Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 I'm wondering how many of you have cfs/fms? ...I have been there, believe me, and there absolutely is hope. I think what would help us is if you tell us what your onset was (did you always have v-pain or did something trigger it?) and what is it like? I assume from your email it is all the time, not contact only. I totally understand if you don't want to say what your other condition is, but there may be a clue there. I suffer from chronic headaches (controlled with medication) and had a horrible, 3 year chronic fatigue-type illness. I'm convinced these problems and my v-pain are related somehow. I recovered from the CFS and my vpain is at the occasional nuisance level now where it once was a 24/7 nightmare. So have hope and tell us a little more... Lia> > i think the title explains it all> > basically, I've been going to physical therapy for vestibulitis for> about 3 months now. the pain is excruciating and towards the end of > the session Im shaky and and slightly nauseous. I'm supposed to go> back to my other doctor at the Rush center for pevic pain/disorders on> Monday to see if i can get Elavil or neurotin (sp?) to help with the pain.> > everything just seems like its too much to handle. at the moment I'm> scheduled to graduate from college in a couple months, I'm working,> I'm trying to loose weight (and failing horribly at it) and I already> have 2 other conditions to worry about, one thats horribly> embarrassing, and the other no ones heard of and it causes me a lot of> pain every day.> > I've been sifting through success stories from everyone but i just > don't know what to do or where to start. I'm just so busy and annoyed> and angry at myself that I feel like I'm going to explode! I try> following restrictive diets, but i just can't: one food thats good for> one condition is bad for another!!! I've seen different doctors, both> in and out of my moms insurance network and its costing a fortune and> nothing is helping.> > on top of that I'm afraid to meet anyone new. my past relationships > have gone really wrong. I've got so much going on that I think I would> send any respectable guy running away from me screaming. > > honestly i just want to sleep all day and all night and just not think> about anything.> > apologies if i seem a bit self centered or narcissistic...i just> counted the number of " I's " I typed....> > GAAAAH#$%#^$@> -katie > -- Visit me at http://www.homekeepermamaof3.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Hi , At a fibromyalgia support group several years ago a lady who had been coming for a long time said that her nutritionist, who turned out to have PHD in Bio Chem told her to stop eating all grains and all dairy products and she wouldn't be sick anymore. She stopped eating it and wasn't sick any more with fibro. I thought she was nutz but was desperate enough to try it and within two weeks there was enough difference in my pain and well being that I knew she was right. About that time I got a computer and looked up " Allergy to grains and dairy " and discovered the autoimmune disease of Celiac and that it wasn't about normal allergy but about autoimmune attacks. I also found out that my particular case of this was subclinical (couldn't be diagnosed by the inadequate blood tests that are dominating the medical system in this area). I found out from a lot of other people in support groups about Enterolab. That website explains for the most part about why the blood tests are painfully inadequate. Other people have explained it now too (very well thought of neurologists). Only twenty per cent of the people with this have any intestinal problems at all. Instead they have autoimmune diseases, neurological problems, (fibromyalgia), and other non diagnosable mysterious complaints (like this huge list of female genital and reproductive complaints for example. It is worth spending a hundred bucks on to have an accurate test. It is worth coming to the end of eating poison (gluten grains and dairy products) even though they taste good. I only ate fresh food, no processed stuff at all, only stuff right out of the ground, off the trees and bushes mostly raw and off the animals without processing. That is gluten free. From there I read as much as I could and now there are some processed foods that I know are gluten free that I can eat. There are listserv support groups and many books about gluten. It is an epidemic about which most of the medical information out there about diagnostics and the accurate true picture is wrong and pitifully incomplete. The docs are pitifully misinformed and uninterested about it but it isn't their fault given the politics and implications of what information is accepted with the people who decide what is what in the world of medicine and who profits. Basically I don't put anything into my mouth that I don't know the contents of. It is poison to me and that important to somebody who is sensitive to gluten. It is a killer. My opinion. Arline --- rachel metzdorf wrote: > Where did you get the diet from? Is it a book? > > > > > > > > > I did forever it seems until I got the gluten > and > > dairy free diet under control. It all went away > like > > magic for me. > > > > Arline > > > > --- rachel metzdorf > <homekeepermamaof3@...<homekeepermamaof3%40gmail.com> > > > > > wrote: > > > > > I'm wondering how many of you have cfs/fms? > > > > > > > > > > > > > > __________________________________________________________ > > Check out the hottest 2008 models today at Yahoo! > Autos. > > http://autos.yahoo.com/new_cars.html > > > > > > > > -- > Visit me at > http://www.homekeepermamaof3.blogspot.com > ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Yahoo! Travel. http://travel.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
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