Re: Does anyone know of a helpful doctor in Florida?

[Guest guest]

Hi Kristy, the problem is you may not know your body as well as you think. I would recommend an excellent pelvic floor PT anyday over a physiatrist that you don't really know. Have you ever looked into Molly ? I'm not sure where in Florida she is. And why are you so fearful of internal. Most of us who dreaded internal work actually felt better after internal PT. Then, of course, the big flair after the first PT session, but those get fewer and farther between. Have you ever had a biofeedback reading on your PF?Kristy Sokoloski wrote: Molly,I do strongly believe that if I do have muscle issues it'sbecause of the surgery to the labia minora which makes sense.What I can't figure out is how would removing a piece of excessskin from the labia minora could affect the pelvic floormuscles. This piece of skin was super long before I had itremoved. I had it removed because we were afraid the skin wasgoing to rip off (which I wished I had let it rip off on its ownor I wouldn't be dealing with vulvodynia). Because of thelength of the skin and where the doctor cut I don't understandis how that would have affected the pelvic floor muscles unlessit had to do with the same reason that the surgery gave me thenerve damage: the use of a retractor.Now that could make some sense. Hmm, I'll have to think moreabout that as far as a

connection. Thanks for that info.I do have the name of a PT here in ville that I can giveto that works on these issues if would like totalk to her. This lady was very nice and told me when I talkedto her several years ago that if I did want to do this she wouldrespect my wish to stay external, but after talking to myrheumatologist because of my unusual situation and being limitedto what I can and can't do and when can on how to do it heagreed with my thought that a physiatrist would be a betterchoice especially since the nerves are coming in to play as theyare.And when my Pain Management doctor felt around my back it setoff a lot of nerves because of how low my pain threshold is ingeneral.It's all very interesting. Just wish I didn't have such anunusual situation going on along with knowing my body so well(which I know can sometimes drive my doctors crazy too but

theyunderstand well about that which is one reason I love them somuch, especially my gyn).Thanks a lot Molly.Kristy __________________________________________________

[Guest guest]

Hi Kristy, the problem is you may not know your body as well as you think. I would recommend an excellent pelvic floor PT anyday over a physiatrist that you don't really know. Have you ever looked into Molly ? I'm not sure where in Florida she is. And why are you so fearful of internal. Most of us who dreaded internal work actually felt better after internal PT. Then, of course, the big flair after the first PT session, but those get fewer and farther between. Have you ever had a biofeedback reading on your PF?Kristy Sokoloski wrote: Molly,I do strongly believe that if I do have muscle issues it'sbecause of the surgery to the labia minora which makes sense.What I can't figure out is how would removing a piece of excessskin from the labia minora could affect the pelvic floormuscles. This piece of skin was super long before I had itremoved. I had it removed because we were afraid the skin wasgoing to rip off (which I wished I had let it rip off on its ownor I wouldn't be dealing with vulvodynia). Because of thelength of the skin and where the doctor cut I don't understandis how that would have affected the pelvic floor muscles unlessit had to do with the same reason that the surgery gave me thenerve damage: the use of a retractor.Now that could make some sense. Hmm, I'll have to think moreabout that as far as a

connection. Thanks for that info.I do have the name of a PT here in ville that I can giveto that works on these issues if would like totalk to her. This lady was very nice and told me when I talkedto her several years ago that if I did want to do this she wouldrespect my wish to stay external, but after talking to myrheumatologist because of my unusual situation and being limitedto what I can and can't do and when can on how to do it heagreed with my thought that a physiatrist would be a betterchoice especially since the nerves are coming in to play as theyare.And when my Pain Management doctor felt around my back it setoff a lot of nerves because of how low my pain threshold is ingeneral.It's all very interesting. Just wish I didn't have such anunusual situation going on along with knowing my body so well(which I know can sometimes drive my doctors crazy too but

theyunderstand well about that which is one reason I love them somuch, especially my gyn).Thanks a lot Molly.Kristy __________________________________________________

[Guest guest]

I went to a great Dr. in Orlando ,Fl. at the Florida Hospital. His name is Dr. Lane Mercer...he is with the advanced gyn groop and he does have a therapist there. I didnt go to her b/c my insurance would not cover it. He might even be able to explain wether or not there is nerve damage going on. He was great...actaully am 99% pain free now. If you would like more info please email me direct. good luck!! Doll_fin1977@...molly ring wrote: Hi Kristy, the

problem is you may not know your body as well as you think. I would recommend an excellent pelvic floor PT anyday over a physiatrist that you don't really know. Have you ever looked into Molly ? I'm not sure where in Florida she is. And why are you so fearful of internal. Most of us who dreaded internal work actually felt better after internal PT. Then, of course, the big flair after the first PT session, but those get fewer and farther between. Have you ever had a biofeedback reading on your PF?Kristy Sokoloski <sokokl (AT) yahoo (DOT) com> wrote: Molly,I do strongly believe that if I do have muscle issues it'sbecause of the surgery to the labia minora which makes sense.What I can't figure out is how would removing a piece of excessskin from the labia minora

could affect the pelvic floormuscles. This piece of skin was super long before I had itremoved. I had it removed because we were afraid the skin wasgoing to rip off (which I wished I had let it rip off on its ownor I wouldn't be dealing with vulvodynia). Because of thelength of the skin and where the doctor cut I don't understandis how that would have affected the pelvic floor muscles unlessit had to do with the same reason that the surgery gave me thenerve damage: the use of a retractor.Now that could make some sense. Hmm, I'll have to think moreabout that as far as a connection. Thanks for that info.I do have the name of a PT here in ville that I can giveto that works on these issues if would like totalk to her. This lady was very nice and told me when I talkedto her several years ago that if I did want to do this she wouldrespect my wish to stay external, but after talking to

myrheumatologist because of my unusual situation and being limitedto what I can and can't do and when can on how to do it heagreed with my thought that a physiatrist would be a betterchoice especially since the nerves are coming in to play as theyare.And when my Pain Management doctor felt around my back it setoff a lot of nerves because of how low my pain threshold is ingeneral.It's all very interesting. Just wish I didn't have such anunusual situation going on along with knowing my body so well(which I know can sometimes drive my doctors crazy too but theyunderstand well about that which is one reason I love them somuch, especially my gyn).Thanks a lot Molly.Kristy __________________________________________________

[Guest guest]

Molly,

I would rather go to a physiatrist. And my rheumatologist

agrees with me that this would be a better choice for me.

If you want to know why I won't let a PT do internal work on me

please e-mail me off list. When I said I have an opinion about

PTs that do internal work but would keep it to myself that was

to let everyone know that if they want to know they can e-mail

me off list.

I already have the name of someone here in my hometown that will

work with me if I want to do that and respect my wishes to stay

external only if I go to her.

And yes, I know my body very, very well. I know everything

about what it's telling me. Which is why you may have given me

a clue to the issue of my bowel which I will know when I can get

rid of the hemorrhoid.

Kristy

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[Guest guest]

I would not let any PT do internal work on me because I am sure it would hurt

hurt hurt. I surely do know my body that well.

Ora

On Tue, 30 Oct 2007 00:04:37 -0700 (PDT), Kristy Sokoloski

wrote:

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>If you want to know why I won't let a PT do internal work on me

>please e-mail me off list. When I said I have an opinion about

>PTs that do internal work but would keep it to myself that was

>to let everyone know that if they want to know they can e-mail

>me off list.

>Kristy

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