s 30 years, SCD/LDN six months.

 

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Wolf

Sent: Friday, July 10, 2009 2:27 PMTo: BTVC-SCD Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

As a senior in college I started having intestinal problems, but I wasn't formally diagnosed I was diagnosed with Crohn's until about a year later in 1996, and I was on Imuran for a couple years in the

late 1990s to the early 2000s. I am fortunate to only live 2 1/2 hours from Rochester, Minnesota, and was able to start going to Mayo Clinic at that time. Every summer since 1996 I have my annual review at Mayo Clinic.

During that time was was having some flares, would run a fever for a couple days, and get prescribed a short dose of prednisone to help get it back under control. In August if 2004 I had a bowel obstruction, and fortunately it was resolved with no surgery, but did

have a hospital stay for a couple days and was on a liquid then soft diet for about 6 weeks.After the obstruction, two variables were changed in my life. First, my GI doctor started me on Remicade (more on Remidace after diet).

Second, I started to research how diet could affect Crohn's (and other digestive conditions such as ulcerative colitis). I did get better, but I think it was a combination of both the Remicade and changing my diet. At that time, my reference was, and still is, The

New Eating Right For a Bad Gut by Scala. Since then, what I've discovered both from reading the book and trial and error that I have to manage my diet, much like a diabetic has to manage his or her diet. When I stick to my safe foods, I'm good. If I eat some foods

that I shouldn't then the next day, it's a bad day with a lot of time in the bathroom. Scala's diet isn't as strict as the SCD for carbs. Basically it's staying away from spicy, fatty and other foods that

are difficult for the body to digest. Fish. fish oil and flaxseed oil are good because of their anti-inflammatory properties. My wife has arthritis, and is starting to go gluten-free as she thinks she's gluten sensitive, and I'm starting to read more about SCD so I can

further modify my diet. The other diet strategy I've used is to drink Ensure (and the cheaper Wal-mart brand Equate) daily as a diet supplement- this allows me to eat less food and lower the digestive load on my colon.

On to Remicade, it was working well until I contracted a lung infection in November of 2007- histoplasmosis (it used to be called the bird flu) Because of my compromised immune system, it ended up spreading and going systemic, a " normal " person would have had flu-

like sys-toms for a couple days and been finished . My local hospital shipped me up to Rochester to Mayo Clinic/St. 's Hospital, and I was up there for almost three weeks. Ran fevers of 102+ and to make a long story short, was miserable. Lost 30 pounds,

and during a check-up later a Mayo Doctor told me that if I hadn't been a healthy 35 year old, I would have died. The silver lining was that as sick as I was, my Crohn's didn't flare up. I was taken off

the Remicade, but to kill the infection ended up on an antibiotic for a year-- it was a fungal infection and it's a lot harder to kill a fungus than a bacteria. It turned out that I was inly the 4th person

that Mayo Clinic knew about to experience this specific infection after being on Remicade. That's the short version...:)Had my annual Mayo visit and my doctor wants to start me on Humera, but I'm not very excited, as it also lowers the immune system as a

side-effect of lowering the inflammation in my small intestine. But in the end I may not have a choice since my CT scan showed a progression of inflammation but it's less invasive than the other option of a surgical colon resection. There are other people that

have discontinued Remicade and started Humera, so that's encouraging.My understanding from living with Crohn's for over a decade is that Imuran (and Flagyl, etc.) are first line drugs, the if they don't

work to manage the inflammation of a Crohn's or UC then Remicade and humera are the " big gun " drugs. My case is very unique, if I hadn't contracted histoplasmosis, I would probably still be on the Remicade.

I've had a pretty good experience at Mayo Clinic, about my only complaint is that my doctor minimizes when I want to talk about diet. He thinks it is great that i manage what I eat and that I research it, but that's about it.

If anyone has to start Remicade or Humera, make sure you talk with your doctor about what situations you have to avoid that are high risk for picking up an infection.My hope, my goal, is that by adding the SCD component to what I'm

already doing, I can at least delay starting the humera. It should also help that some huge stressors in my life, from the past year are finally gone, all i will say is that this past year was horrible. The details would take a couple more paragraphs, too much for now,

but what I can say that my wife and other people that saw my situation are amazed that I kept going and didn't quit. I personally think the stress was a big part of my colon inflammation getting worse.

I've taken enough time, hopefully this helps a little.Be thankful for every day that we have, be thankful for our family and friends.Jim Wolf

Checked by AVG - www.avg.comVersion: 8.5.387 / Virus Database: 270.13.10/2231 - Release Date: 07/11/09 05:57:00

[Guest guest]

Does anyone know about the long-term affect of LDN on endorphins?  I recently read about crack addicts who experience high levels of endorphins but eventually feel nothing...

 

Thanks, I'm still reading the group emails for LDN.  Still afraid to try it after the VSL incident.

 

Debbie 40 cd

It’s not unlikely that you got the histoplasmosis because you were on Remicade because of its effect on the immune system. I would strongly urge you to try LDN before agreeing to go on Humira. Humira works similarly to Remicade. If you’re not familiar with LDN, look at www.lowdosenaltrexone.org   There are a number of people here who use it along with the SCD, and for most people it works wonders: taken at night it blocks your opioid receptors for three or four hours, which in turn causes your body to produce many more endorphins (people with auto-immune disease have low endorphin levels), which in turn begins to regulate your immune system. (The first thing you’ll likely notice will be a big boost in energy level.) But don’t expect even doctors at Mayo clinic to necessarily know much about LDN and thus recommend it.

 

Do be careful also with drinking stuff like Ensure. It contains a lot of sugar. Personally, I’m convinced the SCD approach which allows only the specific carbs in fruit and honey is a far better approach than a diet that allows more sugars/starches and cuts out fats (a body, especially a sick body, absolutely need fats, including saturated fats) – and there’s a lot of evidence to back that up.

 

n

Crohn’s 30 years, SCD/LDN six months.

 

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Wolf

Sent: Friday, July 10, 2009 2:27 PMTo: BTVC-SCD Subject: Re: IMURAN.... anyone taken it? on it? previously on it?

As a senior in college I started having intestinal problems, but I wasn't formally diagnosed I was diagnosed with Crohn's until about a year later in 1996, and I was on Imuran for a couple years in the

late 1990s to the early 2000s. I am fortunate to only live 2 1/2 hours from Rochester, Minnesota, and was able to start going to Mayo Clinic at that time. Every summer since 1996 I have my annual review at Mayo Clinic.

During that time was was having some flares, would run a fever for a couple days, and get prescribed a short dose of prednisone to help get it back under control. In August if 2004 I had a bowel obstruction, and fortunately it was resolved with no surgery, but did

have a hospital stay for a couple days and was on a liquid then soft diet for about 6 weeks.After the obstruction, two variables were changed in my life. First, my GI doctor started me on Remicade (more on Remidace after diet).

Second, I started to research how diet could affect Crohn's (and other digestive conditions such as ulcerative colitis). I did get better, but I think it was a combination of both the Remicade and changing my diet. At that time, my reference was, and still is, The

New Eating Right For a Bad Gut by Scala. Since then, what I've discovered both from reading the book and trial and error that I have to manage my diet, much like a diabetic has to manage his or her diet. When I stick to my safe foods, I'm good. If I eat some foods

that I shouldn't then the next day, it's a bad day with a lot of time in the bathroom. Scala's diet isn't as strict as the SCD for carbs. Basically it's staying away from spicy, fatty and other foods that

are difficult for the body to digest. Fish. fish oil and flaxseed oil are good because of their anti-inflammatory properties. My wife has arthritis, and is starting to go gluten-free as she thinks she's gluten sensitive, and I'm starting to read more about SCD so I can

further modify my diet. The other diet strategy I've used is to drink Ensure (and the cheaper Wal-mart brand Equate) daily as a diet supplement- this allows me to eat less food and lower the digestive load on my colon.

On to Remicade, it was working well until I contracted a lung infection in November of 2007- histoplasmosis (it used to be called the bird flu) Because of my compromised immune system, it ended up spreading and going systemic, a " normal " person would have had flu-

like sys-toms for a couple days and been finished . My local hospital shipped me up to Rochester to Mayo Clinic/St. 's Hospital, and I was up there for almost three weeks. Ran fevers of 102+ and to make a long story short, was miserable. Lost 30 pounds,

and during a check-up later a Mayo Doctor told me that if I hadn't been a healthy 35 year old, I would have died. The silver lining was that as sick as I was, my Crohn's didn't flare up. I was taken off

the Remicade, but to kill the infection ended up on an antibiotic for a year-- it was a fungal infection and it's a lot harder to kill a fungus than a bacteria. It turned out that I was inly the 4th person

that Mayo Clinic knew about to experience this specific infection after being on Remicade. That's the short version...:)Had my annual Mayo visit and my doctor wants to start me on Humera, but I'm not very excited, as it also lowers the immune system as a

side-effect of lowering the inflammation in my small intestine. But in the end I may not have a choice since my CT scan showed a progression of inflammation but it's less invasive than the other option of a surgical colon resection. There are other people that

have discontinued Remicade and started Humera, so that's encouraging.My understanding from living with Crohn's for over a decade is that Imuran (and Flagyl, etc.) are first line drugs, the if they don't

work to manage the inflammation of a Crohn's or UC then Remicade and humera are the " big gun " drugs. My case is very unique, if I hadn't contracted histoplasmosis, I would probably still be on the Remicade.

I've had a pretty good experience at Mayo Clinic, about my only complaint is that my doctor minimizes when I want to talk about diet. He thinks it is great that i manage what I eat and that I research it, but that's about it.

If anyone has to start Remicade or Humera, make sure you talk with your doctor about what situations you have to avoid that are high risk for picking up an infection.My hope, my goal, is that by adding the SCD component to what I'm

already doing, I can at least delay starting the humera. It should also help that some huge stressors in my life, from the past year are finally gone, all i will say is that this past year was horrible. The details would take a couple more paragraphs, too much for now,

but what I can say that my wife and other people that saw my situation are amazed that I kept going and didn't quit. I personally think the stress was a big part of my colon inflammation getting worse.

I've taken enough time, hopefully this helps a little.Be thankful for every day that we have, be thankful for our family and friends.Jim Wolf

Checked by AVG - www.avg.comVersion: 8.5.387 / Virus Database: 270.13.10/2231 - Release Date: 07/11/09 05:57:00

[Guest guest]

>

>

> Does anyone know about the long-term affect of LDN on endorphins?

Ask on the list. I assume Dr. Bihari probably knows the most - since

he's

old now and was one of its pioneers and he's the one who has everyone

who works in his office using it, because he thinks its great for

everyone

to maximize health, even " well " people.

> I recently read about crack addicts who experience high levels of

> endorphins but eventually feel nothing...

Yeah - but its not crack.

Crack is an opiod. LDN is an opiod antagonist.

So its completely the opposite biochemical mechanism.

And as n Van Til

pointed out last week, LDN helps add endorphin receptors,

it doesn't take them away or damage them or make them less

efficacious the way crack does.

>

> Thanks, I'm still reading the group emails for LDN.

> Still afraid to try it after the VSL incident.

Don't remember what you are referring to here.

I used VSL - I don't know that it had that much

effect one way or another. But I suppose if it

had an effect on you, it was the strains of bifidus.

But LDN is the best thing for balancing gut

ecology I've ever tried, got to say.

Gut ecology - now all balanced.

Mara

[Guest guest]

>

>

> Does anyone know about the long-term affect of LDN on endorphins?

Ask on the list. I assume Dr. Bihari probably knows the most - since

he's

old now and was one of its pioneers and he's the one who has everyone

who works in his office using it, because he thinks its great for

everyone

to maximize health, even " well " people.

> I recently read about crack addicts who experience high levels of

> endorphins but eventually feel nothing...

Yeah - but its not crack.

Crack is an opiod. LDN is an opiod antagonist.

So its completely the opposite biochemical mechanism.

And as n Van Til

pointed out last week, LDN helps add endorphin receptors,

it doesn't take them away or damage them or make them less

efficacious the way crack does.

>

> Thanks, I'm still reading the group emails for LDN.

> Still afraid to try it after the VSL incident.

Don't remember what you are referring to here.

I used VSL - I don't know that it had that much

effect one way or another. But I suppose if it

had an effect on you, it was the strains of bifidus.

But LDN is the best thing for balancing gut

ecology I've ever tried, got to say.

Gut ecology - now all balanced.

Mara

[Guest guest]

>

>

> Does anyone know about the long-term affect of LDN on endorphins?

Ask on the list. I assume Dr. Bihari probably knows the most - since

he's

old now and was one of its pioneers and he's the one who has everyone

who works in his office using it, because he thinks its great for

everyone

to maximize health, even " well " people.

> I recently read about crack addicts who experience high levels of

> endorphins but eventually feel nothing...

Yeah - but its not crack.

Crack is an opiod. LDN is an opiod antagonist.

So its completely the opposite biochemical mechanism.

And as n Van Til

pointed out last week, LDN helps add endorphin receptors,

it doesn't take them away or damage them or make them less

efficacious the way crack does.

>

> Thanks, I'm still reading the group emails for LDN.

> Still afraid to try it after the VSL incident.

Don't remember what you are referring to here.

I used VSL - I don't know that it had that much

effect one way or another. But I suppose if it

had an effect on you, it was the strains of bifidus.

But LDN is the best thing for balancing gut

ecology I've ever tried, got to say.

Gut ecology - now all balanced.

Mara