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Ellen,

Charissa's teeth came in very slowly. I mean this both ways - they started

coming in later than normal and they took forever to get all the way in. Her

last baby tooth (top canine) came in when she was 4 years old! Many of her

permanent teeth started forming years later than normal, some started forming

after they were " supposed " to already be in. She got her last permanent molar

just this past year. She just finished 8 years of orthodontic treatment. We

have an excellent pediatric dentist & orthodontist who communicate well and

often - which is *very* important in complicated cases like this. I wouldn't

worry too much about Hanna's teeth yet - some of her baby teeth could still be

forming.

Charissa's mom (18 yrs, 5 ft. 2 in. 108 lbs., graduate of Protropin and

Periactin)

> Date: Thu, 30 Jan 2003 14:36:06 -0000

>

> Subject: teeth

>

> Hi everyone,

> I don't post very often, but I often have you in my thoughts. My

> daughter, Hanna is now 27 months and for the most part doing very

> well. My question to the group has to do with her teeth. I know

> from past messages that some of the other children have had some

> dental issues, but I was wondering if any of these kids never got

> their teeth. We just took Hanna to her first dental exam and it

> confirmed what we already knew...She is missing 3 of her teeth

> atleast. The 3rd and 4th top and the bottom 4th tooth will never

> come in (not sure about the adult ones, but the way our luck is, I am

> guessing that they are not there either). There is also some doubt

> as to whether or not her 2nd year molars will ever come in, which

> also compound her everlasting feeding problems. We were told that

> there are pediatric implants (which are semi-perm) that she can get

> until she is old enough for implants. She has been very late in

> getting the teeth she has...she didn't start until about 18 months,

> so maybe she is just very delayed in getting the remainder of her

> molars and canines. Anyway, enough of the babbling, I just wanted to

> know if anyone else has experienced this and what you did about it.

>

> Thanks,

> ellen

> mom to Hanna, 27 mos, 22#s

>

>

>

.....................................

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Irene,

Hanna doesn't have very large spaces between her teeth, so I guess it

may turn out to be good that she isn't going to get those 3 teeth.

It all is just very frustrating to us. It seems like we can never

catch a break...just when we get one issue resolved, we have a new

one to tackle and yet another specialist to add to our list. It

would be amazing if something could just go the way it should for

Hanna instead of always being a whole production.

ellen

> > Hi everyone,

> > I don't post very often, but I often have you in my thoughts. My

> > daughter, Hanna is now 27 months and for the most part doing very

> > well. My question to the group has to do with her teeth. I know

> > from past messages that some of the other children have had some

> > dental issues, but I was wondering if any of these kids never got

> > their teeth. We just took Hanna to her first dental exam and it

> > confirmed what we already knew...She is missing 3 of her teeth

> > atleast. The 3rd and 4th top and the bottom 4th tooth will never

> > come in (not sure about the adult ones, but the way our luck is,

I

> am

> > guessing that they are not there either). There is also some

doubt

> > as to whether or not her 2nd year molars will ever come in, which

> > also compound her everlasting feeding problems. We were told

that

> > there are pediatric implants (which are semi-perm) that she can

get

> > until she is old enough for implants. She has been very late in

> > getting the teeth she has...she didn't start until about 18

months,

> > so maybe she is just very delayed in getting the remainder of her

> > molars and canines. Anyway, enough of the babbling, I just

wanted

> to

> > know if anyone else has experienced this and what you did about

it.

> >

> > Thanks,

> > ellen

> > mom to Hanna, 27 mos, 22#s

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Irene,

Hanna doesn't have very large spaces between her teeth, so I guess it

may turn out to be good that she isn't going to get those 3 teeth.

It all is just very frustrating to us. It seems like we can never

catch a break...just when we get one issue resolved, we have a new

one to tackle and yet another specialist to add to our list. It

would be amazing if something could just go the way it should for

Hanna instead of always being a whole production.

ellen

> > Hi everyone,

> > I don't post very often, but I often have you in my thoughts. My

> > daughter, Hanna is now 27 months and for the most part doing very

> > well. My question to the group has to do with her teeth. I know

> > from past messages that some of the other children have had some

> > dental issues, but I was wondering if any of these kids never got

> > their teeth. We just took Hanna to her first dental exam and it

> > confirmed what we already knew...She is missing 3 of her teeth

> > atleast. The 3rd and 4th top and the bottom 4th tooth will never

> > come in (not sure about the adult ones, but the way our luck is,

I

> am

> > guessing that they are not there either). There is also some

doubt

> > as to whether or not her 2nd year molars will ever come in, which

> > also compound her everlasting feeding problems. We were told

that

> > there are pediatric implants (which are semi-perm) that she can

get

> > until she is old enough for implants. She has been very late in

> > getting the teeth she has...she didn't start until about 18

months,

> > so maybe she is just very delayed in getting the remainder of her

> > molars and canines. Anyway, enough of the babbling, I just

wanted

> to

> > know if anyone else has experienced this and what you did about

it.

> >

> > Thanks,

> > ellen

> > mom to Hanna, 27 mos, 22#s

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Irene,

Hanna doesn't have very large spaces between her teeth, so I guess it

may turn out to be good that she isn't going to get those 3 teeth.

It all is just very frustrating to us. It seems like we can never

catch a break...just when we get one issue resolved, we have a new

one to tackle and yet another specialist to add to our list. It

would be amazing if something could just go the way it should for

Hanna instead of always being a whole production.

ellen

> > Hi everyone,

> > I don't post very often, but I often have you in my thoughts. My

> > daughter, Hanna is now 27 months and for the most part doing very

> > well. My question to the group has to do with her teeth. I know

> > from past messages that some of the other children have had some

> > dental issues, but I was wondering if any of these kids never got

> > their teeth. We just took Hanna to her first dental exam and it

> > confirmed what we already knew...She is missing 3 of her teeth

> > atleast. The 3rd and 4th top and the bottom 4th tooth will never

> > come in (not sure about the adult ones, but the way our luck is,

I

> am

> > guessing that they are not there either). There is also some

doubt

> > as to whether or not her 2nd year molars will ever come in, which

> > also compound her everlasting feeding problems. We were told

that

> > there are pediatric implants (which are semi-perm) that she can

get

> > until she is old enough for implants. She has been very late in

> > getting the teeth she has...she didn't start until about 18

months,

> > so maybe she is just very delayed in getting the remainder of her

> > molars and canines. Anyway, enough of the babbling, I just

wanted

> to

> > know if anyone else has experienced this and what you did about

it.

> >

> > Thanks,

> > ellen

> > mom to Hanna, 27 mos, 22#s

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My son's adult teeth are too big for his mouth - he might need surgery to

increase his jaw size... Perhaps the missing teeth are a blessing in disguise!

Inga

At 02:36 PM 1/30/2003 +0000, you wrote:

>Hi everyone,

>I don't post very often, but I often have you in my thoughts. My

>daughter, Hanna is now 27 months and for the most part doing very

>well. My question to the group has to do with her teeth. I know

>from past messages that some of the other children have had some

>dental issues, but I was wondering if any of these kids never got

>their teeth. We just took Hanna to her first dental exam and it

>confirmed what we already knew...She is missing 3 of her teeth

>atleast. The 3rd and 4th top and the bottom 4th tooth will never

>come in (not sure about the adult ones, but the way our luck is, I am

>guessing that they are not there either). There is also some doubt

>as to whether or not her 2nd year molars will ever come in, which

>also compound her everlasting feeding problems. We were told that

>there are pediatric implants (which are semi-perm) that she can get

>until she is old enough for implants. She has been very late in

>getting the teeth she has...she didn't start until about 18 months,

>so maybe she is just very delayed in getting the remainder of her

>molars and canines. Anyway, enough of the babbling, I just wanted to

>know if anyone else has experienced this and what you did about it.

>

>Thanks,

>ellen

>mom to Hanna, 27 mos, 22#s

>

>

>

>

>

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My son's adult teeth are too big for his mouth - he might need surgery to

increase his jaw size... Perhaps the missing teeth are a blessing in disguise!

Inga

At 02:36 PM 1/30/2003 +0000, you wrote:

>Hi everyone,

>I don't post very often, but I often have you in my thoughts. My

>daughter, Hanna is now 27 months and for the most part doing very

>well. My question to the group has to do with her teeth. I know

>from past messages that some of the other children have had some

>dental issues, but I was wondering if any of these kids never got

>their teeth. We just took Hanna to her first dental exam and it

>confirmed what we already knew...She is missing 3 of her teeth

>atleast. The 3rd and 4th top and the bottom 4th tooth will never

>come in (not sure about the adult ones, but the way our luck is, I am

>guessing that they are not there either). There is also some doubt

>as to whether or not her 2nd year molars will ever come in, which

>also compound her everlasting feeding problems. We were told that

>there are pediatric implants (which are semi-perm) that she can get

>until she is old enough for implants. She has been very late in

>getting the teeth she has...she didn't start until about 18 months,

>so maybe she is just very delayed in getting the remainder of her

>molars and canines. Anyway, enough of the babbling, I just wanted to

>know if anyone else has experienced this and what you did about it.

>

>Thanks,

>ellen

>mom to Hanna, 27 mos, 22#s

>

>

>

>

>

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My son's adult teeth are too big for his mouth - he might need surgery to

increase his jaw size... Perhaps the missing teeth are a blessing in disguise!

Inga

At 02:36 PM 1/30/2003 +0000, you wrote:

>Hi everyone,

>I don't post very often, but I often have you in my thoughts. My

>daughter, Hanna is now 27 months and for the most part doing very

>well. My question to the group has to do with her teeth. I know

>from past messages that some of the other children have had some

>dental issues, but I was wondering if any of these kids never got

>their teeth. We just took Hanna to her first dental exam and it

>confirmed what we already knew...She is missing 3 of her teeth

>atleast. The 3rd and 4th top and the bottom 4th tooth will never

>come in (not sure about the adult ones, but the way our luck is, I am

>guessing that they are not there either). There is also some doubt

>as to whether or not her 2nd year molars will ever come in, which

>also compound her everlasting feeding problems. We were told that

>there are pediatric implants (which are semi-perm) that she can get

>until she is old enough for implants. She has been very late in

>getting the teeth she has...she didn't start until about 18 months,

>so maybe she is just very delayed in getting the remainder of her

>molars and canines. Anyway, enough of the babbling, I just wanted to

>know if anyone else has experienced this and what you did about it.

>

>Thanks,

>ellen

>mom to Hanna, 27 mos, 22#s

>

>

>

>

>

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  • 1 year later...
Guest guest

That's interesting! I have pre osteoporosis (osteopenia) and I

should be @ peak bone mass or still building. Maybe thats another

factor all together!

-Rhea

> In a message dated 4/13/04 8:31:57 PM, Rhea writes:

>

> > Are teeth involved in EDS 3 or classical EDS (ie anything other

than

> > periodental eds)?

> >

> There's also the issue of osteoporosis....I think in my case that's

what's

> causing my teeth to crumble, little by little....(I've lost four

pieces in the

> last couple weeks)...

>

>

>

>

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Guest guest

That's interesting! I have pre osteoporosis (osteopenia) and I

should be @ peak bone mass or still building. Maybe thats another

factor all together!

-Rhea

> In a message dated 4/13/04 8:31:57 PM, Rhea writes:

>

> > Are teeth involved in EDS 3 or classical EDS (ie anything other

than

> > periodental eds)?

> >

> There's also the issue of osteoporosis....I think in my case that's

what's

> causing my teeth to crumble, little by little....(I've lost four

pieces in the

> last couple weeks)...

>

>

>

>

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  • 3 years later...
Guest guest

Thanks for the information. I found bio-identical dentists to be

extremely expensive. I have had some success in arming myself with

information to non bio-identical dentists and seeing if they will work

with me. I will take your information and see if he is willing to use

Belleglass and Holistore instead of pure porcelin. However, if that is

not possible, is plain porcelin a second-best alternative? I am just

trying to go in with plan A and plan B. Thanks again

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