Carolyn what/who to believe?

[Guest guest]

Carol, did

the doctor say what meds he prescribes? I just don’t think there is a

clear cut answer for this. I know PT made me worse, but for others it has cured

them. Blocks did not work for me, and when I was really dumb about this whole

condition, I thought blocks would cure me, until later I was told they were

only done for diagnostic purposes. But just in the last few months I have heard

of several women who are now pain free from having the blocks. For me surgery

was my last chance, as I was getting visibly worse by the week. There is only

so long someone can go after being confined to bed before they become

desperate. I was at that point, and psychologically I could no longer stand the

pain or the overall mental condition I was in. I have not yet spoken to anyone

as bad as I was – in fact I have several friends who have had (or are

going to have) surgery who are still sitting, driving a car, etc. So it is

really a personal preference on how bad each person thinks they are, and what

they decide is the best thing to do to get relief.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Carolyn52192@...

Sent: Friday, September 21, 2007 6:35 AM

To: VulvarDisorders

Subject: [sPAM] Re: Carolynwhat/who to believe?

Hi nne

Yes the doctor seemed quite nice and knowledgeable, but was just

kind of against everything I was seeking out. He said pt could actually

make one with neuropathic pain worse, which I was bummed about because I

thought perhaps it was my muscles causing these problems and that if I could

get them to stop spasming, I could be well again. Secondly, he told me

the new thought is that pn is caused by a virus and that its like getting

struck with lightening, I thought wow would you figure. Anyway he said

that nerve blocks and surgery are not an option for him, he thinks they are way

to risky and could potentially effect other nerves, this is just what he told

me, who knows?? I was really considering a nerve block and still may. He

said he think meds are the way to go, and if you are symptom free for 6 months

you can taper off them. He said if the mylan around the nerves is what is

causing the problem that can heal and one can get off meds.

Im just so sick of all this right now. I mentioned the

lorazepam to him and how great it works, he said its the class of drug that it

works on the nervous system.

C

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