Re: Normal colonoscopy after 4 years on SCD for UC

[Guest guest]

Kylie, That is such great news. And look how confident you were to not even get the results for awhile. Thanks for sharing your news, it's always a great encouragement for people. Katy

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[Guest guest]

Hey Kylie,

RIGHT ON! What a fantastic post to read 'top of the mornin'

Thank you for this and showing that we must stick with it!

Jodi

[Guest guest]

Thank you for this wonderful news. To your doctor's defense- he really can't

advocate for something that has not had large formal clinical trials.

Regardless, he must have been impressed.

I think WE are the clinical trial here, and with the internet it is hard to

ignore the number of people who feel well on SCD. I still support following the

doctors' advice with medication, and it will probably remain a very personal

choice to not take them, as doctors can not take liability for that choice at

this time.

It is the large numbers of people doing well on SCD that got my attention,and I

am happy for your success.

PJ

>

> Hello all, I haven't visited this site for a while but wanted to let you know

that I had a colonoscopy a couple of months ago and recently finally got around

to going to the Doctor to get my biopsy results. All my results were clear and

normal, there was no sign of UC.

>

> It took me about 3 to 4 years on SCD to get to this stage, and there were some

very big ups and downs including a big flare about 2 years into the diet which

required me to use prednisolone for the first time. I persevered because I could

feel in myself that I was better on the diet than off. I am continuing with the

diet and will do so for a long time before I am brave enough to do any

experimenting. I am also continuing to take a very low dose of Colazide (2

capsules) as some extra insurance, on my Doctor's recommendation.

>

> My quality of life is normal, I enjoy my food and am extremely thankful that I

found the SCD. My only frustration is that during my Doctor's consult he advised

me that SCD might improve inco-ordination of the bowel but does not work on the

inflammation. It seems my clean colonoscopy is not enough proof for a Dr - only

a clinical study would be.

>

> Kylie

> UC 6 yrs

> SCD 4 yrs

>

[Guest guest]

Thank you for this wonderful news. To your doctor's defense- he really can't

advocate for something that has not had large formal clinical trials.

Regardless, he must have been impressed.

I think WE are the clinical trial here, and with the internet it is hard to

ignore the number of people who feel well on SCD. I still support following the

doctors' advice with medication, and it will probably remain a very personal

choice to not take them, as doctors can not take liability for that choice at

this time.

It is the large numbers of people doing well on SCD that got my attention,and I

am happy for your success.

PJ

>

> Hello all, I haven't visited this site for a while but wanted to let you know

that I had a colonoscopy a couple of months ago and recently finally got around

to going to the Doctor to get my biopsy results. All my results were clear and

normal, there was no sign of UC.

>

> It took me about 3 to 4 years on SCD to get to this stage, and there were some

very big ups and downs including a big flare about 2 years into the diet which

required me to use prednisolone for the first time. I persevered because I could

feel in myself that I was better on the diet than off. I am continuing with the

diet and will do so for a long time before I am brave enough to do any

experimenting. I am also continuing to take a very low dose of Colazide (2

capsules) as some extra insurance, on my Doctor's recommendation.

>

> My quality of life is normal, I enjoy my food and am extremely thankful that I

found the SCD. My only frustration is that during my Doctor's consult he advised

me that SCD might improve inco-ordination of the bowel but does not work on the

inflammation. It seems my clean colonoscopy is not enough proof for a Dr - only

a clinical study would be.

>

> Kylie

> UC 6 yrs

> SCD 4 yrs

>