Re: Jeannie- I am new to the group

[Guest guest]

Welcome Jeannie,I'm glad you have found us. While there is a lot of stress right now in the group, we are all here for each other with support and prayers.It isn't always this intense. We always welcome new members and are happy to start answering their questions.I see that several people have answered you concerning the eye infections.You can find out a lot more about PSC issues through PSC Partners Seeking a Cure.www.pscpartners.orgThere is a FAQ section , free back issues of our newsletters, links to other helpful sites like Dave's literature site, and also information onour fundraising efforts to support research for better treatment of PSC.As several of our members are critically ill right now, I work harder on the fundraising. I want to help keep as many members here as possible from needing a future liver transplant. Transplantation is not the answer, preventing needing one is. That's my feeling anyway.Until we have that new treatment, we need to promote organ donation so that transplantation continues to save our members.I hope my son and your husband have the time we need for research to help.Hang in there with us, together in the fight , whatever it takes!Lee mother of Bill 24 PSC/UC/ J-pouchMy name is Jean and my husband Owen was diagnosed with PSC last October.   I have been reading your posts on and off for months.  I feel like I know many of you now so I decided I better get on here and introduce myself.   With what has been happening recently in the group with Ken, and others,